542: Self

self
self

I know what I am not but not what I am. I know when to stop but not when to stop starting. I can inch my way into the middle and get stuck in the molasses of neither here nor there. I don’t know how to swim upstream without pounding pain, and instead, in alternate route, float downstream away from the waters where all else abounds.

Somewhere I have forgotten myself, and I search to find her, thinking I have arrived, only to once more find I am at the backdoor looking into what was and thinking I had known then.

I cannot remember who or where I have been, anymore than I can visualize where I am going. I am lost, in a time maze of confusion, falling upon a self I cannot fathom or detect.

She is there, in the shadowed-tunnel, collapsing and reborn into another, faster than humanly feasible. She is multitudes unopened and reopened—an anomaly in form. To be and not to be. To care and not to care. To unravel into the very depths of reason and peer down into the pond of ‘me.’ Only to question what it is that stares back with such disregard and wonderment.

I am but enough and then I am unequivocally lacking, never measuring up to the enforced standards absorbed from the path I walk. I clamor for explanation and find a thousand books untouched, though in some fashion taken into the realm of reason. I can feel the words: the spoken, the whispered, the silenced, the ones that never came and ones that never speared the element that is I.

They make me. They form me. They penetrate me into something I know not. Clay to my mind. Dirt to my heart. Scattered residue of earthly wants and needs. Goods that I am neither capable of grasping or acquiring.

I am this existence that the observer watches. Reformed with the passerby. Morphed into their reality and then left, unscattered and splattered, broken and unbroken, in a pool of endless duality.

I am what I am—yet only for a fleeting moment; a chance to take glance towards the outline of my palm, the beat of my heart, the opening of a billion universes. Everywhere I am, and at once I am alone. Isolated. A loneliness no less easy to explain than the essence of what I have become. ~ Sam, 7/24/15

538: Assumption Junction… the truth of my Aspie words

People who don’t know me well, and some who do, sometimes jump to conclusions and assume things about my intention and motivation behind my writing that aren’t necessarily true. I write to write. It’s largely a processing mechanism.

The problem is that who ever is reading my words will interpret said writing based on his or her own opinions and prior knowledge. In other words, if someone is naturally confrontational then the chances of this same person thinking I am being confrontational in my writing is high. Or the opposite might be true, where a confrontational person might make a judgment call that I am weak because I am not displaying a countering personality. Wherein I might be explaining something for a thousand different strands of reasons, all of which pop in and out of my head through the process of scribing, he or she will make an abrupt conclusion about my intentions that includes perhaps two or three primary reasons (again, based on his or her experience). The worst part of it is when this said party then turns and suggests he/she knows what I was trying to say and why I was trying to say it. When truth be told, I have already played over in my busy mind a hundred times why I said what I said, how I said it, and why I said it.

People don’t often know how long I take to write a response. When I am dealing with an out-of-my-comfort-zone response to someone, for example via email or instant messaging to someone who I do not have a close relationship with about a subject I deem important, I take a very long time to write, upwards to an hour for revisions, rewriting, rewording, reworking, and rereading. I stim through the editing process itself to calm my anxiety over the situation. If I am triggered, particularly by what I interpret as an injustice towards another, it takes me even more time to write. What is difficult then is when I am accused by another to have written something in haste, without thought, at length, or without consideration to the audience or the communication rules of some company or organization. It is hard to digest this type of assumption because nothing is further from the truth. The receiver does not understand that I have painstakingly relived scenario after scenario of possible outcomes of how my words might be interpreted. That I have tried my hardest to follow any rules of communication. That I have pushed myself to shorten all I want and feel the need to say. That I have left out more than 75% of what is really on my mind, and sometimes much more than that.

In example of the revision process, I will write a sentence and then imagine the person/audience reading my words. I then evaluate their potential reaction and adjust in hopes of causing the least amount of miscommunication. It’s not about people-pleasing or avoiding conflict, it’s more so conveying my truth as I see it in the most gentle and kind way (and rule-following way) as possible. To do this I switch around words, I alter adjectives, I choose new phrases, and I clarify repeatedly through transposing my words and readjusting. A draft will be rewritten more times than I can count, and large sections deleted, redone, and deleted again. It never seems to be right enough. Not in a perfectionist way, but in a ‘this is my heart’ way.

I discern ahead of time feasible misgivings or upset on the upcoming reader’s part. This process is exhausting at all levels and causes physical and emotional pain. The most troublesome hurt follows if and when the intended recipient responds in one of the many non-constructive ways I had foreseen him/her responding, and then I see all my efforts were for naught.

People think that the length of my writing equates debate, that length = ego, that length = confusion, that length = selfishness, that length = not caring about the recipient, that length = non-professionalism, etc. etc. I don’t write at length to get my point across or to prove something. Once again, I write to clarify my inner workings and to let the person know my intentions fully. If a part of information isn’t shared that I believe at the time is a pertinent piece of the subject at hand I feel as if I am being deceitful, even as I logically know that by definition I am not. No amount of reasoning fixes this.

