10 Years in the Making! Everyday Aspergers

This Blog Everyday Asperger’s by Samantha Craft is retired. Her company website is myspectrumsuite.com  Thank you for the community and support you have offered through the years.

 

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In 2004, I was called to write. I dedicated myself to write every day for a year. I only missed one day and completed a 250-page memoir. I often wrote 4 to 10 hours a day. I spent the next years editing because my dyslexia and dysgraphia make it very challenging for me to detect errors. I knew nothing of writing. It was pretty substandard material at the start. I didn’t even know when to capitalize the word ‘mom’ or how to use a semi-colon. It took me three years of writing and editing to find ‘my voice.’

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I taught myself to write by studying other books, relentlessly. I took notes and would write pages and pages of words I found (in other books) on notepads. In 2012, I started Everyday Asperger’s (blog) and  wrote almost every day for a year. I then continued posting blog posts several times a month, for another two years. Each Everyday Asperger’s blog post took a long time to edit. Then, after it was online, I would reread the words for an hour (at least) trying to find all the small mistakes that I couldn’t find the first time. (I didn’t mind; it was a type of stimming for me.) At the time of writing the blog, I also reedited some of the original (year 2004) childhood stories.

Recently, after 3.5 years of writing over 1,300 pages online, I began the process for my book: Everyday Aspergers (EA). I tore through 1,200 single-spaced pages of this blog, some of which were my childhood stories, picking and choosing, and then piecing the posts together like a puzzle. This took a solid two months of working almost daily. From there, I refined and refined, trimming most posts to 1/3 original size; some of those posts, if not most, were originally two to three pages long. Next I found little parts that got cut but were still gold nuggets and found places to sprinkle them in.

After that I polished and polished and polished, and began to edit. Soon the final editing took place from December to today. Most weeks I spent the equivalent of a full-time job editing. I also employed the help of a professional editing team. To date, the manuscript for Everyday Aspergers has gone through four editing rounds, in which I read the words (at first 717 pages, then 615 pages, then 417 pages) from start to end. Each page was reedited each time! I’d spend marathon days, up to 12 hours straight editing. Some of the childhood stories have been edited and polished at minimum 15 hours per page! Counting the years before, I’d say the book itself has well over 5,000 hours of editing alone. That doesn’t count any of my writing time. It’s a HUGE accomplishment. It’s not just something I threw together. It has a huge heart and huge effort behind my endeavor.

I cannot wait for the book to be in my hands. More so, I cannot wait for those who wish to have the book to hold the story in their hands! I’ve been waiting since 2004, when I had a dream.

Much love,
Samantha Craft

I updated the Checklist for Females with Aspergers here

Me on Twitter: aspergersgirls

More about the book on  new website

 

 

 

 

538: Assumption Junction… the truth of my Aspie words

People who don’t know me well, and some who do, sometimes jump to conclusions and assume things about my intention and motivation behind my writing that aren’t necessarily true. I write to write. It’s largely a processing mechanism.

The problem is that who ever is reading my words will interpret said writing based on his or her own opinions and prior knowledge. In other words, if someone is naturally confrontational then the chances of this same person thinking I am being confrontational in my writing is high. Or the opposite might be true, where a confrontational person might make a judgment call that I am weak because I am not displaying a countering personality. Wherein I might be explaining something for a thousand different strands of reasons, all of which pop in and out of my head through the process of scribing, he or she will make an abrupt conclusion about my intentions that includes perhaps two or three primary reasons (again, based on his or her experience). The worst part of it is when this said party then turns and suggests he/she knows what I was trying to say and why I was trying to say it. When truth be told, I have already played over in my busy mind a hundred times why I said what I said, how I said it, and why I said it.

People don’t often know how long I take to write a response. When I am dealing with an out-of-my-comfort-zone response to someone, for example via email or instant messaging to someone who I do not have a close relationship with about a subject I deem important, I take a very long time to write, upwards to an hour for revisions, rewriting, rewording, reworking, and rereading. I stim through the editing process itself to calm my anxiety over the situation. If I am triggered, particularly by what I interpret as an injustice towards another, it takes me even more time to write. What is difficult then is when I am accused by another to have written something in haste, without thought, at length, or without consideration to the audience or the communication rules of some company or organization. It is hard to digest this type of assumption because nothing is further from the truth. The receiver does not understand that I have painstakingly relived scenario after scenario of possible outcomes of how my words might be interpreted. That I have tried my hardest to follow any rules of communication. That I have pushed myself to shorten all I want and feel the need to say. That I have left out more than 75% of what is really on my mind, and sometimes much more than that.

In example of the revision process, I will write a sentence and then imagine the person/audience reading my words. I then evaluate their potential reaction and adjust in hopes of causing the least amount of miscommunication. It’s not about people-pleasing or avoiding conflict, it’s more so conveying my truth as I see it in the most gentle and kind way (and rule-following way) as possible. To do this I switch around words, I alter adjectives, I choose new phrases, and I clarify repeatedly through transposing my words and readjusting. A draft will be rewritten more times than I can count, and large sections deleted, redone, and deleted again. It never seems to be right enough. Not in a perfectionist way, but in a ‘this is my heart’ way.

I discern ahead of time feasible misgivings or upset on the upcoming reader’s part. This process is exhausting at all levels and causes physical and emotional pain. The most troublesome hurt follows if and when the intended recipient responds in one of the many non-constructive ways I had foreseen him/her responding, and then I see all my efforts were for naught.

