It’s All About the Ovaries (Second Edition of Everyday Aspergers: Part One)

So, I’ve been procrastinating on this post since December 2018.

I’ve analyzed why and have come up short. It’s likely that I don’t care much for self-promotion. Indeed, in the last 6+ years I can count on one hand how many times I’ve asked folks to share about my Everyday Aspergers Facebook page. (And that counts the mention here!) If you haven’t checked it out, please do.

I could blame my procrastination on the countdown to menopause, which I hope and pray arrives tomorrow, as I’ve been dealing with the complexity of endometriosis for years, including the 2018 road traveled of chocolate cysts. Don’t let the name fool you; it’s all about the blood. And now that I’ve over-shared, I will switch gears.

 

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Recently, I’ve had a profound peace — could be hormones shifting and my lady parts semi-retiring — could not. (Oops, focus Sam!) I’d like to think it’s something to do with my faith and spirit. It’s likely a combination of coffee, getting older, and finally getting fed up with not speaking up for myself and finally understanding boundaries! That, and I do feel the presence of an angelic spirit. But that’s another story.

Not much has changed in the past years, since I started writing Everyday Aspergers. Which now has over 1.4 million hits! Well, yes, some of the reason behind the high ‘hit’ number is because there are over 500 posts! Omgosh — write much?

My point being, I still digress to a close-to-annoying degree.

That’s likely why I typically get called to interview for a job, based on my awesome resume, skills, and experience, but don’t seem to ever get the job! (In fact, I don’t even get a rejection letter — just GHOSTED.) Picture me bungee jumping off a high cliff of ‘tell us a bit about yourself,’ and swirling in rapid circles, giggling like I’m twelve, raising my voice in high pitch, fidgeting about, announcing how proud I am to have ASPERGERS, and then correcting myself: “I mean to be on the autism spectrum.”

I leave an interview feeling like I either nailed it and they absolutely LOVED me, and want to be my best friend, or convinced I terrified the living daylights out of them. It’s likely the latter. As I mentioned: I don’t ever hear back. Thank the lord for my job at ultratesting.us, where being neurodivergent is the norm! Thank my lucky stars. (< Madonna video)

Ironically, I have studied 1000s of hours of best hiring practices for my vocation, and can’t seem to keep my Aspie-ness in a bag when under distress at an interview. There must be a pill I can take. (Now picturing Violet in Willy Wonka and the Chocolate Factory, and now must Google to find an image.) “. .  . because Charlie she’s a nitwit.” Not to say I’m a nitwit.

 

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Okay, alas the REAL point of this post is to tell you THE SECOND EDITION OF EVERYDAY ASPERGERS IS HERE! And it’s now available in paperback in many countries. Check out Amazon or ask your local library to see if they can order it. Look at the PRETTY cover by an autistic artist (and my friend and colleague)!

USA amazon

UK amazon

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10 Facts You May Not Know About the Book Everyday Aspergers

Are we friends yet? (facebook link)

 

Okay … done! Although, I don’t think this is what my publisher had in mind. 

 

 

On a side note, I will speak to you as if you and I are in a cafe and I’m catching you up. Sorry for the monologue and the white-haired man sitting kitty-corner to us that is blushing because I am talking too loud.

This here ^^  … that’s an image of a chocolate cyst. Funny story … after an ultrasound in early-2018, when I found out I had at least one chocolate cyst, (and had gone to ER in excruciating pain, and was curled up on couch most days for weeks) in typical Sammy-fashion, I researched with hyper-focus about the chocolate cysts and implemented some home treatments — including essential oil, strict dietary change, etc. When I returned months later for a follow up ultrasound, the technician confirmed indeed they presented (3 of them) exactly like chocolate cysts, and she explained to me in her techie-talk way. Immediately following, (literally a few steps down the hall), my OBGYN doc informs me, “The cysts are shrinking, and that doesn’t happen with chocolate cysts, so we can’t call them that anymore. They don’t shrink.” I was dumbfounded.

Surely, in some cases they can? And I’d done so much, including talking to my body, to ensure healing. Certainly, my scrunched up face demonstrated I was confused as I asked, in a high-pitched voice, that no longer suits my age: “Well, what would we call them if they weren’t shrinking?”