I over explain myself in written word as much as I do in spoken word. Particularly when emotionally triggered. And such triggers can come from a variety of sources, especially from others’ behaviors that are not privy to the autistic experience. With all my spiritual studies and practices, a part of me would like to say I am ‘above/ being triggered, but that’s hogwash. I am neurologically wired to be more prone to fight-or-flight responses. (And in my case biologically/physically wired that way, as well.) So, I accept that I get triggered.

It is cumbersome and downright dangerous for me to write (without a lot of editing) after I have been triggered. I cannot help but let some of the emotional upset leak through. As much as I try to pamper and sugar coat the words, this ache of being triggered comes out. And then, even with careful revision, the trigger leaks through. In response, I am evaluated based on the characteristics of my writing. I am labeled emotional, reactive, too concerned, too sensitive, etc. This adds to the initial trigger, and to the continual compounded feelings of being misunderstood and misinterpreted throughout my life. Thus is the prospect of such an invisible disability when held by a person that primarily seems to function at a high-level of ‘normalcy.’

People with autism usually get me. And I in turn get them. I am the first to smile when someone sends me a very long online message. Usually the person is apologizing ahead of time for what they label a ‘rambling.’ And usually I am skimming some of it and finding the golden nuggets of what was written. I get it. I am the same way. I am going on and on about a particular subject whilst at the same time stepping back and observing myself and thinking: Why am I doing this? Sorry! Still, I do it. I process and I stim through words.

I can go through periods of purposeful semi-muteness, wherein I try not to talk at length to anyone. I am mad at myself and the world at that point. And don’t think I can function unless I change who I am, at least outwardly. Usually this state by nature turns me into some type of hermit, where I am only talking to maybe one person I know. It’s the way I retreat and I guess hide from the world. When I have had enough of me and I believe the world has had enough of me, I burrow like a wounded animal licking my wounds and punishing myself for having any form of self-pity and the brain I do. Not long after I come out of it and I am a babbling brook once again.

People who are wired like me understand. They know the ebb and flow of being this self. They know that even we get tired of the non-stop jabber and thoughts and processing. And they, for the most part, accept me unconditionally, with so-called flaws and all. It’s the others that just don’t get it whom I have a difficult time repeatedly associating with.

It’s like this, supposing I am blind. I use a different form of communication. It’s not typical. It’s not traditional. And it’s accepted. After all you can readily observe I am blind.

And then it’s like this: I have autism. I use a different form of communication. It’s not typical. It’s not traditional. And it’s not accepted. After all you can’t readily observe my disability and I should be able to change. I can adjust. I can conform. I can just communicate like you do. Follow the rules and protocol. And if I cannot, then I must be inconsiderate, impossible to train, or stubborn.

But it’s not that way. It’s just not. I cannot adapt without modifications and understanding, anymore than the person with a visible disability can. If I was an amputee, I wouldn’t be able to grow legs. If I was deaf, my speech would be affected. If I have autism, my brain is different. It doesn’t just change based on suggestion. It’s an impossibility.

Sam’s book Everyday Aspergers is now available internationally on Amazon.

More information can be found at her company: myspectrumsuite.com

527: Once More

Once more
Some happenstance
Of circumstance
Everything circumvents
Transparent facades
Of turbulence

Familiar and foreign
Anomaly of contrasts
Birthed in barren land
Where the seed of now
Searches for rooting-ground

Bedding down she finds no relief
Disappointed she flutters
As butterfly, to higher lands
Where chance planting might arise
Left
Shattered by the nonexistence

Myself here
Transpired
Greatest works
Long past expired
A lathering of doubt
Pulling up from the foundation
Taking in what are last reserves

Core-dripping real
Wavering self-confidence
Finite point
Of seeming happiness
Drowned out
By the bottom realm
Once more

524: “Stupid NTs”

Author’s note:
NT is the abbreviation for the word neurotypical. It is a familiar term to those on the autistim spectrum and was originally used to describe those individuals who do not have neurological brain differences. NT is generally accepted as a substitution for the word ‘normal,’ as the word ‘normal’ is subjective. For some, utilizing the word ‘neurotypical’ is an active choice, for the act of using the word ‘normal,’ in reference to those not on the autism spectrum, implies that those on the spectrum are not normal.

On numerous accounts members of the autistic and/or Aspergers community have been alienated, ostracized, and pointed out by the majority as inherently flawed or wrong. Individuals on the spectrum continue to site feelings of extreme isolation from mainstream society and times of repeated criticism in which observers offer out measures in which the person with autism/Aspergers might attempt to fix or adapt him or herself to be more ‘normal.’ In short those on the spectrum are often criticized and taught how they might better behave in order to assimilate. I know of many who have contemplated or attempted suicide based on the intense isolation associated with Aspergers, and had a friend, who took his own life, just last year. I, myself, am not immune from the critics who want me to behave more like them. Not so long ago, I received an extended email from a professor of psychology, who, having had just found out I had Aspergers, felt it reasonable and justifiable to critique my correspondence and give advice on how to act and function as a professional at the university.

