Day 204: F*** the Dark Voice

F*** the Dark Voice

I’m sick of your taunting, as if you are right, as if you even know

You are slime, like at the bottom of my fish tank, only more fouler, like the smell of the runs

You linger there, in your toilet bowl of scummy mess and await me like the monster Grendel

I do not like you, not one bit, and would hate you, if you were even hate-able

But you’re not, not worth the hate

I wouldn’t decorate you with the compliment

You foul creature I despise

If I could pick you apart, I would start at your heart, or where your heart should be

But you only have a shadowed center, a phantom form, something I cannot touch

That no one can reach

You hide in not existing

You hide in not being there

But yet you taunt louder than a thousand soldiers stomping across enemies’ graves

You don’t even know me

But I think you do

You can’t even see me

But I think you can

You are such a mystery, that if I could admire the maggots crawling out of my rotting dog’s flesh, then I’d admire you

In the way I look at fungus on the skin, or in the way I feel my heart skip a beat

I would admire you with fear and disgust

And that is what you wish

That is what you ingest

Complete fear and disgust

You long for me to take my own self apart, piece by piece

To fear my own body, my own form

Because you are jealous in your non-existence

If you could extinguish me, you can then live

But I laugh at you, you creeping ghost of dark

For I am light, and I shall burn you to a crisp

Take you out before your spindly tentacles reach me

And I shall shine upon your evil breath

The way the scope of knowledge shines against the tainted rulers of masses

And we together shall rise and wash you out

No matter you are invisible and dark

No matter you are unreachable

We shall find you in our souls and bleed you out

And feed you to the tigers of fish

So they can nibble upon you and fertilize the world with your drought

Be gone great master of trickery and ghastly thoughts

Be gone all of your ways that torment this being

For I am no longer alone

And my light multiplied shall corrupt your plans

And leave you helpless, spineless and begging for mercy

And then, in our light, we will scoop you up

Babe in arms, and examine your sweetness, your words, your outcry

And find ourselves staring back with the tender longing for love

~~~~

Samantha Craft, August 2012

Day 203: This is Boring. This is Pain.

This is boring. This is pain.

Somedays, like today, I struggle to function.

Every day is a huge challenge for me; something that I seldom talk about or mention. Just getting out of bed takes a lot of effort. I don’t like to write about my  pain and various physical “conditions,” as I am not my conditions, I am not an illness, and I am definitely not pain. I don’t like to talk about everything I must do to keep myself moving.  But I am. Mainly because I was on the couch all day and had a heck of a lot of time to process. Plus, a little boring never hurt anyone.

There isn’t a moment I don’t feel something askew in my body. Because I am so sensitive, even a hair in my face can irritate me, even cause a rash. My own hair! My nose constantly itches. Sometimes my eyes. All my joints seem to hurt. But I can’t tell if it’s my joints, my muscles, or something else. And neither can the doctors. Right now the couch hurts my bottom. The laptop desk hurts my thighs. And at least ten different areas in my body are either in pain or irritated or itching.

I’ve been diagnosed with at least ten syndromes or illnesses. Nothing is a definite. Nothing truly proven beyond a long list of symptoms. At this point I could have inherited something, suffer as a result of multiple injuries/accidents, been prone to pain from stress or environmental toxins, or made everything up in my head.

Sometimes I like to think everything is in my head. At least I have some control that way. The older I get, the more I realize my whole reality is in my head, anyhow. All my thoughts control my mood. My eyes what I see. My ears what I hear. My brain what I take in, recall, process, judge. I’m sure my spirit plays some part, as well as my second-brain (the intestines), but seriously, so much goes on in my head to begin with.

There are lots of things I have to do in order to function. If I skip any of them, or if something is off, I am pretty much certainly going to be in bed or on the couch for a large period of time. Each day I wake up, I feel like I am preparing for battle: a battle just to survive the day without collapsing in great fatigue and pain.

Here is a list I keep in mind to help manage my days.

