aspergers

427: Eating Disorders and Females with Aspergers

| Aspergers Girls

Recently there was study released that linked females with Asperger’s Syndrome to eating disorders, specifically anorexia.

The researchers are making conclusions that the eating disorder could be a result of the Aspergerian’s tendency to fixate on one subject or thing; and in the case of anorexia or other eating conditions, this one subject or thing would be food or weight, or a variant of the two. I understand this, and the conclusions makes sense. However, I think there is a lot more to it.

Gathering a selection of females with Aspergers and asking them direct questions and allowing the participants to elaborate on their experience, might deem worthy and productive. There is much to gain in looking at the person who has the condition when searching for answers. But there is far more to gain in talking to the person and asking the female to share. We have a lot to offer. And so many times it is a male without Aspergers, and without an eating disorder, constructing these studies. It seems ridiculous to me. How much better for a female, who understands the gender experience, who is a person with Aspergers, and has an eating disorder, to be the person evaluating and determining results of a study about females with Aspergers and eating disorders. Wouldn’t she be much more able to ask the deeper questions? Much more able to interpret the responses and understand what was happening?

There are layers and layers of complexities that the mainstream evaluator and researcher are going to overlook. Not because they don’t have the wherewithal or wits about them, but because having Aspergers isn’t something you can begin to understand unless you have Aspergers. It’s not like having a mild disease where a section of your body responds differently. Having Aspergers is like having an entirely different system of functioning, processing, viewing, and seeing the world. All the senses are affected. All the ways in which the brain digests information is somewhat skewed—not wrong, or even right, but just different. There really isn’t anything simple about Aspergers and thusly no simple conclusions ought to be reached from any study.

Biologically there are differences from the typical person. We are affected by our guts, our skin, our thoughts, and a lot more. Theories abound about variant enzymes and the like. How we process hormones and chemicals, even how food affects our system is questionable. With so much going on internally beneath the surface that most people cannot figure out or understand, and with so much still unknown, it is impossible to accurately point to a singular cause of any behavior at this point. To conclude an action is based on one aspect of Asperger’s Syndrome is not accurate. The complexity of Aspergers is like a ball of twine. One thread affects the whole. The weight, the design, the outline, the movement, the appearance—each string pulled causes an alternate reaction.

Who is to say that food is not the culprit and that food causes the exact disorder that is being blamed on the Aspergergerian’s tendency for fixation. Perhaps the food itself triggers a chemical reaction in the brain that causes interior upset, either biochemical, physical, or psychological. Case in point being gluten which affects many on the spectrum, causing rapid thoughts, depression, or a false type of high—purely chemical. And if a child were to feel those extremes when eating gluten, then could she not then want to discard of the food, to instinctually force the food out of her.

That is just an example, and by no means suggestive of a theory or even grounds for an eating disorder. It is merely a case in point.

Food definitely affects my health, not by my own doing but from my chemical makeup. Certain foods make me very sick and off center, especially genetically modified foods and products with chemicals, preservatives, and other ‘unnatural’ substances. Certain foods cause inflammation of my body and increase my pain, particularly sugar, dairy products and various white flour products. I bloat up from gluten and sometimes get scary thoughts after eating wheat. Wheat seems to put me in a depressive state quite easily or causes me to over-analyze and loop in thought. I also crave wheat at times and cannot get enough of it.

Often after I eat too much of a food that doesn’t feel good for me, I might spend the next day barely eating. This is a way I cleanse myself and try to purge out the poisons inside of me. I then become fixated.

But not on the food itself or my weight but on the ‘rules of food.’

Everything I have been taught and taken in via reading, word-of-mouth, and documentaries reels through me like an old movie film shooting cross my brain. I have a dictionary of food rules in my head. I know what is bad for me and what is not. The problem is that most of the foods that are available are not good for me. The problem then becomes extreme in my mind. I know the dangers of many foods and I know the aftermath I feel. However I live in a world where to fit in and to do ‘normal’ things, I can’t eat like I think I need to eat: unless I have a lot of money, energy, and time to prep myself healthy meals. In addition, the foods I know are ‘good’ for me, e.g., organic veggies, are often lacking the flavor and texture I have been brought up to believe is best and popular and yummy. Not to mention the food industry that spends billions just to make sure what I am eating (that is bad for me) is addictive, appealing, and leaves me craving more.

There are so many contradictions in food that I become confused. Soy as an example is disputed left and right as a trigger for estrogen. I have terrible endometriosis and PMDD, eating just a bit of soy makes me worry how I have upset my system and what the repercussions might be. Wheat is an obvious trigger, but at times, out with friends or family, the wheat dish is so appealing that I feel I am depriving myself of luxury and joy. It has been engrained and engraved in my head from this society that food is a treat, a well-deserved treat. And my mind plays a ping-pong game of ‘you deserve this’ and ‘you will regret’ this. Yes, I am fixated on the thoughts of what I will eat, but not because I choose food as a fixation but because of the repercussions I often face eating food and of the mixed messages in my mind.