In a broad sense, as a people, recognized as the same through common characteristic traits, habits/routines, neurological functioning, gene/enzyme variations, ailments, and the like, those on the spectrum have been singled-out as different from the start, even as they themselves might not recognize the differences. To some, we (those on the spectrum) feel ‘normal’ to our own selves, as how we function and experience life is all we know, and will ever know. Yet still, despite our own inability to change to suit the comfort-level of others, we are told we are somehow made ‘wrong.’ To be told you are flawed or inferior based on various attributes, such as skin color, race, sect., or religion, is harmful and undoubtedly can lead to hurt. Though while the effects of discrimination often create the breeding ground for cruelty, and cause much suffering, there still remains a means for the oppressed to escape psychological affliction through the understanding that essentially they are not the color of their skin or the ideologies they uphold. However, it can be argued, one suffers without means for psychological relief when the majority proclaims that the manner in which a person functions and thinks is wrong. For how can one eradicate self from self, and become that which he is not?

This continual bombardment of judgment of another based on his behavior, whether the bombardment be indirect, direct, or implied, wears down the spirit—chips away at the person’s understandings of self and the way in which he or she relates to the world. In essence, destroys the foundation of his existence. The confusion brought on by criticism brings about a distinct feeling of being misplaced and plopped down on the wrong planet. In addition, often people on the spectrum can’t recognize or do not know others that are like-minded, and therefore, don’t even have a company to retreat to for comfort and support when feeling judged. And if another, on the spectrum, did know such a people akin to himself, he might shy away for a variety of reasons related to the challenges of Aspergers, e.g., distrust, frustration, embarrassment, social insecurities, sensory- and processing-overload from being in a crowd.

Accordingly, as a collective, we are thusly isolated twice: once in our tendencies to be publicly noted in a not so positive light for our unique behaviors and attributes, and secondly in our tendencies to instinctually self-isolate for what we believe is necessary for our own protection.

Throughout history it is evident that people who have been oppressed and isolated eventually reach a point of having had enough. At that junction, two outcomes can occur: an oppressed subgroup can crumble—resulting in multiple scenarios of further oppression and breakdown. Or an oppressed subgroup can rise above the oppressors through the process of connection and action, such as action based on a collective-reckoning as a result of a people coming together and sharing mutual ideas, support, awareness, and so forth.

Singling out others as NTs and attaching attributes to the subgroup of NTs is an example of the Aspergers community rising above oppression through action to avoid further oppression and breakdown. The act itself enables a previously ostracized isolated sum to reclaim a sense of power and self-worth. In theory, when a collective recognizes the existence of another group beyond their ‘own’ group then the group they are a part of becomes more real. By merely creating further separation, between ‘them’ and ‘us,’ the existence of both groups becomes more substantiated. The stronger a group becomes in existence the more members sense their group is real; and accordingly, the more a member senses a group is real the more he or she feels part of a community, and the less he or she feels alone.

Naturally, based on repeated years of isolation, if presented with the chance, many with Aspergers gravitate towards the opportunity to feel less alone and more a part of something. Feasibly, before knowing others that are similar in our making, we have spent most of our lives thinking we are the anomaly and therefore alone on this plane. Finding a ‘clan’ so to speak, provides means of much healing and growing. Because of this, when supported within the makings of a group of like-minded people, a person with Aspergers might subconsciously reinforce the ‘realism’ of the group in order to build up the feelings of unity and tear down the feelings of isolation. In so doing, he or she might reinforce this realism of the group by perceiving others beyond the group as outsiders, and then perhaps accentuate the substantiation of his or her group more by creating or partaking in opportunity to claim the others as less-than, different, or not-enough.

Thusly, through the aforementioned, there is a justifiable reason (psychological sense of belonging), behind a person with Aspergers actions when he or she points out differences between his/her established sect and another. In this light, the use of the label NTs makes perfect sense. Furthermore, using the term NT in a derogatory manner also makes sense—as defining another outside the group as inferior brings about more distinction between the two sects, and as a consequence reinforces the subgroups realism further. Perhaps, along these lines, the creation of two subgroups, that being 1)Aspies and 2) NTs, was inevitable. However, arguably, a justifiable action does not equate a just action.

As mentioned before the breaking point of the oppressed usually leads to a crumbling of self or proactive action; and often, when faced with continual insult and injury, a person must swing to one side of the pendulum or another in order to eventually find balance. As a collective subgroup, we do the same. We swing upon the pendulum—we respond and hide or we respond and retaliate. Part of retaliation is in pointing finger and blaming others. Part of hiding is pointing the finger at self and blaming self. Neither is beneficial in the long term, and can wreak havoc on multiple psyches and relationships.

Regardless of the cause, clearly, there is evidence that through the act of calling others NTs and attaching derogatory meaning to the name NT, discrimination is being recreated in reverse.

People with Aspergers know what it is like to be ostracized. Perhaps to turn around and do the same with closed eyes is understandable. And perhaps, too, to do the same to gain a sense of me-ness and union, and that long sought after feeling of being a part of something, is completely justifiable. But to repeat what was done to us through reverse discrimination with eyes wide open is to start a new type of war, one in which we set out to be the victors and the others the oppressed. This mentality of ‘we verses them,’ or even the simplicity of ‘we and them,’ creates more waste—increased harm and debris that will need to be cleaned up and rectified. Eventually, oppressors become blinded by their own hate, as they fortify their creation of sect through a cyclic self-feeding process based on various means of separation. In the end, by choosing to separate from others, we create a world that is the exact definition of what diminished our worth and standing in the first place.