People think that the length of my writing equates debate, that length = ego, that length = confusion, that length = selfishness, that length = not caring about the recipient, that length = non-professionalism, etc. etc. I don’t write at length to get my point across or to prove something. Once again, I write to clarify my inner workings and to let the person know my intentions fully. If a part of information isn’t shared that I believe at the time is a pertinent piece of the subject at hand I feel as if I am being deceitful, even as I logically know that by definition I am not. No amount of reasoning fixes this.

I over explain myself in written word as much as I do in spoken word. Particularly when emotionally triggered. And such triggers can come from a variety of sources, especially from others’ behaviors that are not privy to the autistic experience. With all my spiritual studies and practices, a part of me would like to say I am ‘above/ being triggered, but that’s hogwash. I am neurologically wired to be more prone to fight-or-flight responses. (And in my case biologically/physically wired that way, as well.) So, I accept that I get triggered.

It is cumbersome and downright dangerous for me to write (without a lot of editing) after I have been triggered. I cannot help but let some of the emotional upset leak through. As much as I try to pamper and sugar coat the words, this ache of being triggered comes out. And then, even with careful revision, the trigger leaks through. In response, I am evaluated based on the characteristics of my writing. I am labeled emotional, reactive, too concerned, too sensitive, etc. This adds to the initial trigger, and to the continual compounded feelings of being misunderstood and misinterpreted throughout my life. Thus is the prospect of such an invisible disability when held by a person that primarily seems to function at a high-level of ‘normalcy.’

People with autism usually get me. And I in turn get them. I am the first to smile when someone sends me a very long online message. Usually the person is apologizing ahead of time for what they label a ‘rambling.’ And usually I am skimming some of it and finding the golden nuggets of what was written. I get it. I am the same way. I am going on and on about a particular subject whilst at the same time stepping back and observing myself and thinking: Why am I doing this? Sorry! Still, I do it. I process and I stim through words.

I can go through periods of purposeful semi-muteness, wherein I try not to talk at length to anyone. I am mad at myself and the world at that point. And don’t think I can function unless I change who I am, at least outwardly. Usually this state by nature turns me into some type of hermit, where I am only talking to maybe one person I know. It’s the way I retreat and I guess hide from the world. When I have had enough of me and I believe the world has had enough of me, I burrow like a wounded animal licking my wounds and punishing myself for having any form of self-pity and the brain I do. Not long after I come out of it and I am a babbling brook once again.

People who are wired like me understand. They know the ebb and flow of being this self. They know that even we get tired of the non-stop jabber and thoughts and processing. And they, for the most part, accept me unconditionally, with so-called flaws and all. It’s the others that just don’t get it whom I have a difficult time repeatedly associating with.

It’s like this, supposing I am blind. I use a different form of communication. It’s not typical. It’s not traditional. And it’s accepted. After all you can readily observe I am blind.

And then it’s like this: I have autism. I use a different form of communication. It’s not typical. It’s not traditional. And it’s not accepted. After all you can’t readily observe my disability and I should be able to change. I can adjust. I can conform. I can just communicate like you do. Follow the rules and protocol. And if I cannot, then I must be inconsiderate, impossible to train, or stubborn.

But it’s not that way. It’s just not. I cannot adapt without modifications and understanding, anymore than the person with a visible disability can. If I was an amputee, I wouldn’t be able to grow legs. If I was deaf, my speech would be affected. If I have autism, my brain is different. It doesn’t just change based on suggestion. It’s an impossibility.

Sam’s book Everyday Aspergers is now available internationally on Amazon.

More information can be found at her company: myspectrumsuite.com

517: Is-ness

There’s an is-ness inside me, some rumbling engine that feeds and creates, that both demolishes and builds simultaneously, the gnosis itself living and breathing within. The trouble is the is-ness wants to come out. As much as I push or shove it down, it swells evermore. There is no dousing out the flame. I have tried days, and once a decade, to remain silent in my ways, and the longer I wait the longer the bubbling-wanting festers, liken to a boil that won’t shrink unless exposed to the elements.

How often I have longed to be that one, that quiet one perched beneath the tree, without a word to offer, just her silence as a reckoning of sorts, her example of fragility and strength established in her stillness. Just once, I have wanted, without effort, to not desire to burst out of the semblance of self into something naught—to not wish to plunder, as I do, as pirate gone sporadic spilling her gold and jewels about.

I have established this is the way I am: harbored into myself.

I am the dock. I am the boat. I am the sails. I am every inch of vessel, and what holds this vessel. And I rock, as I am the rocker, moving myself in isolation. Here is where the trouble comes again, in the want to move beyond aloneness, for nothing seems real or substantial until shared.

And yet there is the catch, the net, so to speak, the daggered questions and the pounding answers. The fingernails to my chalkboard—nailed and pierced at once.

We are told of the worthy ones. The ones who hold their tongues. The ones who are stoically silent. The ones who don’t whimper and complain. The ones that don’t monopolize conversations. The ones who know how and when to stop. The ones that don’t overthink, overrationalize, over-process. The ones that know when to let go and be.

So what does that make me, if not some rigid anomaly?

