Day 197: Ten Traits

This post has never had the honor of its own day. So for day 197 I am reposting this. This post has brought hundreds of people together, and has been viewed by thousands and thousands of people all over the world. To see hundreds of comments go to this link, where the original post can be found. https://aspergersgirls.wordpress.com/2012/02/10/aspergers-traits-women-females-girls/

Ten Traits

1) We are deep philosophical thinkers and writers; gifted in the sense of our level of thinking. Perhaps poets, professors, authors, or avid readers of nonfictional genre. I don’t believe you can have Aspergers without being highly-intelligent by mainstream standards. Perhaps that is part of the issue at hand, the extreme intelligence leading to an over-active mind and high anxiety. We see things at multiple levels, including our own place in the world and our own thinking processes. We analyze our existence, the meaning of life, the meaning of everything continually. We are serious and matter-of-fact. Nothing is taken for granted, simplified, or easy. Everything is complex.

2) We are innocent, naive, and honest. Do we lie? Yes. Do we like to lie? No. Things that are hard for us to understand: manipulation, disloyalty, vindictive behavior, and retaliation. Are we easily fooled and conned, particularly before we grow wiser to the ways of the world? Absolutely, yes. Confusion, feeling misplaced, isolated, overwhelmed, and simply plopped down on the wrong universe, are all parts of the Aspie experience. Can we learn to adapt? Yes. Is it always hard to fit in at some level? Yes. Can we out grow our character traits? No.

3) We are escape artists. We know how to escape. It’s the way we survive this place. We escape through our fixations, obsessions, over-interest in a subject, our imaginings, and even made up reality. We escape and make sense of our world through mental processing, in spoken or written form. We escape in the rhythm of words. We escape in our philosophizing.  As children, we had pretend friends or animals, maybe witches or spirit friends, even extraterrestrial buddies. We escaped in our play, imitating what we’d seen on television or in walking life, taking on the role of a teacher, actress in a play, movie star. If we had friends, we were either their instructor or boss, telling them what to do, where to stand, and how to talk, or we were the “baby,” blindly following our friends wherever they went. We saw friends as “pawn” like; similar to a chess game, we moved them into the best position for us. We escaped our own identity by taking on one friend’s identity. We dressed like her, spoke like her, adapted our own self to her (or his) likes and dislikes. We became masters at imitation, without recognizing what we were doing. We escaped through music. Through the repeated lyrics or rhythm of a song–through everything that song stirred in us. We escaped into fantasies, what cold be, projections, dreams, and fairy-tale-endings. We obsessed over collecting objects, maybe stickers, mystical unicorns, or books. We may have escaped through a relationship with a lover. We delve into an alternate state of mind, so we could breathe, maybe momentarily taking on another dialect, personality, or view of the world. Numbers brought ease. Counting, categorizing, organizing, rearranging. At parties, if we went, we might have escaped into a closet, the outskirts, outdoors, or at the side of our best friend. We may have escaped through substance abuse, including food, or through hiding in our homes. What did it mean to relax? To rest? To play without structure or goal? Nothing was for fun, everything had to have purpose. When we resurfaced, we became confused. What had we missed? What had we left behind? What would we cling to next?

4) We have comorbid attributes of other syndromes/disorders/conditions. We often have OCD tendencies (Obsessive Compulsive Disorder), sensory issues (with sight, sound, texture, smells, taste), generalized anxiety and/or a sense we are always unsafe or in pending danger, particularly in crowded public places. We may have been labeled with seemingly polar extremes: depressed/over-joyed, lazy/over-active, inconsiderate/over-sensitive, lacking awareness/attention to detail, low-focus/high-focus. We may have poor muscle tone, be double-jointed, and lack in our motor-skills. We may hold our pencil “incorrectly.” We may have eating disorders, food obsessions, and struggles with diet. We may have irritable bowel, Fibromyalgia, chronic fatigue, and other immune-challenges. We may have sought out answers to why we seemed to see the world differently than others we knew, only to be told we were attention seekers, paranoid, hypochondriacs, or too focused on diagnoses and labels. Our personhood was challenged on the sole basis that we “knew” we were different but couldn’t prove it to the world and/or our personhood was oppressed as we attempted to be and act like someone we were not. We still question our place in the world, who we are, who we are expected to be, searching for the “rights” and “wrongs;” and then, as we grow and realize there are no true answers, that everything is theory-based and limited, we wonder where to search.

5) We learn that to fit in we have to “fake” it. Through trial and error we lost friends. We over-shared, spilling out intimate details to strangers; we raised our hand too much in class, or didn’t raise our hand at all; we had little impulse control with our speaking, monopolizing conversations and bringing the subject back to ourselves. We aren’t narcissistic and controlling–we know we are not, but we come across that way. We bring the subject back to ourselves because that is how we make sense of our world, that is how we believe we connect. We use our grasp of the world as our foundation, our way of making sense of another. We share our feelings and understandings in order to reach out. We don’t mean to sound ego-centered or over zealous. It’s all we know. We can’t change how we see the world. But we do change what we say. We hold a lot inside. A lot of what we see going on about us, a lot of what our bodies feel, what our minds conjecture. We hold so much inside, as we attempt to communicate correctly. We push back the conversational difficulties we experience, e.g., the concepts of acceptable and accurate eye contact, tone of voice, proximity of body, stance, posture–push it all back, and try to focus on what someone is saying with all the do’s and don’ts hammering in our mind. We come out of a conversation exhausted, questioning if we “acted” the socially acceptable way, wondering if we have offended, contradicted, hurt, or embarrassed others or ourselves. We learn that people aren’t as open or trusting as we are. That others hold back and filter their thoughts. We learn that our brains are different. We learn to survive means we must pretend.

