Thirty-Two: Myttin da!

Attention folks. I’m using my teacher voice here, and then I will be checking for understanding, and administrating a pop quiz. If you have not read many prior posts, you might want to press the LINGO BUTTON. Repeat back what I said, to avoid further confusion. Thank you and onward!

Side Note: I will be venturing deeper into the realm of my Aspie mind and touching base on more serious issues soon (as in someday), but at the moment, Crazy Frog is buffering me from the insanity that has surrounded me in the last few weeks. So, stay with, if you can, until Crazy Frog retreats some, and we can get down to more serious business. Or not.

I figure one medium-sized chocolate-chip cookie (130 calories of gooey, pure heaven), that I devoured at 5:00 in the evening yesterday, is equal to the loss of thirty-five minutes of sleep.  I had three cookies. Plus my earplugs are defective; that, or my husband, having returned from his leisure business trip, picked up a multiple-of-two on his visit to Arizona, and attached said multiple to his snore factor. Regardless, I couldn’t sleep last night.

And I had chocolate-induced dreams, where I think, if I remember correctly, I was some sort of Star Trek Borg (cybernetically enhanced beings who assimilate other races into their group and devour everything in their path) hooked up to the genius-stream of the all-knowing Google God.

My husband’s snoring sound ZZZ-Zzzz-ZZzzz-hn-oink-GGggoofffh-Ppwwbhww- zZZzzzZZ was the source of the Borg’s power. Right now LV theorizes she can use Borg and Star Trek as search engine terms for this blog, and pick up some more traffic. Attract people to the Geek Posse (Lingo), like those cool characters from The Big Bang Theory television show. Currently, the Big Bang Theory is LV’s and Sir Brain’s salivating-worthy fascination.

Did I mention it’s 5:00 in the morning! I’m thinking Sir Brain is up because of the upcoming IEP meeting (Individual Education Plan) for my middle son at his school this afternoon; that and the fact that LV had this running dialogue (hamping) about our life-forces dependency on my internal organs, and how at any second our heart could decide to give up, or even explode. Sir Brain wasn’t totally freaked out, until LV added the whole aneurism (brain explosion) probability to the equation. That’s when Sir Brain packed two rectangular-1950’s-style suitcases and stood up on his toothpicks legs and said, “I’m out of here.” Until LV explained that he was the brain and couldn’t leave. Which bothered Sir Brain to no end, as he didn’t understand how he wasn’t a separate entity beyond a body organ. LV and Sir Brain are still debating on that one.

I wrestled with the thought of staying in bed, until LV brought me back on the hamster-wheel, and reviewed repeatedly, (think copy machine spitting out 1000 copies), the fact that I didn’t show up to my afternoon college course yesterday.

Thus, I rose with puffy, slit-eyes, appearing as if I’d been born and raised on a planet without sunlight. I mounted the stairs, walking like a zombie, while listening to LV chatter it up, in her California, valley-girl dialect, about how I don’t have to be from another planet, because I live in a little town in Washington State, which is primarily absent of sunlight.

And now I’m here typing, while LV goes over with Sir Brain, (who is frantic about exploding), about how yesterday was the first day in my (count them) 7.5 years of college that I missed a class. I haven’t missed a class (not big into rule breaking), since that time I was a freshman and broke down in front of the professor babbling and bawling like a Fool (picturing tarot card), because I needed to go to my beloved Nano’s funeral that was two-hundred miles away, and I wouldn’t be back in time for the next week’s class. That was in 1986!

So, understandably, LV and Sir Brain are a wee bit perplexed about me basically playing hooky from school. Although, they are quite aware that we have left the university but can’t withdraw officially yet, because we’re waiting (and waiting) to hear back from the authorities that be, to see if I have to spill the beans about how I was woefully treated, before I can get my tuition, (the equivalent of two-month’s mortgage) reimbursed. I’m thinking it’s not too early for a glass of wine or a horse tranquilizer. What’s your opinion?

I had something I was thinking about typing about when I was tossing in bed this morning, but the thought is beyond me now. Prophet in my Pocket is still in his 18th century pajamas and nightcap, attempting to sleep. LV is in la-la land wanting to travel with Sir Brain and his suitcases off on some tangent. And I’m thinking I’d like to take a ride on Elephant and get the heck out of Dodge. (Which I now know the meaning of, thanks to one of Brain’s prior followings of string.)