1)      Shower; something about the hot water on my body rejuvenates me and reduces my muscle pain. If I don’t shower I feel extra greasy and itchy. If I don’t shower, I feel increased pain all day. Problem is, sometimes I’m too tired or fatigued to even think about showering. I have to force myself to. I don’t like showers. They are boring.

2)      Pig hormone; for my hypothyroid I have to take a natural pig hormone. I haven’t eaten pork since sixth grade (my decision). So at first the thought of ingesting any part of a pig, felt odd, but then I figured it was the pigs way of paying me back. Pig karma, for not eating them for so long. Trouble is this hormone gives me the skin of a fifteen year old. I appreciate the healthy glow, but the sticky oil and chin breakouts, I could do without. Seems I’ll take longer to get all wrinkly, though. So, I guess that’s a bonus, even though my skin is worse than my teenage sons’.

3)      Various supplements; if I go too long without any supplement, I feel it somehow. However, one benefit of being me is that I’m very sensitive to what is happening in my body. In September, it will be two years since I’ve had a cold or flu bug. I can feel a cold coming on. I feel it in every joint in my body, like I’ve been poisoned. Feel it before most people do. And when I do, I load up on Vitamin C and Vitamin D. So far I’ve managed to keep from getting sick. Fingers crossed and knocking on wood. I can tell things about me, too. If my eye sight is growing worse, I need more magnesium. If my leg twitches, I need my multivitamin. If I am tired, I need to take my iron and eat a little fish.

4)      Diet; it’s easier for me to list what I can eat, than what I cannot. I can eat nuts, fish, vegetables, and fruit. Everything else gives me some reaction. Chocolate gives me rashes and makes me break out. Dairy gives me rashes. Wheat makes me bloated and depressed. Artificial anything gives me stomach issues. Most foods in general cause me extreme fatigue immediately after eating. If I am going to eat, I usually have a small portion of salad. Grains are going to make me tired. Wine hurts the salivary glands in my neck. Beer gives me a stomach ache. I am definitely high-maintenance. If I am not careful, after a meal, I will be in pain and fatigued, and have to take a nap.

5)      Liquid; I need to have lots of water and green tea. The green tea gives me the boost to function in the morning and alleviates my chronic fatigue. Green tea also lessens my pain. If I have coffee I go into a spastic mode. If I want to clean I have a quarter cup of coffee in the morning. If I drink coffee I will be up past midnight and have lots of cool ideas, or what seem to be cool ideas, but are really elaborated ramblings that don’t prove much of a point. Coffee makes me paranoid, worried, and stressed. Oh, and agitated.

6)      Exercise and movement; I have to move. Once I sit down, it is very hard for me to get back up. Especially if I combine eating in the morning with sitting on the couch. And forget it if I eat, sit on the couch, and skip my shower—I’m pretty much down for the count on those days. If I walk my serotonin levels increase and my mood is better. Everything is brighter. If I walk far, lately five to seven miles in a day, it is easier for me to sleep deeply at night. Fatigue sets in badly about 3:00 pm, so if I can walk then, sometimes a second walk, I can keep from sliding into the unable-to-move zone.

7)      Weather; if there is a lot of barometric pressure from clouds then I have a hard time moving. Also, if it is chilly, my bones ache. At least it feels like my bones ache. On cloudy days (most days in Washington) I need to make sure I take care of myself; if I do not, I will not function. On cold days the far infrared sauna is helpful. But sometimes I am too fatigued to go into the sauna. The thought of having to undress, shower, and then dress again seems overwhelming. I worry about how I will keep up my walking with the end of summer coming. I have to find ways to exercise. We have an indoor treadmill which I avoid. And a stationary bike I haven’t made friends with, either.

8)      Sleep; if I do not get enough sleep, I will have increased pain and fatigue two days following. If my sleep is interrupted and/or not restful, the next days will be harder for me to move. I am sensitive at night. I need a special mattress for my body to feel comfortable, must wear long sleeves and long pants, regardless of the weather, or I itch, and need to use earplugs. All noises bother me. Particularly banging, high pitched noise, the ticking of clocks, water of a fish tank, voices, television, and snoring.

9)      Stress; if my stress level is medium to high, I will have instant pain. People’s moods affect my pain. Screaming, whining, loud noises, yelling, fighting, and the like increase my pain. Unwelcomed news increases my stress. Lies are a big trigger for me.

