Day 207: My Words Put to Music: Traits

Traits of Females with Aspergers (words by Samantha Craft)

I did not make this video.

My Words Put to Music

Hello you, who longs to be loved and noticed

You know everything is okay? Right?

You know you are just experiencing emotions

Nothing else

You are not flawed

You are not wrong

You are perfect in your feelings

It’s okay

You don’t have to pretend anymore

It’s okay

Show all your colors

You are most beautiful that way

Share what you have found inside of you

This truth

That even in your frailty and fear, you are beauty

There is no shame

In being real

We all get scared

We all get worried

We all believe someone might steal something or someone

But they can’t

They are just borrowing

Just basking in the collective wisdom

Remember nothing in this world is yours

You know happiness is not found in possession

So today give what was never yours

To a world that is you

And let your words be put to music

~ Samantha Craft, August 2012

And I say my favorite daily mantra: How could life get any better than this!

Day 206: Hot Dog! Bikini Shots!

I have written about going from Prude to Sexy in prior posts .

In pure delight, I have reached several of my goals regarding Prude to Sexy, including the guitar purchase and kayaking. I still desire to take those guitar lessons and start belly dancing. Might trade in the ankle tattoo idea for a belly button ring, though….

My middle son is convinced this is all a midlife crisis. My husband is quite smitten. And my dog, well she is happy as a clam with all the walking we’ve been doing. I’m averaging five to seven miles a day of walking, and hope to continue when the rain makes its way to my town and sticks around.

My BIG GOAL of bikini purchase and wearing the bikini in public was achieved last week at a lake with hundreds of people!

Although, in all honesty, my bikini is really “boy shorts.” But the attire is skimpy enough to qualify as bikini in my book. I haven’t worn a bikini or anything like it in over twenty years. My stomach hadn’t seen the light of days in decades.

When I wore my bikini at the lake, I spent the whole two hours processing with my husband about my bikini and my body. I still harbor some childhood bleak memories of naked grownups at nude beaches.

And I’ve been revisiting the past, some of the haunting tauntings that occurred in my freshman year of high school on the east coast, where kids called me slut and such because of my figure.

I’m learning to embrace my body….and reprogramming thoughts I have about words like voluptuous. 

It’s taken me over a week to post my bikini photo, and this IS a thumbnail size photo. But it counts! OH, and did I mention, since February, I lost 21 pounds?

And for those of you that want the Full Effect…..here you go!!!!

Day 205: What my Husband Hears

What my Husband Hears (aka: Why my Husband is a Saint)

Words I spoke today during our time together. Mostly on our walk through the forest. 

1. Do you think I look slutty? Are you sure? Do other women dress like this? Is this shirt too tight? I don’t think I should wear this shirt in public? Does it make me look fat? How do you know I don’t look slutty?

2. Look at my eye again. In the light. Can you see the pink in my eye? Does it look better? Are you sure? How do you know it is better? What if it gets worse. I think it feels better. Do you think my eye will be okay? Can you see the dry skin in the corner? What do you think it is? Look closer!

3. I am taking so many photos. Thank you for being patient. This is more of a leisure walk. We are stopping a lot. I’ll have to walk more later around the lake. I haven’t walked in two days. These shorts are too big. You are right. I should buy some new shorts today. I wonder if I am a size four yet. These are too baggy. Yes, they are too baggy.

4. Take a photo here. Oh, stop here. Oh, look there. Oh, look at that tree. Oh my, look at that. Oh, look, look! Look up. Look at the spider web. Look at the water. Take one of me from uphill. I look better if you stand uphill. Not so much of my chest. You are showing too much of my chest. How do I look? Do I look okay? Can you tell my eye is pink?

5. I ate too much caffeine. I had that tea, and chocolate bar, and the chocolate gluten-free cake. Feel my heartbeat. Is it beating too fast? Are you sure it’s not? I think it’s too fast. I’m okay, right? Feel here. I need to rest. I am tired. It’s so fast. I have to stop here and catch my breath. This walk is not enough to burn off all the calories from the cake.

6. Oh, we should go this way, and when we get to the fork in the path then we’ll need to go up and to the right; otherwise we will end up on the wrong street. These maps are not designed well. We are educated and intelligent people, and we can’t even figure these signs out! How are other people who aren’t as smart supposed to figure them out? I don’t mean that we are smarter than everyone. Well, you know what I mean. Maybe we should turn and go the other way. What do you think? …..I told you this was the wrong way!

7. Are you staring at my butt and smiling. I can feel you smiling behind me and staring at my butt. You are staring at my butt. And you are picturing grabbing it. I can see you. I am psychic, you know. This proves it. You are staring, aren’t you?

