Aspie

507: Removing Warts… The Nasty Aspie Triggers

| Aspergers Girls

I am triggered by a lot. You name it, and it can feasibly trigger me.

The weather: Thoughts of the past associated with specific temperature, events and schedule changed because of weather or pending weather, fatigue/pain triggered, ramifications of our treatment of global environment and climatic events as a result, and on and on and on.

Digesting the food on my plate: Poor suffering milk, a byproduct of suffering cow, and the pain-hormones involved. Body affected by poisons, chemicals, over abundance or lack of nutrients, allergic reactions, digestive system triggered. Fight or flight biological response uncontrolled by the implementation of Cognitive Behavior techniques. Thanks but no thanks.

An actor’s line in a movie: Brings back a particular emotional event in life…and ain’t all things emotional for me??? Rhetorical question, followed by giddy applause of distaste in my own reactions.

A particular change in bodily appearance, function, ability, sensation, weight, signs of age: Note to self… avoid mirror and stop examining skin with magnifying glass. I am not vain, at least I hope not, just overly-aware of everything. I am so sensitive, I have gotten to the point I can tell what mineral or nutrient I am low on, e.g., numb toe equals low on magnesium, twitchy eye equals needing potassium, heart rate up equals time for some more sodium, etc. etc. etc. And don’t get me started on hormone fluctuations. Mostly, I am disturbed by warts (I have one tiny one), new moles, age spots, blubber and sags, and those weird, icky-lined wrinkles below my neck on my chest.

An offhand, unremarkable (to most) comment aimed kind of at me, at least I assume so: I can spend hours wondering what one word I picked out of a conversation could possibly mean, and from there wonder why I spend so much of my time picking apart conversations, and then psychoanalyze Aspergers in general, and then compare my communication skills to anyone in my circle of humans I have ever encountered; not a fun way to whittle away the hours, but nonetheless HAPPENING, regardless. Thank you meaningful professionals, but if you ain’t Aspie, you ain’t Aspie and you have NO possible way of understanding the makings of my mind. No matter how much you study a gorilla, you won’t understand how a gorilla thinks. And, yes, indeed, I think myself a different species. Have you met my people?

A joke, a poster, a political comment, a personal comment, a slogan, a lyric, a quote, a song: I can pick apart anything and make connections. Sometimes the connections and contradictory in nature, often really, and they leave me baffled, confused, and feeling entirely alone on this planet. Sometimes I am certain this is hell.

A missed connection, missed meetings, cancellations, no shows, last-minute changes, and the like: These leave me wallowing in self-pity, and then more self-pity piled on for allowing myself to have self-pity, and so on. You get the mirrored-picture. And then, to make it worse, I try to be mad, to understand the concept of mad, and then in turn blame myself for not being able to hold a grudge or stay angry. I then visualize people when they are angry, friends, acquaintances, loved ones, various movie actors, strangers, and the like, and I try to emulate the emotion. Then I feel guilty for trying, in other words ‘faking,’ because faking is lying, and I want to be truthful. And I feel guilty for trying to be mad?? Who does that? I get trapped in a whirlwind of how I should react to disappointment, and then punish myself for allowing myself to feel disappointed, because isn’t disappointment ego-based? From here I wonder where to go for help because I have tried it all, from Priest to Psychiatrist, and no one, absolutely no one, comes close to understanding me, beyond me, and even my understanding is warped, at high-speed, to boot!

Broken promises: This being the most painful. The world is filled with uncertainties, another major trigger, and they are everywhere, but the hurt is intolerable when someone doesn’t follow through with their word, I don’t feel bad as a result of judging the person, or of even having had housed expectation, and I am not mad, I am just reminded of the terrible uncertainty and unknowns of the world I live in; and that I basically can count on no one but myself, but then I can’t count on messy-me either; and this reminder (trigger) terrifies me and makes me immobile, couch-bound, and affects my pain condition, depression, and sometimes thoughts of leaving the world; not that I could leave, I don’t think, because I wouldn’t want to hurt anyone; and then the chain of thoughts begin that I am selfish to think of leaving anyone behind in this place, then thoughts of how the human condition is a suffering condition… yes, seemingly bleak pessimism, I recognize this, but it’s not, it’s TRIGGERS.