6) We seek refuge at home or at a safe place. The days we know we don’t have to be anywhere, talk to anyone, answer any calls, or leave the house, are the days we take a deep breath and relax. If one person will be visiting, we perceive the visit as a threat; knowing logically the threat isn’t real, doesn’t relieve a drop of the anxiety. We have feelings of dread about even one event on the calendar. Even something as simple as a self-imposed obligation, such as leaving the house to walk the dog, can cause extreme anxiety. It’s more than going out into society; it’s all the steps that are involved in leaving–all the rules, routines, and norms. Choices can be overwhelming: what to wear, to shower or not, what to eat, what time to be back, how to organize time, how to act outside the house….all these thoughts can pop up. Sensory processing can go into overload; the shirt might be scratchy, the bra pokey, the shoes too tight. Even the steps to getting ready can seem boggled with choices–should I brush my teeth or shower first, should I finish that email, should I call her back now or when I return, should I go at all? Maybe staying home feels better, but by adulthood we know it is socially “healthier” to get out of the house, to interact, to take in fresh air, to exercise, to share. But going out doesn’t feel healthy to us, because it doesn’t feel safe. For those of us that have tried CBT (Cognitive Behavior Therapy), we try to tell ourselves all the “right” words, to convince ourselves our thought patterns are simply wired incorrectly, to reassure ourself we are safe…the problem then becomes this other layer of rules we should apply, that of the cognitive-behavior set of rules. So even the supposed therapeutic self-talk becomes yet another set of hoops to jump through before stepping foot out of the house. To curl up on the couch with a clean pet, a cotton blanket, a warm cup of tea, and a movie or good book may become our refuge. At least for the moment, we can stop the thoughts associated with having to make decisions and having to face the world. A simple task has simple rules.

7) We are sensitive. We are sensitive when we sleep, maybe needing a certain mattress, pillow, and earplugs, and particularly comfortable clothing. Some need long-sleaves, some short. Temperature needs to be just so. No air blowing from the heater vent, no traffic noise, no noise period. We are sensitive even in our dream state, perhaps having intense and colorful dreams, anxiety-ridden dreams, or maybe precognitive dreams. Our sensitivity might expand to being highly-intuitive of others’ feelings, which is a paradox, considering the limitations of our social communication skills. We seek out information in written or verbally spoken form, sometimes over-thinking something someone said and reliving the ways we ought to have responded. We take criticism to heart, not necessarily longing for perfection, but for the opportunity to be understood and accepted. It seems we have inferiority complexes, but with careful analysis, we don’t feel inferior, but rather unseen, unheard, and misunderstood. Definitely misunderstood. At one point or another, we question if in fact we are genetic hybrids, mutations, aliens, or  displaced spirits–as we simply feel like we’ve landed on the wrong planet. We are highly susceptible to outsiders’ view points and opinions. If someone tells us this or that, we may adapt our view of life to this or that, continually in search of the “right” and “correct” way. We may jump from one religious realm to another, in search of the “right” path or may run away from aspects of religion because of all the questions that arise in theorizing. As we grow older, we understand more of how our minds work, which makes living sometimes even more difficult; because now we can step outside ourselves and see what we are doing, know how we our feeling, yet still recognize our limitations.  We work hard and produce a lot in a small amount of time. When others question our works, we may become hurt, as our work we perceive as an extension of ourselves. Isn’t everything an extension of ourselves–at least our perception and illusion of reality? Sometimes we stop sharing our work in hopes of avoiding opinions, criticism, and judgment. We dislike words and events that hurt others and hurt animals. We may have collected insects, saved a fallen bird, or rescued pets. We have a huge compassion for suffering, as we have experienced deep levels of suffering. We are very sensitive to substances, such as foods, caffeine, alcohol, medications, environmental toxins, and perfumes; a little amount of one substance can have extreme effects on our emotional and/or physical state.

8) We are ourselves and we aren’t ourselves. Between imitating others and copying the ways of the world, and trying to be honest, and having no choice but to be “real,” we find ourselves trapped between pretending to be normal and showing all our cards. It’s a difficult state. Sometimes we don’t realize when we are imitating someone else or taking on their interests, or when we are suppressing our true wishes in order to avoid ridicule. We have an odd sense of self. We know we are an individual with unique traits and attributes, with uniques feelings, desires, passions, goals, and interests, but at the same time we recognize we so desperately want to fit in that we might have adapted or conformed many aspects about ourselves. Some of us might reject societal norms and expectations all together, embracing their oddities and individuality, only to find themselves extremely isolated. There is an in between place where an aspie girl can be herself and fit in, but finding that place and staying in that place takes a lot of work and processing. Some of us have a hard time recognizing facial features and memorize people by their clothes, tone of voice and hairstyle. Some of us have a hard time understanding what we physically look like. We might switch our preference in hairstyles, clothes, interests, and hobbies frequently, as we attempt to manage to keep up with our changing sense of self and our place. We can gain the ability to love ourselves, accept ourselves, and be happy with our lives, but this usually takes much inner-work and self-analysis. Part of self-acceptance comes with the recognition that everyone is unique, everyone has challenges, and everyone is struggling to find this invented norm. When we recognize there are no rules, and no guide map to life, we may be able to breathe easier, and finally explore what makes us happy.

