pain

357: My Pain Conditions

| Aspergers Girls

I don’t often talk or write about my physical pain, mostly because pain does not define me as a person. Currently, I have several pain conditions. I suffer more in the winter months and do amazingly well in the summer. Sometimes I can get hit with flare ups from multiple conditions all at the same time, typically around my womanly cycle. That was this last weekend, and yes, that was basically hell.

The pain is not so intense that I require pain killers to function. In fact, I usually only take one over-the-counter pain killer (Tylenol) once or twice a month. I save those beauties for the super tough days. But the pain is always with me; it doesn’t go away.

In doing research about hyper-joint mobility syndrome (closely related to EDS, if not the same?) I discovered it is not uncommon for people with this type of condition to have extreme fatigue by mid-afternoon. That is me for certain. Each day at about four in the afternoon, I am ready to settle on the couch. If I sit, in the latter part of the day, then I will have a difficult time getting back up. Sometimes I have to move all day, e.g., standing, walking, cleaning, errands, etc. because more often than not, as soon as I wind down and take a rest, I won’t be able to move much anymore. That’s why I am prone to spend one or two days a month doing massive non-stop cleanings of the house. It’s the only way I can do housework: all or nothing. Housecleaning itself usually sets me back two to three days in intensified pain, but manageable.

When I take my three to five-mile walks, most days in the summer, and a few times a week in the winter, I am fighting through the pain. Pain in my knee joints, hips, and sometimes back. When I say, “I am taking a walk,” it means a lot more to me than just a walk. Forcing myself out the door means forcing myself through the pain.

Simple tasks, like opening a lid on a jar, bending to retrieve something from the floor, or walking up and down stairs, hurt. I don’t loosen up and feel better after stretches. Stretches actually make me feel worse. My pain feels very much like what I imagine a person would feel after he or she hiked ten miles up hill. It is an all over, generalized body-ache. Sometimes I feel like I took a huge fall or was run over by a thousand little trolls. There are also specific areas in my body that flare up, in the sense it hurts more. I don’t actually swell or get red in areas. Flare ups usually happen in my wrists, fingers, elbows, hips, spine, neck, knees, etc. I am sure I am leaving out some area, but you get the picture. The flare ups feel like a dull ache, not severely painful like a tooth ache, just painful enough that sitting here now, as I type it feels like parts of me are throbbing and/or burning.

I am thankful I can go through my days and still function. I can climb stairs with ease, despite the pain. I can clean. I can walk. I can drive. Somethings that are more jolting on my muscles are actually dangerous for me, as I never completely heal from injuries, and actually develop something similar to scar tissue where the collagen should be healing. Thusly, I still feel the three times I suffered whiplash from car accidents, the time I took a hard fall and landed on my left shoulder, and the time a glass-framed painting fell off the fireplace mantel and landed on me. Those pains won’t ever completely go away.

My children are used to seeing me on the couch. It’s what they have grown up with. What they know as familiar. It’s one of the reasons I find so much time to write. Fortunately, when I write, I can escape my body from time to time. I think my pain is one of the reasons it is hard for me to practice being in the present moment. I am fairly certain that the combination of sensory (bombardment) challenges, Post-Traumatic-Stress Syndrome, and constant pain, make it difficult for me to want to be present.

I wake up several times a night during the harder days, usually from the hip pain. I have to shift my body a bit, and then I am able to fall back to sleep. I consider myself fortunate. I fall asleep easily at a reasonable time of night and stay asleep for the most part. However, part of the reason I fall asleep is because I am utterly exhausted from doing relatively little all day. Just sitting on the couch hurts.

I maintain a fairly good disposition. As much as I hated hearing my mother repeatedly tell me that “Things could be worse,” when I was growing up, it is true, they could be. I do have some almost pain-free days. And on those days, I can truly appreciate the beauty of just being. And on my high-pain days, the longest stretch usually lasting five days, I can remind myself, or ask my husband to remind me, that this too shall pass.

