It’s All About the Ovaries (Second Edition of Everyday Aspergers: Part One)

So, I’ve been procrastinating on this post since December 2018.

I’ve analyzed why and have come up short. It’s likely that I don’t care much for self-promotion. Indeed, in the last 6+ years I can count on one hand how many times I’ve asked folks to share about my Everyday Aspergers Facebook page. (And that counts the mention here!) If you haven’t checked it out, please do.

I could blame my procrastination on the countdown to menopause, which I hope and pray arrives tomorrow, as I’ve been dealing with the complexity of endometriosis for years, including the 2018 road traveled of chocolate cysts. Don’t let the name fool you; it’s all about the blood. And now that I’ve over-shared, I will switch gears.

 

m3.jpg

Recently, I’ve had a profound peace — could be hormones shifting and my lady parts semi-retiring — could not. (Oops, focus Sam!) I’d like to think it’s something to do with my faith and spirit. It’s likely a combination of coffee, getting older, and finally getting fed up with not speaking up for myself and finally understanding boundaries! That, and I do feel the presence of an angelic spirit. But that’s another story.

Not much has changed (with my brain) in the past years, since I started writing Everyday Aspergers. Which now has over 1.4 million hits! Well, yes, some of the reason behind the high ‘hit’ number is because there are over 500 posts! Omgosh — write much?

My point being, I still digress to a close-to-annoying degree.

That’s likely why I typically get called to interview for a job, based on my awesome resume, skills, and experience, but don’t seem to ever get the job! (In fact, I don’t even get a rejection letter — just GHOSTED.) Picture me bungee jumping off a high cliff of ‘tell us a bit about yourself,’ and swirling in rapid circles, giggling like I’m twelve, raising my voice in high pitch, fidgeting about, announcing how proud I am to have ASPERGERS, and then correcting myself: “I mean to be on the autism spectrum.”

I leave an interview feeling like I either nailed it and they absolutely LOVED me, and want to be my best friend, or convinced I terrified the living daylights out of them. It’s likely the latter. As I mentioned: I don’t ever hear back. Thank the lord for my job at ultratesting.us, where being neurodivergent is the norm! Thank my lucky stars. (< Madonna video)

Ironically, I have studied 1000s of hours of best hiring practices for my vocation, and can’t seem to keep my Aspie-ness in a bag when under distress at an interview. There must be a pill I can take. (Now picturing Violet in Willy Wonka and the Chocolate Factory, and now must Google to find an image.) “. .  . because Charlie she’s a nitwit.” Not to say I’m a nitwit.

 

blueberry.jpg

 

Okay, alas the REAL point of this post is to tell you THE SECOND EDITION OF EVERYDAY ASPERGERS IS HERE! And it’s now available in paperback in many countries. Check out Amazon or ask your local library to see if they can order it. Look at the PRETTY cover by an autistic artist (and my friend and colleague)!

USA amazon

UK amazon

AU amazon

10 Facts You May Not Know About the Book Everyday Aspergers

Are we friends yet? (Facebook link)

 

Okay … done! Although, I don’t think this is what my publisher had in mind.  (scan down for more.)

 

 

On a side note, I will speak to you as if you and I are in a cafe, and I’m catching you up with my medical stories. Sorry for the monologue, and the white-haired man sitting kitty-corner to us that is blushing because I am talking too loud.

This here ^^  … that’s an image of a chocolate cyst. Funny story … after an ultrasound in early 2018, when I found out I had at least one chocolate cyst, (and had gone to the emergency room in excruciating pain, and was curled up on couch most days for weeks) in typical Sammy-fashion, I researched with hyper-focus about the chocolate cysts and implemented some home treatments — including essential oil, strict dietary change, etc.

When I returned months later for a follow-up ultrasound, the technician confirmed indeed the cysts presented (3 of them) exactly like ‘chocolate’ cysts! Immediately following, (literally a few steps down the hall), my OBGYN doc informs me, “The cysts are shrinking, and that doesn’t happen with chocolate cysts, so we can’t call them that anymore. They don’t shrink.”