With this said, I ask you to keep in mind that a subgroup of any definition is at risk of adapting an elitist attitude. For this reason, as a collective community of people who support those on the spectrum, it is crucial to heed caution in the way we choose to see others in general, but specifically in how we choose to see and classify the collective group we name NTs.

~

Author’s Note: This post was originally composed when Asperger’s Syndrome was a stand-alone diagnosis. At that time, not much was written or discussed about females on the autism spectrum, particularly not the rules of semantics to utilize when referring to other autistic women. In the four years since my online writings began, much to do about semantics in relationship to Autism Spectrum Disorders has emerged. Even the word “disorder” is a trigger word for some, myself included. Today, I prefer to write “I am autistic” or “I am Aspie,” when referring to myself, instead of “a person with autism/Aspergers.” (People-first versus condition/diagnosis-first) Primarily, because I don’t have Aspergers—rather I amAspie. Aspergers is innately who I am as an individual and not some tagline—like a disease.With that said, while I am sensitive to the ongoing terminology debate and the growing trend (and need) to move beyond identifying one’s self with a “disorder,” in order to keep the authenticity and voice of the original works, including accurately reflecting how I experienced life and trends in the societal and psychological fields at the time, I chose to not make any specific broad-based terminology alterations in this post.

Samantha Craft (@aspergersgirls) compiled this page. She has corresponded with thousands of individuals touched by autism in their lives. Sam is the author of Everyday Aspergers, a revealing memoir, ten years in the making, about the everyday life of an autistic woman. More information can be found atSpectrum Suite LLC, myspectrumsuite.com

522: Outside the Isolation of Noise

I am much like a computer. I know that. I feel it. I sense it. I hear it. I take in more than most could feasibly comprehend, and spit out just as much. I need to process, both internally and externally. If I do not process, I will explode. Not literally, but definitely by means of emotional shutdown, spurting out, or losing myself in looping cyclic thoughts. I need to be heard by others, and indeed by my own interior self. I also need to reflect a form of truth.

I partake in communication akin to a hunter stalking her prey. I am in search. I am digesting the elements. I am preparing myself for future claim. I am reflecting, too, on past hunts, and bringing the memories forward for analysis. To exist is to hunt—to search for the meat of the matter and pull it outward from within, and to furthermore seek out that which is externally available for clues so that I might make my way through the forest that is my world.

Everywhere are trees. They are thick and mossy. They are stoic. They are alive. And each tree stands with a thousand secrets—some spoken and some hidden. And in this way I move about listening. I cannot be without the sense of everything bursting with input. There is a non-surrendering aspect in regards to my thinking. Gallant knights at the wheel of knowledge aching for an answer they know does not exist, and yet, they, these rouge-pages-blossomed, chase time away in a merry-go-round of maybes. I cannot stop them, and I, the someone beyond them, am left victim of sorts, incapable of surrendering for the lot of us.

The forest makes me blind. I cannot see through the trees. And the knights make me bitter because I cannot rest with them at the reins. I ache like none would know, unless too trapped in the wooded causeway, reaping what is taken in at high-speed but smothered by the incoming. I get trapped in overload. Trapped in a glass-bowl incapable of knowing what is what, what is important, what is true, what is necessary to process. A fish with no water, yet still swimming in this notorious muck of something deemed needed by some distant part of self. I can’t get out, but I want to. And part of me doesn’t even recognize I am there. Part of me can’t tell if I am even here, where I seem to live in this land.

I am nowhere, in moments, true. Essentially lost to my own buried selves—the multitudes of me who are shuffling through the debris of information. Each questioning the other for validity: “Is this the accurate representation?” “Is this a true source?” “What is beyond this source?” “What is truth?”

The knights battle inside as I move through the whispering trees—further aspects of self sprung up through the gatherings of words. They multiply whilst seemingly traversing into a battleground of truth; each contemplating while incorporating the strongest voice in hopes of victory. A win for the team. A win for silence. The totality of self pushing towards peace.

There is chaos, interruptions, non-stop contradictions, quibbles of sorts, and primarily confusion. Yet, no matter their futile attempts, brought up to the forum of exclusion, they waver away from the foundation of adequate representation fortified by truth. This nothingness of beyond bearing down its weight upon the galleries’ guesswork. And thusly, re-measuring occurs—long rulers and yellow tape stretched out in endless mayhem—judgment and discernment in regards to what is set out as evidence.

I cannot find peace here, and still I travel so. My only outlet found in emotional exhaustion, high-energy spurts of fixation, or the letting out of my soul in form of discourse, be it writing or speaking.

And so it is many times in words and tears and high-interest, I typically find reprieve. I don’t know why or how, or the ways in which I work beyond what comes forth as fragmented awakenings. I only know that I live most hours amongst the churning of selves in the shadows of the talking forest longing to be heard outside of the isolation of noise.