I don’t worry too much about the future. My pain has been pretty stable; in other words, I have felt this crappy for about fifteen years and the crappiness hasn’t increased, at least.

I know NEVER to run; even a short fast sprint to catch my dog will result in body pain for several days. A tumble or a fall might keep me down for a week. And the only “minor” surgery I ever had, a small laproscopic “scraping” for endometriosis, took me a year to heal from. It should have taken two days. And, yes, I still feel the pain there, likely scar tissue that never will heal.

I am super thankful I listened to my angels about six years ago. I was scheduled for a full hysterectomy. I had the operation date, and was already setting up childcare when I heard a distinct and audible: “No.” I can’t imagine what would have happened if I had the surgery. I don’t think I would have ever been the same. If minor surgery took me a year to heal from, what would major surgery have caused? Plus, my acupuncturist at the time, a healer I still see when I travel to California, she gently had offered: “I would not take out any part of a body unless it was a life threatening condition.” In other words: keep all your parts as long as you can.

I think sometimes I accept my pain conditions too much, to the point I practically forget. I get super down on myself for not being able to get up and go, to run out the door and go toss a ball or shoot some hoops. Like other things in life, I sometimes long to be “typical.”

Sometimes I make a sacrifice and will do something I know will cause me days of pain, like painting or roller skating, riding a roller coaster, chasing my son, or climbing hills. Sometimes the sacrifice is very much worth it!

The pain has been a gift in many ways. Like I said, I appreciate the days of less pain. And the days of almost no pain are like heaven. And I have been able to spend valuable time with my children. If I didn’t have this pain condition, I dont think I would have left my teaching job (I am disabled.), because I loved teaching and brought income home for the family. If I was still teaching, I would not have been afforded the opportunity to be a stay-at-home mom and to homeschool my middle-son with Aspergers.

Because of my experience, I have gained empathy for those in physical pain and/or with chronic fatigue. And I have gained a remarkable awareness regarding my own body and my needs.

I also am blessed with a patient husband who never complains when I am down. And I get to experience his love demonstrated through service and support. I have seen miracles, too. Like this last month, when I drove over 1600 miles, in a few days time, and experienced little to no risidule pain. I kept asking my angels to relax my body and heal me. And when I do my automatic writing, much of my pain disappears, too.

I don’t know why I live a life with physical pain, anymore than I know why I experienced a difficult childhood or why I have Aspergers. I do know that all my challenges have made me a stronger and a more loving person. I know that I am capable of extreme empathy, because in this short life I have experienced so very much. And perhaps that is my gift: how my suffering enables me to love more fully and to connect more freely.

I cannot imagine my life any different. If one day my pain goes away, I am sure I will be delighted; but in the meanwhile, I am so happy that I know how to choose contentment over victimhood. And I am thankful that I recognize my pain is not who I am.

I wrote this post because there are other people who experience pain syndromes, and I want them to know I understand. And because I wanted to share a little bit more about my journey.

I think we all have special gifts to share with the world, and that if we can turn our trials into compassion for self and others, then we have already accomplished so very much.

In closing, I believe there is a reason for my life. I believe we have each been called to service and each given the tools necessary to answer our calling. For me, one tool in particular has been the continual humbling of spirit. I thank my pain for reminding me of my fragility and humaness, and for bringing me that much closer to reliance on something higher than self.

Diagnosed with:
Fibromyalgia
Chronic Fatigue
IBS
Endometriosis
Fibroids
Hyper-joint mobility syndrome
Lyme Disease (The test has an over 60% fail rate. The test results were questionnable; the doctor based this diagnosis on ongoing symptoms. I tend to think I don’t have this, though, and my pain is a result of the above conditions.)

