Day 93: “I Wish I Didn’t Have Aspergers” (Flash Blog)

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Because I Know 

You are beautiful

You are absolutely beautiful

Can you not see what a beauty you are?

When people hurt you

They do not see you

They do not know you

They do not realize

You are beyond them

A mystery

The unknown

It scares them

They expect things that cannot be

They do not comprehend

And I am sorry

Some won’t ever completely understand

As much as you try

For you are a bright, bright light

And Precious One

Your beauty blinds them

You are a gift

Every life you touch changed for the better

This is already happening

You are an earth-shaker, a mover, and a maker

Nothing about you is ordinary or boring

You are so fabulously unique

Wrapped in the finest paper and richest ribbons—with your perfect heart at the center

You make my being swell with joy

You are not a mistake

Do not believe anyone who tells you this falsehood

They are wrong

Completely wrong

You are exactly perfect

You are closer to an angel

Than anyone I know

You have these magnificent invisible wings

You can fly to places the rest cannot

You have the vision of a prophet

The mind of a wise man

You have the capacity within

To change our universe

You see the world as it is

Without pretense or imaginings

You see people at their core

You understand more than you can say

And say more than you understand

You are a dichotomy

A puzzle

An amazing spirit set down to show the way

There is not one millimeter about you I would change

Ever

Nothing I would alter, take away, or replace

Nothing I would add or improve upon

You were made as you are

Like the stars in the sky

I have no wish to stop you from shining

I know your journey is very hard

There is no doubt about this

And I am sorry for your pains

You, of all people, deserve happiness

I know that you cry

I know that you question

I know you beg to be different

And that breaks my heart

But that’s okay

Let yourself weep

Because I know you are brave

In hard times

Remember that I am here

Still walking

And I need you

I need you here with me

I need you to be you

Without you I am emptied

Remember me

With my invisible wings

And know, though we have never met

I love you

I know how remarkable you are

And there is nothing you can do to change that

Nothing at all



Many members of the blogging community are joining together in supporting people who have Aspergers through a Flash Blog. The hope is that when a person searches online for “I Wish I Didn’t Have Aspergesr” he or she will be led to our bright light of encouragement.

It’s a Wonderful World because YOU are in it!

Twenty-Eight: Giving a Child with Aspergers a Break

 

Giving a Child with Aspergers a Break

Be. Let the words pour out of the child. Let the busy thoughts escape the mind. Let him speak as long as he wants about whatever he wants. Set no time limits. Welcome the rambling, digressions, repetitions, and dissertations. Be present, without interjection or correction. Allow time periods with no communication rules, lessons, examples, rights, or wrongs. Let the child release the pressure in his mind. Take long walks and car rides together, and just listen. Let him be himself.

Retreat. Grant her a day of rejuvenation, a full day with no visitors, appointments, outings, sports, or any mandatory doings. Keep the day free of all restrictions, chores, and obligations. Stay in pajamas. Allow escape, isolation, and repetitive activities. Give her the chance to rebuild her stamina. Provide solitude and comfort. Stay home from school one day. Peel away the rules and regiment. Let her retreat.

Environment. Ask about sensory concerns in the environment. What causes you discomfort in this space? How are the lights? The chair? The sounds? The smells? The flooring? The pictures? How do your clothes feel? Your hair? Your skin? Where is there discomfort? How can I help? What does it feel like? Describe it. How is the shower? The bath? Do you hurt? Where do you feel the safest sitting? What is hard to tolerate? Do you need sunglasses? A pillow? Earplugs? Let him create a more comfortable environment for himself.

Active Interest. Show interest in her special interest. Don’t call it an obsession or fixation. Call it an interest or passion. Participate. Explore and collect. Be together. Establish a schedule. Make the special interest a priority. Place the passion in a spotlight of acceptance. Establish a blog, newspaper, journal, comic, drawing, song, rhyme, act, or other creative outlet to express the interest. Let the creativity blossom. Welcome the opportunity for connection. Let go of the need to control, fix, alter, or end the special interest. Replace objection with acceptance. Replace disinterest with interest. Celebrate new discoveries. Use the interest as a therapeutic tool. Allow him the freedom to escape from the challenges of his world.

aKnowledge. Acknowledge characteristics, talents, skills, and intelligence. List positive attributes. Don’t pretend anything is easy. Be a warrior and teach how to be a warrior. Don’t try to change the child. Imagine how scary his world is. Tell him he is very brave. Tell him he is not alone in the world. Share others’ stories. Find an adult with similar challenges who is an effective role model. Watch movies about Aspergers. Know the child wants nothing more than to be good, to do good, and to feel good. Explain that he is never a failure and always a success. Tell him you hope he tries his best, but on the days he doesn’t feel like he can try, that’s okay. Tell him he has a right to hurt and be scared. Tell him he is a gift and that there is nothing he can do to make you stop loving him. Tell him he is perfect. Tell him even though you aren’t him, you can imagine how hard life must be for him. Ask how he is feeling. Never minimize or discount. Never say it’s not that bad or things could be worse. Say you are getting stronger and wiser every day. Believe in him.


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