9) Feelings and other people’s actions are confusing. Others’ feelings and our own feelings are confusing to the extent there are no set rules to feelings. We think logically, and even though we are (despite what others think) sensitive, compassionate, intuitive, and understanding, many emotions remain illogical and unpredictable. We may expect that by acting a certain way we can achieve a certain result, but in dealing with emotions, we find the intended results don’t manifest. We speak frankly and literally. In our youth, jokes go over our heads; we are the last to laugh, if we laugh at all, and sometimes ourselves the subject of the joke. We are confused when others make fun of us, ostracize us, decide they don’t want to be our friend, shun us, belittle us, trick us, and especially betray us. We may have trouble identifying feelings unless they are extremes. We might have trouble with the emotion of hate and dislike. We may hold grudges and feel pain from a situation years later, but at the same time find it easier to forgive than hold a grudge. We might feel sorry for someone who has persecuted or hurt us. Personal feelings of anger, outrage, deep love, fear, giddiness, and anticipation seem to be easier to identify than emotions of joy, satisfaction, calmness, and serenity. Sometimes situations, conversations, or events are perceived as black or white, one way or another, and the middle spectrum is overlooked or misunderstood. A small fight might signal the end of a relationship and collapse of one’s world, where a small compliment might boost us into a state of bliss.

10) We have difficulty with executive functioning. The way we process the world is different. Tasks that others take for granted, can cause us extreme hardship. Learning to drive a car, to tuck in the sheets of a bed, to even round the corner of a hallway, can be troublesome. Our spacial awareness and depth-awareness seems off. Some will never drive on a freeway, never parallel park, and/or never drive. Others will panic following directions while driving. New places offer their own set of challenges. Elevators, turning on and off faucets, unlocking doors, finding our car in a parking lot, (even our keys in our purse), and managing computers, electronic devices, or anything that requires a reasonable amount of steps, dexterity, or know-how can rouse in us a sense of panic. While we might be grand organizers, as organizing brings us a sense of comfort, the thought of repairing, fixing, or locating something causes distress. Doing the bills, cleaning the house, sorting through school papers, scheduling appointments, keeping track of times on the calendar, and preparing for a party can cause anxiety. Tasks may be avoided. Cleaning may seem insurmountable. Where to begin? How long should I do something? Is this the right way? Are all questions that might come to mind. Sometimes we step outside of ourselves and imagine a stranger entering our home, and question what they would do if they were in our shoes. We reach out to others’ rules of what is right, even in isolation, even to do the simplest of things. Sometimes we reorganize in an attempt to make things right or to make things easier. Only life doesn’t seem to get easier. Some of us are affected in the way we calculate numbers or in reading. We may have dyslexia or other learning disabilities. We may solve problems and sort out situations much differently than most others. We like to categorize in our mind and find patterns, and when ideas don’t fit, we don’t know where to put them. Putting on shoes, zipping or buttoning clothes, carrying or packing groceries, all of these actions can pose trouble. We might leave the house with mismatched socks, our shirt buttoned incorrectly, and our sweater inside out. We find the simple act of going grocery shopping hard: getting dressed, making a list, leaving the house, driving to the store, and choosing objects on the shelves is overwhelming.

This list is based on workshops, videos, literature, personal accounts, and my own experience. Females with Asperger’s Syndrome present themselves very differently than males. This is not an all-encompassing list. It’s not a criteria. It’s limiting and bias-based, as it’s only my view. It is my current truth. I don’t claim to be an expert or professional….but I do know an awful lot about the subject. I hold a Masters Degree in Education, have Aspergers, one of my sons has Aspergers, and I have several graduate-level classes in counseling psychology…I guess I am sort of an expert, after all. ~ Sam Craft

© Everyday Aspergers, 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited.
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Day 163: Super Freak

I’m a SUPER FREAK this morning. I am pretty sure my youngest has restless leg syndrome. And he definitely talks, moans, and moves a whole lot in his sleep. Oh, yes…..traveling once again, and so very much reminded of my human condition. This time an eleven hour drive to California with my three boys, ages ten, thirteen, and fourteen…..oh boy! Literally!

Just pulled this writing up from early May 2012. Today, again, having slept in a hotel (sigh) I am dealing with much overload, lack of sleep, exhaustion, and grumpiness. Hope to have a happier disposition tomorrow after a decent night’s sleep. If you see a woman having a meltdown on the side of Highway 5 in California…that would be super freak me!

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On the first day of our trip to the Island of Maui, I was reminded of my over sensitive system. I hadn’t imagined the plane fight would be such an unpleasant experience. I’d forgotten, or more likely, I’d hoped for change.

Many people with Aspergers, if not all, are extremely sensitive. They feel emotions and feelings in great depth. Likewise, their senses of sight, sound, touch, taste, and smell are very acute. Often, a person experiences sensory overload when he or she is outside his everyday environment. In some cases, home or perhaps nature, are the only places that are tolerable to the senses. Outside of the comfort zone, a person with Aspergers can likely feel an overwhelming degree of agitation, pain, and misery. This is one of the reasons I prefer to spend more time at home than in public places. Sensory overload can lead to meltdowns—which are akin to adult tantrums—a screaming out for help, when one does not know how to help one’s self.

In considering sound, where many people can block out background noise and focus without distraction, people with sensory sensitivities hear everything at once. There is no mute button. And there is no making the noise stop, beyond earplugs and escape.

The other senses work the same. Textures irritate. Smells overwhelm and overtake. Sights hurt. And even the taste of air is unpleasant.

It appears there is something about the Asperger’s sensory and processing system that cause people to sense things in the environment in segmented over-exaggerated parts, instead of whole. Instead of looking upon a crowd and seeing a crowd, one looks upon a multitude of bombarding shapes and sizes, each movement as uncomfortable to view as the next.

People with sensory sensitivities are acutely aware of everything happening in their environment and everything seems to be occurring all at once. There isn’t release. What would be a soft unnoticeable hum to one becomes a piercing roar to the other. It is as if someone has turned up the volume of every single sensory organ.

