350: Crap! I have this. That’s all she wrote.

Crap! I have this (too). That’s all she wrote.

PMDD

http://en.wikipedia.org/wiki/Premenstrual_dysphoric_disorder

http://www.mayoclinic.com/health/pmdd/AN01372

Here is a fellow blogger with Aspergers who writes about PMDD. http://worldwecreate.blogspot.ca/2013/03/how-to-deal-with-pmdd-part-2.html

And after lots of processing…she wrote a bit more!
Okay…. are studies being done about this COMT enzyme??? It affects emotions and executive functioning?? AND is thought to be possible cause of PMDD!!!

http://en.wikipedia.org/wiki/Catechol-O-methyl_transferase

Could not feasibly the symptoms of PMDD be used as an additional indicator of Aspergers in Women, since there is the strong connection with the variant enzyme of COMT in people with autism? Yes, indeed, I believe so. I love my brain.

Day 224: The Screaming World

The Screaming World

The lady with the neckbrace, a result of some accident I’m guessing, stood at the corner of the sidewalk, screaming. Her partner, joined in, only more light-heartedly.

“Oh, good for you! Just drive through! Did you not see my brace? What the fu** is wrong with you?” the lady shouted. She looked like an Italian in the middle of a full-blown rage, the way her arms were tackling the sky and her body enveloped in emotion, only she was very white and freckle-covered, and likely not European at all.

Yes, I noticed a lot in a few seconds. I tend to—to take in a whole movie in a matter of no time at all. That’s me. And I guess that’s what made the occurrence that much more troubling.

I’ve been processing this scene of the outraged, neck-braced caucasian in my mind for three days now, and have come to the conclusion of why the situation bothered me so. It comes down to fear, and how, as a result of fear, humans often assume the worst about other people.

In terms of fearing others, most people with Aspergers are over-trusting, at least for the start of their life; until they are more than likely hurt by not one but a multitude of people; primarily because others exhibit actions and behaviors the person on the ASD spectrum did not count on, and perhaps wasn’t able to understand. However, for the most part, individuals with Aspergers start out very trusting; and even after continual “let downs” and hurts, they tend to remain trusting, despite their best efforts to emulate the anti-trust phenomenon all around them.

I used to think I lacked an ability to adjust and adapt to the surrounding societal roles and values of fearing others. Now I believe the attribute to over-trust is a spirit-born gift and an ability to transform our world.

Throughout my life, I’ve been warned by various people not to over trust, not to be naive, not to expect that another will be there for me. And especially not to expose myself. I was taught through experience, and from others, that if I was myself I would be rejected, shunned, compartmentalized and ostracized. I am still warned, that if I over-share, people will have more ammunition to use against me. In essence, I have been taught, through experience, example, and through others’ cautionary words, to not trust and to not be myself.

What a terrible way to live: to carry within my being a perpetual fear of being me because I might be hurt.

But that is my world at this instant.

Despite the warnings and potentially looming dangers, I have made the conscious decision to be me.

I know enough to understand that no matter the preparation and shielding, the pretending and hiding, that ultimately people cannot escape fear; and that the fear does not reside outside in the scary world, but inside in the choice to not be real, and the fallout of non-genuineness that causes people to lose touch with who they are.

In looking at fear-based living, what is troubling, beyond the potential loss of self-understanding and authenticity, is the way society perpetuates fear.

Today, I readily view the fear indoctrination through our media, big business, and government. Although, with the sharing of beds, big business, media, and government, are potentially all one ancestral family.

Presently fear is perpetuated through the bombardment of looming cancer. Even at the amusement park, I went to yesterday, there was a huge  pink ribbon symbolising breast cancer awareness painted on the concrete. And the whole ride was painted pink. When I shop, I am asked to support cancer research. When I drive down the freeway, I see billboards about sickness and cancer. When I turn on the radio, television, or read a magazine, I view cancer, cancer, cancer.

My world is painted with the fear of cancer. It’s not that I am against awareness or finding a cure; it’s that I am against fear. Or not even against it, but tired of fear being put on a throne set upon a pedestal. Tired of fear being the foundation of my society.

