Day 151: The Quiet Room

After yesterday’s post I feel like my panties are dangling down around my ankles. Feeling fully exposed here. I’m not embarrassed or ashamed of what I shared. Long past those emotions. I am human and have had hard times, like us all. But I feel a bit naked in my exposure of self, having had shared such a vital part of my life without much explanation.

I think it is important to understand that at the time of my nervous breakdown I had been on a low dose anti-depressant to control my chronic muscle pain. The medication entirely numbed me emotionally for years. I lived very much like a robot. I couldn’t cry even when I was sad. And I couldn’t feel the depths of my experience. I was in less pain, but had no emotions. I was numb in all aspects.

Being numb to myself had major drawbacks. I didn’t have an off button, or anything to balance my actions. Feeling nothing, I had no way of checking in with myself. I no longer knew exhaustion. I gradually became an over-achieving, control freak. Eventually, I started to despise more and more of who I was, and recognized the real me was covered and masked underneath. I decided, without consulting anyone and without being aware of the dangers, to stop my anti-depressant. In my eyes the drug was serving as a painkiller and little more. I didn’t understand that in stopping the prescription that my brain chemistry would go all haywire.

Within days of stopping, my appetite came back so strongly that I couldn’t stop eating. I gained five pounds in two days. And much worse, my serotonin levels plummeted making everything look bleak. And my emotions, they returned in a mad rush. I felt like I was opening a  storm door of emotions that had all been hidden in an expansive closet for half a decade.

After several weeks, I couldn’t stand the intensity of emotions and my huge appetite—I could actually taste life and food again but was out of control—so I started back on the medication. Reintroducing the anti-depressant into my system led to suicidal thoughts. This is when I ended up in the admissions to the psychiatry ward. I’m not saying the medication caused my breakdown but it definitely altered my brain chemistry enough to push me over the edge.

The Quiet Room

After two colored pills, I entered the last room at the end of the hall. Muffled snores, bleach, staleness—each welcomed me.

I found my bed.  I pulled off my sweatshirt and spread it across the pillow.

Darkness.

I stared up at the shadowed ceiling.

There was no sleeping.

As midnight approached, I stepped through the vacant corridor, light and clumsy, like a puppet pulled by a master puppeteer.  “I can’t sleep in there,” I mumbled, looking at the nurse’s wide forehead.  “I can’t sleep with a stranger in my room.”  I lowered my eyes to her white shoes, long laces, scuffed toes.

The nurse looked me over with a cynical smile.  “What are you afraid of?”

I felt a punch to my stomach.  “I just can’t sleep in there,” I answered.

Huffing, the nurse pulled down her glasses. “Fine, come with me, then.”

I padded down the hall, thinking I might fall down, hoping I would wake up, knowing this was surely hell.  The tall nurse stopped.  She edged her eyes around me, trying to see inside.  “You can stay in the Quiet Room for the night.  But it’s not where you are supposed to be.”

Chastised, I didn’t move.  I knew this wasn’t where I was supposed to be.  None of this place was where I was supposed to be.  She didn’t know me…

The rest of this story can be found in the book Everyday Aspergers.

 

Day 150: The Faded Sun

The Faded Sun

“Was it your voice or another voice that told you to kill yourself?” the stranger asked.

“My own voice,” I whispered from a mouth I could no longer feel.

I brought myself forward in a chair, a purposeful push, only to prove to myself I could move, that my brain synapses fired.  I nodded solemnly in the direction of a blank white space.  There was a stain in the high corner.  I was unable to focus, unable for the first time to pretend.  I had always been able to follow someone, to take the cue from the people around me.  Here I could not.  Here, though I was clothed, I was stripped naked, paralyzed with the thought that there were no answers…

 

The rest of this story can be found in the book Everyday Aspergers

 

Maui 2012

 