Self-Diagnosed:
PMDD

Perhaps I have?
Classic Ehlers-Danlos syndrome (I haven’t been diagnosed with this, but it is so similar to hyper-joint mobilitiy syndrome; though I do have most of the symptoms)

346: The Love I Am (A review of emotions, joy, fear, and pain)

| Aspergers Girls

I remember sitting on my bed in my early twenties and realizing with a sudden revelation that I did not know how to feel joy. In fact, in analysis, I concluded then that in the past several years I had not recognized many emotions. Generally I felt anxious, nervous, over-concerned, shy, out-of-place, insecure, depressed, sad, and worried. That was all I could feel. I could not feel anger. I could not feel love. My feelings for my significant other were all wrapped around fear of abandonment. I could feel fear.

I went from extreme emotional highs to extreme lows. I now believe this was not biologically induced. I think I made myself purposely cycle through thought-processes. If I was not extremely high (overly-anxious, overly-obsessed, overly-concerned), I was extremely low (unable to leave the house, fatigued, depressed). There wasn’t a manic high of joy, elation, grandiose thoughts, and magical-viewing of the environment and self. In the high-state there was only this inability to let go of fear, which led me to act out (OCD-like behavior, rituals, non-stop analysis) in order to eliminate thoughts. In the low-state there was the same inability to let go of fear, but my efforts to eliminate the thoughts were displayed through withdrawing, sleeping, and retreat.

I still go through these same states. Though I now know what the middle ground of emotions feels like. I think I “make” myself go through these states in an attempt to feel joy. I used to only feel joy when I was transitioning from one state (low) to the other (high). And even then, only for a fleeting moment.

In the past, and at this moment, I cannot experience this sensation of fleeting joy/happiness without the anxiety tagging along and questioning me, like some annoying tailgating friend I attempted to shake of millions of times before: “Are you sure you’re happy? Is this happiness? Will it last? How do you know it is happiness? Why are you happy? Are you being selfish? Is this self-based?”

My being seems incapable of holding onto this type of joy, and joy alone. This joy has to have companions of suspicion, dread, over-analysis, and such. And I utilize the word “have” because that is how the experience registers for me.

In the same line of thought, my extreme lows which include the inability to move, the discomfort of being me, and the fatigue of simply thinking, comes too with a posse of entities—emotions garbed as “why again,” “what is happening,” “why can’t I control my own self.”

This doesn’t feel like a mood disorder to me, though I see how my behaviors, and possibly thoughts, would present themselves as so. To me, this teeter-tottering is always pinpointed to an exact spot of awakening to the highest step of anxiety or lowest step of deep sorrow. I can find a reason. I can in retrospect see where I was switched from one extreme to the other.

Typically, I feel the mixture of joy and dread when I have 1) Accomplished a goal that I was afraid I would never accomplish; 2) Accomplished a goal in which I was fixated from the start and glad to be done; 3) Completed something I was dreading for days; 4) Received good news after worrying about bad news; 5) Received a compliment about my appearance, as I am insecure about the way I physically look.

In review, each of these supposed “joys” is accompanied by a fear or “negative aspect.” For example, in number one, “I was afraid,” and in number two “I was fixated.”

For a long time, this was the only way I could feel sporadic spurts of mixed joy: by attaching a fear or negative aspect, and then with some stimuli (another person, place, thing, event, words) the negative aspect is momentarily released and that moment of release feels to me akin to joy. For me, when the negative aspect I placed on self is temporarily removed, joy steps in.

In fact, in my mind, and in my scenario of feeling, I cannot feel this type of joy without first attaching an element of “negativity” and/or “fear.”

In contrast, in my moments of fear, in my low state, I have attached hope or the “best case scenario.” I create in my mind the release, the escape, or the rescue and I wait. I set myself in a cage, much akin to a prison, where I’ve locked myself away in darkness, and then wait. What I am waiting for is the removal of deep pain, and I have decided, somewhere deep in my mind or spirit that this removal will only happen in a specific way. For example, in sighting past experiences, this might be, this release of pain through the removal of a stimuli: an illness going away, a person coming and going, a meeting passing, a phone call received.