I was dumbfounded.

Surely, in some cases they can? And I’d done so much, including talking to my body, to ensure healing.

My scrunched up face demonstrated I was confused, as I asked in a high-pitched voice, that no longer suits my age: “Well, what would we call them if they weren’t shrinking?”

She responded, “Oh, definitely chocolate cysts.”

I then got that familiar feeling in my gut that means ‘NO ONE on this planet is truly an expert in anything and most of the time professionals are talking out their donkey.’

(“vulgar slang To say foolish things; to talk of nonsense. Don’t pay Jonathan any mind, Mary, he’s just talking out his ass again.”)

The next time I went back in for a check up, with said Doc, she informs that my chocolate cysts are shrinking or stabilized.

So I guess we are back to calling them that?

Anyhow, it reminds me of the time I had a dead front tooth, when I was in my early 20s, and I went to a dentist that a colleague had suggested I see. It was 1992, a sunny day. The dentist’s recommendation for my dead tooth’s discoloring was to darken all my teeth to match!!! Yes, that’s right. And, noooo, I did not!

I have trouble believing this actually transpired, especially after I told my dental hygienist the story yesterday, and she said that’s the worst telling she has heard to date. Also, because decades have past with my pretty veneer tooth. (The other dentist I saw bleached all my teeth to match the new veneer. Yin and Yang. Dark and Light. Theme of my life.)

(On another side note: I found out this week I have no cavities and an unusually small mouth [which matches my usually small head]. And I warned the dental hygienist not to say she has a small mouth despite what her husband says, because that can be interpreted in different ways.

She was appreciative, and said, “We’re going to get along just fine.”

I always find it to be an interesting phenomenon when I give out unsolicited advice to non-autistics about social graces.)

Needless to say, I never went back to that dentist who wanted to darken my teeth! But the young, inexperienced (terrified) me did shake hysterically in her car afterward. The same way I shook after seeing a ‘specialist’ a few years back.

That time a doctor would diagnose me with ‘a close cousin to POTS syndrome,’ (as my blood pressure acted a bit different from typical POTS, but the tilt table test confirmed the condition.)

This was after 5 ER visits wherein my pulse would go to 160 upon standing, wherein the IV would add sodium to my blood, and remedy the POTS-like reaction, making me seem better; only to be sent home and the symptoms to come back (160 upon standing, weak, shaking, etc.); only for me to return to the ER and be told I must be inventing it for attention.

Yes, hysteria is still widely falsely the diagnosis for women! No wonder I have white-coat syndrome.

Fortunately, my then-husband Bob (now-good friend) was in the patient room with the ‘specialist’ (notice the quotes) and me, when the Doc told me my diagnosis and prescribed an exact treatment plan, e.g, constricting stockings, raise bed, exercise regime, salt intake, etc.

A year later, I came back, feeling super pleased I’d followed the Doc’s directions, and was able to sit up for long periods of time, and return to life as normal (well atypical normal). BUT THEN . . . she SCOLDED me, accusing me of making my condition up, and saying I didn’t have POTS, and didn’t have to do all that. That I wasted my money on salt pills and where did I get the idea I had POTS?

I had to phone my ex-hubby from the car to avoid a nervous breakdown; literally thought I was losing my mind, until I realized the doctor was …

(Scan down for book reviews.)

So . . . I likely should write another post soon that is more about the book. I will. I think. Can’t wait to see what pops out of LV’s mouth then! Sir Brain is shaking his head in shame. (He doesn’t have ovaries.)

545: The Numbing Point

Somehow, I am a box, the box itself, opened and watching one after another of a torrential stormy land unfold and reveal itself.

Layer upon layer of history and mystery and truths and untruths, all intermingled and hung out to dry.

I stumble, some eyes-wide-open girl, pushing through the tangible thoughts.

Trudging in and out of random memories and formulations.

Much like a computer brought to life; only with raw emotion and temperament, and pain.

I am both the spectator, watching, and the participant, dreading.

Meandering through what has passed, what might be, and what is to come.

Entering a premonition-dimension all whitewashed across the interior of my reckoning.

