Thirty: I am Elephant!

Days like today I want to find the highest mountain and shout in my loudest voice, “I am Elephant!”

I want to charge forward with my tusks at a massive pile of hay. Stab and stab with all my might, until no barrier is left, only scattered remnants that the animals can feed upon, digest, and carry away.

I hate, if I ever were to hate anything, the aspect of being misunderstood. I hate that my son is being misunderstood. I hate that I am misunderstood.  I feel as if we, as an Asperger’s “species,” have been set up for failure. As if we are supposed to make ourselves less genuine and honest, in order not to threaten others’ norms.

I understand we represent the unknown that exists outside the comfort box of many individuals. And when we surface, stand there face-to-face in conversation, the anomaly, if you will, is seen as a threat, an oddity, a discomfort; and we are made into this perceived entity that requires some degree of change or adaptation on our part.

I question what is it about the way I think and function that requires fixing and change. What if the way I think and function is ideal? Why is it that the majority believe their way is the right way, when all about them the world is falling apart from war, famine, lies, manipulation, blackmail, disease, hatred, bigotry, and poison? These named leaders play these games using their tricks. Wherein I, coming from a place of honesty and genuineness, am perceived as a threat.

Is the feeling of threat erupting from others’ insecurity or perhaps from the uncomfortable feelings that arise when one’s foundation of what is believed to be the right way is confronted?

Perhaps the way communication is currently played out is from a very limited and self-centered scope. Wherein there is this unspoken dance where I am expected to filter what I say, how I say it, when I say it, and how much I say, as to not risk causing discomfort to someone else.

Assuming I am reasonably self-aware, which I am, and I have no intention of ill will or harm, which holds true, and that I have generally mastered the basic social norms of avoiding insult or rudeness, then what other rules must I add?

It seems to me the other rules include this basket of techniques, sayings, buffering, limitations, and balancing that enable the recipient to feel better about him or herself, or at least not any worse. It seems to me a game where the first priority is to not make waves, to win the person over, to sound strong, and to sprinkle evidence of high intellect and likability, in order to allow the other person to feel comfortable enough to maybe begin to trust me.

Why is it that if I accurately and purposely reflect what the other person wishes to hear and see, that they embrace me and wrap the tentacles of interest around me; but other times, when I am entirely authentic, and I share without pretense, plan, or caution, I am questioned, perhaps even distrusted, judged, singled-out, ridiculed, or admonished? Why is it some human beings want to converse with clones of themselves and make me into their egocentric mirror, instead of knowing me?

Communicating is like driving down a dangerous road where there are warning signs at every turn. Beware!  Make sure your words are continually reinforcing the other person’s identity, perception, and worthiness. Avoid offending, weakening, or threatening a person’s idea of truth. Know that complete honesty triggers alarm in people. Understand that ultimately most people you approach already don’t trust you and you have to build and build trust before they will. Even then, know there will be people who will never trust you.

Why is it when I speak my truth some question my intention, my motive, my want, my need, my desire, my expected outcome, my reasoning, my life, my identity, my self-worth, my perception, my judgment, and/or my personhood? Are these seeds I need to plant seeds of dishonesty?

What if I am not the anomaly? What if my son is not the anomaly? What if the teenagers persecuting him with their bullying and snide remarks are the anomaly? What if my son is the teacher? What if Aspergers isn’t a syndrome or a disorder? What if Aspergers is a new mirror: a mirror that reflects back truth and honesty, and genuineness of spirit?

If communication is to based on a scale dependent on levels of trust, then a person sitting across from me in conversation is continually establishing how much they know me and trust me in order to decide what to share about him or herself, or his or her perception, facts, or experience. How do I decide which parts of me to hide?