517: Is-ness

There’s an is-ness inside me, some rumbling engine that feeds and creates, that both demolishes and builds simultaneously, the gnosis itself living and breathing within. The trouble is the is-ness wants to come out. As much as I push or shove it down, it swells evermore. There is no dousing out the flame. I have tried days, and once a decade, to remain silent in my ways, and the longer I wait the longer the bubbling-wanting festers, liken to a boil that won’t shrink unless exposed to the elements.

How often I have longed to be that one, that quiet one perched beneath the tree, without a word to offer, just her silence as a reckoning of sorts, her example of fragility and strength established in her stillness. Just once, I have wanted, without effort, to not desire to burst out of the semblance of self into something naught—to not wish to plunder, as I do, as pirate gone sporadic spilling her gold and jewels about.

I have established this is the way I am: harbored into myself.

I am the dock. I am the boat. I am the sails. I am every inch of vessel, and what holds this vessel. And I rock, as I am the rocker, moving myself in isolation. Here is where the trouble comes again, in the want to move beyond aloneness, for nothing seems real or substantial until shared.

And yet there is the catch, the net, so to speak, the daggered questions and the pounding answers. The fingernails to my chalkboard—nailed and pierced at once.

We are told of the worthy ones. The ones who hold their tongues. The ones who are stoically silent. The ones who don’t whimper and complain. The ones that don’t monopolize conversations. The ones who know how and when to stop. The ones that don’t overthink, overrationalize, over-process. The ones that know when to let go and be.

So what does that make me, if not some rigid anomaly?

I can’t surrender to this world because I don’t have the means. I don’t know how to be quiet. I don’t know how to shut out what I see, what I feel, what in a way I seem to somehow ‘know.’ And yet I can’t really blend into this place, either. No matter how much I try, through practice or restraint, or a combination, or by some means of much-studied technique, or even in the gathering of all the circumvented readings, observations, conclusions, and discoveries, I can’t understand where I am, and how to be in a place I do not comprehend.

And that is the trouble as well—for am I built to control how I am to be? Am I supposed to stop who I am? And if I am to stop who I am and be this other form and representation of self, then whose rules and recommendations do I follow? Whom do I uphold? Who is my savior in this world? If I am to follow this someone or even this saint, if he lives, or has died, then still what is the exactness of how I should be? If not me, if not this natural, born-to-be me, then who is it that they at once forbade me and make me be?

Is it not within reason to wonder how I am to move in a strange world, if indeed the way I move is not accepted or understood? And even as I pass often as this extremeness of normalcy, even as I mix and mingle, and bleed into the mass, am I not some ghost on display set out to appease the gathering? Are my ways mere means to escape shielded eyes?

I do not understand the judges. I do not understand the manner in which I am told the right and wrong of things. I cannot. I am incapable. I am not wired inaccurately. I am not misfiring. The truth is that I am not wired at all. I wasn’t programmed to begin with. I don’t have the data institutionalized within my infrastructure that instructs this someone of where and when to jump. I don’t even have the means in which to understand the jumping itself.

I watch, some legless tadpole, in awe of the springing frog, unlimited in its depth and breadth, capable of leaps and bounds that seem a lifespan away from me, an imposter of impossibility without preprogrammed metamorphosis.

And that’s the trouble, the endless trouble:

I am who I am, endowed with an is-ness I neither understand nor recognize. An is-ness I long to share, a knowing I cannot tether to myself alone, in a world I do not recognize, in a place that makes no sense. I am birthed without the wiring or predisposition to comprehend the makings of others’ ways; and ever wondering if I was to jump without legs, if I was to be in this pool of mankind, and swim with my invisibility cloaked, to survive as familiar instead of strange, would I not then forget whom I was to begin with?

516: A Gallant Longing

I process everything. I am a processing machine. I even process the process of writing. Today I feel ‘guilty’ for yesterday’s writing, as it didn’t represent the ‘true’ me. Even as I search for the ‘truth’ of who I am, stumbling again into myself and not knowing where I fall, I somehow still manage to pinpoint who I am not. It’s strange, even to write. But seems to be the way of it. All so complex and bothersome. Like most days, I wish I was rather emptied of myself.

Yesterday my post ended with freedom, with the removal of ‘self’ and judgment, with the capacity to move into this world unseen and to be okay with that. Yesterday that was a true statement. Today it’s not.

I didn’t lie. I meant what I said. I was in a brief over-confident mood. I was in an I-will-will-myself-all-better-state. I get that way from time-to-time. I wouldn’t call me hopeful or resilient or ‘positive’ during these moments of zealous confidence. More so, underneath my skin somewhere, when I approach my writing with such voice, I am a bit perturbed at life in general. I guess you could say I was sporting an under coating of frustration and trying to paint over myself with some form of strength.

I tend to only feel good about the words I have scribed that provoke a soft appeal and gentleness. I tend to be attracted to my sharings which display an intense vulnerability and a vast uncloaking of self. Yesterday’s post wasn’t one of those posts.

I am not ashamed of the writing, and not regretting it, just, I guess, wondering how I can so easily shift and transform. It’s unsettling to say the least, when the person I was a moment ago isn’t the person I am now. Perhaps, I say in jest, I have some advanced multiple personality disorder in which I am both congealed and disjointed all at once with legions of aspects of self bursting into bits and pieces of everything.

