355: To the Professional

Take away the notepad and paper, take away the laptop, or whatever you are about to write on. I am more concerned with what you are writing and thinking than my own self.

I am uncomfortable looking at you. I don’t like your office, for one reason or another. Maybe you are messy or maybe too clean. It might smell in an offensive way or be too dark and cluttered. Then again the sunlight might be seeping through and displaying the dancing dust and pulling me in thought to germs and uncleanliness. If you cleaned, I am hoping you didn’t use toxins, and I am wondering how many people have sat in this chair before, and how they sit, how they position their body, but mostly how they position their mind.

I am wondering with each word I speak what you think and if I have answered to meet your expectations and intentions. I can guess half of what you will say and how you will say it, because I have studied you from the moment we met, and I have studied those like you before. I know more about the human language and the nuances and gestures and games than you can imagine. I can feel your energy, and I can feel how your opinion of me switches. I can feel you weighing in on me and my words balanced against your thoughts.

I am uncomfortable in all ways and trying to present myself as comfortable. And this you probably know, as I already know, and you are watching me closer, as if in watching I will grow in security and trust. But I won’t. I will feel for you what I feel for everyone. I will either like you instantly or you will make me want to run. And with the liking I will analyze why and if this is valid, this feeling of companionship and connection. I will linger here a short time, especially in comparison to if I want to run. If I want to run my thoughts will circle around you for a favorable amount of time, working inside and outside of your being and attempting to decipher the danger. If I distrust you, I will likely always distrust you. This may be nothing you have ever said or done; this is my natural instinct.

I have been preyed upon by predators and sought out by experts. I have been probed and prodded and measured one too many times. I do not like the way you measure me. Not one bit, and I want this time to end.

I want to like you, and if I don’t, I fear my own rejection; I fear the dialogue that will reach into the contours of my mind and debate the whys and hows of my own inclinations.

I will listen to you as best I can, but don’t count on me hearing all of what you say. One word will set me adrift into another place, one unusual sound or one ordinary sound from you or from the room that is silent. I will hear what you do not hear. I will hear the quietness through the silence. I will hear the pauses in your monologue, and I will question your expertise.

I will wonder if you like me and then wonder why I even care, and why it is important that you do like me, even if I despise you and everything about your space. I will still want to be your friend, and a part of me will still love you, like some pup you picked up from the alley while in a mode of rescue. I will seek harbor and refuge in this space you have provided, knowing I am paying, or someone is paying for this form of companionship that frightens me.

I will question your degrees, your education, your protocols, your knowledge, your booksmarts, and your conclusions without hint of regard. I will dive down corridors of your soul and wander about hunting out the darkness. And all this I will do as you sit there scratching away notes about me.

For I will have compiled a list a volume thick in the time you have taken for me to answer a few questions. And simultaneously, I will have composed my own representation of self to you, pulling out what is expected, and what might make you comfortable, playing the game so you can see me and not be swooped away by the real me that is locked away behind this tattered worn curtain of self.

You can’t reach in, as hard as you try, unless I know you recognize me. I won’t let you past, unless I know you are real, that you have felt the deepest pains and angst, that you, too, have been in the shadowed darkness weeping for reprieve, that you have been abandoned, ostracized, left for nothing, created into something others wanted you to be. I will not let you near, unless I know your heart has grown in the depths of the oceans and shoots out to save those who wither.

Your documented degrees mean nothing to me. Your schooling is lost. What you knew and what you think you know is not this me staring back at you. I am in no textbook and in no past discoveries. My experience is uniquely mine, and unless you have dived into the caverns of my mind, unless you can see the world of illusion, as I can, then I have no purpose or need for you.

Entirely, I sit. Entirely, I am. And I understand beyond measure what grips you and shakes you and what makes you spin. I can tell in your eyes when you are complimented you are lit, and when you are unsure you folly. I see you, like a master watching a child; I see your discomfort, your waverng, your questions. But mostly I see straight to the purity of your soul, straight into the core.