She responded, “Oh, definitely chocolate cysts.”

I then got that familiar feeling in my gut that means ‘NO ONE on this planet is truly an expert in anything and most of the time professionals are talking out their donkey.’ (“vulgar slang To say foolish things; to talk of nonsense. Don’t pay Jonathan any mind, Mary, he’s just talking out his ass again.”)

The next time I went back in for a check up, with said doc, she informs that my chocolate cysts are shrinking or stabilized. So I guess we are back to calling them that?

Anyhow, it reminds me of the time I head a dead front tooth when I was in my early-20s and I went to a dentist a colleague had suggested I see. It was 1992, a sunny day. The dentist’s recommendation for my dead tooth discoloring was to darken all my teeth to match!!! Yes, that’s right. And, no, I did not!

I have trouble believing this actually transpired, especially after I told my dental hygienist the story yesterday, and she said that’s the worst telling she has heard to date. Also, because decades have past with my pretty veneer tooth. (The other dentist I saw bleached all my teeth to match the new veneer. Yin and Yang. Dark and Light. Theme of my life.)

(On another side note, I found out this week I have no cavities and an unusually small mouth. And I warned the dental hygienist not to say she has a small mouth despite what her husband says, because that can be interpreted in different ways. She was appreciated and said, “We’re going to get along just fine.” I always find it to be an interesting phenomenon when I give out unsolicited advice to non-autistics about social graces.)

Needless to say, I never went back to that dentist! But the young, inexperienced (terrified) me did shake hysterically in her car afterward. The same way I shook after seeing a ‘specialist’ a few years back. That time a doctor would diagnose me with ‘a close cousin to POTS syndrome,’ (as my blood pressure acted a bit different than typical POTS but the tilt table test confirmed.)

This was after 5 ER visits wherein my pulse would go to 160 upon standing, wherein the IV would add sodium to my blood, and remedy the POTS like reaction, making me better, only to be sent home and it to come back at 160 upon standing, only for me to return and be told I must be inventing it for attention. Yes, ‘hysteria’ is still widely falsely the diagnosis for women! No wonder I have white-coat syndrome. (No one believed me about POTS as ‘it’s too rare for you to have it.’) Gosh, I despise arrogance. Okay . . . onward.

Fortunately, my then-husband Bob (now-good friend) was in the patient room with the ‘specialist’ (notice the quotes) and me, when the doc told me my diagnosis and prescribed an exact treatment plan, e.g, constricting stockings, raise bed, exercise regime, salt intake, etc.

A year later, I came back, feeling super pleased I’d followed her directions and was able to sit up for long periods of time, and return to life as normal (well atypical normal). BUT THEN she scolded me, accusing me of making it up, and saying I didn’t have POTS and didn’t have to do all that. That I wasted my money on salt pills and where did I get the idea I had POTS?

I had to phone my ex-hubby from the car to avoid a nervous breakdown; literally thought I was losing my mind, until I realized the doctor was … (Scan down for book reviews.)

So . . . I likely should write another post soon that is more about the book. I will. I think. Can’t wait to see what pops out of LV’s mouth then! Sir Brain is shaking his head in shame. (He doesn’t have ovaries.)

Samantha Craft’s Updates August 2016

last updated August 2018

You can find me at Spectrum Suite LLC  and email me directly at marcellelinn @ icloud . com. Spectrum Suite will soon be offering vocational coaching, life coaching, and spiritual coaching. Stay tuned!

Thank you for your support through the years. I couldn’t have wished for a kinder and more accepting community.

This blog was open from 2012 – 2016. I make updates from time to time with new news.

Sam’s other blog can be found at Everyday Aspie.

Both blogs are retired, after many years of writing, except for occasional updates about happenings related to autism, the autistic community, and the book Everyday Aspergers.

New book I contributed to here

BOOK INFORMATION
· Amazon US link
· Amazon UK link
· Amazon Australia link
The soft back version is available in USA on Amazon here.
Current updates can be found at my company Spectrum Suite.
Please consider posting a review on Amazon and/or Goodreads.