An entity wrapped inside, opening with one quick stroke to the ‘what-of-me?’

I intake, reaching untimely conclusions at rapid speeds, left twirling in afterthought and apprehension.

And behind this beyond is yet another broken voice screaming my demise: some torn-out, abandoned demon attempting to sliver its way back in.

And still another, quite broken in its proclaimed ‘un-brokeness,’ quivers nearby, judging each string of thought.

At times I am that mirror facing that mirror, reaching into infinity, my limit of selflessness limitless.

Confusion brought upon confusion, interruption placating interruption, each theory and circumstance trying to predicate the next.

A judge. A jury. An entire assembly of multiple communes all gathered in a singular speck.

And all at once there is this nowhere, and I am lost, drowning in what seems to be logic and feasible steps to the opposite of entrance.

Only each way pulls further. Again, and again, fooling me into thinking it’s a truth, the accurate avenue of escape.

But what am I running from?

Am I so predisposition for analysis that I am predisposed to slipping beyond reality?

What are these propelling thoughts that seem as comforting friend set about as offered confidant, when in actuality they be but bitter tastes, gathered entities, scattered brain-firings awakening prospect after prospect after prospect?

I cannot untie myself from this pain; I am no escape artist.

I am but a trepid flame doused with fuel after fuel, in all forms, to arouse the dragon-centered-heart.

I am opened and set apart and made to bleed out, continually abandoned.

Help is nowhere and everywhere; and that is where the terror sets spindly claw in motion.

Straight out, in the thought that nowhere in the thought is a resolution.

In the thought that each inching perceived as somehow forward is indeed illusion of progress.

That in fact, I am no further now than before, only set upon differing landscape, created by yet another skewed view.

I am where I set out to look.

My angle determines my outlook; my perching point, the end result.

And yet, point after point, I still gather my self upon, to collect the data set forth, in hopes of knowing what is.

And point after point fails me.

Bending, misshapen forms retreating and becoming foundation no more.

The naught of everything evaporating before these wearied wandering eyes.

And so it is, full circle, this numbing point…

I am endless in this reasoning and there is no resolution where thought breathes.

I am but a buttered lady, slipping through the spokes of motion.

I am that honeydew drop immersed in the morning light and made as vapor for the taking.

Everywhere abounds insight and happenings.

Yet nothing ends.

Nothing begins.

And all is left as forgery revealed; mysterious markings of what would be masterpieces; only they are devalued in the discovery of falsehood.

539: I Am Too

I am Too
Sensitive
Honest
Emotional
Silly
Sad
Excited
Despondent
Straight Forward
Detailed
I am Too
Affected
Exaggerated
Off Center
Realistic
Hopeful
Critical
Logical
Worried
Frazzled
Careful
I am Too
Serious
Anxious
Self-focused
Self-involved
Introspective
Deep
Frank
Different
Obsessive
I am Too
Open
Transparent
Real
Intense
Forgiving
Helpful
Giving
Understanding
Trusting
I am Too
Confused
Overwhelmed
Naïve
Nervous
Stuck
Controlling
Impatient
Impulsive
Invasive
Needy
Clingy
I am Too
Talkative
Hyper
Sick
Tired
Attached
Aloof
In hiding
I am Too
Quiet
Distant
Inside my head
Contemplative
Analytical
Repetitive
Cyclic
Fearful
Determined
Pattern-seeking
I am Too
Hard on myself
Mean to myself
Unforgiving of myself
Self-punishing
Self-loathing
Pretending
Aching
Hurting
Wishing
Feeling
Isolated
Terrified
Reaching
Wanting
Dying Inside
I am Too

538: Assumption Junction… the truth of my Aspie words

People who don’t know me well, and some who do, sometimes jump to conclusions and assume things about my intention and motivation behind my writing that aren’t necessarily true. I write to write. It’s largely a processing mechanism.