I can’t surrender to this world because I don’t have the means. I don’t know how to be quiet. I don’t know how to shut out what I see, what I feel, what in a way I seem to somehow ‘know.’ And yet I can’t really blend into this place, either. No matter how much I try, through practice or restraint, or a combination, or by some means of much-studied technique, or even in the gathering of all the circumvented readings, observations, conclusions, and discoveries, I can’t understand where I am, and how to be in a place I do not comprehend.

And that is the trouble as well—for am I built to control how I am to be? Am I supposed to stop who I am? And if I am to stop who I am and be this other form and representation of self, then whose rules and recommendations do I follow? Whom do I uphold? Who is my savior in this world? If I am to follow this someone or even this saint, if he lives, or has died, then still what is the exactness of how I should be? If not me, if not this natural, born-to-be me, then who is it that they at once forbade me and make me be?

Is it not within reason to wonder how I am to move in a strange world, if indeed the way I move is not accepted or understood? And even as I pass often as this extremeness of normalcy, even as I mix and mingle, and bleed into the mass, am I not some ghost on display set out to appease the gathering? Are my ways mere means to escape shielded eyes?

I do not understand the judges. I do not understand the manner in which I am told the right and wrong of things. I cannot. I am incapable. I am not wired inaccurately. I am not misfiring. The truth is that I am not wired at all. I wasn’t programmed to begin with. I don’t have the data institutionalized within my infrastructure that instructs this someone of where and when to jump. I don’t even have the means in which to understand the jumping itself.

I watch, some legless tadpole, in awe of the springing frog, unlimited in its depth and breadth, capable of leaps and bounds that seem a lifespan away from me, an imposter of impossibility without preprogrammed metamorphosis.

And that’s the trouble, the endless trouble:

I am who I am, endowed with an is-ness I neither understand nor recognize. An is-ness I long to share, a knowing I cannot tether to myself alone, in a world I do not recognize, in a place that makes no sense. I am birthed without the wiring or predisposition to comprehend the makings of others’ ways; and ever wondering if I was to jump without legs, if I was to be in this pool of mankind, and swim with my invisibility cloaked, to survive as familiar instead of strange, would I not then forget whom I was to begin with?

516: A Gallant Longing

I process everything. I am a processing machine. I even process the process of writing. Today I feel ‘guilty’ for yesterday’s writing, as it didn’t represent the ‘true’ me. Even as I search for the ‘truth’ of who I am, stumbling again into myself and not knowing where I fall, I somehow still manage to pinpoint who I am not. It’s strange, even to write. But seems to be the way of it. All so complex and bothersome. Like most days, I wish I was rather emptied of myself.

Yesterday my post ended with freedom, with the removal of ‘self’ and judgment, with the capacity to move into this world unseen and to be okay with that. Yesterday that was a true statement. Today it’s not.

I didn’t lie. I meant what I said. I was in a brief over-confident mood. I was in an I-will-will-myself-all-better-state. I get that way from time-to-time. I wouldn’t call me hopeful or resilient or ‘positive’ during these moments of zealous confidence. More so, underneath my skin somewhere, when I approach my writing with such voice, I am a bit perturbed at life in general. I guess you could say I was sporting an under coating of frustration and trying to paint over myself with some form of strength.

I tend to only feel good about the words I have scribed that provoke a soft appeal and gentleness. I tend to be attracted to my sharings which display an intense vulnerability and a vast uncloaking of self. Yesterday’s post wasn’t one of those posts.

I am not ashamed of the writing, and not regretting it, just, I guess, wondering how I can so easily shift and transform. It’s unsettling to say the least, when the person I was a moment ago isn’t the person I am now. Perhaps, I say in jest, I have some advanced multiple personality disorder in which I am both congealed and disjointed all at once with legions of aspects of self bursting into bits and pieces of everything.

Yesterday, I was PMSing. I ‘suffer’ from PMDD, endometriosis, and an autonomic blood pressure condition (closely related to POTS), as well as hyperjoint mobility syndrome, each of which are triggered by fluctuations in hormones. PMDD is enough in and of itself to drive me batty, but the physical pain sometimes leads to a week of being couch bound. This has been an on going event for most of my adult life. It’s not new, and it’s not strange or unknown. But somehow the debilitation is still rather scary and depressing, particularly, as I was hospitalized about a year ago from an extreme episode. Anyhow, I really don’t want sympathy or to rant or complain, just to explain.

I suppose in moments of couch-bound, sloth-mode, semi-hibernation, I get particularly prolific in my writing. One reason being that there is really nothing else I can physically do, beyond playing computer games, watching movies, and reading, oh, and the occasional romp to the kitchen to binge eat. Having the capacity to write during these hormonal nightmares most certainly brings me a sense of purpose. Also, I think the hormones, or what-have-yous, affect my thinking, in that I have more thoughts and that I am more vulnerable to outpourings. And too, to be totally truthful, sometimes I write during my PMDD only because if someone reads my words I will feel less isolated.

I force myself to write during these times, not because I have to, but because I want to. And that is the primary difference in the particular self-focused writings (like today’s and yesterday’s) versus the majority of my writing.

Most of the time, believe it or not, I don’t want to write, but feel driven to write. Usually, I don’t hear my own singular voice, but more of a collective gathering of thoughts. I have surmised, after continual coincidences, that I somehow tap into the collective Aspie condition. As silly as that sounds, this has been my truth for the span of over a year. It appears Aspies jump into my brain and stir me up. As much as they’d like to believe I am reading their minds, I tend to think they are invading my thoughts—little hitchhikers whispering. Or, rather, we are all just splashing is some giant heated pool of knowledge, and I, by some odd twist of faith, have been granted the capacity to spurt out what we are swimming in.