Being critiqued, criticized, put in my place, hearing unsolicited advice, being scolded, scorned, etc.: You get the picture. We both know I am not perfect. But did you know that I see all my flaws at multiple deep levels all fricken day long. I am likely the most self-aware crackerjack you will ever, ever meet, (unless you happen to be Aspie, too, then it’s a two-way tie), and I have tattooed my imperfections on my soul, and greet them minute-by-minute everyday. Generally, I don’t particularly like being human; I can’t tolerate the lurching selfishness, the ways in which people possess and take and haunt. It all confuses and compels me, and at the same time I recognize I am human, and that sucks. Critique me and I think I am more alone than ever. How could someone not know I was hyper-sensitive already, and keen on my own flaws? And then, to top that, I start to think that perhaps I am over-sensitive to mask a submerged and buried dark-shadow rage and that I have an innate inbred fear of anger. Until I sit it out and re-realize that NOPE, I just don’t get anger, more than a passing defense mechanism or emotional response. I don’t know it, more than a passerby. He waves, he punches me in the gut, and he leaves. That’s about it.

Setting myself up: There are certain triggers I know will get me bad, keep me bedridden, or at the very least cause me to be lost in thought for hours, and yet I repeat certain behaviors that set me up for certain triggers. As if I don’t learn. I am taking inventory. I know what hurts. I know what creates chaos in my mind, but at the same time I carry this everlasting hope that this time it will be different. I have this blind eye to people. I think they will change. I think things have to change. I think everyone must transition at the high-speed, everyone must have similar depth, heart, and soul. But they don’t. I just can’t seem to wrap my brain around that concept.

506: The Risk is Worth it. Thoughts on Friendship.

| Aspergers Girls

I don’t believe I have any answers that anyone else cannot find for himself. Or to non-negate the previous statement: I do believe I have no answers that another cannot find for himself. I have a hard time reasoning in my mind the authenticity of any self-proclaimed or manmade accentuated leader who hints, dictates, or infers that he has the answers. I am quick to steer away, and feel quite many a qualms, when I hear of anyone who thinks they have found the answer, the truth, and the way. I know too much to be a blind sheep, and too little to proclaim I know enough. This is not to say I diminish or shake a finger at modern religion or any new up and coming spiritual fashion, only that I seriously question and outright deny the fact that any human can foreseeably house the answers for another; and certainly without the answer, he has no right, if rights be the matter, to dictate to another how to live or present oneself.

I find the purest souls to be the most delightful in their attempts to literally do nothing but be, and to let be. Those that don’t pursue fame, recognition, reward, and esteem are the ones I gravitate towards, the ones who are actually repelled at multiple levels by anything to do with being in the spotlight. Those are the ones I tend to uphold as seers and seekers of truth.

Secondly, I know enough of myself to know that I am highly influenced by my environmental and physical condition, including my own stamina and mental-conditioning. What I present as reality, and perhaps a semi-temporary-truth one day, will likely be obsolete at another juncture in time.

I don’t like to sway people. I don’t even like to ‘not like.’ Still I don’t like to form judgments, or to reach conclusions about others. Of course some things, some actions, and some people (because of said actions), stand out as recognizably out of the arena of blandness. I mean to say, they make a mark that is recognizable to both my heart and mind. Mostly, it is the things that seem mean, spiteful, unjust, and not lenient which stand out, particularly something that might be deemed ‘evil’ or ‘perverse.’ But even then the lines (and labels) merge into this gray area, and I find myself neither here nor there, trying to counter both sides of an argument that has converged inside my mind.