I know the GMO foods are dangerous. I know they are legally registered as poison and not food because of the chemical similar to Roundup, and other disease-like elements, found in the seed of the plant. I know that many a people are having reactions, and many countries are banning the products because of health and farming interests. I know that corn is a main culprit. Thusly I avoid corn. I feel tired and fatigued when I typically eat grains anyhow, kind of a hypoglycemic reaction. So many foods have corn by products, corn syrup being an obvious one. Mexican food, my favorite, is loaded with corn, wheat, and dairy. If I go out to eat my options are so limited, I might get depressed. Or I might just tell myself ‘screw it’ and eat what I want. The next day or two, I pay the price. I am so sensitive that my pain disorders react. I have been diagnoses with hyper-joint-mobility syndrome, fibromyalgia, chronic fatigue, and more. Foods directly affect how I feel.

I might spend all day not eating and just having water and herbal tea. I might not eat until four or five in the afternoon because I know as soon as I eat, I will more likely than not have a reaction. I rarely can eat and not feel heavy, bloated, muscle pain and fatigue. It is easier not to eat. Is this avoidance an eating disorder? Or is this behavior a desperation and a means of trying to avoid pain? If a boy was whipped every time he ate, so he refused to eat until starved, is that a disorder, or is that survival?

Of course, in my mind, at times there seems to be a definite means of controlling an otherwise uncontrollable world through diet and exercise. I know that. When my life is essentially overwhelming, as it feels most days, I might fixate on the scale and my weight. Mostly because the rest of the world is entirely unpredictable, full of treachery, deceit and lies. Yes, there are many, many good people and wonderful things about the world, but there are also the continual reminders of the unpredictability of human nature and the deceit of leaders and government. I internalize deceit at a deep level in which I neither understand the drive to deceive nor the person who deceives. My world is often muddled in the mysteries of people and their ways. And sometimes, a number brings me comfort and peace. A familiarity I can trust and control. Sometimes this number is on the scale.

I have been watching my weight recently, as I gained poundage since stopping a low dose thyroid pill that put me into a hyper-thyroid state (hair fell out, rapid heartbeat, rapid thoughts, insomnia, cystic acne, etc.) The pill wasn’t supposed to affect me that way, supposed to be super safe, and my thyroid numbers never got that low, but my system is so sensitive that anything introduced, particularly a hormone, directly causes extreme side effects. Two days after stopping the pill I returned to normal conditions. During the time I was taking the pill I was getting a sore throat two days before my period for seven months. The sore throat often turned into a cold. I was sick almost every month on the thyroid hormone pill. It altered my progesterone levels that caused a reaction to my tongue and the way I breathed at night, which caused the sore throat, which caused the illness. No doctor could tell me what was going on. I had to research. Was I fixated on that too? Or was I trying to solve a puzzle so I could stop being sick? I don’t know.

I am back to watching my weight, because my thyroid numbers are just on the high-normal range. This increases my pain as well. For some reason being in a slightly hyper-thyroid state decreased my physical pain but triggered a bunch of other intolerable symptoms. Now my pain feels two-fold, as if some days my entire body has been dropped off a building. I ache. I throb. I burn. I tingle. Nothing I can’t tolerate, as I have been enduring pain for thirteen years, but something I still hope to diminish.

Less weight equals less pain for me. But it is impossible to lose weight without drastically reducing my calorie intake. If I drastically reduce my calorie intake in an attempt to lose weight, so I can decrease my pain, is that an eating disorder? If I think about food all day, because so much of it seems poisonous and causes me pain, is that a fixation? Or is that me being cautious and over-aware because I have been hurt so much in the past? Is it desperation? Or is it just the way it is, because I know not what else to do?

With all the chemical imbalances and ‘dangerous’ foods aside, weight itself does bother me. Faces change constantly for me. My body image changes constantly. When I am at a healthy thin weight, I know what to expect. I know I won’t find the imperfections and flaws that my mind so easily sees. I am a detail-hunter. I find the slightest things that are off center or not right in all things I see. Not that I am judging, only that I am carefully observing and figuring out. My mind is constantly solving puzzles. Everything I take in is sifted and categorized and made to fit my past knowing and experience. I see things so intensely and feel things so intensely that any normalcy, anything that stays the same, anything that isn’t a surprise, new, or different, is a haven—an inner sanctuary in where I choose to bask.

When I am skinny and look the same weight everyday then there aren’t a thousand messages in the back of my mind. I don’t have a tape of old messages from everything I have previously taken in and learned. I don’t here all the contradictions in my mind that the world has fed me. All the contradictory studies. All the falsehoods. All the lies.

“Belly fat is good going into menopause to help from getting bone loss. Belly fat indicates higher levels of cancer.”