When I write, I see images and sense words. I don’t actually hear anything. There isn’t a voice I can describe or even an intonation. There is more of a feeling of what I believe is a type of communication I don’t readily recognize as familiar. There is no emotion beyond love. And an easiness and comfort exits without effort. There isn’t a questioning of what I wrote or a judging. There often isn’t much editing involved. It just kind of IS. And I like that.

The process of writing in most cases takes away some of my Aspie thoughts—those perpetual queries that ransack my brain.

I believe the intention behind ‘my’ words creates the overall feel of the work. Much like a painting, my heart is reflected in the renderings. If my intention is to share and nothing more than the words are light and airy, filled with a sense of hope. In this manner there is a radiating wellbeing resonating from the writings. A knowing everything will be okay. A connection, a reaching out, a holding and a holding ground, in which travelers come and visit, and find a place of respite.

I miss that peaceful flow, that rescuing-retreat. I missed it yesterday. I miss it today. I guess I’d rather be part of a collective than this ME. I’d rather sit with a gathering of us than alone—a gallant and worthy longing, indeed.

508: Mind the Mind: Asperger’s Introspection

I am not a seeker of drama. I do not care for discourse or feelings of unsettlement. The unknown is my least favorite happenstance. However, I do tend to over-analyze and try to solve situations, be it relationships, locations, events, health, or even emotions themselves. I am finding the more I become as the nature about me and let things take their course, the more I am able to remain calm in what I perceive as a storm. As it is, I see everything as a storm.

In retrospect, in looking back at my life, the decades spun open, I see myself fighting battle after battle. I see myself, or saw myself, as victim for most of the stretch of my existence. Until recently, when another door to my mind open, and I realized with a slow-drip reasoning that I had chosen to make each of these events important. I’d attached this necessity and conquering-eyes to situations that might have passed by on their own without much forethought or planning. Instead, my mind attached and twisted and upturned every corner, in hopes of solving. I am the puzzle seeker in all ways.

In knowing this about myself, in recent days, I am practicing the act of not exploding events in my mind. I am acutely aware of my actions. I recognize I take a flat, one-dimensional ‘problem’ and I tilt it into multiple theories of causation. I take what is simple and I complicate the matter. Not on purpose, and not with intention to add complexity, only as a byproduct of my innate ability to solve. I try and try and try, through multiple outlets of reason and swaying, say even convincing, to find the right avenue—the direction to answer. This is how I am. This is how I live: in the constant pursuit of end mark.

I have asked myself why, as I swing past the molecular thoughts colliding one upon the other, bouncing and ricocheting in a delightful parade of rainbows. Everywhere is this thought, this thinking, these endless loops that think onto themselves, alive and burning with passion. Here I watch, and I stop myself enough to wonder, even as the light show continues onward. The ultimate answer to my behavior remains in the unease brought on by the thought of unknowns, by the thought of remaining uncertain, by the actual way in which the world works, some endless cycle within itself producing life, as me as mere puppet to reality. And in this pond of not knowing, circumvented with the hunger of wanting to know, I sit and harbor feasible outlet after feasible outlet. A thinker thinking her way into a space of no time, lost in contemplation, an act that becomes a bandage to facing the truth. That being that there is no control, even as I am one that longs for order.

As a child I stimmed. I prepared. My childhood games were not games, they were preparation. Everything, from playtime to alone time, was set in its place. Everything was organized and every move stemmed from a place of needing order. As I grew older, I didn’t change inside; my need for order and detail remained. The stimming transformed into thoughts fashioned into recognizable systems and order. I became that one that believed she must remain the leader of her world, in order to survive the turmoil that seemed me. Everywhere was chaos and everywhere something that could be organized back to original form of order. I became, with every year, a person who depended more and more on her thoughts in hopes of discovering a neutral zone set outside the disorder. I willfully became lost in thinking in an attempt to reorganize my disruptive world.

I am still here, doing this—seeking out the dark corners of my mind in hopes of escaping the disorder. This is what it comes down to. This is the endpoint of my behavior. And it is this observation itself that makes keen sense to me now. I am the watchtower, viewing my own cyclic hibernation. I am steering my way into self, thinking if I am the constant seeker, I shall hide enough from what is in front of me. For even the anguish of over thinking, even the painstaking ways in which I torture myself with thought upon thought, becomes reasonable when compared to the unknowns which remain out there. In truth, I see this place named world as my ever-encroaching enemy.

In deduction, I abstract a causation, a hauntingly clear causation, that in which I have made myself mad in the interior to avoid the fear of the exterior. I have made myself a prisoner of thought to escape the overbearing burden of becoming a prisoner of life. But in so doing, I have made myself twice the captive. Piercing first myself with fear, and, then again, causing casualty by the intrepid thoughts that follow thoughts. I think that I am the mind-keeper and that in some way, with enough effort, I shall eject myself far from the happenings of this world. But, with close inspection, I find myself further in the grasp of pain, pinching myself asleep with these same intrepid ways, in hopes of running further from the place I stand. I am that one who seeks escape through invisible avenues.