There is no relaxation, only the constant stream of shards—parts of chatter, parts of the ticking clock, parts of the rattling and  hum. There are parts of smells, all sorted out and classified, not mingled, not forgotten. There are parts of tastes—the breath, the air, the fragrances, the poisons chemicals. Sights are in parts. Fragmented pieces that attempt to make a whole, but fail. A face not remembered except as shape of wrinkled wide nose and color of dark narrow eyes. Even the mind is in parts, continually breaking down wholes to subsections. Whole to parts is easy. Parts to whole is hard. Nothing is as it appears. Everything is in parts. It is the parts that bring agony, the endless parts that bring with them the impossibility of finding retreat in the whole.

With my sensory sensitivities, the six-hour ride in the airplane to Maui was torturous. No mind control, mantras, visualization, or distractions could stop the parts. And lacking the ability to help myself, sank me into self-blame. I sat in misery wishing to time travel into sweet oblivion. I became depleted, agitated, and depressed. Meltdown was avoided, but angry eyes prevailed.

The worst was the piercing babies’ cries. There were at least ten babies on the plane. There wasn’t a time when one wasn’t screaming.

I did find refuge. I had my words. I could write. I could escape through the process of creating images, feelings, and thoughts into story. Words were my parachute and freedom, a passport away from the screaming shards.

Cry from the Sky

Imploded

Without retreat

Saturated misery

Roots into ear

Vine out

Crumpling, tearing, crackling paper

The rhythmic off beat dance murdering peace

Stop!

Bring silence

Opening cans, clanging carts, annoying repetitive footsteps

Bumping in front, bumping in back

An uninvited rollercoaster

No escape

The babies scream and scream again

Piercing thorns

Constant chatter, whispers, sighs

Conversations bleed into a monster of noise

Roaring engine rattles fury

Even the yawns scream

Squishing and swishing misshapen bodies

Stench

Stale garbage

One hundred meals at once

Beyond window, the fresh and silence beckons

A tease of the unattainable

Aches, irritations, stiffness, icy cold

Suffocating soreness

More bumping, more banging

Nothing is calm

Nothing is motionless

Everything moving

Everything in parts

One broken into a thousand

Question after question

Comment after comment

Trapped in stinging air

Recycled germs everywhere

Breathing in danger

Stop. Shut up. Cease

Release me

Put a cork in the child’s mouth

Put a muzzle on the man

Put a mute light on

STOP MOVING!

Energy spikes, energy flows, energy feeds

Energy spirals, burrows, pangs

Into self

Close eyes

Close noise

Close people

Close the outside

Focus on inside

Focus on calm

And still the babe screams

“Help me!”

Day 131: The Crow in Me

I have recently formed a friendship with a woman with Aspergers, and I have to say, it is the easiest friendship I have ever had. Though it is long distance, we chat every day, sometimes for hours. What I notice about her are the same traits I notice about me. Our lives and our thinking are so parallel, it is almost creepy.

Essentially, we think and process the same way. We have the same worries. We see things in the same light. We both require the same  security in conversation. We need validation, and we give out the whole of ourselves. We are able to focus on one another entirely. Everything else can stop. We become priority. Talking to her is the easiest thing I’ve done in my life. She is genuine, open, and entirely honest. She analyzes everything she says before writing, and then analyzes it again after writing—just as I do. She frets over her words, as I do. She wonders whether she is good enough for a friend, too intense, too different. She over-compensates with love and compassion to be certain I feel safe and understood. She offers advice straight from the heart, only because she has a calling from God to do so. She sits on every word, measuring the potentiality for miscommunication and the probable consequences of her message. She spins and loops about what she has said, and how the words might affect our relationship. She thinks about me often throughout her day; I am never an afterthought. She loves me whole-heartedly. She knows when I need her to sit and be with me, and puts aside everything else in her life to show me she cares. She takes the time to write to me, no matter what is happening in her life. As soon as she knows I am available to chat, she comes my way with a smile, heart, or message. She is my soul-sister, mirroring me in every way, and I so love what I see.

Through my friendship with this special lady and through her comforting words expressing her own experience with friends, I am just beginning to understanding the difference between the way I communicate to friends I am passionate about and the way people without Aspergers communicate back to me. I am realizing that many times in my life, I was ultimately not rejected, but that my friends didn’t understand my communication style, misinterpreted my words and actions, and were actually incapable of duplicating my enthusiasm and dedicated attention.

I find this true today with another friendship I have formed with a very kind and loving person. Though this person is one of the sweetest souls I have met, at the same time, we communicate so entirely differently. This is no fault of anyone’s—and is solely the result of our brains being wired differently. Where I am as eager as a puppy to jump all over the conversation, day or night, anytime, anywhere, my new friend prioritizes, plans, evaluates, and places me within a schedule. Aspies generally don’t do that! We have this gift of focusing entirely on what we are interested in and what are hearts want at the moment. Everything, and I mean everything else in our world, disappears when we are wrapped up in our passion. Bills might not get paid, beds not made, pets not fed—we don’t neglect, we just forget as we are sucked into another realm.

To me this is a form of escape. I can do this with certain people, and my communication with them becomes my temporary haven away from all the stresses of the world—away from the constant overload of sensory input, and worries of everything that is shouting to be done, the continual spinning of thoughts, ideas, emotions, and need, the pounding fear of the world’s expectations and anticipated actions. In having a special friend, I am able to forget myself momentarily and be only a part of his or her world: just me on a stage with them, with everything else on hold. I’ve done this my entire life. And I do believe this aspect is a primary part of me, nothing to be fixed or changed; this is just me. Living on this planet, if I did not have opportunity to escape, I would surely hovel in a corner and never leave. This world is ultimately a very scary place for me.