And I don’t have the complications of getting dressed. When I gain a little weight most clothes don’t fit. I don’t keep ‘fat’ clothes because I clean out my closet regularly and can no longer wear certain clothes for reasons I don’t understand. Sometimes it is a memory the clothes evoke, a texture, the color, the cut, the way the clothes pinch at me, scratch me, pull on me, weigh me down. Maybe I saw someone else wearing the same shirt, and now I can’t wear that shirt because that person’s image is now with me. Maybe the clothes, I think, make me look odd, untidy, sloppy, frumpy, slutty, loose, etc. It is common in my house for me to ask my husband: “Does this look slutty.” I ask because I was judged so much as a teenager by my body and my clothes that I still here the echoes of my peers. I can’t tell what fits right or what looks right. Things shift for me. I usually dressed my babies in clothes too big. Things hung off the shoulders; items didn’t match; patterns clashed. But I honestly couldn’t tell. I don’t understand fashion trends and I don’t follow them. And I don’t understand why people do. So my wardrobe is limited from what I have tossed out because I no longer feel comfortable wearing and from things I can’t get myself to wear a particular day for some reason or another. My wardrobe is limited because I am not able to wear certain items for weeks or months at a time. I get stuck in my head something someone said or something I read or saw. Like when I was watching a movie that had a 1980’s flashback and the females both wore their hair like me. Two different styles, both the way I do up my hair now, in this day and age. I thought hard about how maybe I am not supposed to wear that hair style anymore, particularly as the women were portrayed as backwoods idiots. Same thing goes with clothes. I am constantly matching and connecting points in my head. So if an outfit for some reason doesn’t seem like I should be wearing it, I don’t.

When I add weight to the equation, everything comes out scrambled and even more complicated. I start wearing things I don’t particularly like, only so I can hide the spare tire. I go out in public and am continually worried about the small amount of excess fat showing. Because to me, (I have taught myself through media exposure),fat is bad. Even the tiniest imperfection is terrible. I have been brainwashed into thinking I am not good enough unless I am good enough by the big business standard. I know it’s not true. And so the logical part of me and spiritual part of me start debating everywhere we look. Sensing my own fat causes me to spin into loops about the corruption of America and the terrible untruths women have been fed since birth. I start to look for overweight women and justify how lovely they are, and that if I was a man looking at a beautiful woman that the small bit of fat wouldn’t bother me. And that a face and heart is what matters. And then I spin back to my body. Am I good enough? Am I enough? And then I go back through all the spiritual books I have read, all the mantras, the ‘truths’ I embrace at times. And I get all twisted inside; all because a tiny bit of flab isn’t hidden by my clothes. The same goes for other parts of my body. My own cleavage is a major issue. How much to hide. How much is safe to share. What I know of the stereotypes of men and what cleavage represents. All of it confuses me. All thoughts that mostly go back to social norms and expectations; things that make no sense to me.

If I am stressing about a little fat around my waste and don’t eat a lot the next day, is that a fixation? Or is that me trying to stop the constant bombardment of negative messages that fill me when I am not fulfilling a role that society has indoctrinated upon me? Isn’t it society doing this to me, to us? The poisonous foods? The restrictions on how I should look and be? The mixed messages? Am I not just extremely sensitive to the contradictions of the world?

I haven’t eaten meat or poultry since 1984. I stopped eating lamb at age four and pork at age twelve. The animal cruelty, the suffering, the injustice—I saw that all too, from early on.

I don’t think that eating disorders are necessarily a result of a fixation. I think eating disorders are a result of the unjust and contradictory, money-hungry world we live in. I think eating disorders are an attempt to feel safe in a very unsafe world. A way to make order out of caous and unpredictability.

A way to gain back some of the control that has been taken from us when we were taught to trust liars and schemers and not our true heart and soul. I think eating disorders are a symptom of the world gone wrong and not of my brain gone wrong. Eating disorders aren’t a simple puzzle to solve, especially when considering females with Asperger’s Syndrome. There are so many other factors playing out beneath the surface. So many thoughts and deep complexities that the experts haven’t even begun to discover.

And to claim suddently, “Hey, did you know females with Aspergers are more likely to have eating disorders,” seems oddballishyly peculiar to me. As if we couldn’t have told them that from the start.

(I am not an expert on eating disorders. I have never been diagnosed or sought help for an eating disorder. I share to raise awareness of the complexities of food and weight in females with Asperger’s. I realize there are many types of eating disorders, some much more extreme and serious than my story. This is just one story and does not represent the collective whole. Also the ongoing research by others will help others detect Asperger’s Syndrome in some girls with eating disorders, and that’s good. To find answers.)

426: Verbal Fluency and Females with Aspergers

| Aspergers Girls

People with Aspergers, in my opinion, often have high verbal fluency and are able to think of many things about one given letter, topic, subject, item, etc.

Here is one example of my ability to think of many things based on one letter:
link to Dirty D’s Don’t you Weep (prior post)

I think that people with Aspergers have a high-intelligence that can be demonstrated by their ability to scaffold off of one given idea. Sometimes this processing ability adds to stress and misunderstandings, and the appearance of ADHD like behaviors.

