Day 127: Enter the River

YESTERDAY
TODAY

I’ve started this post three times. First about the state of Washington, then about my dog Justice Black, then a poem about faith. But I think what I really need is someone to hold me and sing this song to me.

Having the spirit I do, I am constantly flooded with emotion. I do not know what to expect. Not that any humans do on this earth. But a part of me would like to think that I know what is ahead of me. When in truth, the only thing for certain is this very moment. This very moment that I am crying with such depth. All these feelings. All coming up from long ago; they feel so distant like they are from centuries ago—life times ago. So much grief and happiness, all mixed together.

I am crying so loudly, knowing I am born to be this being, but not always knowing how to comfort this spirit that I am. Knowing so much, so fast, and in such profound ways is overwhelming. Being who I am is overwhelming. Ever since I was a child I have dreamt of the future, I have known things before other people, I have had people visit me in their dreams and tell me of their joys and pain, I have seen angels, spirits, and the dark, I have had answers to prayers, I have seen miracles, I have seen so very much.

I have been called to leadership my entire life, when this gentle, fragile part of me, longs to only be sheltered and protected, to be swept up in a special one’s arms and told that I am safe, that I am found, that I am truth, that I am love. To be told that someone else is fighting for me, someone else not letting go. I am always the one holding on the tightest…..to everyone and everything. The passion in me is so intense at times that I do not know what to do with myself.

I feel the pain of those from thousands of miles away; I feel their joy, too. Energies attach to me, and I can’t distinguish mine from others. Thoughts of others reach me. And I have never been able to stop this, with all the teachers I have sought, I have found limited answers. And many times, longing to be student, I have in turn become teacher. I have looked for my teacher my entire life. Someone who sees more than me. Someone who knows more than I know innately. And I have yet to find him.

I have battled with the voice of demons daily, telling me why I am not of light, when I know I am. I have seen terrible visions in dreams, as if someone is trying to stop me. But I keep fighting.

I embrace light everyday. I am as honest and whole and authentic as I can be. But then, I am raw on the outside, made vulnerable to everything and everyone.

I can do nothing without feeling. I cannot eat without being directly affected by the food. Each food affects my physical body and mind differently. It is easier not to eat. I am affected by weather patterns, by the sun, by the lack of sun. I am affected by chemicals, by environmental toxins—a little bird in the coal mine. I am affected by every vibration of every word I read. I feel through words. I feel energy. I see images. I know others’ pain. I see other’s pain. I know without knowing how. And I cry for them, as much as me. I don’t understand why I was born with such extreme sensitivity. Why I understand concepts at great, great depth. Why I cannot stop thinking about certain people. Why they are like angels to me. I don’t understand why I still feel so isolated when I am surrounded in love.

I don’t understand the voices of guidance I hear. I don’t understand how I can hear such knowledge, and why, in some ways, I have been chosen to shine my light. I feel so unworthy to do so. I feel so inadequate and ill prepared, as if I will never be strong enough to stand upright when I carry the burdens of the world.

But then a gentle voice whispers.

He says I am loved immensely.

I am right where I am supposed to be.

That I have chosen to be a voice.

That I am so very strong and brave to have endured so very much.

And that he holds me.

That he loves me above all else.

And that he is so very sorry that I have to feel such depths of pain.

But that in return he has given me great depths of joy.

A joy so many cannot and will not ever know.

He reminds me of how good and pure I am.

How beneficial to the world I am.

That I am a gift.

He reminds me that all is okay.

That I am sheltered each and every second.

That I will not fall.

That I will not die.

That I will live on.

That my light and my substance, my innocence will live on.

Nothing and no one will snuff my light.

Nothing and no one will stop me from shining.

And I weep louder.

And I understand.

Like I have understood since I was a tiny little girl crying alone in the dark.

That he is there. That he is here.

That he is always holding me.

Maui “Enter the River”
2012

Enter the River

Enter the river, the spirit of me

And I will show you visions

Unseen

Unspoken

Enter the river, the heart of me

And I will embrace you with love

Everlasting

Ever growing

Enter the river, the mind of me

And I will enlighten

Truth

Knowing

Enter the river, the healer of me

And we will be as one

Embraced

United

 

 

 

Wounded Healer Writing

20 Things Not to Say to a Person on the Autism Spectrum

Image found at takealeftatthemoon.blogspot.com

 

This is tailored to adults who were diagnosed with Aspergers, but the list can apply to many ages and many conditions other than Aspergers Syndrome.

