I believe, without a doubt, I have Aspergers. And I believe Aspergers affects me on multiple levels. I believe I am handicapped in ways, because of this syndrome. I uphold that what my diagnosis means to anyone, beyond myself, is inconsequential. While I love and care about others unconditionally, I am aware that when I care how others’ perceive me, and let their opinions affect my esteem, then ego is stepping in. Thusly, I have been actively releasing ego-attachments associated with the title of Asperger’s Syndrome. And I’ve been actively telling myself to not use the diagnosis as an excuse, such as a reason to not leave the house, to escape into isolation, to fixate more, etc. I forgive myself for partaking in this natural process of swinging to one extreme on the pendulum of attachment and emotional-response to the other, before finding a restful state of equilibrium.
Yes, the Aspergers title has enabled me to understand myself at a very profound level. And I support others who are seeking a diagnosis and/or self-understanding. But I no longer choose to let the diagnosis define my personhood.
Sam Craft’s Expedition Journal (February 2012) Semi-Fictional
Day One: Upon receiving my official diagnosis of Asperger’s Syndrome, I have subsequently clung onto the title. Beginning to understand the implications of diagnosis.
Day Two: My diagnosis now qualifies as a life preserver, as the term Aspergers appears to be keeping me afloat, as I relive aspects of my past and evaluate my perception of reality. Mental connections observed. Huge relief in finding semblance of answers, preponderance of flashbacks. Mild-degree of depression. Reality shifting.
Day Three: Uncertain if clinging is beneficial. Is this need to grasp onto a title indeed part of my Asperger’s brain or part of my soul’s journey? Many questions emerging.
Day Four: If Aspergers is a man-made diagnosis, does it exist? Still clinging to title.
Day Five: I’ve met others who recognize me and validate my experience. I have found my people. I am proud to have Aspergers! I no longer care if I am clinging. Neurotypicals of planet earth do not understand me.
Day Six: Preparing for trip to Planet Aspie. Confirmation received: I am of alien decent. Leaving behind all prior diagnosis, roles, and identities, in hopes of forging ahead to new frontier. I have reclaimed my spaceship. Excited. Final goodbyes to cruel earth.
Day Seven: Take Off! Less and less grounded, but filled with hope.
Day Eight: Assimilated successfully with my kin. Partying, connecting. Don’t miss earth one bit, or anything I left behind.
Day Nine: Trouble breathing. Don’t know how much longer I can survive here. I fear if I depart I will lose clarity of self and multiple connections in new community. Gasping for air. Disappointed and discouraged by predicament.
Day Ten: Breathing remains labored. Beginning to reconsider options. I miss earth. I miss who I was. Understanding my identity, views, and reasoning have become obstructed and marred by the mere act of defining myself as an alien from Planet Aspie. Forgotten who I was.
Day Eleven: I’ve been forced to make preparations to leave planet, after a radio signal I picked up from earth, on a social network frequency:
“Isn’t it strange how folks pigeon holed by their ‘labels’ want to be recognized for their ‘labels’, yet don’t want to be pigeon holed by labels?” ~ K
Day Thirteen: Ego wounded on planet. A fellow alien wrote the following message on the side of my spacecraft:
“I’ve never considered it a disability. You take the good with the bad. Asperger’s gives one good analytical thinking and attention to detail, useful traits wouldn’t you say?
Social skills aren’t hard to learn if you work at it…How could you compare a social impediment with…? That’s being perhaps a little bit whiny and self-obsessed.
If- perchance- you’re offended, I don’t blame my asperger’s. I blame myself. If I’ve crossed the line here, I’m sorry and it’s my fault.” ~ J
Resulting consequence: I became self-absorbed and remained (momentarily) in a feeble-state of wounded-ego. I understand now, the message was not a direct attack upon my personhood, and that I only felt attacked because I’ve wrapped my identity in a spacesuit of Aspergers. Though I disagree with aspects of the message and tone, these words carry nothing but ego-bullets. To avoid further injury, I am returning to planet earth where I can better control ego, (and breathe).
Day Fourteen: Ego-attachment to Aspergers identity is still very strong, as I buckle in and prepare for departure.