Here seems to be the tipping point, or the starting point of where my fleeting joy begins. While I sit readily in this cage of misery, I am creating the future of joy I hope to see. Whilst worrying immensely in a non-stoppable way and running through all the possibilities and strings of variable outcomes I can, I am in a direct way preparing to feel release and joy in the near future. This is to me, seemingly like a junkie in need of an adrenaline high. I am making myself increasingly low, so when the event or stimuli arises that apparently lifts me from outside of my self-inflicted prison, I am brought to a state of infinite fleeting freedom. In extreme emotion, I am brought high above myself and able to at last feel beyond suffering. I am creating my own high.

It is only in the in between state, between the middle part of prison and the freedom of elation that I feel the fleeting joy. I quickly rise past the joy to the state of high-anxiety, as the doubts and questioning sets in. This is why, after much processing about a possible scenario that could lead to my demise, failure, rejection or the lot, I will appear momentarily elated with relief when the scenario does not turn out in the thousand terrible ways I thought, but then I will quickly switch of the invented and created false feeling of joy and question my emotion. This will then put me in a state of shutdown, where I am wondering why I worried to the degree of physical and emotional, even spiritual ache, for the gift of fleeting fake joy brought on by a self-invented high.

Is this indeed a process I have created in an attempt to feel human? In an attempt to feel what “I am supposed to feel?” Am I lacking something or some chemical? I don’t think so.

I think this is the way my mind works itself out of confusion, in an attempt to unravel all the thoughts that are bombarding me, including all the stimuli, constant awareness, and confusion. I think this is my mind’s way of putting me into protection. I think in my cell of worry is the only time I feel safe from the world. To me, the fear-state is more liken to protection and safety than the joy state. For joy crashes and fear remains. Fear is predictable and stays with me as I loop and over-think; joy emerges as this falsehood and leaves me abandoned.

Do I like the cell perhaps more than I acknowledge? Is the cell the darkness I need to retreat to in order to renew? Am I, like the caterpillar, in need of continual metamorphoses? And if I am turning into a butterfly from the retreat out of darkness then why do my wings suddenly disappear?

In living, I have gained some recognition of middle emotions, the more subtle emotions of: satisfaction, contentment, serenity, connection, gentle-anticipation; but as these subtle emotions surface and are identified, I analyze where they have come from. I wonder which came first, my own thought, or the emotion; and often conclude my thought brought this emotion; and then I go into a place of deep thinking of when and where this thought came into existence that caused this emotion, and if this is indeed an emotion I welcome; and if this emotion comes from a place of selflessness, ego-release, and love. If the emotion/thought, both spun out together with thought in a slight lead, are not from a place of benefit for me and others, I then review why I have created these non-beneficial thoughts.

Where before for four-decades I was highly unaware of my own thoughts and emotions, and felt numb to the world, unless in a place of extreme anxiety or extreme low, now I am highly-aware of my experience, each moment analyzing and questioning my experience here, in this place I have been told isn’t really here at all. I have fed myself with so much factual data, through various sources and through moments of awakenings, that I cannot help but to try to place my own emotional/thought experience into a category.

My mind categorizes. I was built, I believe to a degree, to sort and categorize, to circumvent my emotional wiring and dig beneath and pull out what is occurring. I am a computer analyzing the computer-self. The mind boggles and I am left, wishing to do nothing but to be simple in the extreme, to wash away the complexity and start again anew and refreshed.

In an attempt to pull myself out of myself, I continually study and analyze, not just words and visual sources, but thoughts and happenings. I analyze the trees, the sky, the movement of all, even the invisible and untouchable. I analyze because I am attempting to take the moment I am set free from prison, to capture that fleeting flicker, and rise with this moment in true form of butterfly.