With all of this said, I offer a few things about my thoughts on friendship. And if that wasn’t an Aspie preamble, I don’t know what is!

Aspie and Friends:

1. I prefer online friends. Online friendships eliminate much of the burden of communication. I have time to think, to edit my thoughts, to respond in a slow and delicate manner, to take time, to get back, and to not be seen physically. Most of my challenges with communications come in the mode of sensory overload and in my evaluation of what I am seeing. Yes, I still evaluate with online friendships, but about 75% of the stress of communication, particularly nonverbal processing, is eliminated. That’s not to say online communication doesn’t offer it’s barriers and weaknesses, but overall, particularly when I take the time to check for clarity, online communication scores high above face-to-face encounters. I mean I could lose myself in a freckle or hair color and miss half of an entire conversation. And forget about the background noise and nonstop monitoring of my tone of voice, inflection, and talking speed.

2. I make online friends. It’s scary but I do it.

3. I support some friends, when I am capable, and they support me when able.

When I am at my lowest, I will sometimes reach out to three or four people at one time, most of whom are Aspie or whom have Asperger’s traits, and if not Aspie then people whom I deem for the most part trustworthy, nonjudgmental, and possessing the capacity to love unconditionally.

4. I reach out to several people at a time because someone might be busy and I also don’t want to overburden one friend with my intensity.

5. I am not blessed to have many friends. I don’t mean that in a bad way. Of course I am grateful for people in my life but no one blessed me with them. I made the friendships, day after day, year after year, risk after risk. Yes, it is hard. Yes, I mess up, and yes sometimes I get super hurt. But I am not fortunate, or even lucky to have friends, because I have worked HARD to make and maintain these friendships. And I have worked hard on myself to learn how to be the best friend (person) I can be.

6. I accept my faults, frailties, and entire humanness. I am far from perfect but I avoid beating myself up. Yes, I allow myself to have a pity-party sometimes, especially when many changes are occurring in my life. However, I have friends that understand these aspects of me.

7. I only interact with certain friends during my most vulnerable times. I choose a select few friends to confide in about particularl things, especially subject matter in which I want no advice or solution finding quests.

8. If I am not careful, and I talk to a friend who offers advice or her view of the situation, the conversation can do me more harm than good. I have learned to be selective. It is a survival mechanism. Some friends can handle my intensity, others my insecurities, others my wild-imagination, and a rare few the complete me. I have learned I can’t be the complete me around everyone; I will get hurt. I have learned I can be complete by dividing myself amongst many friends. I don’t think this survival skill is specific for those on the spectrum, but I do believe Aspies are vulnerable in their ability to be strongly wounded by others, and that they often find themselves in positions of offending or shocking, without that intention.

9. Friends are not easy for me, for there is a part of me who, despite an inconceivable amount of self-reflection, insight, and work, will always think I am not a good enough friend. This isn’t a self-esteem issue. I do like me. It has to do with the extreme ways in which I can psychoanalyze myself and dissect conversations. I am always, and will always be, an observer of others, twice removed from discourse and continually dissecting and evaluating and reliving over and over past conversations.

10. I have one friend in which I can just spill my guts and fears and anxiety and she will JUST listen. She doesn’t do tit for tat. In that I mean she doesn’t ask me for advice, expect me to listen or to return the favor. She just lets me process. I think every Aspie (and every human being) needs someone who will just listen.

11. I recognize I will always feel like I don’t give back enough in friendship. It is just the way it is. When people give to me, in time or other ways, I feel an immediate want and obligation to equal the score. It’s not that I mean to keep score, only that I naturally don’t want to take advantage of anyone.

12. I love to have friends from all backgrounds. I am not picky. Or maybe I am, if you think the capacity to love without conditions, to be honest, to be giving, to be kind, and to be genuine is picky. But with that said, and a little trustworthiness thrown in, I am capable of being friends with many, many people. There isn’t a checklist.