As a person with Aspergers, my own high-verbal fluency can cause high anxiety. A simple action, like my husband showing me tile for a potential bathroom remodel, can trigger a reaction in my mind in which I am jumping from one image to another. In the case of the tile for the bathroom, the tile itself is an object trigger, triggering a series of sequenced events in my mind.

On seeing the tile, my thought process went like this:

We could make cosmetic improvements to our home’s bathroom, but we don’t own the house. If we improve the house, should we buy the house? If we don’t buy where will we live? Should we sell our other house? What should we ask for selling price? What if the house doesn’t sell? Well what is a fair price? Maybe we should continue to rent out the house. That makes sense. But what about….

All of these thoughts bombard me. Wherein my high verbal fluency can lead to fantastic writings and the successful completion of projects, the same fluency can cripple me emotionally. As a result of a number of triggers, I can find myself unable to be constructive for hours or even an entire day. Certain triggers can leave me immobile for most of a week. I get lost in the loop of my own thinking.

In the future, the tile could again trigger these same emotional responses in me, and therefor the tile could feasibly remain a trigger for an extended period of time.

Here is an activity that demonstrates the concept of verbal fluency.

This was a quick activity I did this morning. If you wish to partake in an easy four-minute activity, then read the first section “Preparation” and then stop before continuing onward.

Preparation: Without scanning down further to read, find a piece of paper, a pen, and a stopwatch. When you are ready to begin the activity, scan down and read the directions. (You can type a list instead of writing.)

DSCN0736

Directions:
Don’t read past this until your list is done.
1. Set a timer to four minutes.
2. Write a list of anything you can think of that you can do with a pencil.
3. Stop after four minutes.

Read below when done with your list.

DSCN0510

****************************************
My husband’s list (written)

Write
Erase
Measure
Roll
Bounce
Whittle
Wedge
Break it
Bite it
Eat it
Flick it
Throw it
Lever to lift
Stab with it
Sharpen it
Poke it
Spin it
Stand it on end
Spear things with it
Build something with it
Draw
Paint the pencil or draw on pencil
Drumstick for music
Lift things with it

My list (typed)

Miniature sword for a mouse or small creature
Stabbing utensil for defense of intruder
A rolling device to place on table for a contest
A stick to poke bugs with outdoors
A shovel to pull up weeds
A massage roller for the arm or back
A way to make a fake mustache..hold up to face.
A tiny baton
Break it up to use as a pawn in chess game
Place on paper and use as a spinner
Use for spin the bottle on flat surface
Poke holes in something (or finger)
Break off lead and use the lead to draw and smudge on paper
Use to connect yarn and make a toy like sling shot
Bang on a drum or other object
Bookmark
Flag holder (use tape)
To keep a door from closing all the way (may need heavier object)
Stir coffee
Take hair out of bathtub ring
Fidget between fingers when nervous
Write with (of course)
Play fetch with dog
Keep a plant held up in garden
Poke to see how dry the dirt in a plant pot is
Play catch
Place under bedsheet to bug/irritate someone
Dress up in clothes and make a doll (add yarn)
Sketch, trace, smudge
Sharpen it
Throw it away
Chew it
Look at it
Dig into garbage disposal
Twirl hair

Conclusions:
My husband is a ‘neuro-typical.’ Also known as an NT. He is considered mainstream and typical when compared to a person who has a neurological syndrome such as Aspergers. I have Aspergers. When examining the two lists some interesting things come to mind. Of course I am a female and Bob is a male. So this aspect of gender also affects the results.

1. I saw what I would do with the pencil in full imagery and thusly often included exactly what the pencil would be used for. I added specifics. I didn’t just write ‘sword.’ I wrote “a miniature sword for a small mouse or creature.” Bob wrote a simple answer without specifics. It didn’t cross his mind to do it any other way. He thought he got the point of the question and answered accurately.

2. I paid attention to detail because in the back of my mind I didn’t want to confuse anyone that might read my list. Bob didn’t consider what other people would think at all.

3. I didn’t list logical things such as ‘write’ until the creative aspects were thought of. My mind immediately went to creativity. Bob’s mind immediately went to logical.

4. The question read what I “can do” with a pencil. In my mind I interpreted that question as actions and saw people or animals doing the action. In my mind someone or something always was attached to the pencil. In Bob’s mind it was only the pencil. He saw the pencil doing it in isolation.

5. I was actively involved emotionally with each thing I thought of, simultaneously evaluating if I’d like that action, how useful it was, and if it was truly feasible. I included minor details such as tape, flat surface, etc. to guide another or in essence to ‘prove’ it was feasible. Bob just thought about a pencil.

6. I knew in the back of my mind if I wrote short answers I could write a longer list but I had to add detail, even though I knew my list would be shorter. Bob didn’t even consider detail.