20 Things Not to Say to a Person on the Autism Spectrum

1. Everyone feels like that sometimes.

2. Everything happens for a reason.

3. You’re fine. They have too many labels nowadays.

4. That reminds me of me. I wonder if I have that too.

5. Things could always be worse.

6. At least you don’t have autism.

7. Don’t worry. Be happy. Think Positive.

8. That’s no big deal.

9. You’re too serious. Get out of your head and help others.

10. Everyone has problems. Stop analyzing yours.

11. I never would have guessed. You seem so normal.

12. Are you sure? Maybe you need a second opinion.

13. Why do you think that?

14. That’s weird. Good luck.

15.  Aren’t you glad you found out?

16. That’s so trendy. Everyone thinks they have that.

17. Did you get an “official” diagnosis?

18. I’m uncomfortable with people classifying themselves by a diagnosis.

19. My cousin’s neighbor has Aspergers.

20. Well, now that you know, stop focusing on it, and get on with your life.

 

 

 

15 Beneficial Approaches 

1. Offer a warm smile and nod. Listen and comprehend.

2. I’m on your side. I’m here for you. You are not alone. I am here to stay.

3. Where can I find more information?

4. You are a strong person. I love you for being you.

5. Make a friendly call or send a friendly text or email.

6. What can I do? Tell me specifically. I want to help anyway I can.

7. Ask the person on a long walk, a picnic, or other excursion.

8. Hold a space for processing what that means to the person.

9. Do you need my support? How can I support you specifically?

10. Go to a matinee or rent a movie about autism or Aspergers.

11. Sincerely compliment the person.

12. Validate. This is a big deal!

13. Read personal accounts about living on the autism spectrum.

14. Thank you for confiding in me and trusting me. I am honored to know you.

15. If you are comfortable, can you tell me more about your experience?

© Everyday Aspergers, 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. https://aspergersgirls.wordpress.com Original title was 20 Things Not To Say to A Person with Aspergers.

Sam’s new book can be found at myspectrumsuite.com and on Amazon internationally.

Search for Everyday Aspergers.

 

 

Day 49: The View From Atop the Triangle

Last night I was up until 1:00 am worried that I wasn’t good enough.

Some of my worries:

I’m ugly

I’m fat

I’m aging

I’m weird

I’m obsessive

I’m not a good enough mother

I’m not a good enough wife

I think about me too much

I don’t do enough to help others

My blog is stupid

I care too much about what others’ think

I’m lazy

I obsessed on the computer most of the day, fluctuating between a social network page, YouTube videos, and this blog.

There is something extremely calming about my blog. I just click on the main page and stare, reread, and peruse the comments. My blog connects me to another realm, to another part of myself, and to other people who know my journey. The writing offers me a reflection of me: my uniqueness and beauty. My blog is my passion, my talent, my creativity.

Beyond the computer, I felt frightened, somewhat like a little girl running outside the protective circle of her guardian. When I pulled myself away I was nervous and I overate. I grounded chocolate-pudding brownies into mocha-almond-fudge ice cream. I had bread rolls and garlic bread, hash browns, and other carb-filled delights. All the while feeling worse and worse about myself.

I felt entirely alone and useless, despite my family being home. So much so that I googled: Why it’s okay to be lazy and Why it’s okay to do nothing.

I felt extreme guilt about being ME. I analyzed why I had this guilt, but the analysis made things worse. I knew all the things I should have been doing, such as: exercising, showering, drinking green tea, taking my supplements, getting out of the house. But I couldn’t do anything. I was immobilized, trapped, frozen. I couldn’t even change the stained shirt I was wearing or bend down to pick a crumb off the floor.

These types of days, where I am overcome by grief, fear, and fatigue, are nothing new to me. I’ve had these days since I was a teenager. The challenge is that now I’m not a teenager, I am a mother and a wife, which comes with responsibilities beyond my own needs.