Fear has been indoctrinated into my mind since I was born. American born and bred, I arrived fresh and innocent into a world that had for over a decade already been pushing fear into society to encourage others to buy, buy, buy, to stimulate the economic market. Then it was only television that reminded my generation and the ones before and after me to buy to subside fear. Now everything is media. I can’t go anywhere, beyond the beauty and grace of the forest, without the fear-factor.

And cancer research and awareness are not the answers, nor the solutions to our problems. The problem is literally the problems—the view and bombardment set upon us that everything is a problem.

And in considering these presented problems, we already have solutions, solutions echoed by the Native Americans long before us. Cancer is not the disease and enemy. Cancer is merely a result of our overly polluted environment: the toxins in our food, water, air, and prescription drugs. The disconnection and disrespect for our environment and nature. The disconnection from ourselves.

Food has become our poison. Much of what is added to our processed foods, in the form of corn syrup, in mutated form, is actually classified by the companies themselves as pesticide. It seems rather simple to me, a first step in fighting cancer and illness, would be to stop selling pesticides disguised as food.

Also, in America, it is fact that economically deprived neighborhoods don’t even have grocery stores. There are no opportunities to buy fruits and vegetables. Why? Because grocery store establishments have deemed the low-income areas non-profitable and have as a result pulled out of those neighborhoods. Cancer, diabetes, and obesity are on the rise everywhere, but particularly in the areas where the people are under-educated and living at poverty-level. In these neighborhoods, the giant fast food industries move in to make up for the lacking. So our young generation is being fast-food fed on mutated, poor grade meat and poultry, loaded with chemicals and over treated in fat and oils, and are without the money to travel to find a store with real food, and without the education or mind-energy fueled by nutrients to know better. Suddenly a corn-fed, antibiotic, disease-ridden, slaughtered mixture of multiple cows added with toxins, additives, overly processed oils, and fat, has become the staple meal of the poor. Suddenly an apple is deemed not as nutritious as poison. Or not so suddenly, in actuality, I suppose.

So what does this have to do with trusting my fellow human or the lady on the street screaming?

First off, the lady was yelling because there was a misinterpretation. I thought she wanted me to drive through the crosswalk, that she wasn’t ready to cross the street. She thought I was going to wait. And then she went further to think that my intention was to be inconsiderate and down right rude. She chose to see the worst in me, to believe I didn’t care about her, that I wasn’t willing to bother to stop. She chose not to trust me.

And that bothers me, because the more I think about it, the more I realize, as a collective we don’t trust. We have been raised a fear-based, paranoid society, made to fret over each moment of our day, to wonder what traumatic event will befall us, and to spend our last dime in creating a reality around us of distractions and comforts in hopes of diminishing our fear. We carry an emptiness around that we believe at moments can be filled with food or material goods. We believe solutions are found in a pill, not in nature. We believe the only way out of turmoil is through polluting our environment more through consumerism and over spending. We carry an urgency for a way out and not a way in.

We have been taught to live a life escaping death, escaping loneliness, and avoiding ugliness.

We have been taught that we are dying, we are unworthy, and that we are ugly.

We have been taught we are wrong and in need of fixing.

We have been taught to give of ourselves completely in the wealth of our minds, our bodies, our spirit, and currency, in order to be fixed.

We are trapped in a cycle of fear feeding fear, trying to fix that which was never broken with placebos that only injure at every level.

We are ready to return to the spirit, who knows awareness without fear.

We are ready to stop fighting and fearing and to become aware that we no longer need to build our world on a foundation of fear.

Because despite all of this indoctrinated fear, this misshapen world that has been painted onto our souls, some of us still carry hope. Some of us still trust. Some of us are not afraid to be our true selves, to shine and be authentic no matter the imaginary threat.

Despite the lies we  have been told, the trickery, the sadness, and devastation, we can choose to not fear, to see the light in people. We can continue to carry hope wherever we travel. We have the spirit-given eyes to see through the illusions, to know that this reality is temporary, that we are in transition, and that together we can transform our reality into a place of soul awareness.

This fear can be leached out and drained away, the more we pour in love and truth.