THANK YOU ~ SAM

Marcie Ciampi, M.Ed   (AKA: Samantha Craft)

Craft is best known for her prolific writings found in her well received book and blog Everyday Aspergers. A professional educator, she has been published in peer-reviewed journals, been featured in various literature and venues, including Aspien Women, Autism Parenting Magazine, The Mighty,  Spectrum Women, Project Aspie and Different Brains.  She is coauthor of the book Spectrum Women: Walking to the Beat of Autism and speaks on the topic of neurodiversity around the world, including at the Love & Autism Conference (Fall 2018) and Southwest Washington Autism Conference (Fall 2018).

Craft was the Community Achievement Award recipient at the ANCA World Autism Festival (2017), her works have been translated into multiple languages, with her list of traits for females on the autism spectrum shared in counseling offices around the world. Since 2012, she’s had the opportunity to correspond with over 10,000 individuals on the autism spectrum. Her blog Belly of a Star features her paintings and drawings and over 100 poems and spiritual writings. Craft also serves as the Lead Job Recruiter and Community Manager at ULTRA Testing, an innovative technology company with a neurodiversity hiring initiative.

10 Years in the Making! Everyday Aspergers

This Blog Everyday Asperger’s by Samantha Craft is retired. Her company website is myspectrumsuite.com  Thank you for the community and support you have offered through the years.

 

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In 2004, I was called to write. I dedicated myself to write every day for a year. I only missed one day and completed a 250-page memoir. I often wrote 4 to 10 hours a day. I spent the next years editing because my dyslexia and dysgraphia make it very challenging for me to detect errors. I knew nothing of writing. It was pretty substandard material at the start. I didn’t even know when to capitalize the word ‘mom’ or how to use a semi-colon. It took me three years of writing and editing to find ‘my voice.’

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I taught myself to write by studying other books, relentlessly. I took notes and would write pages and pages of words I found (in other books) on notepads. In 2012, I started Everyday Asperger’s (blog) and  wrote almost every day for a year. I then continued posting blog posts several times a month, for another two years. Each Everyday Asperger’s blog post took a long time to edit. Then, after it was online, I would reread the words for an hour (at least) trying to find all the small mistakes that I couldn’t find the first time. (I didn’t mind; it was a type of stimming for me.) At the time of writing the blog, I also reedited some of the original (year 2004) childhood stories.

Recently, after 3.5 years of writing over 1,300 pages online, I began the process for my book: Everyday Aspergers (EA). I tore through 1,200 single-spaced pages of this blog, some of which were my childhood stories, picking and choosing, and then piecing the posts together like a puzzle. This took a solid two months of working almost daily. From there, I refined and refined, trimming most posts to 1/3 original size; some of those posts, if not most, were originally two to three pages long. Next I found little parts that got cut but were still gold nuggets and found places to sprinkle them in.

After that I polished and polished and polished, and began to edit. Soon the final editing took place from December to today. Most weeks I spent the equivalent of a full-time job editing. I also employed the help of a professional editing team. To date, the manuscript for Everyday Aspergers has gone through four editing rounds, in which I read the words (at first 717 pages, then 615 pages, then 417 pages) from start to end. Each page was reedited each time! I’d spend marathon days, up to 12 hours straight editing. Some of the childhood stories have been edited and polished at minimum 15 hours per page! Counting the years before, I’d say the book itself has well over 5,000 hours of editing alone. That doesn’t count any of my writing time. It’s a HUGE accomplishment. It’s not just something I threw together. It has a huge heart and huge effort behind my endeavor.

I cannot wait for the book to be in my hands. More so, I cannot wait for those who wish to have the book to hold the story in their hands! I’ve been waiting since 2004, when I had a dream.

Much love,
Samantha Craft

I updated the Checklist for Females with Aspergers here

Me on Twitter: aspergersgirls

More about the book on  new website

 

 

 

 

506: The Risk is Worth it. Thoughts on Friendship.

I don’t believe I have any answers that anyone else cannot find for himself. Or to non-negate the previous statement: I do believe I have no answers that another cannot find for himself. I have a hard time reasoning in my mind the authenticity of any self-proclaimed or manmade accentuated leader who hints, dictates, or infers that he has the answers. I am quick to steer away, and feel quite many a qualms, when I hear of anyone who thinks they have found the answer, the truth, and the way. I know too much to be a blind sheep, and too little to proclaim I know enough. This is not to say I diminish or shake a finger at modern religion or any new up and coming spiritual fashion, only that I seriously question and outright deny the fact that any human can foreseeably house the answers for another; and certainly without the answer, he has no right, if rights be the matter, to dictate to another how to live or present oneself.