I am also realizing that I hurt much more inside when I talk to people than when I talk to my new friend with Aspergers. This, again, is no one’s fault, and purely reflects the dynamics of two people with like minds joining verses two people with very different minds connecting. It does not matter how sensitive, caring, loving, pure and honest a friend is, if he or she doesn’t have Aspergers, he or she will never truly get me. That’s not to say I can’t have very fulfilling friendships with all types of people; it just means I know deep down inside that unless a person has a brain that functions like me, there will always be this piece about me that the other person will not understand. Whether he or she is aware of this makes no difference, because I am aware of this.

I am working through some hurt now. Trying to understand why my needs are entirely different than most people’s needs in a relationship. Backtracking through all the past times I overwhelmed, confused, or was misunderstood. I am acknowledging that broken relationship were not because of whom I am as a person. Broken relationships were a result of me communicating the only way I knew how.

Some of the things I’ve noticed happening in the new relationship I have with someone that does not have Aspergers:

1)      I am sad that my friend is not always able to talk to me at every moment of the day.

2)      I continually worry I over-shared, and at the same time cannot help myself from over-sharing. I get this overwhelming urge to share. And have this urgency about me to expose my truths, as if the world shall end tomorrow and if I don’t get my thoughts out, I shall die unknown and unheard.

3)      I want to know EVERYTHING about my friend. Every fear, love, past event, thought, experience.

4)      I wonder why the person has not answered my message in a timely fashion. (For me that would mean within a second of when I wrote the message, because I ought to be number one priority! Insert laughter here.)

5)      I question why the person wants to be my friend, as I am so intense, so prone to having my feelings hurt, in continual need of validation, and questioning my worth.

6)      I worry beyond worry that my friend does not see the purity of my heart. And when I am misunderstood a thousand daggers pierce my soul. For if my friend sees me as mean, manipulative, a liar, lacking compassion, closed-minded, angry, vengeful, demeaning, or the like, than I know he or she is not seeing me.

7)      I want to be seen. I want to open myself up like a book so the friend can read every single page and know my beauty. I want to shine so bright that my friend believes me when I say I love unconditionally.

8)      I try constantly to say the exact word. I fret over every sentence. If I am chatting online, I reread everything I wrote ten times, wondering if I chose the wrong words, wondering how the person will interpret, wondering if I am expressing the heart of me.

9)      I want to delete most of what I say. I sometimes have an odd sense of humor, or don’t get something, like a simple word, or simple explanation. My friend’s innocent comment can send me off the deep end, send me spiraling down to earth, with a heavy landing, so that I feel deadened and crushed inside.

10)   I find that I am so very innocent and naïve compared to other people. In conversation, I feel as if I am about the age of ten or even younger. A little girl still searching the eyes of the person I adore and wondering if he or she adores me. A little girl needed to be swept up and hugged and told how beautiful she is, how special, how loved. To know that I am unconditional accepted and very much appreciated. I long to be told, I love you, every few minutes, in order to feel safe, in order to understand I am not being judged, misinterpreted, or thought about in a “bad” light.

http://vi.sualize.us/

11)   I am just realizing I don’t really understand love at all. Love to me means something entirely different than to most people. I don’t understand the degrees of love, how love builds, how friendship starts out at one level, and then grows into love. I love all at once. This huge bundle of love. And I plop this love right down at my friend’s feet. If I didn’t feel that bundle of love, I wouldn’t be the person’s friend. It’s very simple to me. Of course I love you, you are my friend. What does like you a lot even mean? Does that mean I like you for now, and might always like you, but if you prove to be more special, I might consider loving you? That hurts me. The word like hurts me. If love is the end point, then why am I placed at the starting line? Why wouldn’t a friend love me from the very beginning? Can he or she not feel the same connection, bond, and love as me?

12)   I sometimes say things, hint things, and describe things that are very clear to me, and the other person doesn’t get what I am saying at all. I sometimes do things that take the whole of me, take so much risk, preparation, and forethought, but my actions aren’t met with the same extreme of emotions. Speaking to my friend sometimes is akin to tearing out my bleeding heart, setting my heart pounding on the table for my friend to see, and my friend casually walking by and saying, “Oh, that’s nice.” Only to then continue walking. I take out my heart and think the person will know, but my friend does not. My friend does not know that everything I say is a dynamic risk.

13)   I don’t know how to turn down my intensity. I don’t have light and carefree days. I don’t have a way to shut me down or dim my emotion. I don’t even have waves of love. Everything remains level at a very high extreme. Nothing is little or unimportant. Nothing downplayed. Nothing forgotten. Everything remembered and brought back up to the surface over and over for reanalysis. Scenarios are played out in the mind of how I could have said something better. How I could communicate clearer. How I should communicate less. How I should be less enthusiastic. I swing a harsh whip at my mind, slash and slash with should haves and could haves.

14)   Simple statements from my friend can send me spinning. What does that mean? Did I do something wrong? Did I blow this friendship? Was I too intense? What does my friend want me to say? How should I say this? What if I am wrong? What if I am misjudged? Did I say too much already? Should I laugh now? Should I offer support? Is advice okay? Am I a bore, a nuisance, a weirdo, too odd to keep around? Why is the conversation over? Why not talk more? Why am I not a priority? Am I not nice enough? Not kind enough? Not pretty enough?

15)   I cherish my friend to no end. I would walk the end of the earth for my friend. I love my friend. I hold my friend up high. I see the light within. I see the purity of heart. I go straight to the soul and relish in the beauty. I see the love within. I see the potentiality for greater communication and connection. I see so much, but am standing across a bridge with a cavernous pit between us. I long to cross the bridge, but the bridge is broken, and I can only stand alone and stare out into the distance, reaching, and longing to touch.

http://www.back-yard-birding.com/crows-in-indiana/

The crows are among the world’s most intelligent birds. Crows can be aggressive, quarrelsome, and sometimes playful. The voice once heard is not easily forgotten. They have an astounding range of calls. There language is complicated and still being discovered. They are excellent puzzle-sovers, have good memory, and quickly learn. They live in community, support their own, and love for life. They hold the spirit of kings.