7. I saw the pencil naturally being used in my mind. Images popped up and I wrote what I saw. I used my environment to help me. If I saw I plant where I was sitting I could connect an idea. Bob didn’t look around his environment. He said he used ‘mental effort’ to come up with his answers.

8. I worried about my list. I questioned if all the ideas were valid. I questioned whether the one thing I started writing before the timer started counted. I worried about the time. I watched the clock. As the time ticked I evaluated in my mind how much time was left and the average number I was writing. I was distracted by the time and numbers. I thought about my typing speed and the typing speed verses writing speed. Bob worried about the amount of time left a little bit.

9. I pictured and evaluated each thing after I wrote it. As I went on to write the next thing on my list, I was still thinking about the first one. Had I used the right words, enough words, and described what I saw? For example I was concerned about the door wedge (to keep door from closing all the way) and thusly added ‘may need heavier object.’ I knew I couldn’t add more detail without taking up time, and that bothered me some. I could think of new items while still focusing on previous items at the same time. Bob just wrote his list. (He did say “that’s cool” when I read him this number nine; so there’s that.)

10. My thinking is complex. I wrote to keep a door from closing all the way (may need heavier object) and bang on drum or other object. Bob’s thinking was basic core segment from the start. He wrote wedge and drumstick.

My husband has a high verbal fluency. This is evident by the length of his list, and he was able to write without pause, until the timer stopped. He was able to think of many things. I have a high verbal fluency as well but my list was much different than my husband’s list. My list was affected by my imagination and thinking in pictures, and somewhat by my anxiety of time and worrying about what others would understand of what I wrote. Any person, NT or not NT, can have a high verbal fluency. But, as mentioned earlier, I think people with Aspergers generally will demonstrate high verbal fluency and use of imagination in their list.

Feel free to share your list and conclusions below in comment section.

Here is a study:
Verbal fluency in adults with high functioning autism or Asperger syndrome

425: What if I don’t have Aspergers?

| Aspergers Girls

What if I DON’T have Aspergers

But what if I don’t have Aspergers? What if this is just me clinging onto a thread in hopes of not being alone in this world?
What if we are just aliens, light-workers, empaths, sensitives or advanced spiritual beings?
What if I am a reincarnated sage?
What if I am a Buddhist paying for previous karmic waves?
What if I am truly crazy, self-inventing my own condition to feel more normal in claiming I am unique?
What if Aspergers doesn’t exist and this is just a human condition?
What if this whole Aspergers is a trend and being over diagnosed?
What if I am making this up in my head to fit in with a collective?
What if I find out from an expert I have something else and not Aspergers?
Am I smart enough to have Aspergers?
Am I odd enough?
Am I enough of anything?
Pleaseeeeeeeeeeeeeeeeeeeeeeeeeeeee stop!
Who cares?
Really?
Get rid of the name. Call it a chicken-foot fungus dance. Call it the mushroom’s puke master. Call it genius. Call it gifted. Call it looney. I don’t really care!
WE found each other. And WE have more in common than not after years of feeling isolated and alone.

I don’t care what man-invented name, based on a collective documented list of traits based on the observation of some male behavior years ago, was the reason we met. WE met. And that’s what Aspergers means to me: Union.

We are together. We are no longer alone.
Perhaps we ARE from another planet.
Perhaps we are the only humans really here and the rest are reptilians.
Perhaps we are light-workers.
Perhaps we are entirely lost and confused.
Perhaps we are crazy nuts.
Perhaps we are the change the world needs.
Perhaps we are a trend, a wake, or a breaking.
Perhaps we are the new normal.
Perhaps we are just like everyone else.
I don’t care.
Stop trying to analyze what we are and who we are and why we are, and accept WE ARE.
There is no you verses them. There is no us verses them. There is no separation.
It is all just manmade games.
We just managed to survive.
To keep our heads above water.
To see through the madness.
To understand there are things, definite things that need changing in this world.
And if we want to start focusing on self-awareness, self-love, and self-acceptance, then YAY US.
I don’t care how you get there….to that point where life starts to make sense and you start to realize you aren’t alone and aren’t imperfect and have so much to give the world.
I just want you to know YOU matter and YOU make a difference and YOU are never alone.
Stop tromping over our parade, all of you doubters, critics, and people who feel the need to give your two cents about something that isn’t your journey.
I don’t care.
I really don’t.
Beyond the need I feel to tell the rest, who have struggled in pain so very long, that you are right where you need to be. Whatever you need to hold onto to build yourself up after this world has attempted to break you down, is what you need and is YOUR choice.
Shine, shine, shine.
It doesn’t matter if you have Aspergers or don’t, or if this word never exists again.
Let go of the word and reasons.
Just let go.
Breathe.
And be.
I love you.
Whatever you choose to call yourself.