The problem is that who ever is reading my words will interpret said writing based on his or her own opinions and prior knowledge. In other words, if someone is naturally confrontational then the chances of this same person thinking I am being confrontational in my writing is high. Or the opposite might be true, where a confrontational person might make a judgment call that I am weak because I am not displaying a countering personality. Wherein I might be explaining something for a thousand different strands of reasons, all of which pop in and out of my head through the process of scribing, he or she will make an abrupt conclusion about my intentions that includes perhaps two or three primary reasons (again, based on his or her experience). The worst part of it is when this said party then turns and suggests he/she knows what I was trying to say and why I was trying to say it. When truth be told, I have already played over in my busy mind a hundred times why I said what I said, how I said it, and why I said it.

People don’t often know how long I take to write a response. When I am dealing with an out-of-my-comfort-zone response to someone, for example via email or instant messaging to someone who I do not have a close relationship with about a subject I deem important, I take a very long time to write, upwards to an hour for revisions, rewriting, rewording, reworking, and rereading. I stim through the editing process itself to calm my anxiety over the situation. If I am triggered, particularly by what I interpret as an injustice towards another, it takes me even more time to write. What is difficult then is when I am accused by another to have written something in haste, without thought, at length, or without consideration to the audience or the communication rules of some company or organization. It is hard to digest this type of assumption because nothing is further from the truth. The receiver does not understand that I have painstakingly relived scenario after scenario of possible outcomes of how my words might be interpreted. That I have tried my hardest to follow any rules of communication. That I have pushed myself to shorten all I want and feel the need to say. That I have left out more than 75% of what is really on my mind, and sometimes much more than that.

In example of the revision process, I will write a sentence and then imagine the person/audience reading my words. I then evaluate their potential reaction and adjust in hopes of causing the least amount of miscommunication. It’s not about people-pleasing or avoiding conflict, it’s more so conveying my truth as I see it in the most gentle and kind way (and rule-following way) as possible. To do this I switch around words, I alter adjectives, I choose new phrases, and I clarify repeatedly through transposing my words and readjusting. A draft will be rewritten more times than I can count, and large sections deleted, redone, and deleted again. It never seems to be right enough. Not in a perfectionist way, but in a ‘this is my heart’ way.

I discern ahead of time feasible misgivings or upset on the upcoming reader’s part. This process is exhausting at all levels and causes physical and emotional pain. The most troublesome hurt follows if and when the intended recipient responds in one of the many non-constructive ways I had foreseen him/her responding, and then I see all my efforts were for naught.

People think that the length of my writing equates debate, that length = ego, that length = confusion, that length = selfishness, that length = not caring about the recipient, that length = non-professionalism, etc. etc. I don’t write at length to get my point across or to prove something. Once again, I write to clarify my inner workings and to let the person know my intentions fully. If a part of information isn’t shared that I believe at the time is a pertinent piece of the subject at hand I feel as if I am being deceitful, even as I logically know that by definition I am not. No amount of reasoning fixes this.

I over explain myself in written word as much as I do in spoken word. Particularly when emotionally triggered. And such triggers can come from a variety of sources, especially from others’ behaviors that are not privy to the autistic experience. With all my spiritual studies and practices, a part of me would like to say I am ‘above/ being triggered, but that’s hogwash. I am neurologically wired to be more prone to fight-or-flight responses. (And in my case biologically/physically wired that way, as well.) So, I accept that I get triggered.

It is cumbersome and downright dangerous for me to write (without a lot of editing) after I have been triggered. I cannot help but let some of the emotional upset leak through. As much as I try to pamper and sugar coat the words, this ache of being triggered comes out. And then, even with careful revision, the trigger leaks through. In response, I am evaluated based on the characteristics of my writing. I am labeled emotional, reactive, too concerned, too sensitive, etc. This adds to the initial trigger, and to the continual compounded feelings of being misunderstood and misinterpreted throughout my life. Thus is the prospect of such an invisible disability when held by a person that primarily seems to function at a high-level of ‘normalcy.’

People with autism usually get me. And I in turn get them. I am the first to smile when someone sends me a very long online message. Usually the person is apologizing ahead of time for what they label a ‘rambling.’ And usually I am skimming some of it and finding the golden nuggets of what was written. I get it. I am the same way. I am going on and on about a particular subject whilst at the same time stepping back and observing myself and thinking: Why am I doing this? Sorry! Still, I do it. I process and I stim through words.