Yesterday, I was PMSing. I ‘suffer’ from PMDD, endometriosis, and an autonomic blood pressure condition (closely related to POTS), as well as hyperjoint mobility syndrome, each of which are triggered by fluctuations in hormones. PMDD is enough in and of itself to drive me batty, but the physical pain sometimes leads to a week of being couch bound. This has been an on going event for most of my adult life. It’s not new, and it’s not strange or unknown. But somehow the debilitation is still rather scary and depressing, particularly, as I was hospitalized about a year ago from an extreme episode. Anyhow, I really don’t want sympathy or to rant or complain, just to explain.

I suppose in moments of couch-bound, sloth-mode, semi-hibernation, I get particularly prolific in my writing. One reason being that there is really nothing else I can physically do, beyond playing computer games, watching movies, and reading, oh, and the occasional romp to the kitchen to binge eat. Having the capacity to write during these hormonal nightmares most certainly brings me a sense of purpose. Also, I think the hormones, or what-have-yous, affect my thinking, in that I have more thoughts and that I am more vulnerable to outpourings. And too, to be totally truthful, sometimes I write during my PMDD only because if someone reads my words I will feel less isolated.

I force myself to write during these times, not because I have to, but because I want to. And that is the primary difference in the particular self-focused writings (like today’s and yesterday’s) versus the majority of my writing.

Most of the time, believe it or not, I don’t want to write, but feel driven to write. Usually, I don’t hear my own singular voice, but more of a collective gathering of thoughts. I have surmised, after continual coincidences, that I somehow tap into the collective Aspie condition. As silly as that sounds, this has been my truth for the span of over a year. It appears Aspies jump into my brain and stir me up. As much as they’d like to believe I am reading their minds, I tend to think they are invading my thoughts—little hitchhikers whispering. Or, rather, we are all just splashing is some giant heated pool of knowledge, and I, by some odd twist of faith, have been granted the capacity to spurt out what we are swimming in.

When I write, I see images and sense words. I don’t actually hear anything. There isn’t a voice I can describe or even an intonation. There is more of a feeling of what I believe is a type of communication I don’t readily recognize as familiar. There is no emotion beyond love. And an easiness and comfort exits without effort. There isn’t a questioning of what I wrote or a judging. There often isn’t much editing involved. It just kind of IS. And I like that.

The process of writing in most cases takes away some of my Aspie thoughts—those perpetual queries that ransack my brain.

I believe the intention behind ‘my’ words creates the overall feel of the work. Much like a painting, my heart is reflected in the renderings. If my intention is to share and nothing more than the words are light and airy, filled with a sense of hope. In this manner there is a radiating wellbeing resonating from the writings. A knowing everything will be okay. A connection, a reaching out, a holding and a holding ground, in which travelers come and visit, and find a place of respite.

I miss that peaceful flow, that rescuing-retreat. I missed it yesterday. I miss it today. I guess I’d rather be part of a collective than this ME. I’d rather sit with a gathering of us than alone—a gallant and worthy longing, indeed.

504: Had I but a voice…whisperings of Aspergers

“This is your Aspergers. It is your brain searching for something to fixate on. It is our hyper-intelligence. Our brains are puzzle solvers. We are here to help the planet. When we focus on light we make dynamic shifts. But the yang of the yin is when we focus on the dark; it is hell. The trap, we Aspies fall into, is trying to solve our emotions, instead of sitting with them.” ~ Sam

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We believe we are never going to be good enough, right enough, or enough. No matter how much we read, decipher and figure out. No matter the conclusions pondered and information transmitted, the puzzles seemingly solved, or ideas seemingly mastered. We remain somewhat in awe of ourselves and the world. Our bodies and brains, and everything, unwinded and dissected, and nonetheless remaining singularly tangled and unmanageable. Our brains were made to conquer and conquest, and yet, we are the ones conquered in the endless ways in which to surmise our reality and exponential experience in life. Through our ability to mesh objectivity with subjectivity, we are made into a conundrum of possibilities; ourselves delivered to the world through a large scope of outward introspection, as if the audience is the All of everyone, and we the victim of circumstantial evidence. We are hunted, say hounded, by our innate ability to view ourselves from a distance, whilst climbing inside of others, many others, and imagining a collected viewpoint and conclusion of us. And this transaction isn’t something purposeful or invented for cause or reason. The exact act of becoming this observer of the observers is ingrained into our essential state of being. We are in essence and in truth, a mini-version of everything we take in. In this sense, we can never be that which is good, right, or enough, as everything is projected and taken back, endless mirrors upon mirrors of becoming the every changing of that which is around us.