10)   Thoughts; if something is out of the ordinary, if plans get changed suddenly, if I notice something on someone’s body that is out of the ordinary, then my thoughts may overwhelm me to the point of exhaustion. My thoughts can trigger sudden onset of pain. When something I am looking forward to is suddenly canceled I am fine. But when something happens I wasn’t expecting, no matter how pleasant, I can get overwhelmed. Skin “issues” are a big trigger for me. I have an odd rash around my eye. I worried and fretted today about my eye, and collapsed on the couch from fatigue. I catastrophize in my mind, thinking of worse case scenarios. My sons have mosquito bites all over them from one hungry house bug we’ve yet to catch. And my chin is breaking out from that pig hormone. All this increases my thoughts.

11)   PMS; oh yes, the lovely word. The five days of hell for me. All my pain increases, fatigue doubles, negative thoughts increase, and basically I think the whole world hates me. My face and stomach swell up and I look and feel like the Pillsbury Dough Boy. This makes it harder for me to leave the house and exercise, which can lead to further fatigue and bring on depression. You’ll notice I do not post photos of me during this time. I also get cravings for chocolate! Not something I should really be eating.

12)   Chemicals; I have to avoid all chemicals in products and makeups. Thus the frizzy hair and minimal makeup. I get instant pain from inhaling chemicals in all forms. I have to avoid places with new carpet, paint, flooring, or other odors. Plastic smells are the worse.

13)   Information; I have to be careful what I read or watch. News or a film can deeply affect my mood, which triggers…you guessed it…my pain. People close to me have learned not to share sad news that doesn’t directly affect me. Some visuals I’ll never be able to get out of my mind.

14)   Noise; certain genres of music physically hurt my body. Dogs barking hurts my ears. Loud cars, especially motorcycles hurt. Too many people talking all at once, large gatherings with lots of conversations at the same time, all cause me trouble. Noise can affect me for the entire day, and may mean I have to stay inside the next day to recuperate.

15)   People; people affect me in all sorts of ways: their mood, their appearance, their smell, their mannerisms, voice, attitude, energy-level, facial expressions, spoken words. If my feelings get hurt, which happens more times than I’d care to ever admit, then I typically will feel pain somewhere in my body. If a person is sick, I might get phantom symptoms, even if I don’t know they are sick. If a person is happy or sad, I might start to feel that same way.

16)   Dread; if I am dreading something, particularly medical news, doctor appointments, or an upcoming outing, I will have trouble concentrating and relaxing. I will loop in my mind and spin in my thoughts. This will cause tension in my body, which leads to other problems. I have to get blood tests done about every six months to check my vitamin, protein, iron, and hormone levels. The thought of annual or biannual appointments for anything, sets me into a mini-panic.

So that’s my boring list.

This is boring.

This is pain.

Great movie Sliding Doors to watch when you are stuck on a couch!

And dang if that mosquito didn’t just buzz in my ear!!!

Day 200: Goodbye Sunshine

For day 200 I couldn’t think of anything better than James Blunt singing and stripping! Now that’s hot (and snowy cold).

A fictional piece of writing based on emotions of the past.

Goodbye Sunshine

There were small dresses hovering above.  Light spilled in through the bottom of the closet door in the shape of a crescent moon.  From where I sat, I let the moon kiss the back of my hand.  Then I stretched my hand through the narrow crack beneath the door and wiggled my tiny fingers in the space outside the darkness.  After counting to three, I pulled my hand back and returned it to the thick warmth of my dog’s fur.

An hour earlier, draped in my yellow shooting-star-patterned nightgown, I head reached across the dining table, and said, “One plate for you handsome Mr. Thumper and one for you dashing Blue Pony.”  My animals stared back at me and smiled then, Pony resting on his side in the side chair, because he kept falling down with his bad balance, and Thumper on his tail with his paws on the table.  “No arms on the table,” I said, and placed Thumper on his rump.  “That’s better. Did you wash your hands?”  They nodded.  “Did you say grace?”  They nodded again.  “Good,” I praised, picking up my red plastic piggybank from my chair and taking a seat.