The dilemma is in finding myself lost in self, and reviewing the past data (Eastern philosophies of escape from mind), and then trying to understand this absence of thought, as I am built to a degree where the past ways of transcending (absence of thought; deep meditation in silence of mind) and completing the process of thought (silence and retreat after reflection) are foreign. I seem incapable of mastering my own mind enough to sit in the stillness of release. My brain appears so high-powered by some high-force that I am suited best for the prison of darkness as my retreat.

But there is hope, always hope.

And this hope is found in one way.

I have been able to at last find rescue from my own self in the act of giving of self. When I come from a place of pure intention to give without recognition or reward, I am set free. This is where the butterfly is meant to fly.

What I have been doing for so long is releasing myself from the cage and giving myself the imagined joy. I have been trying to hold onto a joy for self, and to build up self with joy, as this is what has been demonstrated by society: to make myself happy; to be happy; to find happiness. But this is not right; at least not my right, if right was to be.

I am not put here to make myself happy. I don’t need to be happy. Innately, beneath this façade of thoughts that generates a façade of emotions, I am happy. And I know this. I am not confused by self. I am confused by the thoughts and emotions, because beneath I am a spirit having a human experience. But my suit, my human suit is not adjusted, it is open enough so that the experience of human is confusing, debilitating, and disconcerting; I have spent eons, or what appears eons, trying to master my thoughts and emotions, when the freedom is not found in mastery of the invisible and illusion: mastery is found in the release of this humanness.

There is no direct way to self, as I am already self. There is no direct way to free myself of thoughts and emotions, as they do not even exist. They are not real.

Yes, I feel. Yes, I experience. But ultimately after a lifetime of analyzing my own experience, I see the illusion I have created. And though I stand in a lonely place at times, in reality, in my reality, I am finally able to grasp joy, and this joy is not fleeting. This joy does not bring out invisible scissors that eventually clip and remove my wings. I do not bleed from this joy, nor do I suffer.

I am attuning self enough to know that false joy will not last, and thusly this false, self-created, and self-wanting joy feels poisonous to me. I want to spit the falsehood out, and bring out the reinforcement of armies with swords in hand and slice away at false joy with question. I feel attacked when the questions come, when the illusion of joy is destroyed, but I am not attacking anything but illusion upon illusion. I am not attacking anything but selfish want and selfish joy.

Joy to me is only found in giving. This is my place of joy. This is how I am wired. I have been trying to live like the rest say to live, to fill myself in order to be fulfilled. But I am ultimately fulfilled when another is fulfilled. I am filled when I am able to bring joy to another. I am filled when the love I have for another is received. I am filled when I know in my deepest knowing that I am not wanting for self and self alone. There is no way around this for me. I still take comfort in the fineries of good food, decorative clothes, and good friends; these can bring me happiness. But this is not a happiness that stays. I see this. I recognize this. And thusly, my mind creates a stage of battles, where I am once again made supposed victim as the questions slice away at the supposed joy. But I am no less victim than the tree pecked by the woodpecker. I am made home for the world, for the flying birds, when I am carved out and hollowed. And in this place, when the world slips inside of me for shelter, I am joy.

And so it is my journey begins with intention. If I set out to love the world, to give of myself freely, without motive for self, then I shall receive endless abundance and joy that I can time and time again return to and tap into. This joy might waver with the wavering of my thoughts and emotions, but this joy is there always. This joy is always there. This joy is love of others, and in so loving other, love of self. There is no non-benefit to giving and loving freely. There just isn’t. When I come from a place of love, I am free. When I do not, I am imprisoned. There is no other place for me than from a place of love.

I think now that I was made the way I am to force myself into finding love. Here I have been searching to love myself, to change myself, to change my thoughts and emotions, to change my way of being, when all along the key was so very simple: love.