I find the purest souls to be the most delightful in their attempts to literally do nothing but be, and to let be. Those that don’t pursue fame, recognition, reward, and esteem are the ones I gravitate towards, the ones who are actually repelled at multiple levels by anything to do with being in the spotlight. Those are the ones I tend to uphold as seers and seekers of truth.

Secondly, I know enough of myself to know that I am highly influenced by my environmental and physical condition, including my own stamina and mental-conditioning. What I present as reality, and perhaps a semi-temporary-truth one day, will likely be obsolete at another juncture in time.

I don’t like to sway people. I don’t even like to ‘not like.’ Still I don’t like to form judgments, or to reach conclusions about others. Of course some things, some actions, and some people (because of said actions), stand out as recognizably out of the arena of blandness. I mean to say, they make a mark that is recognizable to both my heart and mind. Mostly, it is the things that seem mean, spiteful, unjust, and not lenient which stand out, particularly something that might be deemed ‘evil’ or ‘perverse.’ But even then the lines (and labels) merge into this gray area, and I find myself neither here nor there, trying to counter both sides of an argument that has converged inside my mind.

With all of this said, I offer a few things about my thoughts on friendship. And if that wasn’t an Aspie preamble, I don’t know what is!

Aspie and Friends:

1. I prefer online friends. Online friendships eliminate much of the burden of communication. I have time to think, to edit my thoughts, to respond in a slow and delicate manner, to take time, to get back, and to not be seen physically. Most of my challenges with communications come in the mode of sensory overload and in my evaluation of what I am seeing. Yes, I still evaluate with online friendships, but about 75% of the stress of communication, particularly nonverbal processing, is eliminated. That’s not to say online communication doesn’t offer it’s barriers and weaknesses, but overall, particularly when I take the time to check for clarity, online communication scores high above face-to-face encounters. I mean I could lose myself in a freckle or hair color and miss half of an entire conversation. And forget about the background noise and nonstop monitoring of my tone of voice, inflection, and talking speed.

2. I make online friends. It’s scary but I do it.

3. I support some friends, when I am capable, and they support me when able.

When I am at my lowest, I will sometimes reach out to three or four people at one time, most of whom are Aspie or whom have Asperger’s traits, and if not Aspie then people whom I deem for the most part trustworthy, nonjudgmental, and possessing the capacity to love unconditionally.

4. I reach out to several people at a time because someone might be busy and I also don’t want to overburden one friend with my intensity.

5. I am not blessed to have many friends. I don’t mean that in a bad way. Of course I am grateful for people in my life but no one blessed me with them. I made the friendships, day after day, year after year, risk after risk. Yes, it is hard. Yes, I mess up, and yes sometimes I get super hurt. But I am not fortunate, or even lucky to have friends, because I have worked HARD to make and maintain these friendships. And I have worked hard on myself to learn how to be the best friend (person) I can be.

6. I accept my faults, frailties, and entire humanness. I am far from perfect but I avoid beating myself up. Yes, I allow myself to have a pity-party sometimes, especially when many changes are occurring in my life. However, I have friends that understand these aspects of me.

7. I only interact with certain friends during my most vulnerable times. I choose a select few friends to confide in about particularl things, especially subject matter in which I want no advice or solution finding quests.

8. If I am not careful, and I talk to a friend who offers advice or her view of the situation, the conversation can do me more harm than good. I have learned to be selective. It is a survival mechanism. Some friends can handle my intensity, others my insecurities, others my wild-imagination, and a rare few the complete me. I have learned I can’t be the complete me around everyone; I will get hurt. I have learned I can be complete by dividing myself amongst many friends. I don’t think this survival skill is specific for those on the spectrum, but I do believe Aspies are vulnerable in their ability to be strongly wounded by others, and that they often find themselves in positions of offending or shocking, without that intention.

9. Friends are not easy for me, for there is a part of me who, despite an inconceivable amount of self-reflection, insight, and work, will always think I am not a good enough friend. This isn’t a self-esteem issue. I do like me. It has to do with the extreme ways in which I can psychoanalyze myself and dissect conversations. I am always, and will always be, an observer of others, twice removed from discourse and continually dissecting and evaluating and reliving over and over past conversations.

