Day 139: Tsunami Sam

I’ve been perusing the Internet looking for an appropriate word for how I feel about myself at the moment. I tried to find the root origin of “suck eggs” and concluded I am not a canine who has trouble with stopping myself from sucking chicken eggs nor am I in an uncomfortable situation that makes me look odd. I searched for the word “suck,” to grasp a greater understanding of the word, and ended up with synonyms like “drink from straw.” I was about to ask Google God about “bitch,” but decided I’d had enough reading about dogs. So here I am, debating in my mind what I am feeling, who I am, and where I belong on this damn earth.

Some things I’ve decided are very hard for me today:

1)      Being married

2)      Eating food

3)      Moving my body

Hmmmmm. No wonder I’m a mess.

I try to be very positive and uplifting—other people tend to be appreciative and accept me when I wipe on my smiling face. The problem occurs when I wipe off the smile; not everyone tends to stick around so readily when disgruntled Sam appears. Silly, really, how folks like the fair-weather Sam, and run from the storm in me—natural instinct I suppose. Maybe that’s why my good friends are the types that aren’t too much afraid of natural disasters: living in earthquake zones, flash flood areas, and potential tsunami states.

I am in a potential tsunami state right now. I’ve been triggered, and am thusly harboring a wave as the ground shifts beneath me. Some of the ground shifting is a result of my short list above. I can sum up number two and three on my list fairly easily. Eating is hard because I am sensitive to everything I put in my system. Moving is hard because of chronic pain. Every food affects me at a physical and mental level. When I consume wheat and most grains, I become fatigued, depressed, and sometimes border on thoughts of paranoia about my health. Sugar often causes instant pain. And any type of food, except perhaps a piece of cooked fish with no seasoning, causes my stamina to decrease by half. Precise to say, sometimes I avoid eating all together.

Doctors and other health professionals have diagnosed me with about ten or so different health conditions; and each condition can harbor a strong potential to cause chronic pain. But I like to pretend they are all wrong. And can do fairly well at faking it till I make it, until the wave sets in, and I feel like I’m about to crash, and take out an entire village with me.

When the physical pain hits hard, my immediate reaction is always the same: denial. How can I be doing so well for a month and then, out of the blue, feel like I got run over by a truck?

Then blame sets in. What did I do wrong? Did I eat something wrong? How did I allow this to happen? Am I stressed? Why am I stressed?

Then resentment comes with her evil head. Why me? This isn’t fair. I hate this.

And then I collapse. A curled up not-so-friendly kitten on the couch, unable to move, unable to do anything really, but complain and act like a person whom has had her favorite treasures stolen: energy and serenity. The trick for me is letting go, and letting the cycle pass. If I could learn to shut off my mind, stop the fight, and just surrender to a day of not moving and not getting “anything” done, then I would be all the better for it. But I have this thing about control…especially control of my own body.

This leads me to marriage. The original title of this post was going to be: Why It Sucks Being Married to Me. But I thought that was just a wee bit too self-demeaning and seriously similar to putting a firing-squad to my ego. Not that ego doesn’t deserve to be taken down every once in a while. I’m just not ready to annihilate him all together.

But I do know I’m not an easy person to live with. I sometimes wonder if life would be easier if I was single. Mostly so I could retreat in isolation and wallow in self-pity. I lived alone in my early twenties. I remember. I was in a constant state of panic and fret. Anxiety lurched around every corner. I was even afraid to leave the house and walk across the parking lot to do laundry. I’ve grown and matured some in the last twenty years. I think I could manage a laundry facility okay on my own. I wonder about all the other elements of life, though. Too many to mention, or even list.

Don’t get me wrong. I like me. I have plenty wonderful qualities to offer a spouse. It’s just, living with me, is like living with a lion let loose from a cage at a circus. I’m trained and all. I’ve learned how I’m expected to act. I try my best. I even love the people around me: they feed me, they provide shelter, they even give me a stage in which to receive praise. And I love them for their unique spirits, too. It’s just I long to be in the wild and free, without restriction, without having to follow a role, having to be something I am not.