13. I think I need friends. I think everyone does. I think the risk is worth it.

I don’t neccesarily think the introduction matches the list. But, oh well. My friends will understand. 🙂

13 is my favorite number.

Looking for aspie friends? Join everyday aspergers Facebook like page to the left.

503: The “Truth” About Lying (An Aspie perspective)

| Aspergers Girls

I put myself into a situation last month wherein I found myself lying in totality more than I had in my entire life. I fooled myself into thinking the act of telling falsehoods was somehow protecting someone’s feelings. But the truth of the matter is my lying only compounded the challenges and hurt the person I was trying to protect.

Having always been an overly honest, frank, yet gentle person, I had never experienced the domino effect of lying before. I hadn’t been in a position before in which I was creating new lies to cover up previous lies, nor in the position of trying to recall what I had said in previous mistruths to validate and confirm current mistruths. I found the whole process excruciatingly exhausting, and both physically and emotionally daunting. I finally reached a point where I told the person the whole of the situation, mostly because I was ‘caught’ in the process, and also because I couldn’t stand to tell one more lie.

The truth about lying is that the act itself causes me great distress.

Because of the way my mind works, I overanalyze the simplest of things; however, the most prevalent means of overanalyzing is seen in my natural, seemingly instinctual, ability to search for truths, (and try my best not to lie). To complicate the ordeal, having been around this earth long enough, (I am ready to be beamed up.), it’s quite clear that truths are too complex of matters to ever be discovered in completion. To truly peel the outer layer of the proverbial onion off to find the core of truth is impossibility—the process in and of itself futile.

Yet, still my mind peels and peels, thinking at last I will figure out the reality of truth; even as I know now, at least conclude now, that the only reality is love and service, and trying my best to be the best version of me, whilst allowing myself to be human without gluttony-based-behavior manifested as self-punitive thoughts.

Regardless of any knowings, my brain will continue to try to find the truth, the facts, the reality, etc. The reason, it seems, is I have this engrained responsibility to be authentic. I mean it’s carved into my essence—the very heart of me wanting nothing more than to be me.

And that is where everything gets complicated. For there is no me I can find.

Beyond this philosophical plight, there remains the undeniable, double-stubborn part of me that insists on being honest, even as the depths of honesty elude me. They, the depths of honesty, are complicated by manmade rules. Whether the rules be about feelings, or disclosure, or privacy, or social behavior, the rules affect my ability to figure out how to be. This in itself in a quandary: For if I am in constant state of trying to figure out how to be me, then when am I me? My mind gets stuck on wheels of thought like the aforementioned, and I become exhausted.

In this interplay of finding truth, simple acts become tiring, thinking becomes tiring. Everything is a hurdle and I the limping former track star trying to merely move beyond the obstacle. I become utterly dumbfounded and lost in a maze of possibilities. In partaking in something as simple as ordering coffee at a local spot, I undergo distress. I wonder if my facial expression is what I am feeling. I wonder if my tone of voice accurately reflects the inner me. I wonder if in my response to ‘how are you,’ is a true response. I wonder if my thoughts are kind about the person, and if they are not kind thoughts, I wonder what is kind? I become lost from the simple act of facing a person at a cash register for under five seconds. Time slows down, too, as if I have the ability to process things at the opposite of hyper-time, and enter a zone of almost endless contemplation, until I am pulled back by a sensory trigger such as the voice of another or chime of a machine. I then question my actions. Was I ‘ADHDing’? Was I time traveling? Was I over-thinking? And then the judge comes forward, the voice I stopped pushing down, and now simply observe and let slip away. The voice reminding me how different I am than most around me; how most of my life is spent in another world, way beyond the experience of the common bystander I observe.