We are made to be puzzle solvers, and the dynamic labyrinth of us, and that of the singular ‘me,’ eludes the perceived self. We become so twisted in thought that the truth hides between and beneath complex layers of potentiality, a state of existence at battle with forethought of failure. A concept considered is quickly sliced and diced and made into the sectioned out pieces of avenues of demise. We can see with hindsight, foresight, and insight into the depths of each solution we consider. Thinking therefor becomes exhaustive itself, and at times, many times, uncontrollable. As if we were made to conquer the exact thought perceived, only our tools of conquest are both our weapon and our curse. Had we the opportunity to rest our minds, the remainder flows naturally; however, the resting itself is continually challenged and masked by further thought of the concept of ‘rest’ itself. Making relaxation still another puzzle to be solved and pieced back together. For everywhere is this appearance of a ‘challenge.’ Everywhere our brains want to pick and perch, peck and devour, until the end point is found. Even as we know there is no end in sight. This is the deviation sector of our searching, a place in space in which we can step back and observe ourselves hunting for something we know does not exist, while simultaneous lacking the ability to halt said action. Had we known how to stop ourselves, our minds would be different, lacking the cohesiveness to piece back together that which is before us. We are made this way for reason unknown to us, even as we feel there must be a reason: for how could such a ‘thing’ as I exist, if not for some purpose other than the regions of hell in which our thinking leads.

We long for order in a world that dictates discord, even as nature professes the circularity of wholeness. We see behind the curtains of societal games and rules. The prophecies of past make sense to us, wherein the theories, the solutions, the ways in which modern leaders point, do not. Everything we create is created at multiple levels. Sometimes our own thinking manifests further outcomes. Sometimes the coincidences are incomprehensible and impossible to explain. We are descriptive creatures. Everywhere and all about is description. We take in information like manmade thesauruses and dictionaries. Had we known we’d be mistaken as ancient ones marked as ‘know-it-alls’ and beseeched with unceasing ways of interpretation, perhaps we would have failed to live without taking first breath. But regardless, we remain. Our quest is unreachable to those that think not as we. We are, in many ways, separate in how we perceive the world. Our sensory input on high-speed, our ability to reach a temporary finishing point, beyond measure. We endure a silent suffering all day and all night, the intensity of the world bearing down on us as a tangible concrete weight. A heaviness indescribable and ever moving into each crevice that is ‘self.’ To wake is to take in another day of battle, as to sleep is to meander through that which was taken in the whole of the day. The subconscious combined with another powerful force abstracting the decayed ravaged thoughts and replacing them with an unspeakable knowledge beyond us. Our scope of intelligence so vastly far-reaching that our own minds become lost in an ocean, torrential.

……………….

Had I but a moment to replace my being with another, less common than I, and make this person enter me, then he would know the hell I speak of, the way in which the mind made mad taunts and slithers as snake to fowl captured.

In every way I am me and I am not me; and so it goes I am divided into multiple selves not knowing who to expect. Calm on the exterior or upset. Weeping or cursing. Lying to self or submerged in the illusion of truth. I know not what will happen next. I am subjected to the layering of others: a natural empath taking on both the hurts and wants of those around me. I soak in greed. I breath out anger. I force myself to stand, even as I know not where, as vultures around me circle, taking in what they think is me, and spitting out their awful truths. I am invisible. I know this. I see this. I write this on the edge of my soul. The outline of me marked in words “I am,” and yet sucked out into that voice which is the masses.

I am slipping as I speak. Lost in the places of public where people proclaim this sense of righteous being. I drift in a world where I long to be seen and where everywhere I am branded with harsh judgment. It does not matter how many people love me, need me, or attempt to protect me. Even as my guardian circle expands, the vultures come closer. It is not the ability to build my force field of love that guides me; more so it is my built-in longing to move beyond the vultures of society, which propels me forward in action. Had I not the torrential rain spurted down by the falsehoods of this world, I would be not urged to continue onward. Even in the darkest moments, I know the voice that tricks me is merely a reminder of the voice that tricks all.

Had I but a voice that could penetrate the walls of me, I would pierce me a thousand times through and be within and without, transmitted into a time without time, and cast out as minion to the masses of humble-seekers. Had I but a heart a thousand times pierced, I would ask another blade to enter, if only to free that which is imprisoned: myself upon self.

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“We think we are ungrateful, but that’s not it. Our brains are just always solving, so we conclude we are never satisfied. Thinking we are not thankful, we then self-punish, believing ourselves less than and not enough—incapable of finding this so-called “satisfaction,” a mythical word that is a leeched byproduct spawned from societal whimsy.” ~ Sam

501: The Isolation of Aspergers

Sometimes having Aspergers is the scariest thing in the world—not the name, or label, or stigmatism the word brings, not even the essence of Aspergers itself, but what it represents in my soul.

No matter how many friends I have, or people I confide in or reach out to, no matter how far I go in my search of self or how many ways I accomplish goals for relief, I end up back at the starting line. Facing forward with the force of the world against me.

Only someone with Aspergers will know what I mean; people not on the spectrum will think they can understand; they will look at their own depth, take in what they know, decipher their inventory, but with all of me I know it is impossible to understand the pain of Aspergers unless you have directly experienced it.

There is nothing more isolating than knowing myself completely, understanding fully the mind and the way in which I act and respond, and still being helpless to alter how I am. It’s not that I want to change me, but I do long for relief and a mild form of adaptation, minor assimilation, something that makes me feel I have made progress, even as I know I have nothing to progress from.