Day 62: Females with Asperger’s Syndrome (Non-Official) Checklist

I invite you to take a look inside of my book Everyday Aspergers.

Take a look here.

(I just deleted an entire paragraph explaining why I am uncomfortable with self-promotion. I’ll spare you the details!)

Hello All.

I hope you are well during these challenging times.

I am writing to provide a few updates (2020) for anyone who happens upon this page.

My third blog is a bit hard to find, since I changed the domain name. Here is the direct link to Everyday Autistic. My artist’s blog is Belly of a Star.

Here is the Autistic Trait’s List.

Here is my company website Spectrum Suite LLC, which includes 100s of resources and our services page.

Here is a link to one of my Linkedin Articles that will bring you to my profile and some articles there!

My new works include much advocacy for Universal Design in the Workplace, which equates to true inclusivity, where all employees are given opportunity to the same support measures and community engagement, such as the same best-practices interviews, job coaches, support team; not just one marginalized minority, e.g., autistic individuals.

I am working on a book on empowerment on the autism spectrum.

I am my waving from afar, and wishing you so very well! I cannot believe it’s been 8 YEARS!

Feel free to connect on twitter or Facebook.

I’m on the bottom right, in the photo below, speaking at the Stanford Neurodiversity Summit. You can find out what we’ve been up to on the website. Here is a 10 hr.+ video of Day 2 at the Summit!

My book is now available around the world in paperback! Check out Barnes and Noble or Amazon.

Everyday Aspergers is an unusual and powerful exploration of one woman’s marvelously lived life. Reminiscent of the best of Anne Lamott, Everyday Aspergers jumps back and forth in time through a series of interlocking vignettes that give insight and context to her lived experience as an autistic woman. The humor and light touch is disarming, because underneath light observations and quirky moments are buried deep truths about the human experience and about her own work as an autistic woman discerning how to live her best life. From learning how to make eye contact to finding ways to communicate her needs to being a dyslexic cheerleader and a fraught mother of also-autistic son, Samantha Craft gives us a marvelous spectrum of experiences. Highly recommended for everyone to read — especially those who love people who are just a little different.”~ Ned Hayes, bestselling author of The Eagle Tree

https://www.book2look.com/book/KRksrIxTxr

Females with Aspergers Non-Official Checklist

By Samantha Craft of Everyday Asperger’s, March 2012

This is a non-official checklist created by an adult female with Asperger’s Syndrome who has a son with Asperger’s Syndrome. Samantha Craft holds a Masters Degree in Education. Samantha Craft does not hold a doctorate in Psychiatry or Psychology. She has a life-credential as a result of being a female with Asperger’s Syndrome and being a parent of a child with Asperger’s Syndrome. She has created this list in an effort to assist mental health professionals in recognizing Asperger’s Syndrome in females.

Suggested Use: Check off all areas that strongly apply to the person. If each area has 75%-80% of the statements checked, or more, then you may want to consider that the female may have Asperger’s Syndrome.

Section A: Deep Thinkers

1. A deep thinker

2. A prolific writer drawn to poetry

3. Highly intelligent

4. Sees things at multiple levels including thinking processes.

5. Analyzes existence, the meaning of life, and everything continually.

6. Serious and matter-of-fact in nature.

7. Doesn’t take things for granted.

8. Doesn’t simplify.

9. Everything is complex.

10. Often gets lost in own thoughts and “checks out.” (blank stare)

Section B: Innocent

1. Naïve

2. Honest

3. Experiences trouble with lying.

4. Finds it difficult to understand manipulation and disloyalty.

5. Finds it difficult to understand vindictive behavior and retaliation.

6. Easily fooled and conned.

7. Feelings of confusion and being overwhelmed

8. Feelings of being misplaced and/or from another planet

9. Feelings of isolation

10. Abused or taken advantage of as a child but didn’t think to tell anyone.

Section C: Escape and Friendship

1. Survives overwhelming emotions and senses by escaping in thought or action.

2. Escapes regularly through fixations, obsessions, and over-interest in subjects.

3. Escapes routinely through imagination, fantasy, and daydreaming.

4. Escapes through mental processing.

5. Escapes through the rhythm of words.

6. Philosophizes continually.

7. Had imaginary friends in youth.

8. Imitates people on television or in movies.

9. Treated friends as “pawns” in youth, e.g., friends were “students,” “consumers,” “soldiers.”

10. Makes friends with older or younger females.

11. Imitates friends or peers in style, dress, and manner.

12. Obsessively collects and organizes objects.

13. Mastered imitation.

14. Escapes by playing the same music over and over.

15. Escapes through a relationship (imagined or real).

16. Numbers bring ease.

17. Escapes through counting, categorizing, organizing, rearranging.

18. Escapes into other rooms at parties.

19. Cannot relax or rest without many thoughts.

20. Everything has a purpose.

Section D: Comorbid Attributes

1. OCD (Obsessive Compulsive Disorder)

2. Sensory Issues (sight, sound, texture, smells, taste)

3. Generalized Anxiety

4. Sense of pending danger or doom

5. Feelings of polar extremes (depressed/over-joyed; inconsiderate/over-sensitive)

6. Poor muscle tone, double-jointed, and/or lack in coordination

7. Eating disorders, food obsessions, and/or worry about what is eaten.

8. Irritable bowel and/or intestinal issues

9. Chronic fatigue and/or immune challenges

10. Misdiagnosed or diagnosed with other mental illness and/or labeled hypochondriac.

11. Questions place in the world.

12. Often drops small objects

13. Wonders who she is and what is expected of her.

14. Searches for right and wrong.

15. Since puberty, has had bouts of depression.

16. Flicks/rubs fingernails, flaps hands, rubs hands together, tucks hands under or between legs, keeps closed fists, and/or clears throat often.