10. I have one friend in which I can just spill my guts and fears and anxiety and she will JUST listen. She doesn’t do tit for tat. In that I mean she doesn’t ask me for advice, expect me to listen or to return the favor. She just lets me process. I think every Aspie (and every human being) needs someone who will just listen.

11. I recognize I will always feel like I don’t give back enough in friendship. It is just the way it is. When people give to me, in time or other ways, I feel an immediate want and obligation to equal the score. It’s not that I mean to keep score, only that I naturally don’t want to take advantage of anyone.

12. I love to have friends from all backgrounds. I am not picky. Or maybe I am, if you think the capacity to love without conditions, to be honest, to be giving, to be kind, and to be genuine is picky. But with that said, and a little trustworthiness thrown in, I am capable of being friends with many, many people. There isn’t a checklist.

13. I think I need friends. I think everyone does. I think the risk is worth it.

I don’t neccesarily think the introduction matches the list. But, oh well. My friends will understand. 🙂

13 is my favorite number.

Looking for aspie friends? Join everyday aspergers Facebook like page to the left.

498: Call Me Aspie: The first part of a thousand-page manual

I have Aspergers, and I tend to:

1. Fixate on a certain problem or puzzle, and process this for weeks, if not months, until some part of me reaches a solution. During this time, I may seem frantic, melancholic, elated, discouraged, confused, shattered, and exhausted. As soon as I have a sense of closure, I might feel bewildered and ashamed of my behavior. There will be a brief reprieve, until my brain latches on to another puzzle to solve.
2. Over-process certain events and happenings, particularly exact words used and sentences used by others, as I try to determine the underlying facts and supposed truth. This will reveal itself in multiple questions and inquiry on my part; sometimes the same questions over and over; the repetitive nature is involuntary and necessary, as it brings some relief to the messages circling in my mind. In such cases, it is best for me to confront a person right away and ask a brief question than to burden myself for a day, becoming incapacitated and virtually numb from all the over-thinking about feasible meanings and outcomes. The over-processing can and does burden other people, and leave them questioning their own ability to have patience. I will apologize and mean it, but will not be able to stop the over-processing, even as I am hyper-aware of my behavior and possible consequences based on my actions. Telling me to not over-think is not helpful and not feasible.
3. Lots of giggles. I will appear more childlike than most, and find humor in things that most adults won’t. I find the beauty and fun in many occurrences and statements, and can act a bit immature at times, focusing on little events that make me chuckle. I also will giggle nervously or crack a joke in an attempt to relieve tension and discomfort, even as it might appear nothing was said or done to cause unease. In times of nervousness, particularly when getting to know someone, I will make inappropriate comments, lacking the ability o filter my thoughts and having a desperate compulsive desire to share. On the other hand, others quite enjoy my company, and my smile can be contagious and enlightening. Cherishing the little things does have its benefits; and some will find this behavior refreshing.
4. Over-share. I will share more than most. It is part of who I am. It is difficult for me to determine what is appropriate to share, what is too much to share, and what is enough to share. I like to talk about myself, because I want to be seen and understood. I like to listen about other people, too. But if I am nervous or uncomfortable or preoccupied, these states of being will pull me away from the ability to focus on another. I have to be 100% there to listen to another; and if I cannot be, the attempt to be there seems a waste of time. It is better for me to get everything out and then return to my friend and support them fully when I am able, then to ‘pretend’ to be listening when I am on overload with thoughts. Initially, I might monopolize a conversation or become dumbfounded and not know what to say or how to relate. I survive, in conversation, by analyzing the other participant, and trying to match my style of communication with that person’s style. If I cannot see the person, such as on the phone, I might become nervous and uncomfortable, wondering how the person is reacting to my responses. This is not about people pleasing. But it is about adapting self, so that I do not drive people away with my tendency to over-expose self and trust fully.