I can go through periods of purposeful semi-muteness, wherein I try not to talk at length to anyone. I am mad at myself and the world at that point. And don’t think I can function unless I change who I am, at least outwardly. Usually this state by nature turns me into some type of hermit, where I am only talking to maybe one person I know. It’s the way I retreat and I guess hide from the world. When I have had enough of me and I believe the world has had enough of me, I burrow like a wounded animal licking my wounds and punishing myself for having any form of self-pity and the brain I do. Not long after I come out of it and I am a babbling brook once again.

People who are wired like me understand. They know the ebb and flow of being this self. They know that even we get tired of the non-stop jabber and thoughts and processing. And they, for the most part, accept me unconditionally, with so-called flaws and all. It’s the others that just don’t get it whom I have a difficult time repeatedly associating with.

It’s like this, supposing I am blind: I am blind. I need a different form of communication format to write to you. It’s not typical. It’s not traditional. And it’s accepted. After all you can SEE I am blind.

And then it’s like this: I have autism. I need a different form of communication format to write to you. It’s not typical. It’s not traditional. And it’s not accepted. After all you can’t SEE my disability and I should be able to change. I can adjust. I can conform. I can just communicate like you do. Follow the rules and protocol. And if I cannot then I must be inconsiderate, impossible to train, or stubborn.

But it’s not that way. It’s just not. I cannot adapt without modifications and understanding anymore than the person with a visible disability can. If I was an amputee I wouldn’t be able to grow legs. If I was permanently deaf, my speech would be affected. If I have autism, my brain is different. It doesn’t just change based on suggestion. It’s an impossibility.

Sam’s book Everyday Aspergers is now available internationally on Amazon.

More information can be found at her company: myspectrumsuite.com

530: Just Three Minutes of My Day (Aspie Exhaustion)

Ironically, after posting about ‘small talk’ on a social media site, I was in Trader Joe’s grocery store last night and the male checker locked eyes with me and asked, with a toothy-grin, “So, what have you been working on?”
What have I been working on? My face squished up in confusion.

Number one thought barged in: Glad I am wearing a winter hat to hide my burning red ears.

The bombardment of thoughts that followed went something like this: What does this question mean? I am embarrassed. Can he tell I am beet red? I wonder if it bothers him he is balding. I wonder if he is single. What does he think of me? Why would he ask this? What am I supposed to say? He is staring at me. Can he tell I am embarrassed? What is he thinking? How should I respond? I am taking too long. Do I look autistic, shy, or stuck up? I don’t want to look at him. I don’t want him to think I am in a bad mood or mean. I am not. I thought I was better equipped than this. I thought I was prepared. I bet I look stuck up. Just like in high school, always misinterpreted. The people in line are looking at me. I wonder if they are married? I wonder if they can tell I am so embarrassed. They are frowning. Are they tired or sad, or mad at me? I look flustered. How much time has gone by? Why did I choose the shortest line and not the line with the female checker? (That’s about half the thoughts, anyhow.)

Only seconds had past, but in my reality it seemed hours.

I refocused. All l I could think to say was: “What made you ask that question?”

I realized immediately that I sounded evasive, suspicious, and even perhaps flirtatious. Not my intention.
By this time, I wondered if he was perhaps psychic, and could sense I was working on many projects.

The checker responded quickly and easily, in a manner that screamed ‘this is so easy for me. “Oh, I was just making small talk to pass the time.”

Small talk. Small talk. Small talk! Should I explain there isn’t such a thing in my mind?

He stared at me, and I knew as the blood-shot through my cheeks and up to the bridge of my nose that in this communication game it was my turn to speak. I stuttered some, and then formed some shaky sentences about my new job and such, remembering of course, with screaming reminders in my head, to ask him about himself. By the time the three minutes were over and the checker had scanned and bagged my ten items, I felt I’d been to war and back.

Sam Craft, Everyday Aspergers