Day 149: Carved Delicate

Carved Tree
Maui 2012

Carved Delicate

I used to dream of the life

I lost while I stood

Up high in the night

A lamb in the woods

My light shining strong

My fear kept within

The clang of my heart

Beat places I’d been

I used to dream of the life

I lost while I stared

From the highest peak

Surrounded and scared

Watching below

As entities came

Prowling at dusk

And howling my name

I used to dream of the life

I lost while I cried

Alone in the open

With no place to hide

Demons haunting

Where I did slumber

Fire lit eyes

Pulling me under

I used to dream of the life

I lost while I screamed

A victim of fate

Or so it did seem

That all my plans withered

Dried up in the drought

And left me parched-starving

And fed with death’s doubt

I used to dream of the life

I lost while I ran

Afraid of the days

Afraid of each man

A woman of black

Whose shadow had risen

All broken and wounded

And locked in her prison

I used to dream of the life

I lost while I broke

Wasting the days

Before I awoke

Dreading the times

And what was to be

Questioning my purpose

And past misery

I used to dream of the life I lost

But I don’t dream loss anymore

For deep from within

Mercy opened her door

So wide and so grand

Did joy’s entrance appear

A threshold to serenity

Carved delicate through tears

by Samantha Craft

June 2012

Day 148: Protector

Protector

misery

clanks like devil’s bells

burning muscles

closing eyes

through puffed out face

joints bent and scorched

monster in the mirror

tired

so tired

fatigue overwhelms

long to give up

to sleep life away

to escape

without burden

without tears

satisfied

don’t want to complain

to be here

in this space

where the future is absent

where pain draws his dark curtain of dismay

my innocent woe

a stage for fear’s echoed speech

rescuer where stand you

with fading voice I beckon

I beg

listen to your angel bright

and whisper your presence

trace the edges of my existence

with your dancing fingers

send feather-light kisses

through bleeding indigo sky

caress me in every thought

as eyes to tender sunrise

serve as prince’s cradle

my protector

lance turned syringe

siphoning fully

the chamber of ache

from the caverns

of my withered

and broken

weeping soul

by Sam Craft

June 17, 2012

Day 139: Tsunami Sam

I’ve been perusing the Internet looking for an appropriate word for how I feel about myself at the moment. I tried to find the root origin of “suck eggs” and concluded I am not a canine who has trouble with stopping myself from sucking chicken eggs nor am I in an uncomfortable situation that makes me look odd. I searched for the word “suck,” to grasp a greater understanding of the word, and ended up with synonyms like “drink from straw.” I was about to ask Google God about “bitch,” but decided I’d had enough reading about dogs. So here I am, debating in my mind what I am feeling, who I am, and where I belong on this damn earth.

Some things I’ve decided are very hard for me today:

1)      Being married

2)      Eating food

3)      Moving my body

Hmmmmm. No wonder I’m a mess.

I try to be very positive and uplifting—other people tend to be appreciative and accept me when I wipe on my smiling face. The problem occurs when I wipe off the smile; not everyone tends to stick around so readily when disgruntled Sam appears. Silly, really, how folks like the fair-weather Sam, and run from the storm in me—natural instinct I suppose. Maybe that’s why my good friends are the types that aren’t too much afraid of natural disasters: living in earthquake zones, flash flood areas, and potential tsunami states.

I am in a potential tsunami state right now. I’ve been triggered, and am thusly harboring a wave as the ground shifts beneath me. Some of the ground shifting is a result of my short list above. I can sum up number two and three on my list fairly easily. Eating is hard because I am sensitive to everything I put in my system. Moving is hard because of chronic pain. Every food affects me at a physical and mental level. When I consume wheat and most grains, I become fatigued, depressed, and sometimes border on thoughts of paranoia about my health. Sugar often causes instant pain. And any type of food, except perhaps a piece of cooked fish with no seasoning, causes my stamina to decrease by half. Precise to say, sometimes I avoid eating all together.

Doctors and other health professionals have diagnosed me with about ten or so different health conditions; and each condition can harbor a strong potential to cause chronic pain. But I like to pretend they are all wrong. And can do fairly well at faking it till I make it, until the wave sets in, and I feel like I’m about to crash, and take out an entire village with me.

When the physical pain hits hard, my immediate reaction is always the same: denial. How can I be doing so well for a month and then, out of the blue, feel like I got run over by a truck?

Then blame sets in. What did I do wrong? Did I eat something wrong? How did I allow this to happen? Am I stressed? Why am I stressed?

Then resentment comes with her evil head. Why me? This isn’t fair. I hate this.

And then I collapse. A curled up not-so-friendly kitten on the couch, unable to move, unable to do anything really, but complain and act like a person whom has had her favorite treasures stolen: energy and serenity. The trick for me is letting go, and letting the cycle pass. If I could learn to shut off my mind, stop the fight, and just surrender to a day of not moving and not getting “anything” done, then I would be all the better for it. But I have this thing about control…especially control of my own body.

This leads me to marriage. The original title of this post was going to be: Why It Sucks Being Married to Me. But I thought that was just a wee bit too self-demeaning and seriously similar to putting a firing-squad to my ego. Not that ego doesn’t deserve to be taken down every once in a while. I’m just not ready to annihilate him all together.

But I do know I’m not an easy person to live with. I sometimes wonder if life would be easier if I was single. Mostly so I could retreat in isolation and wallow in self-pity. I lived alone in my early twenties. I remember. I was in a constant state of panic and fret. Anxiety lurched around every corner. I was even afraid to leave the house and walk across the parking lot to do laundry. I’ve grown and matured some in the last twenty years. I think I could manage a laundry facility okay on my own. I wonder about all the other elements of life, though. Too many to mention, or even list.

Don’t get me wrong. I like me. I have plenty wonderful qualities to offer a spouse. It’s just, living with me, is like living with a lion let loose from a cage at a circus. I’m trained and all. I’ve learned how I’m expected to act. I try my best. I even love the people around me: they feed me, they provide shelter, they even give me a stage in which to receive praise. And I love them for their unique spirits, too. It’s just I long to be in the wild and free, without restriction, without having to follow a role, having to be something I am not.

And I tend to lash out unexpectedly; from an onlooker’s point of view, I probably appear to lash out from nothing. But there are always triggers. Whether the food intolerance, the surmounting physical pain, or my non-stop brain, something is always about that causes my reaction. Sometimes my reaction is to other people’s words and/or actions, a direct result of my rigid thinking. I carry high ideals. I cannot help this. I find it difficult to tolerate lies, betrayal, aggression, passivity, gluttony, rudeness, and avoidance behavior. And I have a hard time understanding why people do the things they do. I try. I try to be flexible and tolerant. Trouble is this brain of mine is hyper-sensitive much like my gut. And all this rubbish going on inside of me, turns me into a prickly prune—all wrinkled up in poutiness and spiked out with defense weapons. Picture a shriveled plum with sharpened toothpick spears stuck about.

That’s why a cave near the sea sounds nice about now. A warm cave that smells like real wild flowers, with soft organic bedding, no insects or other lurching animals, temperature of 76 degrees, no wind factor, no dampness, absolutely no mold, low humidity, only the sound of ocean water nearby and birds chirping, and absolutely a non-tsunami zone. That’s all I need. I semi-dark luxury-cave on an island inhabited by smiling, quiet, private people. Until the wave passes—just until the wave passes.