424: To the Girl in the Altered State

| Aspergers Girls

To the girl in the altered state

Every once in a while, about six to ten times a month, I enter an altered state in which I cannot recognize or reason with myself. Mostly this happens during the week before my menstrual cycle, but also occurs sporadically throughout the span of a moon-cycle. I am not separate or without consciousness of experience during this altered time, but I am definitely separated from a healthy self-image and from a sense of hope. Partially, this state of being can be explained through the symptoms of PMDD and/or severe PMS. Partially, this altered mood state can be explained through environmental influences, such as exposure to people, foods, weather fluctuations, and events. Causes of the root of these states can also be found through the intake of others’ words, actions, body language, moods and emotions. These altered states are intensified, if not jump-started, by the complexities of my thoughts, including my innate ability to scaffold one thought upon the other, and then root my ideas through advance complexities of processing equivalent in design to a skyscraper building upward and outward with exploding and expanding firework-like threads.

Inside my mind is a jumble of ideas edging their way through to exactness and refinement, entering a filter of dissection and biopsy, spit out into a conveyer belt which feeds each piece with microscopic filaments of possibility. As my mind functions much like a separate entity of its own, I get carried away in the potential outcomes, swept into immensely thick images and awakening, I can both feel, create, and to some degree control.

Here is the only place I find a semblance of control, and because I can find this peace, this place of no unexpected upset, but instead a returning again and again to the matter at hand–this machine of causation digesting and reproducing with each throb of my heart—I can remain here unaware of the happenings around me, the things occurring outside of my own thinking.

This serves me well, my thinking-machine, in times of deadlines, needed production, problem solving and sorting. I have the capacity to debate both sides of an argument with ease, essentially seeing with expansive foresight the end-trail of either avenue taken. Whether I be supporting myself or another’s endeavors, I am more likely than not to typically find beneficial solutions and make beneficial progress with any given task. I am able to mass-produce with focused concentration and powerful self-drive. Nothing is forced, induced or made to happen; the output of self happens instinctually and naturally, the process akin to the effortlessness in which a flower unfolds. I am neither under pressure or in a state of panic. More so I find myself in a blissful alleyway of escape with my troubles blocked out on one side and my worries blocked out on the other. I have managed, through simply being, to slip past both the mundaneness and challenges of life, and bask in an inner-state of creation. Here, in this creation state I am blissfully working. Pouring out information in graphic and written form, both in hardcopy and in my mind. What I see is transmitted and then drafted. Draft upon draft is reassembled and reconstructed, both internally and externally. I am me, yet I am not, producing with an extremeness I am familiar with, a rush of production that seems to resemble an urgency and need, though, to the creator resembles a necessity of action—something one was born to do and must do to survive.

Given a subject, I can learn mass amounts of information in a short amount of time, not because I am told to or want to, but because I am internally driven to completely fill the vacant spaces in my mind with input. I am taking in what I crave, as if the newness was the exact food I needed. I have nothing to prove to anyone. And thoughts of improvement of self spurs feelings of the potentiality for pride. This pride feels like poison to me, indigestible and damaging to the whole of self. I create with passion and fever, but not for the reasons others might suspect. And the suspicion, the judgment, the expectations of onlookers, is the first part that disturbs what I take in. The latter part which causes disruption being the layers of guilt I wade through for being what I am in the way I delve into the alley of reprieve. Together, the meanderings of thoughts, including the knowingness of what I am and who I am (in the way I deviate from the world-proclaimed norm), the indigestible thoughts of feasibly self-filling through prideful ways, the known ways in which I appear to others through my behavior, and the guilt which soaks through, leaves me in a split state—one in which I am in the alley of reprieve but pushing back a self-punishing voice that regurgitates what I have been shown and told through experience and exposure of normalcy.

It is the processing and creation that occurs within me that both feeds me and causes the worst agony. Yet I can discard of the self-defeating thoughts most of the time, except the handful of times in which I am in an altered state and feeling low self-worth, as previously mentioned above.

During these moments, which I have called altered states, when I am emotionally at my end, sad and what could be labeled ‘depressed,’ I am tested by my own thoughts and circumstances, inventing ways to end my agony, and undoubtedly coming up empty with possible recourse and explanation. My mind takes off again, as if bound to creation with engines revved. Only this time I am digesting bits and pieces that don’t make sense and leave me suffering. I am stuck on the loop, a conveyor belt that keeps recirculating with the same information over and over. I keep misfiring inside, keep trying to solve the unsolvable, and inevitably end up disappointed and forlorn.

I can step back while in this state and feel myself adrift, unable to help or pull myself outside of a surrounding feeling of doom. Not one to dismiss possibilities or explanation, not setting aside feasible reasons, I keep forming hypothesis and testing theories through personal trial and error, digging myself deeper into confusion and darkness. The only way out is to sleep, to process verbally with another, to create through writing or art, or to cry. When I am on overload, having reinvented the same scenes again and again, dizzy and upset by my own making, I might have a panic attack.