8. Oh, it’s a little Toto dog. How cute. Look at that Toto dog. Oh, he is so cute. Did you see that little dog?

9. I think I would like to have relations with a ninety year old man to give him his dying wish. Is that wrong to feel that way? To want to fulfill a man’s dying wish like that? It doesn’t feel wrong. But maybe it is.

10. You know if you cheated on me, I would forgive you. It would be okay. I know it would only be out of lust, because I know I am sweet and you will not find anyone as sweet and kind as me. So I know it would only be a physical thing. And by me saying this, it will probably make you less likely to cheat, because part of the reason men do cheat is because it is a no-no and forbidden, and you are not supposed to. So, really, since I’m giving you permission, it takes the danger element out of it. But if by me saying this to you makes you want to cheat more, then I take it back. You don’t want to cheat on me now because I said that, do you? Should I take it back?

11. So there are different types of men I am noticing. There are married men who stare and I think oh they are thinking they don’t want to be with their wife and are sad, and they wish they were with another woman. But then there are men who look, but love their wives, and want to be with their wives, but they cannot help but look at other women. You’re a man. All men look, right? And I understand if you have to look. All men look at other women, don’t they? You look, and that’s okay, but you do it in a sly careful way. Some men aren’t careful, and that would be hard. But if I was ever single, I would never meet the type of man I am attracted to. Because I’m not attracted to the men that stare in an obvious way. I’m attracted to the men who don’t look, or look really fast, and I would never know they were looking at me; so how would I ever know they liked me? You see it would be hard for me, because I like the shy guy who is a little insecure and doesn’t know he is handsome, and those are the type that would never approach me.

12. What’s your type of woman? Is that your type? How about her? You like women who are more like me, now, right? Before you liked tall and blonde. But not anymore. Do you know which of your friends I used to be most attracted to? Do you know why? No, not him. He is not my type at all.

13. If I die this is where I want you to spread my ashes. Right under this tree. Right here. Remember, okay. Here or Mt. Rainier. But this is much closer to home. Don’t you think? This would be a good place. This is just as pretty as Mt. Rainier and that is a wonderful tree.

14. I used to date the most handsome men, and it was so difficult. I would never do that again. They were handsome but not very smart, and I’d walk in a room and all eyes would be on them. And people would come up to me and say how handsome they were. And I knew those guys cheated. They had all theses chances. It’s no good dating a man like that. No good at all. Don’t you agree?

15. Oh, you are a good catch. As you get older, you out shine more and more of the men that are getting old like you. You are aging well, and they aren’t.

16. I’ve loved you through thick and thin. Mostly thick. Except for those two months you paid all that money to lose that weight. Other than that, mostly thick.

 I didn’t know my husband was taking the photo. The trunk of the tree was so lovely.

I took a photo of this trail. Then my husband did. His photo was much better. He won the contest between us. I told him my photo would be better. I was wrong. The photo below was not taken from uphill. Still not too bad. And you can’t tell I have a cold in my eye. Or can you?

~

(This post was originally marked day 125….that’s my mistake…from a combo of after midnight, dyslexia, and too much caffeine. It’s day 205. No way am I going back 80 days!)

Day 204: F*** the Dark Voice

F*** the Dark Voice

I’m sick of your taunting, as if you are right, as if you even know

You are slime, like at the bottom of my fish tank, only more fouler, like the smell of the runs

You linger there, in your toilet bowl of scummy mess and await me like the monster Grendel

I do not like you, not one bit, and would hate you, if you were even hate-able

But you’re not, not worth the hate

I wouldn’t decorate you with the compliment

You foul creature I despise

If I could pick you apart, I would start at your heart, or where your heart should be

But you only have a shadowed center, a phantom form, something I cannot touch

That no one can reach

You hide in not existing

You hide in not being there

But yet you taunt louder than a thousand soldiers stomping across enemies’ graves

You don’t even know me

But I think you do

You can’t even see me

But I think you can

You are such a mystery, that if I could admire the maggots crawling out of my rotting dog’s flesh, then I’d admire you

In the way I look at fungus on the skin, or in the way I feel my heart skip a beat