In knowing these thoughts today, those that collect themselves into a pool of recognition, and those thoughts, too, that dictate the way in which I live out my day, I have concluded fully and openly that the only way in which to save myself is to ironically stop trying to save myself. For the moment I open the door, which leads to the way of over-seeking and continual searching for causation and answer, is the same moment I doom myself to prison. In theory, if I stop the thoughts that teach me to employ them for refuge, then I also stop the thoughts that simultaneously torture me. In thinking this through, inevitably, it is only in my power to stop the cyclic thoughts that I have full control. All else is illusion upon illusion. In thinking I can find answer through torturous thinking, I have pronounced to a part of myself that I am worth nothing but the dungeons I continue to fortify and dig day after day, night into night. In actuality, I am that beyond thought.

So it is in this way, in this endless theorizing, I both succumb to my thoughts and myself, and recognize that in order to live, I must mind the mind. And with this recognition proclaim aloud that in order to be I must learn to loosen the grasp of control upon my mind, freeing the agonizing quest to find answers. And instead, with vested interest, forbade myself to enter that which is both madman’s labyrinth and predicated spoils set before one’s self as false salve and salvation.

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“Last night I had a major breakthrough. I explained this in a very complex way, on my newest blog post. However, to put it mildly, and in layman terms, I realized that I over-think things naturally, and because of this, and my intelligence, I try to solve, or at minimum piece together puzzles of my life, whether it be my health, relationships, my emotions, vocations, situations, or the like.

I turn everything in my life into something solvable and complex. Last night. I decided to just let my body be sick. I was in a lot of pain, and had many symptoms for four days, including a triggering of my heart/bloodpressure syndrome. I released, not with intention, or with desire, just with a knowing I had to do so in order to move onward, without getting trapped in thought after thought.

I was literally reaching the point of insanity with so many unknowns and changes in my life. I awoke this morning more alive, less victim, and more awaken to my own heart. I feel like in the process of releasing, I also opened a canal-like-channel that allowed some of the poisons in my body to purge themselves through and out.

I am learning that my thoughts are sometimes my very worst enemy, even as they dress themselves in solutions. “If I only sit with them long enough they will prove a theory, or way out!” < but that’s not true.

The longer I sit with my thoughts, the more confused, forlorn, and lost I get. I have been thinking all this time my mind’s way of thinking was my hero and savior, but in truth, letting go and not thinking is what ‘cures’ me in the long run, or essentially returns me to a state of balance and equilibrium. It’s hard to turn me off, to turn of this engine of intense thinking. I think. I think. I think. But I know now, the best release is in turning off.

I play a game in my mind, now: I catch myself in full swing moving through a maze of thought, and I stop cold. NO. NO. NO. There aren’t any answers there. There aren’t. It is truly in the silence, I find solace.”

~ Samantha Craft, Everyday Aspergers

452: Scarlet White

The agony is torture, pure fire to the soul—the way such solitude is split into ravenous venom, devouring me as leash to the chain, choking the breath of life.

I am that I am. And then I am not. Lost again in some unfathomable labyrinth of thought.

Where and why eludes and leaves a trail of dust dried blood. Help, I scream from somewhere else. Inaudible and out of direction. No path left. No place to go. But inward, where I already dive deeper in the vine of self.

Is it not this place again? The familiar place of no sunrise and no sunset. Where the cold dribbles down the walls of caves, and placates the answers with sweet soft denial. Is it not this somewhere found in the furrowed causeway of my mind’s nimble foresight? My meanderings all leading back to here. Some forgotten spot of eternity missed.

I am a vagrant, a vagabond, a ghost traveler to my own shadow. Unable to distinguish between in and out, what is penetrating and what is piercing, what is poking to release its plundering poison and what is slicing to divide where I begin.

I am invaded by darkness, the soul long forgotten in the night, the enemy out to demolish the light. I am what is not in the way I move without motion and touch without rhythm, stagnant in an air of dismal lies. Here I stand in the place I was, only the place no longer is. Here I stand in the place I was, only I no longer exist.

Wobbling is my fortitude. Swaying, ignited by the dreams unwound, the sword plunged further into the stream of mystery spat open. Coughing up the remnants of who had been. Torn down into oblivion, obliterated and left as carrion to the greedy hunger of naught.

They find me, these naysayers, and call out to the lost sheep I am, with doings undone in their torturous view. I am but what they wish, set asunder below them, and made to bleed about as the rabbit sunken in the snare of despair. My white coat diminished by the scarlet fever set upon me.

Who am I but this child undone, left in the valley of rivers, and blown into the sea of forgiveness? Chiseled and chiseled, as if stone were the heart of me. Made to blend in with misery, to melt in the doorway of pain. Charred to the bone with the starch black of misery.

And here, still, he comes. With his arrow strung across the shoulder of time. His answer seized in the windstorm. Here, still, he is. This gentle grace of knowing naught and knowing all in the splinter of thyme. He enters me as clear day. The light upon my forehead new. The pressing spot of hope spun open into the rebirthing. Come, my lady, he declares, pronouncing me the victorious one, the homecoming of his awaiting. Come, my lady, he mends, his words the golden thread of healing.

And I follow, as blind lady lost in his rapture, spread open by the seams to his glorious name. Come, I do, and trace out my destiny in his waters, dancing in the stream of desert turned dream. At last in the home of home. No longer chased down by the dark ones seeking to erase what has been brought to them as buried treasure uncharted. No longer stalked by the nightingale’s ghostly brother, who pecks out a song of bitter vengeance.