“Good job,” Mother said, as she walked in through the kitchen door.  She plopped down a platter of cold meatloaf and a blue bowl of buttered potatoes, and then lit up four candles.

I held my plastic piggybank up to my ear.  “What’s that? Let me see.”  I looked up.  “He wants to know if he can come to the sitter’s on Monday.”

 

The rest of this story is in the book 🙂

 

© Everyday Aspergers, 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. https://aspergersgirls.wordpress.com

 

Day 197: Ten Traits

This post has never had the honor of its own day. So for day 197 I am reposting this. This post has brought hundreds of people together, and has been viewed by thousands and thousands of people all over the world. To see hundreds of comments go to this link, where the original post can be found. https://aspergersgirls.wordpress.com/2012/02/10/aspergers-traits-women-females-girls/

Ten Traits

1) We are deep philosophical thinkers and writers; gifted in the sense of our level of thinking. Perhaps poets, professors, authors, or avid readers of nonfictional genre. I don’t believe you can have Aspergers without being highly-intelligent by mainstream standards. Perhaps that is part of the issue at hand, the extreme intelligence leading to an over-active mind and high anxiety. We see things at multiple levels, including our own place in the world and our own thinking processes. We analyze our existence, the meaning of life, the meaning of everything continually. We are serious and matter-of-fact. Nothing is taken for granted, simplified, or easy. Everything is complex.

2) We are innocent, naive, and honest. Do we lie? Yes. Do we like to lie? No. Things that are hard for us to understand: manipulation, disloyalty, vindictive behavior, and retaliation. Are we easily fooled and conned, particularly before we grow wiser to the ways of the world? Absolutely, yes. Confusion, feeling misplaced, isolated, overwhelmed, and simply plopped down on the wrong universe, are all parts of the Aspie experience. Can we learn to adapt? Yes. Is it always hard to fit in at some level? Yes. Can we out grow our character traits? No.

3) We are escape artists. We know how to escape. It’s the way we survive this place. We escape through our fixations, obsessions, over-interest in a subject, our imaginings, and even made up reality. We escape and make sense of our world through mental processing, in spoken or written form. We escape in the rhythm of words. We escape in our philosophizing.  As children, we had pretend friends or animals, maybe witches or spirit friends, even extraterrestrial buddies. We escaped in our play, imitating what we’d seen on television or in walking life, taking on the role of a teacher, actress in a play, movie star. If we had friends, we were either their instructor or boss, telling them what to do, where to stand, and how to talk, or we were the “baby,” blindly following our friends wherever they went. We saw friends as “pawn” like; similar to a chess game, we moved them into the best position for us. We escaped our own identity by taking on one friend’s identity. We dressed like her, spoke like her, adapted our own self to her (or his) likes and dislikes. We became masters at imitation, without recognizing what we were doing. We escaped through music. Through the repeated lyrics or rhythm of a song–through everything that song stirred in us. We escaped into fantasies, what cold be, projections, dreams, and fairy-tale-endings. We obsessed over collecting objects, maybe stickers, mystical unicorns, or books. We may have escaped through a relationship with a lover. We delve into an alternate state of mind, so we could breathe, maybe momentarily taking on another dialect, personality, or view of the world. Numbers brought ease. Counting, categorizing, organizing, rearranging. At parties, if we went, we might have escaped into a closet, the outskirts, outdoors, or at the side of our best friend. We may have escaped through substance abuse, including food, or through hiding in our homes. What did it mean to relax? To rest? To play without structure or goal? Nothing was for fun, everything had to have purpose. When we resurfaced, we became confused. What had we missed? What had we left behind? What would we cling to next?