And I tend to lash out unexpectedly; from an onlooker’s point of view, I probably appear to lash out from nothing. But there are always triggers. Whether the food intolerance, the surmounting physical pain, or my non-stop brain, something is always about that causes my reaction. Sometimes my reaction is to other people’s words and/or actions, a direct result of my rigid thinking. I carry high ideals. I cannot help this. I find it difficult to tolerate lies, betrayal, aggression, passivity, gluttony, rudeness, and avoidance behavior. And I have a hard time understanding why people do the things they do. I try. I try to be flexible and tolerant. Trouble is this brain of mine is hyper-sensitive much like my gut. And all this rubbish going on inside of me, turns me into a prickly prune—all wrinkled up in poutiness and spiked out with defense weapons. Picture a shriveled plum with sharpened toothpick spears stuck about.

That’s why a cave near the sea sounds nice about now. A warm cave that smells like real wild flowers, with soft organic bedding, no insects or other lurching animals, temperature of 76 degrees, no wind factor, no dampness, absolutely no mold, low humidity, only the sound of ocean water nearby and birds chirping, and absolutely a non-tsunami zone. That’s all I need. I semi-dark luxury-cave on an island inhabited by smiling, quiet, private people. Until the wave passes—just until the wave passes.

Day 117: A Body of True Confessions

(This post used to have photos of me. They have been removed by me. Hope you find the post useful.)

This is me HAPPY. This is my real smile caught by camera. I just found out the frozen banana bread ice-cream sandwich was going to be dipped in chocolate! That’s me in a nutshell. Give me chocolate and I forget everything else.

We have returned from Maui. And I am sorting through photos. I HATE  don’t care for photos of me.  I never ever feel like a photo looks like me. I see myself in parts, not in whole. So I see my nose, or the wrinkles around my brow, or the sun spot on my forehead, or the many other “flaws” that jump out at me. I tell myself I should look better. That I need to change. That I’ve aged. And so on….

No picture I have ever taken looks like how I see myself. And in every photo, I look so different (to me).

I get super depressed when I go through vacation photos, because I think I look absolutely terrible. I don’t think it’s a vanity thing. It really is not having a clue what I look like or understanding the image I am looking at. I try to tell myself positive messages, but somehow the messages get all twisted.

And then I get a host of negative messages, such as: “You need to lose fifteen more pounds. Imagine what you looked like before you lost those ten pounds. You are so HEAVY.” I tell myself horrible things, like: “Oh, your husband probably hated to take this photo of you, knowing you are starting to look soooo old.”

I’ve partaken in this negative self-talk, since puberty. Before then, I could care less. I had a huge overbite and a chipped front tooth, and would smile like I was a movie star. Something changed with puberty. Something changed when I realized people judge on appearances.

Thing is, I don’t notice the physical “flaws” in other people. When I look at their photos I see pure beauty. I see their essence. I think all people are beautiful. But I still get so terribly down on myself.

Posting photos of me on this blog is HUGE for me. Of course, I went through and cursed a dozen or so shots, before choosing the ones I felt safe to post.

Often, after a few years pass, I can look back on a photo, and see more of me. I can appreciate the happiness I had during the photo and see less of the flaws. I tell myself: “Why were you so hard on yourself. You’re sweet and kind. And you look absolutely fine!”

I’m hoping, this time, it won’t take a few years. I don’t know why the passing of time helps to view myself, but it does somehow.

I tell myself, I ought to be happy I can take a decent photo with little to no makeup on and my hair barely brushed, if brushed at all. I tell myself that everyone ages, that no one is perfect, that my distinct characteristics make me ME! But the talking doesn’t help. The negative thoughts come back full force. It really is a curse.

I don’t like worrying about how I look to other people. And I certainly don’t like worrying about how I look to me!

I’m putting this out there to help myself. To share my deepest thoughts, and in so doing release some of the associated doubts and deep-seeded fear. Heck! I just returned from one of the BEST VACATIONS in my life. Probably THE BEST, and I’m fretting over how ugly I am, telling myself I ought not go out in the world and be seen in public! It’s very, very ridiculous.