5. Be Emotional. I am triggered a lot. Little things trigger me. A simple word, an expression, a reference, a link to a website, a song, a memory, etc. Because I am easily triggered, I might be very content and happy one minute and then turn morose and in deep reflection the next. These states are generally temporary and I can evaluate the trigger quickly. Once the trigger is noted, I have the capacity to take steps to analyze how to pull myself out of deep contemplation and to alter my state of mind. In other words, with practice and self-awareness, I can quite readily pull myself out of a ‘dark’ emotional state. If the trigger is extreme, I will need to talk and process the event to bring relief. Often a hug or human touch might help from certain people whom I deem safe; other times human touch is the last thing I want and any form of human contact, even attention, will actually cause me to retreat and pull away.
6. Be extremely loyal and honest. I have high integrity. I say what I mean and I mean what I say. I don’t take anything lightly. I have the ability to have fun and be light-hearted and to forget about my intensity, but my integrity and sense of being the best person I can be never falters. I carry extreme guilt if I try to deceive another and can rarely hold anything inside, particularly events that seem to demonstrate a semblance of betrayal or untruth. This inability to hide things can hurt another person without intention. Some things are perhaps better withheld. But secrets and lies eat away at my soul, and I can concentrate little if I feel I am not being transparent and authentic in my dealings with others. In some cases if I kept my mouth shut, I would feasibly come out ahead, with more gained than lost. Opening my mouth is risky, and can often lead to a loss. Regardless, I was born to speak my truth, and have yet to find a way to make this stop.
7. Love deeply and forever. Once I love someone, I always love someone. Once a friend, always a friend. I can pick up with a person I haven’t spoken with for years, and the reunion feels like yesterday. I don’t care why a friendship ended, if someone wants to come back into my life, my door is always open. I have learned to take some measures to guard my heart against those that might cause harm to me, but for the most part, I will love a loved one for always. There is little anyone can do to make me dislike him or her or to make me remove him or her from my life. I love easily and fully, and love to give. Receiving is sometimes difficult and feels uncomfortable to me, but I understand that the ability to receive is a gift to the giver, and work on this act often.
8. Get upset when others are emotional. Even as I am an emotional being and cannot stop myself from expressing my feelings, others’ emotions frighten me. It seems hypocritical, but the reality is I am not comfortable with emotions. I tend to overreact to simple displays of emotions, such as slight frustration, fleeting anger, or momentary confrontation on another’s part. While I long for passion and emotional connection, I also run from outward displays of feeling. I feel guarded, in a sense, to the deepest source of love inside of me that is afraid of being harmed or invaded. I would rather feel numb and dead at times than have to figure out what someone meant by their tone of voice, words, or actions. I will literally freak out from the slightest alteration in someone’s tone of voice or mannerism, if the upset appears to be directed towards me.
9. Second-guess my own statements and how I express myself. I re-explain myself and overcompensate for mistakes I might have made. I like myself. I like my mind. I am for the most part comfortable in my skin, despite my challenges, but I fear that I have come across the wrong way and represented myself in error. It is of upmost importance to me to clarify and to check for understanding; this action of revisiting a discussion to add clarification is a natural and instinctual part of my nature, as much as flight is to the eagle. I cannot suppress the behavior, even as I watch myself going through the process and doubting the effectiveness of said actions.
10. Dream and Imagine. I spend more time inside my head than outside of my head. Based on my intense ability and natural tendency to fantasize, I often create realistic scenarios in my head of what could or might be. I go down a thousand different avenues of feasible scenarios of a given situation. Over-analyzing each aspect and evaluating the possible outcomes. This is almost done at a subconscious-level, and continues practically nonstop until my mind has reached a conclusion that brings about some form of comfort. Uneasiness of mind is found in the ridding of possibilities, unknowns, and a state of limbo. If something is open-ended, my mind attaches to the concept of the unknown like one Velcro strip to another. I cling there, in this hyper-state of awareness, attempting, without much effort or detectable impulse, but tons of energy, to factor in each and every variable, in order to attempt to make sense of what seems to be the foundation below me slipping. I float here, in a dream state of possible happenings inevitably until closure is reached. During this time my ramblings, processing, and evaluation after evaluation is often processed aloud or in written form. These bombardments of thoughts manifested into visual or auditory form can cause feelings of discomfort to some. Yet, this is how I function.

This post is dedicated to Lisa, Alyce, Jennifer, David, and Ryan… fellow Aspies who never give up on me. Thank you. ❤