Here I was searching to understand love, to understand love through ownership and misinterpretation, and needing and wanting, and sometimes constant desiring, but that is not love. Love is not found in the one or in the self. Love is not found through the desire to receive. Love is not fleeting. And so often the love I have thought I have found, though unrecognizable, unidentifiable, and uncomfortable, still did not fit. No matter how hard I tried to make love fit, it did not. That is because I was searching for a suit of love for me, something to wear to soothe and protect the suffering beneath. But garments age; they tear, they break; no matter what we do they disintegrate, they become outdated, they eventually stink. The only love that can complete me must be outside the self and unattached from the self, something so immense and immeasurable that fear escapes in the infinite abundance.

I know now how to be happy.

Happiness is found in the detachment of love from self, so that love may fly freely. For it is not the butterfly I am that needs to find and wear her wings, it is the love I am that needs to soar.

343: How I long to be the sun

| Aspergers Girls

IMG_0546

How I long to be the sun…

I am such a dichotomy of prisms, multi-faceted in a way that confuses me, the observer.

I keep looking into myself and finding only tunnels, web-like hallways leading in all directions. There is such mystery here, and clutter. I am an open book, but not to myself. I am an open book to only that which I let out and that which I allow in. Even as I share so much, I hold eternity inside. I worry, when I have all the reasonings harvested of why not to worry. I fear, when I have all the reasonings set out of why not to fear.

I am this pendulum; this constant pendulum. I know not what moves me, but I am continually moved. At times I feel I become the person you are. At times, so many times, I lose the person I am. I absorb the world, all of the ingredients brought into me; and then I am left, in my loneliness, both awe-inspired and drowning in pain of recognition.

I see too much. I feel too much. I know too much. And there is no remedy.

I am the heap of pain that one carries on his shoulders. I am the sorrow of the mistress. I am the angst and guilt of the destroyer. I am the pillager weeping at the joyful bounty. I am the child in the glee-filled park. I am the mountaineer on highest peak. I am the widow crying at the grave. I am the tie tightened around my very neck, chocking me from the outside, to match the fury of pain within.

I am enveloped in need and then enveloped in release. I am tortured by thoughts and misery, and then let free by understanding and the depth of beauty. I am unstable, yet stable in my instability. I am consistent in my varying degrees of emotions. A spit-fire of desire brought to tender knees by only the touch of your words.

I am affected by all and none. This silence speaks to me. And the loudness hurts. I am the fury in your eyes. I am the heartache in your bosom. I am that raw pain that eats away at you. Time and again I rise, some mercenary to the many; unable to stop my vengeance; my need to take revenge, to beat the rhythms of my own soul down.

I am anger. I am rectification. I am renewal. I am lust. I am all this and more. And they merge and spin inside of me, claiming their take, and taking more than was offered. I eat of myself, devouring the agony.

If only I could find a way to balance the esteem of you with the esteem of my own being. If only I could find a way to stop the pain you feed me. Your naked trembling fear. To unchain the leash that takes me to the dark side of my own moon.

How I long to be the sun, the perfect sun shining overhead; and then with one touch, without consequence, to set free with flame this yearning for rescue.

~ Sam 3/20/13

297: Symphony of Sorrow

| Aspergers Girls

The glacier unleashed above the surface, exposed to the elements, withered and melting, as ice teeth drip in sun dagger’s game

The fortress unmoved in storm, harbored deep into the rooted ground by intertwined redwoods eating away at the past through methodical digging

The opening beyond the passageway, circumventing the avenues of darkness, though blind, a serpent worm hollowing and sharpening the narrowness below

The salutation circled on parchment dry, driven in passion by black-tipped feather dancing its way across the pages of time

The window frame broken, cracked over with windy days turned blizzard, and painted false with robin-blue, layer upon layer, until chipped and exposed the ruined beginning bleeds

The casual handshake of palms fleshy and ripe, with sweat and history intermingled more than the strangers that touch

The blanket hung upon the clothes line, overlapped and moving in the breeze as ghost sheets whisper their jealousy, wanting the warmth to move through them, like champion fingering the goblet of victory

The breath of the sailboat, weeping for the coming of wind, where tossed and turned the sails shall bellow in defense, when all about the observer grins, thinking the movement enters sweet without cost