During these times of reconstructing the same thoughts over and over, I cling to my greatest fear of the moment. For me this is usually attached to abandonment, sickness and death. I see these fears in full picture, too. And having died a thousand ways through various ailments or found myself worthless in forever isolation by all I love, I become exhausted. In theory, I suppose, I climb into a storybook of sorts, living out alternate lives again and again, wherein I am not the heroine but the doomed sufferer. If not a storybook than a vivid horror film in which the characters all dissolve and I am left alone in a sucking suffocating darkness that breathes me into a state of hopelessness. Because my mind is the way it is, for whatever cause or reason, the very tool that creates masterpieces is the same tool that creates my demise. In this way, the same control I lack in being swept into the alley of reprieve is the same tool I lack that keeps me from being sucked into crushing isolation.

Having tried various measures to offset these altered-states, I have found that some things can make a difference. But usually these measures are unexpected, unpredictable, and cannot be created through planning or intervention. The only thing that stops my altered-states is the unexpected. A few ways I am pulled out might include circumstances such as a joyful surprise, a state of urgency in which I need to help another or solve a pending challenge or expected occurrences such as a good friend visiting from out of town or a celebrated accomplishment.

Time and time again I have wished I had a letter to read to myself during this altered state. Ideally, I would benefit from videotaping myself reminding myself I will be okay because during the dark hours it seems nothing will ever stop the physical, emotional, and spiritual pain.

Dear Girl in the Altered-State,

You are here again, and you knew you would be; even though you think this is a new thing, it’s not! I know this time you think this is it, the end, the worst, the real test you will fail, the trial that will end you. Again, it’s not. You are fine. You are momentarily lost in a loop like a time traveler who has lost her way. The key word to remember is ‘momentarily.’

‘This too will pass. This too will pass.’ You aren’t going anywhere. You aren’t checking out. You aren’t crazy, and you are certainly not dying. No more than anyone else on earth, anyhow. You are a mortal and a human being and you are affected by so much in this world. You take in mass amounts of information, much of what you can’t even recognize until it is spewed out the other side through you, like some salmon flying upstream and landing on shore.

You are enough. I know you think you are not. But you are. You are pretty and smart and lovely. You are sweet and kind and caring. I know you think you aren’t good enough, no matter how hard you try and that you aren’t worthy. But you are.

In a few days you will be smiling again and loving life. Here are some important things to remember. The rest let go. All of it. I mean it. Let go of the worry, fret, regret, upset, and all that makes you mourn. Cry if you need to but don’t hold it in, and follow this list like a trail of breadcrumbs that will bring you home.

I love you. I love you so very much. You are brave and my princess, and you are never alone. You will lose your faith during this time, but the angels are still here. You will lose yourself, but you are still here. You will question everything and everyone, and not believe a positive word out of anyone’s mouth, including mine, but that is okay.

Still with all of this said, you will think this is it, the very last straw, the end of it all and the beginning of everlasting suffering. That’s bull. It really is. It’s a dark voice invented in some alley way in your mind. We don’t know why it happens, but it does. Probably a side effect of all your processing, like the sludge overspill form a well-greased engine. That’s all this is: an end result of your mind at work.

Don’t trust the negative messages and don’t make any decisions. And believe in us, in you, and finding your way back. You don’t have to do anything. You don’t have to fix yourself. You are perfect. And you don’t have to search for a way out. It will just come. The custodian is in there right now cleaning up the gunk with a mop. Just wait. That’s all. It’s okay if you are impatient and you don’t believe me. All is okay. I know that anything on this list will take all of your energy, but doing just one will help you. Remember I am here waiting, and you will come out of this altered state soon. For now pamper yourself and know you are loved.

1. Shower or take a salt bath. You will instantly feel better
2. Walk and if you can’t walk then dance to music. Move. Just move.
3. Accomplish one small task, like emptying the dishwasher, one little thing will show you that you are okay and capable of productive activity.
4. Create through your sorrow: dance, paint, draw, write, or do something that spills the emotions out of you into reality.
5. Process aloud with loved ones how you feel.
6. Treat yourself to food, you will be starved during this time, and that is okay. In a few days, once rebalanced, your healthy eating habits return.
7. Avoid the mirror and taking photos of yourself. How you view you is not reality. You are creating flaws and negative messages when you see yourself.
8. Go outdoors. Even if for a moment. Let your feet touch the earth.
9. Get in contact with nature, feed the wild crow or pet your crow, stare at the water, breathe in the air, soak in the green of your surroundings. Don’t hide out in your house, you will suffocate.
10. Allow yourself times of no production. Just be. And don’t analyze. If you need to listen to the same song over and over do it. If you need to watch a movie over and over, do it. Don’t judge yourself, your actions, or what you are doing. You are enough, and it is okay to rejuvenate.
11. Avoid triggers that increase anxiety including gluten products, coffee, and exposing yourself to people that drain your energy.
12. It’s okay to say no.
13. It’s okay to let go of your responsibilities, slow down, and take care of yourself.
14. It’s okay to cry and to be afraid.
15. Don’t try to solve, fix, or understand what is happening. It is out of your control and that is okay.

I love you, my precious one.
You are enough.