I would admire you with fear and disgust

And that is what you wish

That is what you ingest

Complete fear and disgust

You long for me to take my own self apart, piece by piece

To fear my own body, my own form

Because you are jealous in your non-existence

If you could extinguish me, you can then live

But I laugh at you, you creeping ghost of dark

For I am light, and I shall burn you to a crisp

Take you out before your spindly tentacles reach me

And I shall shine upon your evil breath

The way the scope of knowledge shines against the tainted rulers of masses

And we together shall rise and wash you out

No matter you are invisible and dark

No matter you are unreachable

We shall find you in our souls and bleed you out

And feed you to the tigers of fish

So they can nibble upon you and fertilize the world with your drought

Be gone great master of trickery and ghastly thoughts

Be gone all of your ways that torment this being

For I am no longer alone

And my light multiplied shall corrupt your plans

And leave you helpless, spineless and begging for mercy

And then, in our light, we will scoop you up

Babe in arms, and examine your sweetness, your words, your outcry

And find ourselves staring back with the tender longing for love

~~~~

Samantha Craft, August 2012

Day 203: This is Boring. This is Pain.

This is boring. This is pain.

Somedays, like today, I struggle to function.

Every day is a huge challenge for me; something that I seldom talk about or mention. Just getting out of bed takes a lot of effort. I don’t like to write about my  pain and various physical “conditions,” as I am not my conditions, I am not an illness, and I am definitely not pain. I don’t like to talk about everything I must do to keep myself moving.  But I am. Mainly because I was on the couch all day and had a heck of a lot of time to process. Plus, a little boring never hurt anyone.

There isn’t a moment I don’t feel something askew in my body. Because I am so sensitive, even a hair in my face can irritate me, even cause a rash. My own hair! My nose constantly itches. Sometimes my eyes. All my joints seem to hurt. But I can’t tell if it’s my joints, my muscles, or something else. And neither can the doctors. Right now the couch hurts my bottom. The laptop desk hurts my thighs. And at least ten different areas in my body are either in pain or irritated or itching.

I’ve been diagnosed with at least ten syndromes or illnesses. Nothing is a definite. Nothing truly proven beyond a long list of symptoms. At this point I could have inherited something, suffer as a result of multiple injuries/accidents, been prone to pain from stress or environmental toxins, or made everything up in my head.

Sometimes I like to think everything is in my head. At least I have some control that way. The older I get, the more I realize my whole reality is in my head, anyhow. All my thoughts control my mood. My eyes what I see. My ears what I hear. My brain what I take in, recall, process, judge. I’m sure my spirit plays some part, as well as my second-brain (the intestines), but seriously, so much goes on in my head to begin with.

There are lots of things I have to do in order to function. If I skip any of them, or if something is off, I am pretty much certainly going to be in bed or on the couch for a large period of time. Each day I wake up, I feel like I am preparing for battle: a battle just to survive the day without collapsing in great fatigue and pain.

Here is a list I keep in mind to help manage my days.

1)      Shower; something about the hot water on my body rejuvenates me and reduces my muscle pain. If I don’t shower I feel extra greasy and itchy. If I don’t shower, I feel increased pain all day. Problem is, sometimes I’m too tired or fatigued to even think about showering. I have to force myself to. I don’t like showers. They are boring.

2)      Pig hormone; for my hypothyroid I have to take a natural pig hormone. I haven’t eaten pork since sixth grade (my decision). So at first the thought of ingesting any part of a pig, felt odd, but then I figured it was the pigs way of paying me back. Pig karma, for not eating them for so long. Trouble is this hormone gives me the skin of a fifteen year old. I appreciate the healthy glow, but the sticky oil and chin breakouts, I could do without. Seems I’ll take longer to get all wrinkly, though. So, I guess that’s a bonus, even though my skin is worse than my teenage sons’.

3)      Various supplements; if I go too long without any supplement, I feel it somehow. However, one benefit of being me is that I’m very sensitive to what is happening in my body. In September, it will be two years since I’ve had a cold or flu bug. I can feel a cold coming on. I feel it in every joint in my body, like I’ve been poisoned. Feel it before most people do. And when I do, I load up on Vitamin C and Vitamin D. So far I’ve managed to keep from getting sick. Fingers crossed and knocking on wood. I can tell things about me, too. If my eye sight is growing worse, I need more magnesium. If my leg twitches, I need my multivitamin. If I am tired, I need to take my iron and eat a little fish.

4)      Diet; it’s easier for me to list what I can eat, than what I cannot. I can eat nuts, fish, vegetables, and fruit. Everything else gives me some reaction. Chocolate gives me rashes and makes me break out. Dairy gives me rashes. Wheat makes me bloated and depressed. Artificial anything gives me stomach issues. Most foods in general cause me extreme fatigue immediately after eating. If I am going to eat, I usually have a small portion of salad. Grains are going to make me tired. Wine hurts the salivary glands in my neck. Beer gives me a stomach ache. I am definitely high-maintenance. If I am not careful, after a meal, I will be in pain and fatigued, and have to take a nap.