Maybe part of it is not having had a father who ever hugged me, called me pretty, or said he loved me. Could be that my father is so heavily into fitness, always firm and muscular, always concerned about his looks, that when I see me, I feel rather inadequate.

Could be, too, that it’s how my brain works. I know other people with Aspergers that see things in parts and have a hard time seeing the whole. Maybe seeing myself in parts, scrambles my beauty in my head. Sort of like seeing a lovely Black Beauty Horse cut and dissected into pieces on a platter. I think that’s what I do: Dissect and pull apart so that nothing remains but broken slabs of me.

Here is a list of what I feel uncomfortable about me:

1) Since my mid-twenties my arms have been thicker than I’d like, heavy and wide compared to other people my size. I have to be a size 2, seriously, for my arms to appear skinny. My husband says its proportional to my chest and that I have a swimmer’s body; another friend calls me ‘healthy.’ I don’t like either one of those observations, and would much prefer to have skinny arms! Skinny arms fits my personality. I see myself as petite, like a fairy. No fairies have a swimmer’s back.

2) I have incorrect posture. So does my son with Aspergers. It is hard for me to stand fully erect. I look funny, to me, when I stand up tall. I don’t know how to stand without feeling unnatural and in an awkward position. To protect myself from others, I have always hunched. I feel safer hunched. My posture makes me appear odd looking in photos. Same with my hands and arms. I don’t know where to put them in photos. And my smile….I never know what a real smile looks like.

3) My skin used to be perfect. I was very lucky. I looked like those kids in the suntan advertisements. Lots of California sun changed that. Now I’m spotted like a spotted lizard. This spots jump out at me in photos, as does every freckle, marking, mole, and “imperfection.” As I age, day by day, more markings appear. I don’t like to watch my skin change. It bothers me to no end.

4) My Italian nose will forever haunt me. I have tried to love it, truly. And it didn’t seem to get in the way of attracting previous mates; however, my nose is all I see in photos when I first look. That’s why I like far away shots. My nose looks cute if I’m standing back about five blocks!

5) My eyes. I’ve always loved my eyes. But now they appear sunken and old. Like I’m twenty years older than I am. Maybe that’s because I still feel like a teenager inside. But outside someone has redecorated, and I’m not too impressed.

6) My chin. At some angles, I look like I have three, and can’t tell where my neck ends and my face begins. I have a very prominent chin. My son’s orthodontist complimented my bone structure. Maybe if the whole world were orthodontists, I’d be set. I see a witches chin. The witch that has the house fall on her. I want to be the good witch. Luckily I have no warts or hair growing out of moles.

7) Sadness. Sometimes in photos I look very sad or even angry. It’s not how I’m feeling. I don’t feel irritated or melancholy, but I look like someone either just said something to piss me off or just told me my cat died. I try to look like me, and have no clue how to. It’s very frustrating. Sometimes I over smile so people will know I’m happy. Then my husband says: Don’t smile so intensely. Often my eyes bug out, if I’m trying too hard to smile.

8) My hair. It has a life of its own. I never know what to expect. My hair looks the best in the bathroom mirror, and as soon as I step outside the bathroom, my hair changes. I swear it does! Perhaps it is the lighting and the shadows, as my hair appears entirely different in every photo.

9) Shadows and lighting. The lighting of a photo changes how I appear to me. Sometimes I appear swollen or shrunken; other times expanded, elongated, and downright horrific to look at. I want to carry around a perfect lighting bulb above me, like a photographer. I have not posted the photos of me that make me look like I’m a marshmallow, that make my face appear shrunken into itself, and that show I’ve been tattooed with wrinkles. But they exist.

10) Ghastly spider veins. I’ve inherited those creepy little bluish-red lines that decorate my knees and thighs. I think I have as many as most people approaching their eighties. They are truly icky. I press on them and they magically disappear for ten seconds. My husband says that’s not what men are looking at. I don’t really care what men are looking at! I care what I’m looking at. And spider veins are not beautiful. I once read that a lady had lost a lot of function in her legs (mobility) and that she would do anything to have legs that moved well. She said who cared about spider veins. She’d be thankful to have any functioning legs. Reading information like that only makes me feel extremely guilty for not appreciating what I have. Then I just beat myself up more.