The misery belonging to one, the performer across dimmed stage, spinning in the absence of light, invisible to the onlookers, if audience ever entered

The broken, spread out for picnic, picked apart to bone, and left for the army of insects to devour the remnants of screams harbored in the feast of gluttony

The fear reaper, echoed shadows of past, silk and web interwoven to glisten and capture, to call forth and entice, until prisoner bewildered in entrapment pleads for escape

The moment, shaded eyes beseeched lost maiden and all searching tumbled outside of tethered pockets, pebbles touching down into river rapids, one after the other, exiting their chamber of ages

The stallion and steed, a chance glance past the soured fields and dank sky, remembering once together they moved free as drifters in hope’s lullaby

Until now, each as forgotten tune joins to create a symphony of sorrow, their music precise and purposeful, reaching into the severed opening of lost child, and soothing the reflection of their collective pain

~ Samantha Craft January 2013

296: The Star of My Post

| Aspergers Girls

I panicked this morning. I pulled my husband out of the bathroom. He was stripped down to his boxers. And I was mean.

I don’t like to be mean. I hate it, in fact. At the core of me, I am nice. But this mean, panicky part of me surfaces at times.

She especially appears when I am feeling bombarded with change and sensory overload. When my normal routine is drastically altered I get a bit crazed and then my scale of unpredictable outcries is undeniably both potent and dramatic.

This morning, the birthday sleepover for my youngest boy was almost over. There had been much noise and upheaval as the boys celebrated together and tore the daylight basement apart with their slathering of snacks and soda. I’d not fallen asleep until nearly two am, and I’d cleaned and organized and shopped and prepared the entire day before.

My husband had been a great support, as much as any human could be who didn’t possess super powers, but by morning, he, like me, was exhausted. And unlike me, he was ready to get out of the house and start a course of errands. He headed downstairs to shower, as I was wrapping the party up, and awaiting the arrival of the two last guardians to pick up the children.

After twenty-minutes of feeling a kneading, unidentifiable discomfort inside, suddenly a shock of revelation hit me. Two strangers were about to appear at my door. As I thought about this fact, I was bombarded with what ifs, and what to say, and how to stand, and how to smile, and how to be, and how to stop my own very self-consuming fear of being seen by another being.

As I processed, and my anxiety grew, I realized I wanted to duck under a blankie, to escape, and to not face anyone.

Suddenly, and without warning, an all-encompassing fear bit at me like a disobedient hound leaping to snatch food from an innocent bystander.

I logically processed. I figured this biting and uncontrollable fear was part of my Aspergers, part of how my brain worked, part of who I was and had always been. The feelings weren’t unfamiliar, not even more intense; but I was more aware.

Still, even with the understanding, I could do little or nothing to calm myself down. At any moment the door would knock and a stranger would appear.

I talked to myself in silence. I reasoned. I tried to logically stop the worries and concern. I knew there was nothing to fear, but yet I feared. I knew there was no threat, but I felt threatened. I wanted to run.

The doorbell rang. It was the first stranger. She was kind and courteous, and we didn’t have opportunity for small talk, as her nephew gathered his things and left quickly enough.

I shut the door, wishing them well, and sighed in relief. I felt half of the anxiety leave. Only one to go. Only one to go, I told myself. I attempted to self-soothe, to talk myself into the fact that I was safe. But I couldn’t. Though half the anxiety had left, the remaining panic was newly fresh and alarming, clawing at me from the inside out. I just couldn’t do it. Not alone. Not by myself. Not with all the uncertainties.

I rushed then. I darted down the stairs in a state of meltdown. I was imploding and exploding all at the same time. The outside me, the observer that sometimes watches, and takes note of my behavior, and who is often able to laugh or offer sound advice, she’d been swallowed up in the confusion of my emotions.

I had to find my husband, make sure he was dressed, and get him upstairs, right away. There was no time to wait. My soul was on fire!