We must see the lady on the street screaming as pure beauty in disguise.  An instigator of change. A symbol of our screaming world. An obvious sign that the world is not happy and not trusting.

We can choose to look at the person screaming out as the innocent submerged in the sea of sadness perpetuated by the ongoing waves of fear and mistrust.

We can bring her out with a gentle hand to the shore and let her shine.

But first we must crawl out of submersion ourselves and stand in the light of authentic being.

Day 203: This is Boring. This is Pain.

This is boring. This is pain.

Somedays, like today, I struggle to function.

Every day is a huge challenge for me; something that I seldom talk about or mention. Just getting out of bed takes a lot of effort. I don’t like to write about my  pain and various physical “conditions,” as I am not my conditions, I am not an illness, and I am definitely not pain. I don’t like to talk about everything I must do to keep myself moving.  But I am. Mainly because I was on the couch all day and had a heck of a lot of time to process. Plus, a little boring never hurt anyone.

There isn’t a moment I don’t feel something askew in my body. Because I am so sensitive, even a hair in my face can irritate me, even cause a rash. My own hair! My nose constantly itches. Sometimes my eyes. All my joints seem to hurt. But I can’t tell if it’s my joints, my muscles, or something else. And neither can the doctors. Right now the couch hurts my bottom. The laptop desk hurts my thighs. And at least ten different areas in my body are either in pain or irritated or itching.

I’ve been diagnosed with at least ten syndromes or illnesses. Nothing is a definite. Nothing truly proven beyond a long list of symptoms. At this point I could have inherited something, suffer as a result of multiple injuries/accidents, been prone to pain from stress or environmental toxins, or made everything up in my head.

Sometimes I like to think everything is in my head. At least I have some control that way. The older I get, the more I realize my whole reality is in my head, anyhow. All my thoughts control my mood. My eyes what I see. My ears what I hear. My brain what I take in, recall, process, judge. I’m sure my spirit plays some part, as well as my second-brain (the intestines), but seriously, so much goes on in my head to begin with.

There are lots of things I have to do in order to function. If I skip any of them, or if something is off, I am pretty much certainly going to be in bed or on the couch for a large period of time. Each day I wake up, I feel like I am preparing for battle: a battle just to survive the day without collapsing in great fatigue and pain.

Here is a list I keep in mind to help manage my days.

1)      Shower; something about the hot water on my body rejuvenates me and reduces my muscle pain. If I don’t shower I feel extra greasy and itchy. If I don’t shower, I feel increased pain all day. Problem is, sometimes I’m too tired or fatigued to even think about showering. I have to force myself to. I don’t like showers. They are boring.

2)      Pig hormone; for my hypothyroid I have to take a natural pig hormone. I haven’t eaten pork since sixth grade (my decision). So at first the thought of ingesting any part of a pig, felt odd, but then I figured it was the pigs way of paying me back. Pig karma, for not eating them for so long. Trouble is this hormone gives me the skin of a fifteen year old. I appreciate the healthy glow, but the sticky oil and chin breakouts, I could do without. Seems I’ll take longer to get all wrinkly, though. So, I guess that’s a bonus, even though my skin is worse than my teenage sons’.

3)      Various supplements; if I go too long without any supplement, I feel it somehow. However, one benefit of being me is that I’m very sensitive to what is happening in my body. In September, it will be two years since I’ve had a cold or flu bug. I can feel a cold coming on. I feel it in every joint in my body, like I’ve been poisoned. Feel it before most people do. And when I do, I load up on Vitamin C and Vitamin D. So far I’ve managed to keep from getting sick. Fingers crossed and knocking on wood. I can tell things about me, too. If my eye sight is growing worse, I need more magnesium. If my leg twitches, I need my multivitamin. If I am tired, I need to take my iron and eat a little fish.

4)      Diet; it’s easier for me to list what I can eat, than what I cannot. I can eat nuts, fish, vegetables, and fruit. Everything else gives me some reaction. Chocolate gives me rashes and makes me break out. Dairy gives me rashes. Wheat makes me bloated and depressed. Artificial anything gives me stomach issues. Most foods in general cause me extreme fatigue immediately after eating. If I am going to eat, I usually have a small portion of salad. Grains are going to make me tired. Wine hurts the salivary glands in my neck. Beer gives me a stomach ache. I am definitely high-maintenance. If I am not careful, after a meal, I will be in pain and fatigued, and have to take a nap.