4) We have comorbid attributes of other syndromes/disorders/conditions. We often have OCD tendencies (Obsessive Compulsive Disorder), sensory issues (with sight, sound, texture, smells, taste), generalized anxiety and/or a sense we are always unsafe or in pending danger, particularly in crowded public places. We may have been labeled with seemingly polar extremes: depressed/over-joyed, lazy/over-active, inconsiderate/over-sensitive, lacking awareness/attention to detail, low-focus/high-focus. We may have poor muscle tone, be double-jointed, and lack in our motor-skills. We may hold our pencil “incorrectly.” We may have eating disorders, food obsessions, and struggles with diet. We may have irritable bowel, Fibromyalgia, chronic fatigue, and other immune-challenges. We may have sought out answers to why we seemed to see the world differently than others we knew, only to be told we were attention seekers, paranoid, hypochondriacs, or too focused on diagnoses and labels. Our personhood was challenged on the sole basis that we “knew” we were different but couldn’t prove it to the world and/or our personhood was oppressed as we attempted to be and act like someone we were not. We still question our place in the world, who we are, who we are expected to be, searching for the “rights” and “wrongs;” and then, as we grow and realize there are no true answers, that everything is theory-based and limited, we wonder where to search.

5) We learn that to fit in we have to “fake” it. Through trial and error we lost friends. We over-shared, spilling out intimate details to strangers; we raised our hand too much in class, or didn’t raise our hand at all; we had little impulse control with our speaking, monopolizing conversations and bringing the subject back to ourselves. We aren’t narcissistic and controlling–we know we are not, but we come across that way. We bring the subject back to ourselves because that is how we make sense of our world, that is how we believe we connect. We use our grasp of the world as our foundation, our way of making sense of another. We share our feelings and understandings in order to reach out. We don’t mean to sound ego-centered or over zealous. It’s all we know. We can’t change how we see the world. But we do change what we say. We hold a lot inside. A lot of what we see going on about us, a lot of what our bodies feel, what our minds conjecture. We hold so much inside, as we attempt to communicate correctly. We push back the conversational difficulties we experience, e.g., the concepts of acceptable and accurate eye contact, tone of voice, proximity of body, stance, posture–push it all back, and try to focus on what someone is saying with all the do’s and don’ts hammering in our mind. We come out of a conversation exhausted, questioning if we “acted” the socially acceptable way, wondering if we have offended, contradicted, hurt, or embarrassed others or ourselves. We learn that people aren’t as open or trusting as we are. That others hold back and filter their thoughts. We learn that our brains are different. We learn to survive means we must pretend.

6) We seek refuge at home or at a safe place. The days we know we don’t have to be anywhere, talk to anyone, answer any calls, or leave the house, are the days we take a deep breath and relax. If one person will be visiting, we perceive the visit as a threat; knowing logically the threat isn’t real, doesn’t relieve a drop of the anxiety. We have feelings of dread about even one event on the calendar. Even something as simple as a self-imposed obligation, such as leaving the house to walk the dog, can cause extreme anxiety. It’s more than going out into society; it’s all the steps that are involved in leaving–all the rules, routines, and norms. Choices can be overwhelming: what to wear, to shower or not, what to eat, what time to be back, how to organize time, how to act outside the house….all these thoughts can pop up. Sensory processing can go into overload; the shirt might be scratchy, the bra pokey, the shoes too tight. Even the steps to getting ready can seem boggled with choices–should I brush my teeth or shower first, should I finish that email, should I call her back now or when I return, should I go at all? Maybe staying home feels better, but by adulthood we know it is socially “healthier” to get out of the house, to interact, to take in fresh air, to exercise, to share. But going out doesn’t feel healthy to us, because it doesn’t feel safe. For those of us that have tried CBT (Cognitive Behavior Therapy), we try to tell ourselves all the “right” words, to convince ourselves our thought patterns are simply wired incorrectly, to reassure ourself we are safe…the problem then becomes this other layer of rules we should apply, that of the cognitive-behavior set of rules. So even the supposed therapeutic self-talk becomes yet another set of hoops to jump through before stepping foot out of the house. To curl up on the couch with a clean pet, a cotton blanket, a warm cup of tea, and a movie or good book may become our refuge. At least for the moment, we can stop the thoughts associated with having to make decisions and having to face the world. A simple task has simple rules.