Why isn’t communication the opposite of distrust? Why don’t people strip themselves of protective layers and speak their truth? Aren’t we all in search of love and attention? Companionship and sharing? Why don’t we all wear T-shirts that read: Love Me, Please. Isn’t that what we crave? Why is it so hard for someone to walk up to a stranger and say, “You look sad and lonely. I’m sad and lonely, too.”? Why is it people say so easily, “It’s a beautiful day” instead of “You’re a beautiful being”?

Strangers ask me, “Why are you being so nice? How did you become so kind?” or say “No one ever asked me that. Thank you so much for taking an interest?” And yet I am the one who knows not how to communicate naturally?

If withholding information is the norm, then I question the integrity of the establishment who dictates such norms. If one is to say to me, “Impossible; if we all spoke are truth the world would fall apart,” then I ask: “Is the world not already falling apart?”

The majorities’ opinion of what counts as the correct mode of communication style appears backwards and disproportionate. This fear-based approach contradicts the doctrines of many spiritual and religious foundations of unconditional love. I don’t understand this barometer I am supposed to carry into conversation—this inner dialogue, gut-feeling, or what have you, that informs me of what to withhold.

I understand to avoid crudeness, rudeness, defensiveness, argumentation, blame and downright meanness—as I see those derivatives of communication equally fear-based as the self-regulating barometer that predisposes the mind to beware of each and every encounter with another human being.

I do not understand the harm in sharing my authentic self and true feelings, if intention to harm and do ill will are abstracted, and what remains is the representation of the true being. Isn’t this what human race is striving for—the disrobing of falsehoods? Don’t people long for genuineness? If so, then why do I feel so oppressed? Why since my youth have my peers and authority continually been trying to snuff my light? Why do I feel as if I am to be locked in some prism of isolation, left alone with my thoughts, so the world outside doesn’t have to fear my reflection?

I am not bold, I am not brave. I am me! But so many people can’t see me.

I crave purity and truth. I abide by these elemental necessities. Yet, I am continually punished for not partaking in a ritual game, of following some unspoken norms of what is supposed to be. When everywhere I look around me the world is falling apart because of all the unspoken lies, manipulation, greed, and trickery.

This dictated “right” way to communicate, the fear-based approach where people say what is expected, and what the other person probably wants to hear, in order to get at some unspoken goal, appears manipulative, preplanned, and superficial.

Why in society is there a limit to what we are supposed to reveal? I understand donning clothing to conceal the taboo of the naked flesh. I can abide by this norm by simply cloaking my body. But to understand the taboo of sharing the naked spirit—I can find no such cloak. I do not know what to cover my truth in so that a person will listen without their ears first burning or their anger first churning. I do not know how to persuade someone to my side. I see no need, have no want of these things. And for this, again, I am lacking.

I watch as those that conform pass untouched in the night. While I remain oppressed because of my nonconformity. Why must I become an untouchable in order to walk freely? Why must I stay hidden in order to be accepted? As many times as I’ve been crushed and hurt, debased and stabbed in the back for sharing myself, I cannot learn another way to walk in this world. It as if the legs that carry me can walk no other way than the way in which my spirit intends. I am made to be silent or to remain in constant affliction. I am imprisoned by my own desire to be.

This is such a lonely and unspeakable place of pain and shame. And all about me professionals with man-invented degrees are claiming their “truths” of what I am, when they do not even know how to even see who I am. They are aliens dissecting me with their eyes, though they wear spectacles with blackened and tarnished glass. They can see nothing but their own imaginings and what has been told to them by others; others whom had things told to them; whom in turn had things told to them by others, with the origin residing in some theorist, who himself was likely twisted in his views and perception by his need to conform.

In my view, I am an elephant. Being an elephant, I know myself as an elephant. I know how an elephant eats, sleeps, dreams, and walks. And I know other elephants who walk in the same way. Who think in the same way. Yet, I have hyenas all about me telling me what an elephant is like. How an elephant should look and be. Who listens to a hyena to know what the elephant is, when an elephant is standing right beside?

Something must change. That is why I shout, “I am Elephant!”