5)      Liquid; I need to have lots of water and green tea. The green tea gives me the boost to function in the morning and alleviates my chronic fatigue. Green tea also lessens my pain. If I have coffee I go into a spastic mode. If I want to clean I have a quarter cup of coffee in the morning. If I drink coffee I will be up past midnight and have lots of cool ideas, or what seem to be cool ideas, but are really elaborated ramblings that don’t prove much of a point. Coffee makes me paranoid, worried, and stressed. Oh, and agitated.

6)      Exercise and movement; I have to move. Once I sit down, it is very hard for me to get back up. Especially if I combine eating in the morning with sitting on the couch. And forget it if I eat, sit on the couch, and skip my shower—I’m pretty much down for the count on those days. If I walk my serotonin levels increase and my mood is better. Everything is brighter. If I walk far, lately five to seven miles in a day, it is easier for me to sleep deeply at night. Fatigue sets in badly about 3:00 pm, so if I can walk then, sometimes a second walk, I can keep from sliding into the unable-to-move zone.

7)      Weather; if there is a lot of barometric pressure from clouds then I have a hard time moving. Also, if it is chilly, my bones ache. At least it feels like my bones ache. On cloudy days (most days in Washington) I need to make sure I take care of myself; if I do not, I will not function. On cold days the far infrared sauna is helpful. But sometimes I am too fatigued to go into the sauna. The thought of having to undress, shower, and then dress again seems overwhelming. I worry about how I will keep up my walking with the end of summer coming. I have to find ways to exercise. We have an indoor treadmill which I avoid. And a stationary bike I haven’t made friends with, either.

8)      Sleep; if I do not get enough sleep, I will have increased pain and fatigue two days following. If my sleep is interrupted and/or not restful, the next days will be harder for me to move. I am sensitive at night. I need a special mattress for my body to feel comfortable, must wear long sleeves and long pants, regardless of the weather, or I itch, and need to use earplugs. All noises bother me. Particularly banging, high pitched noise, the ticking of clocks, water of a fish tank, voices, television, and snoring.

9)      Stress; if my stress level is medium to high, I will have instant pain. People’s moods affect my pain. Screaming, whining, loud noises, yelling, fighting, and the like increase my pain. Unwelcomed news increases my stress. Lies are a big trigger for me.

10)   Thoughts; if something is out of the ordinary, if plans get changed suddenly, if I notice something on someone’s body that is out of the ordinary, then my thoughts may overwhelm me to the point of exhaustion. My thoughts can trigger sudden onset of pain. When something I am looking forward to is suddenly canceled I am fine. But when something happens I wasn’t expecting, no matter how pleasant, I can get overwhelmed. Skin “issues” are a big trigger for me. I have an odd rash around my eye. I worried and fretted today about my eye, and collapsed on the couch from fatigue. I catastrophize in my mind, thinking of worse case scenarios. My sons have mosquito bites all over them from one hungry house bug we’ve yet to catch. And my chin is breaking out from that pig hormone. All this increases my thoughts.

11)   PMS; oh yes, the lovely word. The five days of hell for me. All my pain increases, fatigue doubles, negative thoughts increase, and basically I think the whole world hates me. My face and stomach swell up and I look and feel like the Pillsbury Dough Boy. This makes it harder for me to leave the house and exercise, which can lead to further fatigue and bring on depression. You’ll notice I do not post photos of me during this time. I also get cravings for chocolate! Not something I should really be eating.

12)   Chemicals; I have to avoid all chemicals in products and makeups. Thus the frizzy hair and minimal makeup. I get instant pain from inhaling chemicals in all forms. I have to avoid places with new carpet, paint, flooring, or other odors. Plastic smells are the worse.

13)   Information; I have to be careful what I read or watch. News or a film can deeply affect my mood, which triggers…you guessed it…my pain. People close to me have learned not to share sad news that doesn’t directly affect me. Some visuals I’ll never be able to get out of my mind.