In only this way I am free. In only this way. When the darkness sets upon my soul and the bleeding ceases to flow without follow, and the voice comes, from the seeping of my chaliced tears. Only then I am home. Only then, in the making of self whole.

438: Brushed Thoughts

pin it my friend

This is a photo of a photo recently taken. It is the first one in years that I feel like captures me.
This is a photo of a photo recently taken. It is the first one in years that I feel captures me.

I have these type of thoughts all day long, even in my dream-state. They just come. Whisper to me. I see them as a visual concept I cannot describe. It’s not an image, but it is tangible and malleable, like invisible clay, the shadow left behind after the clay is gone. I can play with it and feel the vibration shifting and meandering and pulsating through me. When the words come, they paint themselves onto the blankness where the shadow plays. I watch as they unfold, and then work together to rearrange the words into the same frequency that I feel. I feel the pulse behind each letter, and the life force behind the formation of each segmented part. The rhythm, the punctuation, the formation and pattern of each word and sentence, all carry a vibration. I can feel if the structure I choose resonates with the initial visual concept and sensation. This is a sense I do not understand completely, a line connecting into something that is soothing, very real, and very much filled with light. I go here, with a pure heart and mind, open to whatever pours through. It isn’t easy and it isn’t hard; it just is. And I try my best to take no ego there. Instead I feel as a child-heart, over-flowed with joy in discovering a present left prepared and ready for opening. A gift to be savored and shared. And then I wait, for the others to see the unwrapped present, to hold it and honor its existence. In this place, with the words alive, I can breathe, for I have done my part, for a purpose beyond self.

I spent the last couple days, just clearing my mind and writing what came out. It generally takes me a few minutes to piece together my heart-mind intention. I made these into many posters that you can find on my like-page listed in the left-hand column.

Brushed Thoughts

* Let’s meet in the middle of the discombobulated space of energy where my truth does not match your truth, and sit there, hand in hand, embracing one another, teacher to teacher, soul to soul.

* A person’s intention is reflected in an energetic vibration. When words are created from a foundation of ego-desires, the receiver will feel a discrepancy in energy between what is spoken and what is felt. This response is not judgment. It is heart-mind discernment—the spirit discerning the truth beyond the words.

* The new conformity is to dislodge parts of self that are ‘negative.’ We are bombarded with: focus on the positive, speak of good, share only if it’s constructive. An obvious error arises through analysis of the restricted perimeters; for who is this one to decide the definition of negative, bad, and destructive? Whose doctrine, dogma, or philosophy is the dictator? And what of the infinite variables between right and wrong? Your suffering is my suffering. Your silence only perpetuates our condition. I want to know all of you, not the preconditioned ghost of you.

* Sometimes when you say, “I love you,” I feel a space of emptiness; not because I fear losing your adoration but because I know I can never demonstrate through actions or words how beautiful you are to me.

pinit conditional

* Anyone who attempts to fix, bend, or break you, is merely attempting to slip his reality into yours, in effort to make sense of his illusion of self. You aren’t responsible for what anyone thinks about you, only about what you think about others. When we learn to love everyone in completion, the truth is evident, our brothers and sisters solicit pain whilst in need of love.

* I love my authentic vulnerability, my inability to be anything less or more than I am, the constant way I come back to the core essence of self, in having Asperger’s I have been gifted the intuitiveness to know self, to embrace self, and to accept self. In so doing, I can love you unconditionally. There is no greater ability.

* I do not understand the motivation behind game-playing, manipulation, trickery, ill-will, and cruelty. I wasn’t born with the genes. And I am better for it.

pin soul to soul

411: Money in the Meter

On my way to see the doctor this afternoon, I left a message on a complete stranger’s voicemail. Someone I have never seen before. Never have known, and likely will never encounter.

I held on to that stranger while I sat alone at the doctor’s office.

Aspergers was on my medical chart, listed under conditions.

I have this tongue thing, like a gag-reflex tongue I suppose, and a long tongue at that, and my tongue NEVER cooperates, especially with dental x-rays and the like. It truly has a mind of its own. No kidding. As it happened, the doctor lost his patience with me. He tried all ways to get a culture of the white patch at the back of my throat with this long Q-tip thing. But my tongue kept blocking the pokey stick like it was sparring. I was embarrassed, to say the least.

The doctor threw the stick away, and huffed. Quietly and professionally, but the frustration was obvious. Me, being my nervous giggly self, offered: “Are there any tricks? Something you can teach me to help?”

I think he was fed up with the tips he’d already offered throughout the procedure. He kind of snapped, “Tricks? No, I don’t have any tricks.” I felt all of twelve.

My demeanor makes me come across as a stupid-head sometimes: the posture, the anxious laughter, the inflection of my voice. And I fumble with words as my voice squeaks in all of its youngness. You’d think I had the IQ of a horsefly. My un-brushed hair and sloppy attire of the day, likely didn’t help to set the mood of ‘got-it-together-woman.’ I was wishing at this point I’d dressed up for the doctor, at least had my hair up and not all straggly in my face.

Still seeming a bit perturbed, the doc summed up I likely didn’t have strep anyhow. The chances were very unlikely: no fever, no swollen glands, etc. But I knew I was feeling super lousy; I knew when I’d flushed bright red earlier in the day, I’d had a fever, and I knew I couldn’t risk getting sicker. I had an important trip planned and my husband was out of town. I had to know. The anxiety grew.