Section E: Social Interaction

1. Friends have ended friendship suddenly and without person understanding why.

2. Tendency to over-share.

3. Spills intimate details to strangers.

4. Raised hand too much in class or didn’t participate in class.

5. Little impulse control with speaking when younger.

6. Monopolizes conversation at times.

7. Bring subject back to self.

8. Comes across at times as narcissistic and controlling. (Is not narcissistic.)

9. Shares in order to reach out.

10. Sounds eager and over-zealous at times.

11. Holds a lot of thoughts, ideas, and feelings inside.

12. Feels as if she is attempting to communicate “correctly.”

13. Obsesses about the potentiality of a relationship with someone, particularly a love interest.

14. Confused by the rules of accurate eye contact, tone of voice, proximity of body, stance, and posture in conversation.

15. Conversation can be exhausting.

16. Questions the actions and behaviors of self and others, continually.

17. Feels as if missing a conversation “gene” or thought-“filter”

18. Trained self in social interactions through readings and studying of other people.

19. Visualizes and practices how she will act around others.

20. Practices in mind what she will say to another before entering the room.

21. Difficulty filtering out background noise when talking to others.

22. Has a continuous dialogue in mind that tells her what to say and how to act when in a social situations.

23. Sense of humor sometimes seems quirky, odd, or different from others.

24. As a child, it was hard to know when it was her turn to talk.

25. She finds norms of conversation confusing.

Section F: Finds Refuge when Alone

1. Feels extreme relief when she doesn’t have to go anywhere, talk to anyone, answer calls, or leave the house.

2. One visitor at the home may be perceived as a threat.

3. Knowing logically a house visitor is not a threat, doesn’t relieve the anxiety.

4. Feelings of dread about upcoming events and appointments on the calendar.

5. Knowing she has to leave the house causes anxiety from the moment she wakes up.

6. All the steps involved in leaving the house are overwhelming and exhausting to think about.

7. She prepares herself mentally for outings, excursions, meetings, and appointments.

8. Question next steps and movements continually.

9. Telling self the “right” words and/or positive self-talk doesn’t often alleviate anxiety.

10. Knowing she is staying home all day brings great peace of mind.

11. Requires a large amount of down time or alone time.

12. Feels guilty after spending a lot of time on a special interest.

13. Uncomfortable in public locker rooms, bathrooms, and/or dressing rooms.

14. Dislikes being in a crowded mall, crowded gym, or crowded theater.

Section G: Sensitive

1. Sensitive to sounds, textures, temperature, and/or smells when trying to sleep.

2. Adjusts bedclothes, bedding, and/or environment in an attempt to find comfort.

3. Dreams are anxiety-ridden, vivid, complex, and/or precognitive in nature.

4. Highly intuitive to others’ feelings.

5. Takes criticism to heart.

6. Longs to be seen, heard, and understood.

7. Questions if she is a “normal” person.

8. Highly susceptible to outsiders’ viewpoints and opinions.

9. At times adapts her view of life or actions based on others’ opinions or words.

10. Recognizes own limitations in many areas daily.

11. Becomes hurt when others question or doubt her work.

12. Views many things as an extension of self.

13. Fears others opinions, criticism, and judgment.

14. Dislikes words and events that hurt animals and people.

15. Collects or rescues animals. (often in childhood)

16. Huge compassion for suffering.

17. Sensitive to substances. (environmental toxins, foods, alcohol, etc.)

18. Tries to help, offers unsolicited advice, or formalizes plans of action.

19. Questions life purpose and how to be a “better” person.

20. Seeks to understand abilities, skills, and/or gifts.

Section H: Sense of Self

1. Feels trapped between wanting to be herself and wanting to fit in.

2. Imitates others without realizing.

3. Suppresses true wishes.

4. Exhibits codependent behaviors.

5. Adapts self in order to avoid ridicule.

6.  Rejects social norms and/or questions social norms.

7. Feelings of extreme isolation.

8. Feeling good about self takes a lot of effort and work.

9. Switches preferences based on environment and other people.

10. Switches behavior based on environment and other people.

11. Didn’t care about her hygiene, clothes, and appearance before teenage years and/or before someone else pointed these out to her.

12. “Freaks out” but doesn’t know why until later.

13. Young sounding voice

14. Trouble recognizing what she looks like and/or has occurrences of slight prosopagnosia (difficulty recognizing or remembering faces).

Section I: Confusion

1. Had a hard time learning others are not always honest.

2. Feelings seem confusing, illogical, and unpredictable. (self’s and others’)

3.  Confuses appointment times, numbers, or dates.

4. Expects that by acting a certain way certain results can be achieved, but realizes in dealing with emotions, those results don’t always manifest.

5. Spoke frankly and literally in youth.

6. Jokes go over the head.

7. Confused when others ostracize, shun, belittle, trick, and betray.

8. Trouble identifying feelings unless they are extreme.

9. Trouble with emotions of hate and dislike.

10. Feels sorry for someone who has persecuted or hurt her.

11. Personal feelings of anger, outrage, deep love, fear, giddiness, and anticipation seem to be easier to identify than emotions of joy, satisfaction, calmness, and serenity.