So don’t waste my time with man invented games and manmade questionnaires that nibble away at my character and personhood. I am beyond this, these guesses and marks, this test to prove something that needs no proving.

I am not this Aspergers. I am not this Autism. I am human in need of being seen.

I am not a test subject, nor am I confused. I am not sick. I am not ill in the slightest sense. I am a unique and special individual born out of the ashes into the phoenix. I am both God and Goddess and have so much to teach you.

So do not look past the secrets in my eyes to check off the boxes of your own design. Seek first in me the wisdom I carry, the answers, the knowledge. See what I have to say. Hear what my world is like, for unless you have lived inside of this me, then you are the one that remains alien.

Don’t pretend you understand my condition or my brain or my way of life. Don’t pretend you can help me. I already know your tactics and trickery. As innocent and as kind you be, to me everything you present I shall take apart and examine from source.

Present to me your own self, the deepest part of you, the part the rest of the world hides so readily in a game. Take off your mask and meet me in the playing field I recognize: one of pureness, naiveté, child-like heart and genuineness. Do not strip me of the very armor that sews my seams. Uplift my attributes and charm, the gentle grace that illuminates from the spirit I am.

Do not think that because you have a title or name that you are therefore anymore or any less than the others. You are still garbed in your fashions and mystery. Undress, strip down, bear your nakedness and show me your frailty. That is the only reason I am here. Not to teach you how to help me. Not to teach you how to change me. But to show you what truth and beauty is.

My way is not wrong. Nor is my mind hindered. My way is the one of the child of goodness and authenticity, and until you understand that what I carry is no less damaged than the stars in the sky and no less worthy than your very own heart, than you cannot reach me.

If you want to help me, if you want to truly help me, then become my student, so I can become yours. Meet me as one. And see that I am not your patient, your client, or your case study. I am me.

In all my uniqueness I am me. And in this, in being me, in being all of me, perhaps in your wanting to help me, it is truly I that will set you free.

302: The Black of Me

I was standing in front of a variety of buckets of paint. I dipped myself in paint after paint.
I was in search of answers.
Soon I was multi-colored and dripping in knowledge.
I dipped and dipped more and a brilliant rainbow blossomed.
I dipped and dipped, covering every inch of me, until the colors all merged.
Then, and only then, I was the color of black.
But it did not bother me, this guise, this dark, this black.
For I knew all the other colors were still there, still with me, and now in me.
But then the “experts” and “professionals” entered the room, where I stood dripping black. And they observed. Their clipboards and furrowed brows moving in an unwanted rhythm. The dance of them entering my mind and hurting my being.
And they looked and looked where I stood—noting this black shroud upon me.
And I knew then that they were blind, that they could not see all the colors.
They only saw black.
They were quick to form theories about this black. And they were quick to find words, and labels, and meaning.
They assumed since I was garbed in black that I liked black, and only black. They assumed what they saw was the truth.
They couldn’t see.
They couldn’t see that just as black was my companion, so was every other color. Colors they had never imagined.
I couldn’t explain the colors to them. I couldn’t go back and show them where I’d been. I didn’t know how.
I didn’t know the words.
I was blind to their words, as they were blind to my colors.
To them I needed black.
To them I was black.
To them this end product of black was their everything.
They didn’t know that black was merely the mixing of everywhere I’d searched and everything I’d questioned.
They didn’t know that black was not the end product. There were still more colors to find. Still more colors to be.
But when they looked, they saw black.
They gathered their boxes next.
They needed boxes like I needed colors.
I understood that we both craved things that the other did not see or comprehend.
But somehow I was supposed to accept and understand their boxes. Even though they do not attempt to see my colors.
This made me cry inside. This disconnection. And the black grew darker, thick and coated. A darkness that stopped the colors from seeping through. And stopped me from dipping and dripping. Stopped me from being.
And as I was black to them, I was placed in their box of black.
And from there, in the box, I watched them write the words of who I am.
I could not tell them how these words made me feel. I was too busy crying for the lost colors.
How I longed for them to see my colors. To see me in completion. How I longed for them to dip.
For then I knew they would see.
They would see what I see.
And through their dipping and dripping
They would soon discover
That their boxes never existed.