Day Fifteen: Touched down on Planet Earth. Immediately reunited with vital parts of self. Ego in balance. Collecting parts of personhood that I left behind. Mourning loss of identity. Breathing still labored.
Day Sixteen: Planting a new garden of identity that hosts a multitude of vegetation. Seeds in place. Breathing normal. Earthlings are loving, indeed. Aliens no longer exist. All beings on same journey.
Day Seventeen: Successfully integrated all Aspergers’ traits back into the whole of my personhood. Ego at bay. Nolonger in need of a self-definition to exist. Breathing is divine.
Day Eighteen: Flowers are in full bloom in garden. Welcoming beauty. Anchored in awareness. Seeing others as a reflection of my perceptions. Continue to learn.
Day Nineteen: Accepting and loving all parts of self. Witnessed another earthling blast off to Planet Aspie. Will remain in garden waiting for her to return. Sending her love and light.
You’re a clever woman!
Here’s a compliment to you from a fellow dyslexic. Okay confessions reading is not my favourite past time in fact I usually get bored half way though and abandon it. Yes even with my own blogs, which makes checking and editing a real boring task. However, your blogs have managed to keep me captivated till the end. So thank you for keeping me tuned in. I love the way you write.
Love
Lucille
Lucille~ Thanks dearly for the kind, kind words. That post was at first a philosophical prose, and I was bored with it; so I lightened it up and shortened it. I can relate. I often skim posts, but still get the main idea. Glad you found it interesting. It was hard to get the point across about latching on to Aspergers, but I think I managed. Then I worried I might offend someone who is going through a similar experience. Then I just let it go.
Your comments always brighten my day. Thanks so much. ~ “Sam”
people choose to be offended, as most people nurturing their stuff like their baby. Even with children parents can find it difficult seeing them leave the nest. Change can be very unsettling. If more people knew detachment creates the space for evolution, more people would do it. And like with everything when we have created a detachment strategy it makes it easier each time. In many ways truth = detachment, till we reach the point of nothing, yet everything. L x
Beautifully said.
Reading your journey log was very interesting. Our minds made different contortions, but the final destination remained the same:
“Earthlings are loving, indeed. Aliens no longer exist. All beings on same journey.”
For me, the intergation of all my life struggles was the most difficult part. I had a million, “Aha! so that’s why….” moments.
An important part of processing a diagnosis is connecting the strengths and weaknesses of your mental wiring. Gaining perspective of yourself, so to speak. I still do this today.
I celebrate your statement “All beings on the same journey.” Life has a beautiful sheen from this vantage point.
Good for you.
I had so many Aha’s! Still am daily. Today: Crowded at the store, started to feel suffocated, wanted to escape–Aha! Thanks for reading the “log.” The process is so much more complex, but the simplicity of the log helped me to put things in perspective.
Aspergers Girl, I’m so glad your blog exists!!! It’s been a guiding light amongst all the jargon and definitions (space junk? space map?) since my discovery that I’m an Aspie last week – your post makes so much sense and I like the metaphor – my identity has yup catapulted into outer space! The comfortable rug sewn from years of secret coping and self-analysis and self-building that helped to create a stable sense of who I am, has been pulled from under and looks totally different now.
Huge relief at finding that others are like me and that there are people studying and identifying it as a ‘thing’ is well, incredible… but now what? No more rug to stand on, I am floating and I too am clinging onto the Aspergers spaceship – it’s so strange to have been so alienated and be so good at pretending, then to find that a word that explains my whole life – A-ha, A-ha, A-ha, A-ha, A-ha, A-ha, A-ha, A-ha, A-ha, A-ha…Ouch.
I’ve been travelling from temporary space docks of ‘It’s ok to be me’ to ‘I have a syndrome/disorder what does that mean’, to ‘Aspergers is a word that helps others understand my different way of being in the world’ to ‘Aspergers is a word that reinforces the sense that there is something wrong with me’, to how do i tell people who love me so they will understand me but won’t think of me as having something wrong and treat me differently to ‘but I am different and can finally show it a bit’ …ego battles in outer space indeedy.
I think ‘I am still me, just a little more illuminated amongst earthlings’ is where I’d like to rest
forever thanks
x
Love your comment Thank you :)))