To be fair, I do like my eyebrows, my hair color, my teeth, my neck, the bottom half of my legs, and my toes. So that’s a good start, I suppose.

My Biggest Fear……That I will be too ugly to be loved. That’s it! I said it. It haunts me day and night. I feel so beautiful and light-filled inside, but I am afraid the outside will scare people away. It’s silly, I suppose, but it is how I feel. I don’t want to grow old. I don’t want to watch myself change. I don’t like change!!! I want to live a long life, but I want to freeze my appearance. I don’t know how to handle my body shifting. I don’t want to be one of those plastic surgery ladies or Botox queens, but I want to be able to look at a photo and see me.

Wine tasting, and what am I thinking. Oh, I look terrible in this photo. Notice how I chopped my arm out of the photo. Huge stress line on forehead, spotted arm, pointy chin….Gag me. I’m so super self-conscious and critical. If only this were a redeeming quality.

Almost didn’t post this because of my nose wrinkles. I secretly want you to think I’m 20. I had my kids at the age of 6! I’m such a goof-head. Someone change my brain, please!!!

I see big nose, forehead wrinkles, and fat face. This is what I see. I want to see friendship, love, and happiness. But I think: I wonder why my friend likes me when I am ugly. Yes, this is sad, but this is truth.

I love this picture. This is truly me HAPPY. Right before I surfed. My arms are covered so I feel safer. And this is one cool dude!

I like this photo because I’m far enough away that my nose looks cute and you can’t see my wrinkles! Maybe I’ll just stay a distance away from people. Of course, I see my flabby arms and my double chin and my pointy little ear. But my teeth look white!

I’m crying streams of tears. This is beneficial. This is healing. I’ve told my secrets. They shall no longer haunt me!

Day 103: The Sound of Nothing

Compared to my other posts, this is very mature. Part of my journey to wholeness and self-love has involved documenting events of my past. The short stories are a form of art work to me. They feel like art, as they are scribed through strong emotion and creative flow. However, the words are no longer a part of me. The little girl’s experiences are forever lost on the pages I typed.

This is not meant to be sad, but shared as a possible peer into another part of me—the melancholic artist, perhaps. Or a mature woman sharing her truth, so others know they are not alone. I have many pages of similar events, but shall not post on this blog because of the maturity-level. Someday the missing chapters, I suppose, may appear in book form as a collection of many of the thoughts in this blog.

The Sound of Nothing

My new sitter was Jessica Jensen.  I called her Jess.

She was much the complete opposite of the obtuse and sedentary babysitter Mrs. Stockman.  Jess was a long-limbed, freckled-faced high school freshman with thick reddish-blond hair and a ruddy face infested with whiteheads.

Initially, I wanted to make Jess my best friend, but Jess had different plans.  She wasn’t mean or anything.  She was actually quite tolerant.  However, she was short of being my friend.  During our time together, Jess feigned interest in me, in the form of an over curious stare or raised eyebrow, but within a few minutes she was focused on something else, like her fingernails or the person on the other end of the telephone.  Nothing I said or did truly seemed to impress Jess.  She thought I was smart and funny, and told me so.  But her real interest was in her boyfriends and teenage mischief, all of which I was much too young to understand.

Jess was a roamer, and in a way I was her little naïve sidekick.  I’m sure it crossed Jess’s mind several times to leave me behind somewhere, but to her credit she always kept me in close proximity.  She didn’t know what she was doing most of the time.  She was just some teenager from a broken, druggie home, who didn’t know better, a girl who had far too much freedom.  We attended movies, where Jess covered my eyes so I wouldn’t see the full screen of naked breasts, and then afterward we’d hitchhike about town, bouncing from one kid’s house to another.  Jess was in search of something, maybe an escape or a rush, something to make her forget about where she’d come from and what she’d seen.