Thank my lucky stars. I just ran to the phone and received an automated message: Do to icy roads there will be a two hour late start at school.

Crazy Frog just woke up with a jolt. He’s a morning frog. Wide awake. He arose to tell me he is super excited about going back to sleep. He found a song! Almost three million people have seen it! It’s a perfect video: it’s weird, talks about sleeping, and the guy walks like a borg! The first one Crazy Frog found.

I’m not going to let Crazy Frog edit this prose or rouse me any further, as I’m taking Prophet in my Pocket’s cue, and crawling back in bed. “Don’t wake me, I plan on sleeping” (song lyrics). Oh, before I go. One thing that made me laugh this morning, besides the processing of my own brain:

When I was looking up ideas for snore sounds (because I don’t really have a life), I found this article about this lady’s husband who is a chronic snorer. And this novice lady author, she’s rambling on and on, going way off tangent; and then right in the middle of the article she writes, “…and my husband, he’s had lots of wives.” And I stop. Backspace. Reread. Chuckle. Reread again. And pause frozen, completely unable to read the rest of the article, because I’m thinking this chick definitely has Aspergers.

Crazy Frog does how a softer side. He found this. Make Yourself Sleep in 40 Sec. (Don’t show this to children.) Thanks Crazy Frog! You Boob!

Spastic-Colon (my dog) just busted out her doggy-door and is barking at the sunrise. Now she’s back. Must add her to the lingo dictionary, after I get some shut-eye. Which is odd when you think about it, because our eyes never shut—they just get covered in a flap of skin.  Ironically, my alarm clock just went off in the other room. Time to wake up! Myttin da! (That’s Cornish for good morning.)

Thirty-One: Y’all Come Back, Now!

 

If you missed Day Thirty’s post, it was a doozy (something extraordinary and bazar)! I had to include the definition. My post was extraordinary in that non-boasting way—out of the ordinary for me. Not so much bazar. Did you know Doozy is an Americanism. I am full-on stopping myself from wandering off and researching Americanism, and what words are Americanized; but if you get an itch, I say scratch it!

I always thought doozy came from the word bulldozer, because a bulldozer picks up an extraordinary amount of dirt, and dozer is similar to doozy. I was wrong.

Just last year, I learned that nosey neighbors do not partake in ease-dropping, they eavesdrop. I thought they eased their way into a conversation—that makes so much more sense than standing under the eaves so one can be in close proximity to overhear a conversation. Imagine trying to explain that one word of eavesdrop to a room full of second-language students. I used to teach second-language students. I would fail.  I can’t draw an eave. And don’t get me started on old wives’  tale….seriously? How about my lifelong version: old wise tale. Better, isn’t it?

My mom used to make a celery at her job (salary). I partook in a friendly game of chest (chess), until I was in my early twenties.  My boyfriend at the time found me simply hilarious. Hamburgers were ham-buggers. As in one of my favorite words: bugger-butt—it’s a term of endearment, in my book.

There is actually another human in the world besides me that Googled: when did the word bugger occur.  Oh my, I can’t share the origin here! Probably shouldn’t use it as a term of endearment anymore. No wonder I stopped eating meat. What’s another word for digress? (Laughing.) Digress also means ramble! Who would have known?

Before I so trade-markedly steered off tangent, Day Thirty’s post was the topic. Yesterday afternoon, I was confronted once again with the injustices of the world in regards to the treatment of my son with Aspergers. Pausing.

It’s so hard to write about this, when Crazy Frog is doing the Mexican hat dance in my head.

After the melancholy (but necessity, I might add) of Day Thirty’s post, Crazy Frog is making up in oddity, double-time. He still is trying to figure out where he was when Elephant plunged through. (If you haven’t looked at my lingo, yet. No doubt I’ve lost you. LINGO BUTTON.) There’s an awesome music video on the lingo page

See what I mean: I wrote this line for this post: “My heart was aflame in grief.”

My heart was. It really was. But not now! ‘Cause Crazy Frog is laughing at my words.