Aspergers Letter: Be the Change

Dear Sir or Madam,

Thank you for taking the time to read these words.  Please know you are making a difference. My penname is Samantha Craft. I am an educator (M.Ed.) and a mother, and I have Asperger’s Syndrome. I live in the state of Washington in the United States. I am forty-three years of age. I was first identified with having Aspergers in December of 2011 by a mental health practitioner.

Before I knew I had Aspergers, I spent decades searching for answers. I searched for logical reasons to explain my extreme sensitivities, empathy, fixations, imaginings and fears.  A keen woman, I sought out answers through 12-Step, medical doctors, therapists, psychologist, psychiatrists, priests, ministers, educators, shamans, and counselors. Not one person whom I sought out for assistance mentioned Aspergers, because not one person knew how a female with Aspergers presented herself. Many professionals didn’t even know this word: Aspergers.  Person after person assigned me an incorrect or incomplete diagnosis and non-beneficial methods of treatment. For years I suffered, knowing something was “wrong,” but not understanding why.

I am not alone. By no means am I alone. Thousands upon thousands of women have Aspergers and have been misdiagnosed, overlooked, and/or misunderstood. Notably, In these days of advanced technology, this lack of awareness regarding Aspergers is shifting. Today, thousands of people a month are learning how Aspergers in females presents itself. However, a large majority of the people searching for answers are the females with Aspergers themselves and their family members. The word about the female experience still needs to reach the people who are equipped to identify and help this subgroup of women. Particularly professors at universities, teachers in elementary and secondary schools, medical doctors, psychologists, psychiatrists, and mental health care practitioners.

In hopes of spreading awareness, in February of 2012, I began a blog called Everyday Aspergers. I have since been writing for 95 days straight, and will continue to do so for the stretch of the year. My hope is  to present a cohesive presentation illustrating a female with Aspergers. The pages are not filled with troubles and tears, only some: because I am human and my human experience stretches far beyond the one word Aspergers. The pages depict the inner workings of a female with an Asperger’s mind—her thought processes, her deep philosophical prose, her poetry, her story.

My hope is you will choose to pass this link on to a professional, (e.g., grandson’s teacher, sister’s doctor, colleague, university dean), so the many women still searching for assistance and answers regarding Aspergers will have a tomorrow filled with awareness, understanding, assistance, and acceptance. Assistance cannot exist without knowledge. Acceptance cannot exist without knowledge. In choosing to directly send this link to one professional, you are choosing to spread the knowledge and effectively change the lives of thousands of women.

With the knowledge we will forever change the face of Aspergers, with the knowledge Aspergers will no longer be unknown, misunderstood, and/or perceived as a taboo, and with the knowledge we can begin to provide hope and needed assistance, and begin to celebrate our unique gifts, I sincerely thank you. May your day be filled with peace.

Link to pass on:  https://aspergersgirls.wordpress.com/2012/05/03/aspergers-letter-be-the-change/

Sincerely,

Samantha Craft

Everyday Aspergers

 

You may also print Be the Change letter, if all the information remains on the page. Thank you.

 

Resources on this blog:

10 Traits of Females with Aspergers:

https://aspergersgirls.wordpress.com/2012/02/10/aspergers-traits-women-females-girls/

Unofficial Checklist for Females with Aspergers

https://aspergersgirls.wordpress.com/2012/03/31/day-62-females-with-aspergers-syndrome-nonofficial-checklist/

10 Myths about Females with Aspergers

https://aspergersgirls.wordpress.com/2012/03/06/thirty-seven-10-myths-about-females-with-aspergers-syndrome/

Discrimination regarding Aspergers

https://aspergersgirls.wordpress.com/2012/03/13/day-44-the-abcs-of-discrimination-i-will-not-be-made-to-feel-ashamed-of-aspergers/