I stood by Jess, no matter where she took me, because, like her, I had no choice.  Choices are for bigger kids, once they realize they are worth something, once they know their value, once they can look at themselves and smile, liking what they see.  Jess and I, we just hadn’t gotten there yet.

I followed Jess into a world that seemed a distant land from the home I once knew with my stepfather Drake.  It was a place of no good and ugliness, a world with molding mattresses stretched out under the overgrowth of a beat up magnolia tree, where the backyard fence was bent and broken in all different places, where the house with the peeling yellow paint and exposed boards stank even from the outside, maybe even from the next house over—a raw smell, a dangerous smell that I imagine dogs would whimper and slink away from.

And there, I’d find her oldest brother, or better yet, he’d find me—a long-haired, high school dropout named Rick: a teenager roughened by an absent father and a strung out mother, scraped up all over on the inside like a bristle brush to stainless steel. An aimless boy who roamed a place where beer bottles lined the back porch and stray wild cats, some pregnant, some close to death, slithered in and out of open basement spaces like hairy serpents.

Inside Jess’ house were threadbare couches, half-busted televisions and food, but not the type of food anyone would want to eat, just leftover spoiled junk, crushed potato chips and cookie remnants, and bowls of sugary cereals molding in spoiled milk.  It was the type of house that needed to be quarantined, sealed off with yellow tape and bulldozed down, or burnt into smoldering ash.  No good was in the house.  No good at all.

Rick liked to play doctor, a confusing game wherein he touched me in places a little girl should never be touched.  And Jess, he’d do the same to her, that’s what I suspected, though I never said so.  I just kept my mouth shut, let him do what he needed, and left, went out and found Jess, like nothing had happened.  He never laid himself on me, nothing as crude as that, and he was just a child himself.  He didn’t know any better; just like Jess, he didn’t know any better.

I didn’t feel nothing.  No pleasure, no guilt, no disgust, felt like I would after playing a game of Twister or the Game of Life.  That’s what it was, just another game of life.

One time, in the early spring, I clutched Jess’ hand in her backyard while watching the slimy-brown juices of chewing tobacco seep out the side of Rick’s cocked mouth. “Get the hell out of here!” Rick yelled, fixing his cold-hazel eyes on scowling Jess.

Jess stood her ground.

“Didn’t you hear me?” Rick continued, kicking up pebbles with his muddy old boots and letting loose a wall of dust. “Get the hell out of here!”

“You are an idiot,” Jess said. “It’s my backyard, too.”

“Screw you!”

Jess clenched her teeth.  I stepped back and started counting the multitudes of dandelions.  At the same time, Rick removed a chipped brick from an outdoor wall.

Jess screamed, “You’re going to get arrested!”

“Mind your own business,” Rick said with a heated gaze, adding more spit to the puddle in the dirt.  “Just get out of my sight.  Go back to humping your fat loser of a boyfriend!”  With that said, he pulled out a dented tin box which had been stuffed in the space behind where the old brick had been.  He then opened the box and pulled out a pile of compressed twenties.  He fanned out the money, stopping to toss a smirk Jess’s way, and then shoved the box and brick back in place.

Jess squeezed my hand, and shouted again, “If Mother finds out, she’ll kick you out on your ass again!”

Answering back with a stiff middle finger, Rick headed out the busted back gate. “Whore!” he hollered from over the broken fence. “Stinking Whore!”

Jess turned round to find me.  I gazed up at her and I thought for a moment she might grab some money for herself.  Images of Budd’s ice cream cones and bean burritos danced in my head.  But Jess didn’t take any money.  She didn’t even go near the brick.  Instead she led me inside her house to the grime-covered kitchen.

“Come on,” Jess said.  “Let’s get out of here.”  She grabbed a hotdog off of a plate and took a bite, then proceeded to chew with her mouth open.  My mother taught me to always close my mouth while eating.  I watched as Jess’ food slid about, until the hotdog moved to the side of her blushing cheek.  “Now, what did you see?  You didn’t see anything did you?”  She swallowed and took another mouthful.  A frantic look crossed her face.  She paused between her words to chew. “Because… if you saw… or     heard… anything… anything at all… it’s not… true.”