This is what Crazy Frog thinks is ridiculous: 

Melancholic Little Me Wrote in reflection of Day Thirty’s post: “As I wrote those words yesterday, a voice rose and spun up from the depths of me like a steel bristle brush. As it moved upwards, the brush swirled round and scraped off all this goop and gunk that had collected and stuck like barnacles to the symbolic-flesh of my very soul. The words excavated, don’t do the experience justice. I don’t know where this new part of me had been hiding, but I reckon she’s a part that was pushed down right about the time I was four years of age. She’s a feisty thing, all done up, like a strong and mighty male elephant, with a silky-sweet interior. She’s the one hiding behind the curtain. “

Here’s where Crazy Frog stepped in to avoid me going into deep emotional, opposite-of-bliss state. Notice how my voice and inflection change: “Anyhow, this voice, she was mighty powerful, and as I think about her I get an odd Southern dialect mixed in with some back-woods cowboy. Crap? Is backwoods cowboy offensive? Oh! It is. In-bred rednecks. Interesting. It’s actually racist; and I didn’t even know. Is it okay to use the words still, since my relatives have the last name McCoy and lived on a farm near the woods with over twelve children? No offense intended to any in-breeds out there. Or to my family. I guess?? I’m getting flashbacks of when I used the term…(omitted) Oops! I reckon I best be stopping myself right there.

Life is hard, when I can’t even get through a paragraph without worrying about burning someone’s britches. Oh, that doesn’t make sense. I used burning britches the wrong way. I give up. I did find a neat article about eavesdropping and its origin, but I can’t include the link, because the poop-head (LV’s two cents; LINGO BUTTON) that wrote the article included some inappropriate jokes at the end. Seems to me that author has a bit of digression issues herself.”

I think that brief description  illustrates nicely the difference between Little Me (melancholic) and Crazy Frog.

And my point? I spent all day thinking about yesterday’s post—the meaning, the release, the seriousness—until I realized a part of me had resurfaced, one I hadn’t connected with in a very long time. So I’m adding Elephant to my lingo list, and letting Crazy Frog teach Elephant how to dance. (Remember he appears as a him but is a girl inside the elephant suit.) Wow! Real life is stranger than fiction.

I think I’ll take Little Old Me and join Crazy Frog and Elephant now, in that dancing. (Tipping my hat.) And  just let the dust settle from yesterday’s post. See what’s left behind in the dirt, after this backwoods cowgirl rides out into the sunset. Buenos noches. Y’all come back, now! You here.

Thirty: I am Elephant!

Days like today I want to find the highest mountain and shout in my loudest voice, “I am Elephant!”

I want to charge forward with my tusks at a massive pile of hay. Stab and stab with all my might, until no barrier is left, only scattered remnants that the animals can feed upon, digest, and carry away.

I hate, if I ever were to hate anything, the aspect of being misunderstood. I hate that my son is being misunderstood. I hate that I am misunderstood.  I feel as if we, as an Asperger’s “species,” have been set up for failure. As if we are supposed to make ourselves less genuine and honest, in order not to threaten others’ norms.

I understand we represent the unknown that exists outside the comfort box of many individuals. And when we surface, stand there face-to-face in conversation, the anomaly, if you will, is seen as a threat, an oddity, a discomfort; and we are made into this perceived entity that requires some degree of change or adaptation on our part.

I question what is it about the way I think and function that requires fixing and change. What if the way I think and function is ideal? Why is it that the majority believe their way is the right way, when all about them the world is falling apart from war, famine, lies, manipulation, blackmail, disease, hatred, bigotry, and poison? These named leaders play these games using their tricks. Wherein I, coming from a place of honesty and genuineness, am perceived as a threat.

Is the feeling of threat erupting from others’ insecurity or perhaps from the uncomfortable feelings that arise when one’s foundation of what is believed to be the right way is confronted?

Perhaps the way communication is currently played out is from a very limited and self-centered scope. Wherein there is this unspoken dance where I am expected to filter what I say, how I say it, when I say it, and how much I say, as to not risk causing discomfort to someone else.

Assuming I am reasonably self-aware, which I am, and I have no intention of ill will or harm, which holds true, and that I have generally mastered the basic social norms of avoiding insult or rudeness, then what other rules must I add?

It seems to me the other rules include this basket of techniques, sayings, buffering, limitations, and balancing that enable the recipient to feel better about him or herself, or at least not any worse. It seems to me a game where the first priority is to not make waves, to win the person over, to sound strong, and to sprinkle evidence of high intellect and likability, in order to allow the other person to feel comfortable enough to maybe begin to trust me.