7) We are sensitive. We are sensitive when we sleep, maybe needing a certain mattress, pillow, and earplugs, and particularly comfortable clothing. Some need long-sleaves, some short. Temperature needs to be just so. No air blowing from the heater vent, no traffic noise, no noise period. We are sensitive even in our dream state, perhaps having intense and colorful dreams, anxiety-ridden dreams, or maybe precognitive dreams. Our sensitivity might expand to being highly-intuitive of others’ feelings, which is a paradox, considering the limitations of our social communication skills. We seek out information in written or verbally spoken form, sometimes over-thinking something someone said and reliving the ways we ought to have responded. We take criticism to heart, not necessarily longing for perfection, but for the opportunity to be understood and accepted. It seems we have inferiority complexes, but with careful analysis, we don’t feel inferior, but rather unseen, unheard, and misunderstood. Definitely misunderstood. At one point or another, we question if in fact we are genetic hybrids, mutations, aliens, or  displaced spirits–as we simply feel like we’ve landed on the wrong planet. We are highly susceptible to outsiders’ view points and opinions. If someone tells us this or that, we may adapt our view of life to this or that, continually in search of the “right” and “correct” way. We may jump from one religious realm to another, in search of the “right” path or may run away from aspects of religion because of all the questions that arise in theorizing. As we grow older, we understand more of how our minds work, which makes living sometimes even more difficult; because now we can step outside ourselves and see what we are doing, know how we our feeling, yet still recognize our limitations.  We work hard and produce a lot in a small amount of time. When others question our works, we may become hurt, as our work we perceive as an extension of ourselves. Isn’t everything an extension of ourselves–at least our perception and illusion of reality? Sometimes we stop sharing our work in hopes of avoiding opinions, criticism, and judgment. We dislike words and events that hurt others and hurt animals. We may have collected insects, saved a fallen bird, or rescued pets. We have a huge compassion for suffering, as we have experienced deep levels of suffering. We are very sensitive to substances, such as foods, caffeine, alcohol, medications, environmental toxins, and perfumes; a little amount of one substance can have extreme effects on our emotional and/or physical state.

8) We are ourselves and we aren’t ourselves. Between imitating others and copying the ways of the world, and trying to be honest, and having no choice but to be “real,” we find ourselves trapped between pretending to be normal and showing all our cards. It’s a difficult state. Sometimes we don’t realize when we are imitating someone else or taking on their interests, or when we are suppressing our true wishes in order to avoid ridicule. We have an odd sense of self. We know we are an individual with unique traits and attributes, with uniques feelings, desires, passions, goals, and interests, but at the same time we recognize we so desperately want to fit in that we might have adapted or conformed many aspects about ourselves. Some of us might reject societal norms and expectations all together, embracing their oddities and individuality, only to find themselves extremely isolated. There is an in between place where an aspie girl can be herself and fit in, but finding that place and staying in that place takes a lot of work and processing. Some of us have a hard time recognizing facial features and memorize people by their clothes, tone of voice and hairstyle. Some of us have a hard time understanding what we physically look like. We might switch our preference in hairstyles, clothes, interests, and hobbies frequently, as we attempt to manage to keep up with our changing sense of self and our place. We can gain the ability to love ourselves, accept ourselves, and be happy with our lives, but this usually takes much inner-work and self-analysis. Part of self-acceptance comes with the recognition that everyone is unique, everyone has challenges, and everyone is struggling to find this invented norm. When we recognize there are no rules, and no guide map to life, we may be able to breathe easier, and finally explore what makes us happy.