And the thoughts don’t stop then. I am in a constant state of preparation of truth. Sometimes I think a certain species was created to be a light bearer of truth; this species being Aspergers and those on the spectrum. At least sometimes this appears the case to me. But I think whomever plopped some of us down, forgot the enormity of the task of the act of bearing truth, forgot the infiniteness of truth, the way the frays off the branches of thoughts bleed out into millions upon millions of splintered-possibilities, and how the mind can only handle so much. I think this creator, or these creators, whether it be God, aliens, genetics, or mutations, overlooked the humanness of us, the frailties, the ways in which our own minds would override our sense of freedom and hope. And how inevitably in longing for the truth, more than anything, we would lose sight of not only ourselves, and those around us, but the very gift of life.

502: Dear You: To my Aspie Sisters and Brothers

| Aspergers Girls

Dear You,

If you are reading this, please know you are not alone.

I know at times it feels that way—really feels that way; so much so, that even your keen logic cannot convince you otherwise. The voices will tell you are unloving, unworthy, undesirable. But the voices are lies. You are love. You are worthy. You are desire.

I have been in the dark place more times than I can count; it comes, the bleakness, spontaneously in huge volcanic ruptures. The pain itself tears at my heart and my soul and leaves me breathless and weak. It is then in the black that I cannot find solutions. When I believe I have no one. And that all about the world is my enemy.

But that is not truth, even as it seems very much truth. It isn’t. I know it isn’t. I know because I have witnessed our beauty in the countless people I have encountered on the autistic spectrum. Their truth and love are evident, their souls transparent.

Please know that by being here, you are making a difference. You are making a difference to me. Your pain is my pain. Your story my story, and we share a lifetime of similarities. I understand you; I truly do, just as you understand me. If we were to sit alone in a quiet place and talk, you would know me and I, you. We are sisters and brothers. We are one in our quest for truth, justice, and love.

I know how you suffer in your silence, and how you too suffer in your immeasurable thoughts. I know how you have to always balance what is inside with what you display on the outside. I know this extreme burden, the heaviness, the endless weary mind. How exhausting that task remains, day in and day out, night after night, in what seems a thousand lifetimes wrapped into one.

I understand how you see beyond the illusion of what is indoctrination, and beyond the falsehoods of societal norms. I know. And I know what isolation comes from our being. I know what it is to be ostracized, questioned, blamed, persecuted, attacked, and made victim. I know. And I stand tall still, more so for you than for my own self. For I will not stop. I will not shut out my light to please an enemy that moves against me. I will remain here. I will remain strong. I will remain whole in my determination to rise above the chaos that is this world. I will continue to seek out kindred souls, who not only understand me but understand the necessity for the demolishment of mediocrity. I will be here, waiting, always. Welcoming through my threshold truth seekers and the like.

I honor you, and our family, each individual who remains afraid but nonetheless holds steadfast to the value of authenticity. No. You are not alone. Not anymore. There are thousands of us here, much more alike than different. And even as we suffer at times in our isolation, in the end we are surrounded by circles and circles of friends on the same path.

Please understand that I think of you daily. Please know that I count my blessings with you included as a star in my night sky. Without you, I wouldn’t know where to stand or how to be. With you I remember my light. I remember me.

Much, much love.
Stay strong.
Stay true.
Your friend,
Sam

494: 10 Ways I Can Spot an Aspie Girl

| Aspergers Girls

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10 Ways I Can Spot an Aspie Girl

1. Deep, soulful eyes which perhaps dip down slightly and/or are very distinguished and large. There is someone in there with a story. There is truth.

2. An uncomfortable smile that cannot find a home which fluctuates between a chiseled, serious frown and the most amazing genuine smile, wherein the whole self and soul lights up—a childlike expression, too pure to be mistaken for anything else than authenticity.

3. Continual statements of second-guessing, checking for understanding, clarifying self, and offering out extra information in an attempt to be understood. Indications of never reaching a full conclusion, as there are limitless possibilities. Questioning self, harvesting advice, and then tossing everything out and starting anew. Having the kindling of multiple thoughts about multiple directions, all at the same time.