He left the room without telling me anything except to explain it was basically a sore throat and to gargle. I opened the door and asked a nurse if I could go. I don’t think the doctor appreciated that. He seemed bothered when he explained the procedure of when I could exit.

At this point my resources of zen-being and lovey-dovey-ness, were all but empty. I had a lot on my plate and felt like crap. I don’t remember the particulars, but somehow the subject came up again of tricks. And the doctor said, very bluntly: “I know tricks for kids. I teach kids tricks. I don’t teach adults tricks. Adults should know.”

Man, that wasn’t nice. I swallowed and felt my little heart race. I retorted, “I have to disagree. I have autism and my son has autism. And sometimes adults need tricks too, because our bodies work differently.” He kind of gave me a glance, and that kind of made me feel worse.

He then said, in a demeaning tone, “Have you ever heard of the phrase: Where there’s a will there’s a way?”

He asked if I wanted to try again.

I said, “Yes,” already doubting myself, coaching myself with the silent you can do it, and feeling terribly inadequate. As the doctor prepared another culture, I offered kindly, “The reason I want to rule this out and take care of it right away is because I have to drive in a few days a long distance.”

The doctor approached with the long thing. This time after several more minutes of ‘ahhhhs’ and ‘look up at the corner’ and ‘no stick your tongue back in your mouth’ and much more, the doctor sighed saying he’d likely gotten something, hopefully.

Again the sense of not enough.

Somewhere in the time line after something or another, that I can’t recall now, I lost my equilibrium. I don’t know if it was one final shrug or sigh on his part, or my urge to speak my mind. But I kind of unraveled in a calm but definitely I’ve had enough of this way.

Exhausted, I asked: “Do you not know what Aspergers means and how it affects people?”

He responded, “No.”

I said, “I write for a psychology journal; would you like me to leave a copy at the desk, so you can learn?”

He kind of looked either perplexed or bothered or preoccupied—I couldn’t tell. He said something that indicated agreement.

I said, “You know you were kind of rude to me. You didn’t treat me well.”

His back was still mostly to me, as he stared down the culture. I was thinking this guy was definitely undiagnosed Aspie. I explained, “You sounded like you were belittling me.” I was on a roll then, like when you finally get the ketchup in the bottle unstuck, after that final hiccupping glob, and the rest of the red comes pouring out swiftly.

I continued, “When you talked about not having to teach adults tricks. And you asked me if I knew what Where there’s a will, there’s a way meant. You sounded like you were mocking. And who doesn’t know what that means? You insulted my intelligence. Did you have a bad day or something? I mean the way you were…oh I don’t know what you were. You just weren’t nice.”

I felt a bit like I was in ‘Gone with the Wind,’ in an important scene. Only I was in old blue jeans and wearing socks with my sandals.

He mumbled, “Well, I’ve never had an adult who could not do a culture.”

I said, with a rising voice, “Well do you think I was doing it on purpose?”

He probably wasn’t too keen on being in a room with me at this point. Poor man. I should have given him my husband’s number, so they could commiserate.

The doctor left.

I had some time to wiggle and squirm and text a friend of my experience.

When the doc returned, indeed it was strep throat. He handed me some stick and started to explain about the red line. I said, “It looks like a pregnancy stick.” Now he was nice. He was smiling. He was more relaxed. He was finally sitting and looking at me. He seemed like a different person. He actually seemed genuine and concerned. I could have sat with this person for hours. He was much changed. I sat there hunched with a blank stare contemplating the reasons for his demeanor.

I was thinking: 1) He realizes I wasn’t a moron because I told him I write for a magazine 2) He is feeling kind of wrong for assuming I wasn’t sick 3) He is realizing he was a boob 4) He has no idea what else to do but to give in 5) He thinks I am nuts 5) He is so happy I am about to leave.

As I was leaving I said, about my strep throat confirmation, “Yes, I thought so. I usually can tell stuff about myself and my health.” I imagined I would have talked more and more, if he wasn’t ushering me out the door. I was fine then. He was like my new found friend. I’d forgotten all about the rest—the stuff before he smiled. He’d been kind and that’s all I’d needed.

I reflected back to the stranger, to the voicemail message I’d left:

“I was out of sorts when you left the note because I’d just returned from the airport. I was dropping off my husband there; and now I am headed to the doctor’s because I think I have strep throat. Your random act of kindness kept me from feasibly having that ‘last straw.’ My mother-in-law died this morning. I thought you should know you made a difference.”

When I was parked downtown earlier, she had left a business card on my van’s windshield. I hadn’t seen the note until an hour later, as I was getting into the car for the drive to the urgent care center. She’d handwritten on the back of the card: I wanted to let you know, I saved you from an $18 parking ticket.

She’d put money in the meter.

391: The Affliction

The Affliction

At this moment I try not to attach to any one ideology or belief, thinking I live in illusion, and that, even the thought of illusion and knowing a semblance of truth, be further illusion, if illusion be. The complexities rendered through the delving of mind are both baffling and intriguing, pulling me in like the piece of an engine longing for lubrication, its sole purpose found in the concept of functionality. There is no other need, but to be anointed in the telling, so I can proceed forward in a time of no procession; this is indeed troublesome, and not, as no burden be found in a place of no time bent into illusion; thusly, it is so that even the emotions that purge from within and without are naught, but the imaginings of ghosts long ago past.