“I didn’t see anything,” I said, wide-eyed and innocent.  I started counting with my fingers.  I figured there was at least a few hundred dollars in the box.

Jess swallowed again. “Good.  Good.  Let’s go then.  Come on.”

As Jess walked a few strides ahead of me, I could hear her disjointed whispers.  A block away, she stopped and turned to me.  “Never mind,” she said.  “You’re too young to understand.  It’s too late, just too late to do anything now.”

Further up the sidewalk, Jess stopped dead in her tracks.  Her lacy halter flapped up in the wind.  I reached over and attempted to pull her top down.  She didn’t notice, and the wind blew the halter right back up again.  Her sheer pink bra was showing.  I studied the thin material.  Jess faced sideways and cupped her hand to her ear. “Listen.  Do you hear a police car?  Do you hear that?”

I gazed into the crystal-blue of her wild eyes and considered what Jess had said.  I didn’t hear anything.  We waited without moving, stood still—didn’t move an inch, just like those pill bugs do when they’re playing dead.  For a few seconds I believed Jess might well be a bionic babysitter endowed with supernatural hearing.  I waited patiently for the sound of the police siren or the sight of a patrol car.  I waited and waited, but in the end there was nothing.

© Everyday Aspergers, 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. https://aspergersgirls.wordpress.com

Samantha Craft

Day 83: Blister Sister (Part Two)

 

Blister Sister (Part Two)

Ben stood up straight, his ears crimson, his voice hoarse. “Damn it! How dare you say that in front of a child! What are you thinking?  Are you an idiot? What the hell is wrong with you?”

Now, although I was completely mortified and feeling the strong urge, despite my stomach cramping, to crawl under the hospital bed and never come out, I have to say, Ben impressed me.  Not in the way a parent impresses you by throwing you a birthday party and inviting all of your friends over to stay the night, nor in the way a child feels proud when a parent attends the school’s career day and knocks the socks or your classmates.  No, it wasn’t the type of impressive behavior that summons thoughts of coolness and grandiosity.  Ben’s behavior more so brought images of a fearsome bear standing on her hind legs with claws erected to protect her cub.  It was a scary image, quite terrifying actually—though none could deny that somewhere deep inside the man who was set upon a blind-rampage, huffing and puffing away at every hospital staff member within his path, that there was at least somewhere hidden a jewel of compassion.

It didn’t take long for Ben to pack up my things, usher Mother and me out of the building, and drive thirty miles across the state to another hospital.  Sadly for Ben, by then hospital visiting hours had past and the nurses insisted Ben and Mother leave.  And thus I was made to stay in a strange place, miles from home, without a soul I knew, replaying in my head all the horrific ways my death might play out…

This story can be found in the book Everyday Aspergers

 

© Everyday Aspergers, 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. https://aspergersgirls.wordpress.com

Day 82: Blister Sister (Part One)

Blister Sister: Part One

On a Monday just past four in the afternoon, Mother, dressed in her secondhand dress and faux-leather heels, drove a little faster than normal—which was still relatively slow.  I was seated in the front seat of Ben’s battered sedan.  Every few minutes a piercing pain drove up my left side causing me to let out a muffled moan, which gave Mother a reason to pat her hand on my shoulder and offer out a sympathetic smile.

This was an unusual ride, given the fact I was headed for the hospital, and Mother’s live in lover, Ben, who was habitually attached to the front seat, was dutifully sulking in the back.  I was so accustomed to seeing Ben’s broad back hunched over in the front that upon spotting him there, behind me, sprawled out in excess of half the seat with his socked feet propped up on Mother’s weather-beaten briefcase, I swore to myself I was dreaming.  But if I was dreaming I thought, then surely when I had shut my eyes and then peered out again, Ben would have vanished…

This story can be found in the book Everyday Aspergers

 

© Everyday Aspergers, 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. https://aspergersgirls.wordpress.com