9) Feelings and other people’s actions are confusing. Others’ feelings and our own feelings are confusing to the extent there are no set rules to feelings. We think logically, and even though we are (despite what others think) sensitive, compassionate, intuitive, and understanding, many emotions remain illogical and unpredictable. We may expect that by acting a certain way we can achieve a certain result, but in dealing with emotions, we find the intended results don’t manifest. We speak frankly and literally. In our youth, jokes go over our heads; we are the last to laugh, if we laugh at all, and sometimes ourselves the subject of the joke. We are confused when others make fun of us, ostracize us, decide they don’t want to be our friend, shun us, belittle us, trick us, and especially betray us. We may have trouble identifying feelings unless they are extremes. We might have trouble with the emotion of hate and dislike. We may hold grudges and feel pain from a situation years later, but at the same time find it easier to forgive than hold a grudge. We might feel sorry for someone who has persecuted or hurt us. Personal feelings of anger, outrage, deep love, fear, giddiness, and anticipation seem to be easier to identify than emotions of joy, satisfaction, calmness, and serenity. Sometimes situations, conversations, or events are perceived as black or white, one way or another, and the middle spectrum is overlooked or misunderstood. A small fight might signal the end of a relationship and collapse of one’s world, where a small compliment might boost us into a state of bliss.

10) We have difficulty with executive functioning. The way we process the world is different. Tasks that others take for granted, can cause us extreme hardship. Learning to drive a car, to tuck in the sheets of a bed, to even round the corner of a hallway, can be troublesome. Our spacial awareness and depth-awareness seems off. Some will never drive on a freeway, never parallel park, and/or never drive. Others will panic following directions while driving. New places offer their own set of challenges. Elevators, turning on and off faucets, unlocking doors, finding our car in a parking lot, (even our keys in our purse), and managing computers, electronic devices, or anything that requires a reasonable amount of steps, dexterity, or know-how can rouse in us a sense of panic. While we might be grand organizers, as organizing brings us a sense of comfort, the thought of repairing, fixing, or locating something causes distress. Doing the bills, cleaning the house, sorting through school papers, scheduling appointments, keeping track of times on the calendar, and preparing for a party can cause anxiety. Tasks may be avoided. Cleaning may seem insurmountable. Where to begin? How long should I do something? Is this the right way? Are all questions that might come to mind. Sometimes we step outside of ourselves and imagine a stranger entering our home, and question what they would do if they were in our shoes. We reach out to others’ rules of what is right, even in isolation, even to do the simplest of things. Sometimes we reorganize in an attempt to make things right or to make things easier. Only life doesn’t seem to get easier. Some of us are affected in the way we calculate numbers or in reading. We may have dyslexia or other learning disabilities. We may solve problems and sort out situations much differently than most others. We like to categorize in our mind and find patterns, and when ideas don’t fit, we don’t know where to put them. Putting on shoes, zipping or buttoning clothes, carrying or packing groceries, all of these actions can pose trouble. We might leave the house with mismatched socks, our shirt buttoned incorrectly, and our sweater inside out. We find the simple act of going grocery shopping hard: getting dressed, making a list, leaving the house, driving to the store, and choosing objects on the shelves is overwhelming.

This list is based on workshops, videos, literature, personal accounts, and my own experience. Females with Asperger’s Syndrome present themselves very differently than males. This is not an all-encompassing list. It’s not a criteria. It’s limiting and bias-based, as it’s only my view. It is my current truth. I don’t claim to be an expert or professional….but I do know an awful lot about the subject. I hold a Masters Degree in Education, have Aspergers, one of my sons has Aspergers, and I have several graduate-level classes in counseling psychology…I guess I am sort of an expert, after all. ~ Sam Craft

© Everyday Aspergers, 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited.
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Day 195: Where I Stand Naked

One un-deep thought by Sam Craft: “I had such a good hair day yesterday, I just don’t know how I can live up to that today.”

And now the deep:

My fixations consume me. They bring me to a place that no one else can reach or touch. A place I feel safe and not vulnerable: a place of discovery, of grand interest, of dreams, of dynamite thoughts and imaginings, of newness and possibilities. My fixation is like a light switch to me. With my intense focus, I am able to turn off the rest of the world—particularly the problems and woes. I can at last breathe in and stop fretting.

For the most part, when I have an intense focus I feel alive and with purpose. There seems to be a reason for living. When I do not have a fixation, I feel lost and unprepared for the day. My special interest is like a backpack filled with vital life supplies for me.

Trouble is, eventually, about every three to five months, my fixation/special interest switches. Just out of the blue. Bam! I wake up, and the fixation is entirely gone. Wiped clean. Think window cleaner to bathroom mirror. One swipe and the toothpaste splatters that you’ve been staring at for ages are gone. And you wonder why you stared at those splatters for so long! Unless you are anal and wipe your mirror everyday…which is so not me.

With the clean wipe, every bit of desire and hunger to learn or study or explore the topic is gone. It’s like a thief in the night came and stole my impulse.

I’ve gotten to the point now that when a fixation starts, I can step back, outside myself, look at the calendar, and track pretty much exactly when the fixation will leave.

This tendency to fixate made relationships with men when I was younger rather difficult. I’d have a giant crush on someone. Hugely so. Bleed out poetry and breathe lust filled thoughts, and then wake up to discover (usually after winning a guy over) that I truly didn’t even like the person. Then the challenge began, as I was so desperate to not be alone, that I’d stay with the guy even though they now gave me the creeps. Nothing like kissing a guy who makes you cringe.

Since being married my fixations are typically not other men, which I’m sure my spouse is relieved to know.  However the fixations are still there, and strong as ever. I move through interests like one might move through fad diets. One month this, three months later that. The funny thing is, that each time a new fixation comes, I think: This is the one! This is what I’ve been waiting for. Kind of like I did with men.

Truth be told, my latest fixation was blogging. And wouldn’t you know it, about five months have passed, and I woke up yesterday with this void and lack of desire to post. A new fixation has taken over. That of walking and photography. And the old fixation, that of blogging, has ended up in a pile with some of my other past interests: Farmville, slickdeals.net. I’d like to add cleaning to the list…to put it in a pile, too. But cleaning has rarely been a fixation for more than a day, and that’s typically when the house is so dang messy, I have to clean to breathe.

Last year my fixations included reading over a hundred spiritual books, Buddhist studies and retreats, turning a room in our house into an office for my spiritual coaching business, planning retreats, and studying techniques for spiritual readings. I lived and breathed spirituality. Until I woke up in late May of last year and the fixation was entirely gone. Presto…Emptied of all desire. Then I switched to getting a degree in counseling. And that became my fixation. In my first college course, I read twice the required readings, and delved into every project, spending ten hours on an assignment, when clearly one hour would have been adequate. The counseling fixation ended in February. And then the door opened to blogging. Blogging was like a whirlpool that I gladly leaped into. And now I find myself, just coming up for air, and standing on the shoreline all sopping wet and confused.

I don’t want to blog anymore. The desire is gone. The fixation vanished. And I think my swimsuit is still in the whirlpool. So I stand naked, confused, and unaware of just where the heck I’ve been, or at least where my brain has been for the last four-plus months.

Odd sensation. I explain some of this feeling of emerging from a special interest in this well-read post

And so today, I am sharing where I stand naked—on this shore utterly perplexed and baffled, finding myself once again in awe of how I am consumed in something, and then seemingly spat out by the vortex and set back on my feet, only to wonder where the heck I’ve been.

The good news is, with my new current fixation of walking and photography, you are bound to see more photos of the great northwest than you ever signed up for. And, of course, photos of my good hair days!

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*** I am still going to blog…just not everyday.

And music isn’t a fixation; it’s a way of life. So that shall always be, as my love for you!