423: I am enough

| Aspergers Girls

Life isn’t simple. It never will be.

As hard as I try to make it so, life will continue to be complex and awe-inspiring, heart-rendering and heart-breaking, and full of a mystery so full that to attempt to empty the bottle of unknown would leave me drowning within the first rendered droplet.

I am this and I am that.

And I see myself as constantly changing, as if I have lived a thousand life times in the span of a few days.

My mind is preoccupied and occupied by both my thoughts and my conclusions, and this gigantic network of interwoven threads of information.

I am constantly spinning. Unlike the spider’s quest, my web doesn’t begin anew; instead I build, scaffolding off of previously filtered information again and again. Some gigantic enterprise continually producing inside of this person I seem to be.

It is odd to look around at the world and take in the rules and regulations, the patterns and shapes, and the ways in which I am told to be and even see.. am told to understand and even how to use my mind to comprehend.

It is odd and extremely confusing to live in this world of extreme rigidness when such a remarkable being I be, full of potential and possibility.

Yet, indeed, I understand the need for structure. Of course without some sort of system all would fall apart and fail; at least that is what I have been told.

That teaching along with so many more that my mind hurts, and like the bottle of unknown spills out into more masses of reasoning upon reasoning.

I want to be simple, I suppose. If I think long and hard about the idea, which takes me a matter of seconds, I can see how simplicity breeds comfort—a false type of security that doesn’t exist in nature. I can see how simplicity eases the soul and leaves one freer to breathe and carry on. And I can imagine myself simple and free, drifting through life with the troubles past me because the challenges were never captured long enough to matter.

But what of my heart? So large it grows. I cannot help but want to complicate matters. Not because I long for disturbance or am the eager eater of drama. Nor nearer is the fact that I am in need of complexity. It is just how I am made: built into this someone who meanders to and fro inside a self that meanders to and fro; an insider watching through a window as the outsider moves. Each step we make either together or separate; each step leading deeper into a knowing that nothing is within control. Even as all about people reach, stabbing onward like phantoms attempting to grasp a steering wheel of hope.

I am not melancholic. At least not always, and essentially not at this instant; still I see enough and know enough to understand that no easement of woes exists. And I watch as bystander within bystander observing the masses create havoc of life in an attempt to alleviate a suffering they do not understand. And I watch, waiting for the games to end, waiting for people to come home to their own selves and to stop the games that seem so endless and limiting all at once. Restricted with manmade boundaries and manmade torture to be something and someone else through process and progress, when all along the someone was already divine and perfectly whole.

It is a type of treachery many succumb to through manipulation, repeated exposure and through the absorption of the spillage of the profiteering fools. How we are played as pawns and how I am made to watch helplessly the empire that calls itself wholesome.

I am not this gentle foolish child set innocent into the world. I am wisdom unfolding through and through. Cherishing the dance I play out in my head, as the dance outside in the place called reality is folded into layers of hatred and trickery. For I am escaping all that I see aching outside. And I am pulling in the answers to the folly and pain. I am reworking the outcomes and calculating the events’ offspring, hoping to counteract the wickedness that seeps through the avenues of discourse and greed.

I am enough into myself and need not partake in the ways that were made by the few to reinvent the perfect ones into blundering self-hating conformist.
And I am enough to know that when the season passes and the lies are exposed, I will remain the same. I will still be here with my honesty, integrity, and abyss of hope-filled love.

I refuse to be created into something I am not. To be made into something that is easier for others to comprehend and forget. To be ironed out and made flat and non-dimensional, so the waves I create no longer disturb those adrift in their own murky dark sea.

I am me. And in this I am everything. In this I can reach out my hand to another who is still breathing by her own accord and wish, through the pain of the world, and take hold of purity and hope.

I am me, and in embracing all I am, I have the capacity to embrace all that another be, before the blindfolds were attached and the ground moved asunder, so that floating ghosts appeared where banished souls once traveled.

I am enough and empowered with light, so that where I travel the warriors of angels come and guide me.

In my folly, in my surrender, in my imperfection painted as a coat of varnish on my silky silhouette, I am still enough.

I am everything and nothing. I am entirely filled and emptied.

And in each way I move and think and live, I am a testimony to truth and fairness.

I refuse to be what the world wants to make me into. Refuse to climb out of who I am to be someone I am not and leave but a shell of what I was created to be. For no one can fulfill their potential half-empty or entirely gone. And no one can withstand the weight of the world beneath the burden of their own disheartened soul.

Whole I stand. Undone and complete. Entirely me. And when the others shake because I am, I shall reach out again to find the hand that used to be, and offer my love. Over and over I shall reach, if not into my outer world then into my own self to pull out what has been formed and blended into the miracle of making, and to offer out what is no longer mine and undoubtedly the thread of love that keeps us sewn in strength.

To pull out of the game long enough to remember I was neither born a pawn or made into less than enough. And to remember I am here in serenity, fulfilling my dreams, the ones born onto me beyond the misery of fools’ making.