Twenty-Nine: Blue By You

I’ve been thinking a lot about my childhood and how my actions reflected those of a child with Aspergers. I keep getting pulled back into a time period when I was about ten years of age. I was still rescuing animals then. Not that there was much I could do to help, but to love them.

One day the animal was a bird, near death, whose eyes were cold by morning. Another day a snail that had lost its shell. The one I remember the most is the butterfly. She was a monarch. I found her in the gutter on a rainy-walk home from school. Her wings were tattered, and she was nearly drown. I carried her home, cupped in the safety of my hands. I named her Jolie—for her beauty.

I placed her in a cleaned-out pickle jar and watched her in awe, as she stuck out her black tongue and lapped the sugar-water from a small lid. Her little wings were cast in masking tape. I watched her through the night; ever so often turning on the light and checking on her. I loved her. She survived a full day in the warmth of my affection. When she  passed, I buried her in the backyard under a fig tree and gave her a short sermon. This is the little girl I was, so remarkably sweet and hopeful. I wish to go back to her, to her room, to kneel down at her side, and say:

“I love you. I love you so very much. You are so beautiful. So kind. So thoughtful. And I am sorry that you carry such a burden. I know how painful it is to love with all of your heart. I know how painful it is to want to help and to not know how. But you are helping. You are helping more than you  know, my precious one. Look at me. Do you see what you have become. You are going to be a mommy someday, with your own family, and you are going to have what you need to take care of them. But precious child your journey into adulthood will be very hard. There will be times you want to give up. So many times. And you will take many years to find your way. But you will. You will. I promise you that. And when you do, so much will make sense. And you will cry, cry so very hard, like you are now with losing your beloved butterfly. But I will be waiting. I will be knowing that you will survive. That you will be strong. That you will love with all of your heart and get that love back ten-fold. You of all people, shall be loved. I will be here waiting on the other side of time, with my arms wide open. And when we meet again, in dream and in prose, I will embrace you, like no other. Thank you. Thank you for being you and going onward. Thank you for being so brave and so very strong. You are my living angel. And I breathe for you.”

 

 

Twenty-Eight: Giving a Child with Aspergers a Break

 

Giving a Child with Aspergers a Break

Be. Let the words pour out of the child. Let the busy thoughts escape the mind. Let him speak as long as he wants about whatever he wants. Set no time limits. Welcome the rambling, digressions, repetitions, and dissertations. Be present, without interjection or correction. Allow time periods with no communication rules, lessons, examples, rights, or wrongs. Let the child release the pressure in his mind. Take long walks and car rides together, and just listen. Let him be himself.

Retreat. Grant her a day of rejuvenation, a full day with no visitors, appointments, outings, sports, or any mandatory doings. Keep the day free of all restrictions, chores, and obligations. Stay in pajamas. Allow escape, isolation, and repetitive activities. Give her the chance to rebuild her stamina. Provide solitude and comfort. Stay home from school one day. Peel away the rules and regiment. Let her retreat.

Environment. Ask about sensory concerns in the environment. What causes you discomfort in this space? How are the lights? The chair? The sounds? The smells? The flooring? The pictures? How do your clothes feel? Your hair? Your skin? Where is there discomfort? How can I help? What does it feel like? Describe it. How is the shower? The bath? Do you hurt? Where do you feel the safest sitting? What is hard to tolerate? Do you need sunglasses? A pillow? Earplugs? Let him create a more comfortable environment for himself.