14)   Noise; certain genres of music physically hurt my body. Dogs barking hurts my ears. Loud cars, especially motorcycles hurt. Too many people talking all at once, large gatherings with lots of conversations at the same time, all cause me trouble. Noise can affect me for the entire day, and may mean I have to stay inside the next day to recuperate.

15)   People; people affect me in all sorts of ways: their mood, their appearance, their smell, their mannerisms, voice, attitude, energy-level, facial expressions, spoken words. If my feelings get hurt, which happens more times than I’d care to ever admit, then I typically will feel pain somewhere in my body. If a person is sick, I might get phantom symptoms, even if I don’t know they are sick. If a person is happy or sad, I might start to feel that same way.

16)   Dread; if I am dreading something, particularly medical news, doctor appointments, or an upcoming outing, I will have trouble concentrating and relaxing. I will loop in my mind and spin in my thoughts. This will cause tension in my body, which leads to other problems. I have to get blood tests done about every six months to check my vitamin, protein, iron, and hormone levels. The thought of annual or biannual appointments for anything, sets me into a mini-panic.

So that’s my boring list.

This is boring.

This is pain.

Great movie Sliding Doors to watch when you are stuck on a couch!

And dang if that mosquito didn’t just buzz in my ear!!!

Day 175: Squirrel on a Wall

Lover’s Point Pacific Grove
Squirrel on a Wall

“Do you think the title ‘shag-o-rama’ would pull in a lot of blog readers?” I asked my husband

I know just the thing to say in the morning to make him laugh. I’m gifted that way, in my off-the-wall-goofiness. And I’m starting to really like that about myself. I see the world through the eyes of a child: somewhat innocent, a bit naïve, and at times downright clueless. Before, when I was younger, people sometimes perceived me as the ‘dumb blonde’ or as fake–assuming it was impossible for someone to be that goofy and hope-filled, naturally.

I don’t buy into people’s judgment of me anymore. I understand now, that like everyone, I have an amazing spirit. I know I am a spirit who never gives up and often tries to see the best in people and situations. And that my spirit just happens to be giddy, joy-filled, surprisingly forthright, and sometimes bold. I embrace my worthiness and I am pleased to do so. And the more I do, the more beauty I recognize in other people.

However, in embracing me, I cannot help but notice that many people are not embracing their own worthiness.

Instead of embracing self, there exists this talking down of self and others. There remains this inability to take in a compliment or kind word, this constant criticism of self or others, an all-encompassing blame, and a narrow scope of focusing on the “negative” aspect of someone else’s life. There often exists a lack of effort and follow through to forgive others. There is often a lack of responsibility for personal choice and action, and an overwhelming sense of ease and comfort to focus on materialism, collection, and possession. To move ahead, to succeed, to surpass and win. Life appears to be a race filled with fear and blame.

sign downtown where I live

For many, day-to-day life has become a routine. The creative spirit has been sucked out of the masses through consumerism, fear-based messages, and dogma that indoctrinates lack of hope and an infections drive for success and materialism. There is an ongoing separation from neighbors, friends, and family. As a collective, some people have forgotten how to appreciate nature and people, and instead are consumed by avoiding failure or disapproval.

This lack of self-worth is evident in the way people focus life around food. How as a society many have chosen food as a way to stuff the empty holes inside. Inner holes and empty space, this sense of lacking and emptiness, is best filled through creativity, self-expression, and an unyielding urge to share and connect, and of course through love. Instead we are stuffing ourselves with food, to the point of fatigue, disease, and depression.

Food has become our center light. More thought is spent on food than anything else. And in second place is death, dying and disease. Everywhere in word and picture and form, we are reminded of pending cancer. We are bombarded from a fear-based society by the ever pending potential threat of illness, danger and doom. And then we are offered the remedy of poisonous foods as appeasement.