4. Fleeting, unnatural eye contact, that is either over-intense and attempting to linger or constantly moved about to find an object of focus. Unusual gestures whilst conversing, and seemingly never fully engaged in the speaker, unless strongly intrigued; and even then the imagination takes over and causes a drifting appearance. Unless overtaken with a special topic of interest; then all mannerisms and ways of being become forgotten, and all that exists is the spoken word.

5. Eyebrows that raise up when a smile is formed, or a distinct maneuvering of the facial features, as if to represent who they are, even when smiling, as to not distort a truth.

6. Unnatural appearing stances and movements; never quite comfortable moving in body unless preoccupied and/or in the midst of strong emotions or a special topic of interest.

7. A sweetness that isn’t outgrown entangled with an enchanting childlike nature and naiveté. Swirling within a constant flux of varying emotions, and heavily influenced by the happenings of everything and everyone.

8. An undeniable unique way of self-expression in all forms: in thought, in writing, in art. All is an extension of the greater self. Spread out with an openness lacking self-need and wanting; and instead represented by an honest soul in search of connection.

9. A flowing nature with undercurrents of stability and predictability. At first glance the person may seem unstable, but with careful observation she follows the ebbs and flows of life, much like the tides to the moon, and the flowers to seasons. She rises and falls. She opens and closes. She is a manifestation of the greater good of cosmic unity, of togetherness, of the interwoven web of us.

10. Her deep reflective state, no matter the topic or situation. The way in which intensity is brought into the room, even as a lightness of being remains. There is a quandary of sorts, an advanced duality, in which she is powerful, yet she is meek, she is substantial yet she is invisible, she is love yet she is fear. She carries the badge of courage in her heart, the white dove of humility in her hands, and everywhere she goes she is either touched or touches down, leaving a trail of fairy dust, or a slough of mud, either way, the path altered.

Hello All.

I hope you are well during these challenging times.

I am writing to provide a few updates (2020) for anyone who happens upon this homepage.

My third blog is a bit hard to find, since I changed the domain name. Here is the direct link to Everyday Autistic. My artist’s blog is Belly of a Star.

Here is the Autistic Trait’s List.

Here is my company website Spectrum Suite LLC, which includes 100s of resources and our services page.

Here is a link to one of my Linkedin Articles that will bring you to my profile and some articles there!

My new works include much advocacy for Universal Design in the Workplace, which equates to true inclusivity, where all employees are given opportunity to the same support measures and community engagement, such as the same best-practices interviews, job coaches, support team; not just one marginalized minority, e.g., autistic individuals.

I am working on a book on empowerment on the autism spectrum.

I am my waving from afar, and wishing you so very well! I cannot believe it’s been 8 YEARS!

I now call myself a ‘neuro-minoriy’ (coined by Judy Singer) and consider myself a neurodivergent-blend (coined by me!). I am neurodivergent-blend because of my autistic profile, gifted-intellect diagnosis, dyslexia, dyspraxia, OCD, etc. etc. etc.

Feel free to connect on twitter or Facebook.

I’m on the bottom right, in the photo below, speaking at the Stanford Neurodiversity Summit. You can find out what we’ve been up to on the website. Here is a 10 hr.+ video of Day 2 at the Summit!

My book is now available around the world in paperback! Check out Barnes and Noble or Amazon.

Everyday Aspergers is an unusual and powerful exploration of one woman’s marvelously lived life. Reminiscent of the best of Anne Lamott, Everyday Aspergers jumps back and forth in time through a series of interlocking vignettes that give insight and context to her lived experience as an autistic woman. The humor and light touch is disarming, because underneath light observations and quirky moments are buried deep truths about the human experience and about her own work as an autistic woman discerning how to live her best life. From learning how to make eye contact to finding ways to communicate her needs to being a dyslexic cheerleader and a fraught mother of also-autistic son, Samantha Craft gives us a marvelous spectrum of experiences. Highly recommended for everyone to read — especially those who love people who are just a little different.”~ Ned Hayes, bestselling author of The Eagle Tree