These roles’ obligations add to my guilt, my feelings of low self-worth, and my inability to fully retreat, regroup, and reenergize.

Yesterday wasn’t the easiest of mornings for our family. There was some turmoil. This spike in the energy of the household left my brain sprawling. Any type of unexpected event causes me to feel unease and fear.

No amount of reasoning, cognitive tools, or talk can dissipate the fear. I have to go through the fear. Then, once on the other side—whether within minutes or a day—I have the clarity of mind to process and release.

Yesterday the fear stayed with me.

Yesterday I hated myself for starting this stupid blog. I thought for certain I’d never ever have anything to write about worth interest. I hated myself for thinking I was making a difference. I hated myself for my lack of willpower, my messed up emotions, my inability to relax, my constant, constant challenges. I hated life.

My life felt like poop, so much that I even Googled poop. I watched a YouTube on crap—and then wondered whose crap it was.

About midnight, I began preparing for the next day, hoping I’d awake in a different mindset. I wrote a poem about how I’m okay, listing everything from wearing pajamas all day to overeating. I started researching self-acceptance. Starting telling myself I am okay.

I understand with further clarity how I’m trapped in a cycle of perfectionism—always have been, and imagine I always will be. It’s something about the way my brain functions. My strong analytical ability and extreme fluid intelligence enable me to have complex thought processes and to produce quality work; however, those same abilities put me into overdrive of self-analysis, worry, and remorse.

My own thought processes set me up for failure.

I understand with further clarity how a well-balanced person experiences the ABC’s of Acceptance, Belonging, and Confidence. And how having Aspergers evokes feelings of Rejection, Not Fitting In, and Timidity.

 

I understand with further clarity how Maslow’s Hierarchy of needs relates to this female with Aspergers.

My physiological needs are being met.

My safety needs are not being met.

There is no security, stability, or freedom from fear. There are moments of relief from fear, but they are fleeting, always temporary, always changing.

My sense of belonging is limited.

I feel continually that I am not upholding to the rules, expectations, and norms of others. I question my actions, my motives, my own belief systems. I upset my spouse; I neglect my family; being a lover comes with its challenges. I have friends that love me unconditionally, but I worry that they will discover, at a deeper level, I am too odd, too strange, too much to deal with, not enough.

My self-esteem is limited.

I achieve mastery sometimes in my writing, in my thinking, in my ability to love others; but there remains an underlying doubt and fear about others’ judgment and rejection. I like ME most of the time. I would choose ME as a friend. I’d be happy with ME as a friend. Yet, at the same time I doubt my ability to be enough. I achieve recognition and even respect, but I over analyze both. I question am I worthy to receive recognition and respect? What if I disappoint, offend, and/or fall short? What if my faults are singled out? What if I am ridiculed, judged, and rejected? What if I become prideful?

My self-actualization is intriguing.

This is where my triangle is top-heavy. I do pursue my inner talents. I do pursue creative endeavors. I do feel fulfilled by my endeavors. It appears my self-actualization is reached from a different avenue than the norm. I do not progress up the triangle. Instead I take a ladder, lean it against the triangle, climb up, and bypass the center of the triangle, to reach the top. I pursue my talents because that is my refuge, my retreat, my coping mechanism. In this realm, atop the triangle, lies my freedom and power. Atop the triangle sits my obsession, fixation, passion, joy, and extreme love.

And that explains where I was yesterday. I was seated on the top-level of the triangle. High out of reach. I retreated to my place of comfort.

Today, I climb back down the ladder, back to the ground. But I carry with me a greater clarity, a clarity only found because I sat at the highest peak and viewed my world.

“We would worry less about what others think of us if we realized how seldom they do.” ~ Ethel Barrett

“I was a personality before I became a person – I am simple, complex, generous, selfish, unattractive, beautiful, lazy, and driven.” ~ Barbra Streisand

“I would step into a place of being lined up with a sense of purpose and my inner compass, and everything was going in the same direction. Then I’d get lazy and get off the track. And then things would start to fall apart, and I’d back up and get it together again.” ~ Kathy Mattea 

Kathy Mattea in 1994 Teach Your Children Well

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