Someone has it all backwards. The collective buys into this fear and food stuffing, and more and more fear is spun.

window in Pacific Grove

Recently, I was saddened and stirred by the site of a squirrel. Just one squirrel. He was so very fat and sickly, swollen in spirit, sitting there at Lover’s Point in Pacific Grove California on a stone wall. So engorged that he could not budge. I literally stuck my camera right into his face, and he didn’t flinch. I sighed and whispered to him: “You really need to stop eating so much, Mr. Squirrel.”

Problem is the tourists feed him the leftovers from the beachside hamburger joint: french-fries, hamburger bun, ice-cream cones. Poor little critter doesn’t have a chance—constantly bombarded, he is.

And here we are, feeding our people the same. Junk and poison. Fear-based propaganda and polluted thoughts, as well as food lacking nutrients and value.

And so many are sitting on the wall now, unable to move, to walk toward their soul’s purpose, to give and inspire, to create and connect, to live and love, because they are so overstuffed with poison and misery.

I feel for the overfed and tired squirrel. I was once one myself. Watching from the sidelines and wondering how to move. But I found my legs, and now I wonder over and over, how to pull all the squirrels of the wall. One by one, to free people from society’s bondage.

Pacific Grove Squirrel
ever before

Day 151: The Quiet Room

After yesterday’s post I feel like my panties are dangling down around my ankles. Feeling fully exposed here. I’m not embarrassed or ashamed of what I shared. Long past those emotions. I am human and have had hard times, like us all. But I feel a bit naked in my exposure of self, having had shared such a vital part of my life without much explanation.

I think it is important to understand that at the time of my nervous breakdown I had been on a low dose anti-depressant to control my chronic muscle pain. The medication entirely numbed me emotionally for years. I lived very much like a robot. I couldn’t cry even when I was sad. And I couldn’t feel the depths of my experience. I was in less pain, but had no emotions. I was numb in all aspects.

Being numb to myself had major drawbacks. I didn’t have an off button, or anything to balance my actions. Feeling nothing, I had no way of checking in with myself. I no longer knew exhaustion. I gradually became an over-achieving, control freak. Eventually, I started to despise more and more of who I was, and recognized the real me was covered and masked underneath. I decided, without consulting anyone and without being aware of the dangers, to stop my anti-depressant. In my eyes the drug was serving as a painkiller and little more. I didn’t understand that in stopping the prescription that my brain chemistry would go all haywire.

Within days of stopping, my appetite came back so strongly that I couldn’t stop eating. I gained five pounds in two days. And much worse, my serotonin levels plummeted making everything look bleak. And my emotions, they returned in a mad rush. I felt like I was opening a  storm door of emotions that had all been hidden in an expansive closet for half a decade.

After several weeks, I couldn’t stand the intensity of emotions and my huge appetite—I could actually taste life and food again but was out of control—so I started back on the medication. Reintroducing the anti-depressant into my system led to suicidal thoughts. This is when I ended up in the admissions to the psychiatry ward. I’m not saying the medication caused my breakdown but it definitely altered my brain chemistry enough to push me over the edge.

The Quiet Room

After two colored pills, I entered the last room at the end of the hall. Muffled snores, bleach, staleness—each welcomed me.

I found my bed.  I pulled off my sweatshirt and spread it across the pillow.

Darkness.

I stared up at the shadowed ceiling.

There was no sleeping.

As midnight approached, I stepped through the vacant corridor, light and clumsy, like a puppet pulled by a master puppeteer.  “I can’t sleep in there,” I mumbled, looking at the nurse’s wide forehead.  “I can’t sleep with a stranger in my room.”  I lowered my eyes to her white shoes, long laces, scuffed toes.

The nurse looked me over with a cynical smile.  “What are you afraid of?”

I felt a punch to my stomach.  “I just can’t sleep in there,” I answered.

Huffing, the nurse pulled down her glasses. “Fine, come with me, then.”

I padded down the hall, thinking I might fall down, hoping I would wake up, knowing this was surely hell.  The tall nurse stopped.  She edged her eyes around me, trying to see inside.  “You can stay in the Quiet Room for the night.  But it’s not where you are supposed to be.”

Chastised, I didn’t move.  I knew this wasn’t where I was supposed to be.  None of this place was where I was supposed to be.  She didn’t know me…

The rest of this story can be found in the book Everyday Aspergers.