Active Interest. Show interest in her special interest. Don’t call it an obsession or fixation. Call it an interest or passion. Participate. Explore and collect. Be together. Establish a schedule. Make the special interest a priority. Place the passion in a spotlight of acceptance. Establish a blog, newspaper, journal, comic, drawing, song, rhyme, act, or other creative outlet to express the interest. Let the creativity blossom. Welcome the opportunity for connection. Let go of the need to control, fix, alter, or end the special interest. Replace objection with acceptance. Replace disinterest with interest. Celebrate new discoveries. Use the interest as a therapeutic tool. Allow him the freedom to escape from the challenges of his world.

aKnowledge. Acknowledge characteristics, talents, skills, and intelligence. List positive attributes. Don’t pretend anything is easy. Be a warrior and teach how to be a warrior. Don’t try to change the child. Imagine how scary his world is. Tell him he is very brave. Tell him he is not alone in the world. Share others’ stories. Find an adult with similar challenges who is an effective role model. Watch movies about Aspergers. Know the child wants nothing more than to be good, to do good, and to feel good. Explain that he is never a failure and always a success. Tell him you hope he tries his best, but on the days he doesn’t feel like he can try, that’s okay. Tell him he has a right to hurt and be scared. Tell him he is a gift and that there is nothing he can do to make you stop loving him. Tell him he is perfect. Tell him even though you aren’t him, you can imagine how hard life must be for him. Ask how he is feeling. Never minimize or discount. Never say it’s not that bad or things could be worse. Say you are getting stronger and wiser every day. Believe in him.


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Day Twenty-Six: Patch Freak Makes Life Change!

 

I’m going to attempt to use humor to explain a major life altering decision.

I’m back.

Bet you didn’t know I was gone.

I totally (California born and raised) slipped out of focus and got sidetracked for an hour’s time about the origin of the word humor. Why? Because I used the word humor in a sentence, Silly. And that led Brain away, like a string of yarn does for a kitten. This morning Brain’s string began at etymology: the origin or development of a word, affix, phrase, etc., and the string ended with black bile. Yucko-mania!

If Brain hadn’t allowed for a detour into Reasoning Forest, and instead he/she had left me in the moment, I fear I would be profusely apologizing for the spattering of snot and tears all over the computer screen. Yes, remarkably indeed, Brain returned me to an emotional state of equilibrium, with one quick, and rather boring, sidetrack.

And I have good news. When Brain examined the root origin of humor, which included words like phlegm, LV (little voice in my head) found us a new patch for our sash! Our lovely patch Melancholic is one of the four temperaments, the others being: Sanguine, Choleric, and Phlegmatic.

 

It is black in color, the Melancholic patch, and now firmly sewn on to LV’s slash, amongst her numerous other merit badges of distinction. She tore off the high-maintenance patch to make room for the new one. The patch of Melancholic represents the following traits: sensitive, intuitive, self-conscious, easily embarrassed, easily hurt, introspective, sentimental, moody, likes to be alone, empathetic, artistic, fussy and perfectionistic, deep, prone to depression, avarice, and gluttony!

Sidetrack: (Brain left again, but only for a brief stretch. He/She had to know the origin of origin. Call him/her crazy. I do. At first I was afraid that there was no origin of origin. Fear gripped, an anguish surfacing from the depths of Grendel’s mire: What if there is no origin of origin? Don’t panic. Luckily there is. The original meaning of origin is to rise, become visible, or from beginning source. I can live with that. I just wish the online etymology dictionary had the real origin of the universe. Which by definition would be the beginning source of the universe. Sadly, the definition only reads:  the cosmos, whole, and turned into one. No real origin there.)

The Melancholic patch is an improvement over some of the qualities listed on the other temperament patches, such as: hedonism (which is an ugly word to begin with), impetuous, prone to hypocrisy, and prone to sloth. Prone to sloth, makes me giggle. To learn more you can click here

I think from now on, when I’m in an Aspie funk, unable to make a decision, on overload, and/or plain overwhelmed with my brain, I will say: “I am prone to sloth, presently exhibiting attributes of the phlegmatic temperament.” Just warning you ahead of time.

Concerning the brief mentioning of my life altering decision, I was a daredevil speed racer in my mind for three hours straight last night, between the convenient hours of 11:00 pm and 2:00 am. Riding a cranked-up dirt bike up and around turn tunnels and across perilous ramps. LV had a lot of processing to do. And when I woke up, I endured two more hours. I did not know it was humanly possible to pour gallons of tears out of my tear ducts; but then again LV is sporting that hip new Melancholic patch.