I found my husband in his boxers, doing something in front of the mirror. I don’t remember what. Everything was a jolted blur of rush and chaos. “Please hurry, he will be here any moment, and you know how I am,” I whined.

I looked my husband over and realized he hadn’t showered yet. It had been twenty minutes, and he still hadn’t showered!

“What have you been doing?” I queried rudely. “This whole time you could have showered, and you didn’t. Why didn’t you? Why did you leave me up there alone? Why? You don’t get me. You don’t know me. What do you not understand about Aspergers? What do I fear the most? What do I fear the most!”

My husband stammered with his eyes and braced himself against the bathroom door. I could see he was processing my emotional state. I could sense the familiarity of his experience: how he knew I was on the verge of freaking out and that his next move would either create a domino effect of me collapsing into hysteria or serve to bring me out somewhat from my spinning panic.

He stepped closer, and waited for me to finish my thoughts, waited in a way and with a skill I have not yet learned, and fathom I shall never learn. I felt a reckoning of sadness, a knowing I was different, odd, and displaced on a planet where my skillset had never been completed, where my tool box of communication skills was vastly depleted.

I wept inside, until the fear rose. I went on fast then, and with an unrelenting urgency. I knew what I was doing and what I was feeling, and it all felt so ridiculous and unnecessary and unfounded and just plain stupid, but I couldn’t help myself. I was trapped in a prison of jumbled thought and worry.

I said more, my words not chosen carefully, my panic taking the wheel. “You abandoned me. You abandoned me. You say to me ‘You take it from here; I’m going to shower,’ and you leave me to face the strangers. You know how I am? How could you do this?” My eyes were welling with a mixture of tears and rage.

I was on the verge of flipping my husband off. About to mount the stairs, and with a quick turn of my back, turn and give him the finger. I was so confused. My emotions all jumbled and twisted into a crisis.

I stood my ground, even as I saw another path of what I might have done, how I might have taken off as I told him off. I stared past him, fighting back the urge to yell, “I hate you!”

He didn’t move or even flinch, but looked at me with such profound and unattainable patience. I knew I was being childish. I knew at that moment he was the only adult in the house.

“Your worst fears are talking to strangers, especially at the door, and to men,” he replied. He then said, with a sigh, “I’ll wait to shower. I’m coming upstairs. Be right there.”

Within two minutes, I was back on the couch, hiding behind my laptop and my husband was in the leather chair twiddling his fingers and playing with his cellular phone.

I said, “Stop picking at your lip. That bugs me.”

I said, “I don’t understand. Don’t you care? Why did you do this to me?”

He looked at me blankly, and replied. “I didn’t shower. I came up here for you because I love you.”

I waited for him to be triggered or upset or to show emotion. I needed him to be emotional. I needed him to take me out of my emotional state, by means of his emotional state. For me to be able to focus on his wavering feelings, and to blame him, so I could escape self-blame. I punched at him with my words.

He didn’t care. He didn’t. He didn’t know how to show me love, is all I could think.

“Our problem is the Language of Love. You show love in service and duty; I show love through emotion and affection. I really need a hug right now and compassion.”

He got off of the couch and came to my side and held me. But I didn’t feel release. I’d wanted to blame him and make him act a certain way, thinking his behavior would relieve me. But it didn’t.

He stayed at my side and looked over at me as I maneuvered through the stream of my Facebook wall. He was watching the posts, watching me, and in my space. I looked at him and said, “Thanks for the hug. Can you go away now? I don’t want you near me. Please leave.”

I recognized the cruelness and impatience in my voice. I sensed my selfishness and sporadic ways. But I couldn’t help myself. I was in the middle of a breakdown, and nothing my husband did or said or offered could help me.

My husband rolled his eyes and shook his head. And I offered some half-apology for my behavior, knowing I’d been terrible. I tried to make him laugh. “Well at least you might be the star of my post,” I offered.

I don’t think he smiled.