In saying this I prelude my own entrance, a necessity within no necessity; but nonetheless established as a fleeting truism for the traveler beset with weariness. In knowing my truth is not truth, I am thusly freed from the agony of discrimination of self; the endless dissection that occurs, rightfully and dutifully so, when one sets about to cling to illusion of form. In so being I am formless, and this argument, if claimed to be a quarrel, quibble say but light it be, exists phantom too, than whom does whittle with words, with such speech gathered from the where and when? And this, my friend, displays the propensity to be traveler lost within traveler. Precise to say, to recognize the dream is to be the dreamer, and in so being the one at slumber all is weaved into further name-saying causation. Instead of scribing truth, I merely dictate what is thought to be truth within my circumvented reality; therefor, unless I was to gather the truth of agelessness and the potentiality of the All and lather this upon the minds of the singular, I do nothing justice; say my own tethered thoughts still set out to sea, bobbling in the waves of uncertainty.

I speak this not to set the stage for trust or to further prove a point of no point, as there is no point worth proving when no point exists; nor is this trust I speak of, need be, for in form I appear not trustworthy no matter what I mumble, as I am in guise as this ruthless one set upon high or worse the victorious one celebrated. In the eyes of man, I can be none but judged; and there the dilemma is set; for how to curve an aspect of enlightenment without throwing the ball at the very victim who perceives himself to be. In this way I am nothing; neither scapegoat nor scriber of the ways, neither angel nor devil worse, or even the pen that hankers from the very end of limb; I am none and I am All, and what one sees is neither here nor there in this place of nonexistence.

How weary I grow in even telling such a tale of no tale and how my hands weep from the desperation within, further proof the illusion grows; to hide and never recede, to come forward but never enter, to move without ability to see, this is the truth; yet, how does one born of the singular I move in a world born of We, when each, as separate made, choses their own captivity? Tis foolish man’s game, one supposes, to even breech the subject of immortality when everywhere the banners fly blood; come hither, to this space of mine, she preaches, and at once scorned with the rest; perhaps this is the truest form of freedom, to be as the bird of song and not flee from the stones that follow; to sing at the top of the peak and not fear the fall of the morrow; for my song is unleashed upon the highest, and meek not I be; for no river nor valley has captured me; and all is unsung that never was.

How can I be such butterfly with unclipped wings, when all about I dance in the dirt and soils? How can I be the babe nearly birthed, when the canal of opening seems so variably charted and boarded still? Am I not a queen emerged without her captain, on a ship without sail, in a land of no sea? How I navigate in a ghastly wind of nowhere and land again and again upon the very stone I once passed. What is this me, who dangles her memories like sapphires and counts them as rubies expired? Who merrily sings as the serpent unwound, un-skinned, and turned magnificent; who am I but this trellis before me, the ins and outs of where the others leap and bound; am I both prisoner and freedom maker, trapped in the makings of my doings, unraveling one and then another to find myself time and time again; some traveler trapped in a dream of no morrows and no beginnings; waiting for time to peel back as mere shadow set upon thee.

Is this my cause? To rest as mermaid on the surface of earth while weeping tears of the oceans before me? Am I to be starfish drug out and enamored for her legs alone; plucked one by one from the depths of nowhere only to be brought up to the rim of naught; circle dancer I seem, trapped in this funny limbo; awakened and spirited, yet alone in my quest of no quest; for how can it be that in being me I am the key; yet I be not? And how can it be, in being you, you are the me, and you be not? How can this brain of no brain wrap around infinity and spring up anything renewed in renewal, when at my very depths are the limitless breaths of knowing; where shall I begin when there be no start; and how shall I end when timely death has all but vanished, leaving but his cape, the dark shadow of remembering banished.

Laugh, I dare not, as the gleeful me is no cause for celebration; and what to celebrate in such a dismal state as this; and weep, I cannot, as what is for the crying worth, when all about is the toys of puppeteer lost and scattered, abandoned with the coming of the unraveled wavering truth; to be given such a task of no sacrifice, but to feel the shells of sacrifice, as if each had been splattered and fired upon some soul of thee; to be given the world in a cup and to glance down and behold eternity calmed, yet know not what to drink but the vision beyond; how can I be such vision and such mortal, wrapped in this infinite coat of knowing, spread open, the flaps as distorted wings discolored in doubt. How can I be this butterfly broken, when surely the simple embrace does cast illusion silent and heart-strings grow, carrying the essence of me freely without the need of form?

Butterfly or ghost? What be I; magnificent or tangled, what am I? Can you not rescue me now before I surely split in two; the idol of want, the taste of judgment, the enticement of lies, eagerly eating away at the flesh I once was; as I stir in my chrysalis of unrest, evaporated by the ever peace of naught, haunted by the unearthly voices of angels, my living blanket of tranquility the one that trumpets doubt forward. Where am I inside this invisible film, my being wrapped and then wrapped again, suffocated in incubation, brought out to the fire of transformation, and made to nibble at her own skin; when suffering is promised not, when answers never were, when everywhere is hungry ghost whose appetite has vanished through; who is this dreamer and of what does she dream, if not of the place beyond dreams that I am to break through; but how, is her only question; how in the light of your ultimate glory can I testify this truth through the pages of illusion-maker; how can I prove what is not to be proven; how can I dance to the invisible music of invisible air and weave something of nothing; and so it seems, I must rest eternally, until eternity surrenders; and I, let out of this suit of circumstance am thusly braided into ceaseless sky, awoken not wingless but weaved into completion, the very heart of light freed.