The good news is the tears have cleared and hope has set in. There’s a seedling sprouting at this very moment at the belly of my spirit and stretching to the open sky.

What happened? You query, so sympathetically, (or not). Well…I took a whirl at taking care of Brain, LV, and Me, and got the Heck Out of Dodge! (Brain notes: Get the hell out of Dodge is in reference to Dodge City, Kansas, a favored location for westerns in the mid 20th century. Most notably, the saying was made infamous by the TV series Gunsmoke). And that’s the only reason my husband tolerates me–because I’m full of…interesting facts!

Sorry, about that. Suspense building. Drum roll. Shying away. Just going to splash it out in one big wave:

I got the Heck out of the University that I was attending for my Masters Degree in Counseling.

Kaput! We Gone!

There are a few distinct patches I’d like to stick on that subject, but I won’t.

For now, I’ll let Brain be, and LV rest, and Me, Little Sweet Me, I think I’ll treat her to an overdue retreat. Pardon me now, as I venture into my Phlegmatic Zone, and contemplate how to proceed through the glory of a new opened door.

Oh, Crap. Brain wants to explore truckers’ lingo! And LV is shouting, “Yes!”   The Gods truly must be crazy. I like the words: Gator Guts, Seat Cover, and Suds and Muds…you know you’re curious. Click  Truckers’ Slang Words or check out the video below:

Below You Can Read: All About the Origin of Humor, By Sir Brain  

 

Humor is Latin in origin and first meant liquid. The word represented moisture, especially the moisture of fluid of animal bodies, such as lymph.

Around 460 B.C. Hippocrates noticed that blood removed from the body separated into four parts: clear red, yellowish liquid that rises to the surface, dark liquid that settles at the bottom, and a whitish liquid. He and his students developed a theory based on Hipporcrates’ observations. Later the theory was expounded upon. Theorists believed mental health was a matter of a good balance of the four liquids (humors). The word humor eventually became connected with someone’s temporary state of mind. Humor’s meaning of amusement did not occur until the 1600’s.

The theory of bodily humors holds that each person produces four humors but that a preponderance of one relative to the others brings on sickness.  Fluid was thought to be part of the makeup of the body, and temperament, (meaning mixture), was determined by the proportions of four fluids (humors): blood, phlegm, bile, and black bile.

A predominance of blood, associated with the liver, equates to an optimistic and sanguine (confident) temperament. Sanguine is rooted in the original definition of ruddy or blood red face.

A predominance of yellow bile, associated with the spleen, equates to being choleric (short-tempered). Too much yellow bile and one viewed the world through a bilious eye. Choleric is rooted in the Greek khole, meaning bile.

A predominance of black bile, associated with the gall bladder, equate to a melancholic (pensively sad) temperament. From the Greek melas (black) and khole bile. Melancholia means too much black bile.

A predominance of Phlegm, associated with the lungs and brain, equates to being phlegmatic (slow and unexcitable).

Any imbalance of these humors made a person unwell and perhaps eccentric. Through the passing of time humor took on the meaning of oddness.

Fasting is thought to bring humors into balance. Humorism postulates that each person is born with a basic temperament.

You can find more information about the origin of humor here: In MY BRAIN!

 

Day Twenty-Five: A Prophet in My Pocket

 

I have a prophet in my pocket.

Ever since I identified my little voice inside my head as LV, and labeled the gray squishy world-ball as my heterogeneous Brain, The Prophet in my Pocket has been speaking to me in rhyme and rhythm.

The Prophet part makes sense to me. All through my life I’ve had precognitive dreams, premonitions, and those “feelings.” I can recount the events in detail. They are numerous. Grand in scale, like the time I predicted an influx of people would be traveling to the small town of Colfax, California to see a spiritual manifestation. Or smaller in scale, but just as potent, like when I saw my mother’s friend die in a VW Bug exploding on Homan’s Highway in Carmel, California, days before my mother’s friend’s death.