12. Situations and conversations sometimes perceived as black or white.

13. The middle spectrum of outcomes, events, and emotions is sometimes overlooked or misunderstood. (All or nothing mentality)

14. A small fight might signal the end of a relationship or collapse of world.

15. A small compliment might boost her into a state of bliss.

Section J: Words and Patterns

1. Likes to know word origins.

2. Confused when there is more than one meaning to a word.

3. High interest in songs and song lyrics.

4. Notices patterns frequently.

5. Remembers things in visual pictures.

6. Remembers exact details about someone’s life.

7. Has a remarkable memory for certain details.

8. Writes or creates to relieve anxiety.

9. Has certain “feelings” or emotions towards words.

10. Words bring a sense of comfort and peace, akin to a friendship.

(Optional) Executive Functioning   This area isn’t always as evident as other areas

1. Simple tasks can cause extreme hardship.

2. Learning to drive a car or rounding the corner in a hallway can be troublesome.

3. New places offer their own set of challenges.

4. Anything that requires a reasonable amount of steps, dexterity, or know-how can rouse a sense of panic.

5. The thought of repairing, fixing, or locating something can cause anxiety.

6. Mundane tasks are avoided.

7. Cleaning may seem insurmountable at times.

8. Many questions come to mind when setting about to do a task.

9. Might leave the house with mismatched socks, shirt buttoned incorrectly, and/or have dyslexia.

10. A trip to the grocery store can be overwhelming.

11. Trouble copying dance steps, aerobic moves, or direction in a sports gym class.

12. Has a hard time finding certain objects in the house, but remembers with exact clarity where other objects are.

This list was compiled after nine years of readings, research, and experience associated with Asperger’s Syndrome. More information can be found at https://aspergersgirls.wordpress.com © Everyday Aspergers, 2012 This non-official checklist can be printed for therapists, counselors, psychiatrists, psychologists, professors, teachers, and relatives, if Samantha Craft’s name and contact information remain on the print out.

Other Useful Links by Sam Craft:

116 Reasons I Know I have Aspergers

Another Important List of Traits 

1o Myths About Females With Aspergers

Day 57: Losing Your Mind? Here’s What You Don’t Want to Do!

Image found on morgueFile

Losing Your Mind? Here is What You Don’t Want to Do! 

1. Don’t rely on phobias for diagnosis. At one time or another, you probably had: 1) Nomophobia: fear of being without your cellphone; 2) Soteriophobia: the fear of having a dependence on others; 3) Syngenesophobia: the fear of relatives; 4) Ecclesiophobia: the fear of churches.

2. Do not rely on the projective personality test where you are asked to draw a house-tree-person picture, unless you are prepared to know your overall brain damage, your possible rejection of home life, your need for satisfaction, and how you present yourself in society; and, if indeed, you are feasibly psychotic.

3. Don’t read A Course in Miracles quite yet; you might think you are a present-day prophet.

4. Don’t list all of your psychological symptoms on your blog; only the ones that make you seem interesting, quirky, and fun. In other words, avoid discussing the paranoia you sometimes feel when you believe your computer camera has been hacked, and others are watching you pick your nose.

5. Don’t check yourself into a psych-ward, unless you have a high tolerance level for patients who go by the first name of Jack-Off, nurses with bushy eyebrows who scowl and shush you for laughing, and cheesy television shows from the late 70’s like The Chipmunks of North America.

6. Don’t peruse the DSM-IV (diagnosis code book); you’ll likely determine you are narcissistic with rapid-cycling bouts of depression and mania or have the earmarks of oppositional defiant disorder.

7. Don’t see a therapist in training (intern); she’s more confused than you, and still trying to shake off her last frightful bout of DSM-IV, mental-health self-analysis.

8. Don’t trust a psychiatrist, if after fifteen minutes and a short multiple-choice test, he casually says, “Hmmmm. It doesn’t seem like you qualify for this condition. But here’s a prescription I want you to take, just incase.” He’s likely closing in on earning those pharmaceutical credits needed for that trip to the Bahamas.

9. Don’t rely on a fetish search. Depending on your state-of-mind, (and your alcohol intake), you might believe you have: 1) Dacryphilia: an attraction to tears and sobbing; 2) Flatulophilia: an attraction to farts; 3) Liquidophilia: an intense need to submerge your private parts in water; 4) Scatologia: a desire to make obscene prank calls to strangers.

10. Don’t look for signs from beyond. Two hundred blog hits, a sunny day, and a good bowel movement are not signs of sanity.

11. Don’t pull a Tarot Card. You will likely misinterpret the tower of inferno, the fool, and the card with all the daggers.

12. Don’t rely on numerology. It’s the only numerical field where the meaning of the numbers change, depending on context, culture, and interpretation.

13. Don’t think about thinking about thinking, or write about writing about writing, or talk about talking about talking. Just don’t.

14. Don’t Google: I’m nuts. For some reason Justin Bieber shows up.

15. Don’t over analyze that dream about the flying banana slugs attacking the golden-winged big toes.

16. Don’t rely on your mother, your mate, or you mutt. Your mother is your maker, your mate your mirror, and your mutt a mini-you.

17. And lastly, if you had a particular type of brownie, don’t call the emergency room. Wait ten hours, the room WILL stop spinning, your heart will not explode, and you are not crazy.

Disclaimer: If you took this seriously, seek professional help immediately.

Seeking a way out of insanity: Get a good night’s sleep, study the great minds of our time, and read a few pages of someone else’s blog. You’ll soon discover your less insane than you imagined.

© Everyday Aspergers, 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. https://aspergersgirls.wordpress.com

My mom sent me this today. Couldn’t resist. Thinking of you Scooby Angel.

Online Draw a House Test

Words to Read After You Draw Your House

Weird Disorders to Obsess About