I am entirely an anomaly, in all ways, and in all forms. In fact, I am beginning to think I am the essence, the exact symbolism for yin/yang. For I cannot go out to one extreme of the pendulum without going full swing to the other side, in regards to emotions, experience, outlook, opinion, even circumstances.

To know so much is disheartening. To see so much, to be able to pick apart my mind piece by piece, and understand my inner-workings, and still remain what seems to be helpless is maddening. I can’t cease to think nor stop my methods of multi-faceted interpretation. My mind, some giant mechanism that grinds and grates to piece things together—every thing—including complex analysis of my own thoughts, emotions, and renderings.

Everything I am and everything I do, is adamantly dissected, without choice, including everything I watch, like some giant intertwined web spinning past my mind’s eye. It appears at times I am thinking three times over; that my mind is somehow capable of deciphering the immediate now, the effects of the immediate now, and the thought processes of the two previous aforementioned, and even the predictable outcome and by-product of the thinking process itself. I cannot help but become overtaken and mind-boggled, drowning in a perplexity of images and thoughts, some speaking over the other, some repeating, some making complete sense, and some the markings of a crazed woman.

Add this to the noise inside my head of all the rules I have been taught, (or more so taken in as truth), and I become cluttered with an endless echo of noise: my thoughts, my thoughts about thoughts, and their thoughts, as well as my analysis of all of these thoughts. I become so lost in myself, and this is only the first layer of a multi-dimensional sponge cake of mayhem.

Next comes the bombardment of guilt. The ways I should be, should act, the tools I ought use, the ways in which I ‘should’ think. The world is full of norms for the neurotypical, even full of remedies and concoctions for recovery and sanity, all of which do not work on me. I can’t go to therapy, as I know more than any therapist I have met, and can psychoanalyze them within the first moments of the first meeting—seeing straight into their insecurities, power-struggles and attachments.
I have proved doctors wrong, too, time and time again, based on my gift of keen research and self-awareness. I know myself inside and out; I know my body inside and out. And as a result of my intellectual and instinctual capacity, all the places ‘typical’ people seek out for comfort do me no good. In this there is no relief. There is no refuge. There is ultimately nowhere to go.

The only way is through it. Through the bleakness and drudgery. Through the hellish thoughts. Over and over through, until I come out returned.

No friends can help, definitely no foe. I don’t need foes. I punish myself enough. I shall never be good enough, kind enough, or loving enough. It’s not a matter of perfectionism. As I have said, the ways of the ‘typical’ aren’t my way. I am that dichotomy again, as I know I am good, I know I am enough, I know I am love, but then I know naught. There is that perpetual swinging, of self too, from one view to the next, never stagnant and never truly grounded.

Belief systems, religions, rituals, magic, or what have you, those don’t work either. Temporary bandages or bondages, considering the source, until I analyze them and their happenings to no end and find the loop holes, the questions, the reality behind the illusion.

I often wish I was more blinded to the ways of world, a bit more oblivious, a bit less aware, that I believed there was a something or someone out there in which to seek refuge. This isn’t to mean I don’t have faith, as I am sure some will conclude so, based on their perceptions and rigid belief systems. The truth is I have a faith, a blind faith, and that is what leads me to write, and teaches me the vulnerability of truth heals. Still, there is an overbearing loneliness in the rawness of truth.

The isolation is evident on all planes. I had for the stretch of most of my life sought out priests, reverends, psychologists, psychiatrists, spiritual healers, astrologists, herbalists, shamans, teachers, professors, energy workers, and the like. Over and over they saw in me what they wanted to see, and nothing beyond. No one could penetrate me and get through me. No one could truly see me. In the end, my search accentuated my isolation, only added to my fever for connection and knowing.

I live my life questioning truth: the truth of everything. And then reaching the conclusion and revelation of the lack of valid truth, I spin back into the oblivion of not knowing. I live my life questioning if I am truthful enough. I worry about the slight chance of accidental manipulation on my part that might occur based on my own want and desire. I don’t even like to wish. Who am I to wish? I worry about being self-focused. I worry about being me. And everywhere, in vast unwavering quantity, is this judgment, these unspoken rules; these people being who they are and questioning who I am. And I am ransacked by their ways. I hide, I escape, I try to be nowhere and be no thing, but then the isolation is magnified and brought up to jet speed, and I long for the company again. I take strangers and their judging eyes over nothing.

I am intense. I am remarkably smart. I am keenly aware. I am often misunderstood, misinterpreted, and misjudged. My only saving grace is in having learned to love others unconditionally. I see past it all—every preconceived notion and every label. I don’t care what you are or who you are. I just love. It doesn’t matter to me your job, your race, your creed, your habits, your ways. I just love. And I long to be loved that way in return, to be looked upon with the grace of the all-knowing, and to be penetrated with complete acceptance.

Sometimes I don’t think the issue at hand is coming to terms with accepting myself or knowing myself completely. Sometimes I don’t think it is about anything at all, beyond coming to terms with the fact that most people will never see my value and uniqueness because they are too blinded by their own disillusionment of fear.

This post is dedicated to my dear friend Pascal. We will miss you.