I’ve had strange encounters, strange coincidences, and a plethora of people tell me that they know me from somewhere. I’ve also been sensitive to physical pain, since I can remember, starting with terrible intestinal pains and rashes.

I’m officially deemed handicapped, even have that nifty handicapped plaque, that comes in handy when my pain threshold is registering low on the scale. By all definitions, if I wasn’t such a poop-head at times, in theory I’d qualify as a Shaman in some cultures. The thing that sucks about being a Shaman, or anyone born with distinct spiritual abilities, is that the healers always seem able to help most everyone, except themselves.

I think that’s why I have a prophet in my pocket. I think he’s there to guide me through the proverbial mire of life—the sensitivities, the pains.

Looking back at my writings, sometimes I’m amazed I’m still here. I remember an intake psychologist telling me, years ago: “And you’re sure you’ve never been addicted to drugs or had any form of substance abuse? It’s hard to believe you could survive all that, and not turn to something.”

I turned to something. I turned to my faith. And fortunately the powers that be provided me with distinct mentors and supporters along my path.

Which leads me to the current problem I face, that has resulted in my current funk. Recently I’ve lost many of my supporters. Some have disappeared through the engulfment phase of a new love interest and others through moving to a new physical location—some thousands of miles away.

I’m understanding this dissipating funk more clearly. In the last ten months alone many of my supporters have disappeared, my beloved dog passed unexpectedly, a professional used callous words about Asperger’s Syndrome, my mother-in-law and my mother were diagnosed with cancer, my son had a serious reaction to medication, a homeless person ran his bike into my moving van… this on top of the everyday stresses of raising three boys, with one on the spectrum, keeping a household running while disabled, and dealing with my sensitivities, coupled with my recent diagnosis of Aspergers. Deep breath! No wonder I’m sad.

This prophet of mine, if he does indeed exist, I fancy the idea of him residing in my right pocket. I can picture him there, rather small and distinguished looking, like a little cartoon stereotypical university professor. He has the type of beard that’s good for running fingers through, and spectacles that are speckled with dust. He doesn’t brush his wiry white hair. His appearance is not even secondary. His appearance doesn’t matter to him one bit. He speaks in rhyme or rhythm, or very fast in a combination of visuals and streams of words. He uses symbols lots, and has a glorious sense of humor.

The Prophet in My Pocket is the one I pull out often in my sacred hours of writing. He whispers to me through my interior voice (LV), sometimes for the stretch on an hour, and then he gently recedes, returning from whence he came. Here’s a poem he is whispering to me now:

There’s a Prophet in My Pocket

There’s a prophet in my pocket,

And he’s always standing near,

Listening to my stories,

And then whispering in my ear,

He doesn’t long for fame,

Or simplicity of life,

He reaches for the stars,

And lends them through my strife,

His answers are so clever,

Though sometimes rather thick,

With philosophy and prose,

That pours out rather quick,

I think he’s standing near,

When I dream of what’s to be,

I think he hears me cry,

When I’m scared of what I see,

He tells me I am loved,

And that all will be all right,

He tells me to just trust,

And embrace my inner light,

I’m a beacon on a hill, he tells,

And my glow is rather bright,

And you see, he says to me,

“Because of this you fight,

The shadows that draw near,

The games they try to play,

The gifts you carry with,

They try to take away,

Be gentle with yourself,

Your challenges are grace,

Humbled in your walking,

Humbled in your pace,

Remember I stand strong,

As the shadows linger in,

Standing at the doorstep,

Readying to win,

All their twisted dealings,

All their twisted means,

They are nothing to you, Darling,

Even though it seems,

Just call on me, your prophet,

Whenever you’re in fear,

Just reach into your pocket,

And know I’m always here.”

~ Sam Craft (2012)

Much Love ~ Sam