5)      Liquid; I need to have lots of water and green tea. The green tea gives me the boost to function in the morning and alleviates my chronic fatigue. Green tea also lessens my pain. If I have coffee I go into a spastic mode. If I want to clean I have a quarter cup of coffee in the morning. If I drink coffee I will be up past midnight and have lots of cool ideas, or what seem to be cool ideas, but are really elaborated ramblings that don’t prove much of a point. Coffee makes me paranoid, worried, and stressed. Oh, and agitated.

6)      Exercise and movement; I have to move. Once I sit down, it is very hard for me to get back up. Especially if I combine eating in the morning with sitting on the couch. And forget it if I eat, sit on the couch, and skip my shower—I’m pretty much down for the count on those days. If I walk my serotonin levels increase and my mood is better. Everything is brighter. If I walk far, lately five to seven miles in a day, it is easier for me to sleep deeply at night. Fatigue sets in badly about 3:00 pm, so if I can walk then, sometimes a second walk, I can keep from sliding into the unable-to-move zone.

7)      Weather; if there is a lot of barometric pressure from clouds then I have a hard time moving. Also, if it is chilly, my bones ache. At least it feels like my bones ache. On cloudy days (most days in Washington) I need to make sure I take care of myself; if I do not, I will not function. On cold days the far infrared sauna is helpful. But sometimes I am too fatigued to go into the sauna. The thought of having to undress, shower, and then dress again seems overwhelming. I worry about how I will keep up my walking with the end of summer coming. I have to find ways to exercise. We have an indoor treadmill which I avoid. And a stationary bike I haven’t made friends with, either.

8)      Sleep; if I do not get enough sleep, I will have increased pain and fatigue two days following. If my sleep is interrupted and/or not restful, the next days will be harder for me to move. I am sensitive at night. I need a special mattress for my body to feel comfortable, must wear long sleeves and long pants, regardless of the weather, or I itch, and need to use earplugs. All noises bother me. Particularly banging, high pitched noise, the ticking of clocks, water of a fish tank, voices, television, and snoring.

9)      Stress; if my stress level is medium to high, I will have instant pain. People’s moods affect my pain. Screaming, whining, loud noises, yelling, fighting, and the like increase my pain. Unwelcomed news increases my stress. Lies are a big trigger for me.

10)   Thoughts; if something is out of the ordinary, if plans get changed suddenly, if I notice something on someone’s body that is out of the ordinary, then my thoughts may overwhelm me to the point of exhaustion. My thoughts can trigger sudden onset of pain. When something I am looking forward to is suddenly canceled I am fine. But when something happens I wasn’t expecting, no matter how pleasant, I can get overwhelmed. Skin “issues” are a big trigger for me. I have an odd rash around my eye. I worried and fretted today about my eye, and collapsed on the couch from fatigue. I catastrophize in my mind, thinking of worse case scenarios. My sons have mosquito bites all over them from one hungry house bug we’ve yet to catch. And my chin is breaking out from that pig hormone. All this increases my thoughts.

11)   PMS; oh yes, the lovely word. The five days of hell for me. All my pain increases, fatigue doubles, negative thoughts increase, and basically I think the whole world hates me. My face and stomach swell up and I look and feel like the Pillsbury Dough Boy. This makes it harder for me to leave the house and exercise, which can lead to further fatigue and bring on depression. You’ll notice I do not post photos of me during this time. I also get cravings for chocolate! Not something I should really be eating.

12)   Chemicals; I have to avoid all chemicals in products and makeups. Thus the frizzy hair and minimal makeup. I get instant pain from inhaling chemicals in all forms. I have to avoid places with new carpet, paint, flooring, or other odors. Plastic smells are the worse.

13)   Information; I have to be careful what I read or watch. News or a film can deeply affect my mood, which triggers…you guessed it…my pain. People close to me have learned not to share sad news that doesn’t directly affect me. Some visuals I’ll never be able to get out of my mind.

14)   Noise; certain genres of music physically hurt my body. Dogs barking hurts my ears. Loud cars, especially motorcycles hurt. Too many people talking all at once, large gatherings with lots of conversations at the same time, all cause me trouble. Noise can affect me for the entire day, and may mean I have to stay inside the next day to recuperate.

15)   People; people affect me in all sorts of ways: their mood, their appearance, their smell, their mannerisms, voice, attitude, energy-level, facial expressions, spoken words. If my feelings get hurt, which happens more times than I’d care to ever admit, then I typically will feel pain somewhere in my body. If a person is sick, I might get phantom symptoms, even if I don’t know they are sick. If a person is happy or sad, I might start to feel that same way.

16)   Dread; if I am dreading something, particularly medical news, doctor appointments, or an upcoming outing, I will have trouble concentrating and relaxing. I will loop in my mind and spin in my thoughts. This will cause tension in my body, which leads to other problems. I have to get blood tests done about every six months to check my vitamin, protein, iron, and hormone levels. The thought of annual or biannual appointments for anything, sets me into a mini-panic.

So that’s my boring list.

This is boring.

This is pain.

Great movie Sliding Doors to watch when you are stuck on a couch!

And dang if that mosquito didn’t just buzz in my ear!!!