Why is it that if I accurately and purposely reflect what the other person wishes to hear and see, that they embrace me and wrap the tentacles of interest around me; but other times, when I am entirely authentic, and I share without pretense, plan, or caution, I am questioned, perhaps even distrusted, judged, singled-out, ridiculed, or admonished? Why is it some human beings want to converse with clones of themselves and make me into their egocentric mirror, instead of knowing me?

Communicating is like driving down a dangerous road where there are warning signs at every turn. Beware!  Make sure your words are continually reinforcing the other person’s identity, perception, and worthiness. Avoid offending, weakening, or threatening a person’s idea of truth. Know that complete honesty triggers alarm in people. Understand that ultimately most people you approach already don’t trust you and you have to build and build trust before they will. Even then, know there will be people who will never trust you.

Why is it when I speak my truth some question my intention, my motive, my want, my need, my desire, my expected outcome, my reasoning, my life, my identity, my self-worth, my perception, my judgment, and/or my personhood? Are these seeds I need to plant seeds of dishonesty?

What if I am not the anomaly? What if my son is not the anomaly? What if the teenagers persecuting him with their bullying and snide remarks are the anomaly? What if my son is the teacher? What if Aspergers isn’t a syndrome or a disorder? What if Aspergers is a new mirror: a mirror that reflects back truth and honesty, and genuineness of spirit?

If communication is to based on a scale dependent on levels of trust, then a person sitting across from me in conversation is continually establishing how much they know me and trust me in order to decide what to share about him or herself, or his or her perception, facts, or experience. How do I decide which parts of me to hide?

Why isn’t communication the opposite of distrust? Why don’t people strip themselves of protective layers and speak their truth? Aren’t we all in search of love and attention? Companionship and sharing? Why don’t we all wear T-shirts that read: Love Me, Please. Isn’t that what we crave? Why is it so hard for someone to walk up to a stranger and say, “You look sad and lonely. I’m sad and lonely, too.”? Why is it people say so easily, “It’s a beautiful day” instead of “You’re a beautiful being”?

Strangers ask me, “Why are you being so nice? How did you become so kind?” or say “No one ever asked me that. Thank you so much for taking an interest?” And yet I am the one who knows not how to communicate naturally?

If withholding information is the norm, then I question the integrity of the establishment who dictates such norms. If one is to say to me, “Impossible; if we all spoke are truth the world would fall apart,” then I ask: “Is the world not already falling apart?”

The majorities’ opinion of what counts as the correct mode of communication style appears backwards and disproportionate. This fear-based approach contradicts the doctrines of many spiritual and religious foundations of unconditional love. I don’t understand this barometer I am supposed to carry into conversation—this inner dialogue, gut-feeling, or what have you, that informs me of what to withhold.

I understand to avoid crudeness, rudeness, defensiveness, argumentation, blame and downright meanness—as I see those derivatives of communication equally fear-based as the self-regulating barometer that predisposes the mind to beware of each and every encounter with another human being.

I do not understand the harm in sharing my authentic self and true feelings, if intention to harm and do ill will are abstracted, and what remains is the representation of the true being. Isn’t this what human race is striving for—the disrobing of falsehoods? Don’t people long for genuineness? If so, then why do I feel so oppressed? Why since my youth have my peers and authority continually been trying to snuff my light? Why do I feel as if I am to be locked in some prism of isolation, left alone with my thoughts, so the world outside doesn’t have to fear my reflection?

I am not bold, I am not brave. I am me! But so many people can’t see me.

I crave purity and truth. I abide by these elemental necessities. Yet, I am continually punished for not partaking in a ritual game, of following some unspoken norms of what is supposed to be. When everywhere I look around me the world is falling apart because of all the unspoken lies, manipulation, greed, and trickery.

This dictated “right” way to communicate, the fear-based approach where people say what is expected, and what the other person probably wants to hear, in order to get at some unspoken goal, appears manipulative, preplanned, and superficial.

Why in society is there a limit to what we are supposed to reveal? I understand donning clothing to conceal the taboo of the naked flesh. I can abide by this norm by simply cloaking my body. But to understand the taboo of sharing the naked spirit—I can find no such cloak. I do not know what to cover my truth in so that a person will listen without their ears first burning or their anger first churning. I do not know how to persuade someone to my side. I see no need, have no want of these things. And for this, again, I am lacking.

I watch as those that conform pass untouched in the night. While I remain oppressed because of my nonconformity. Why must I become an untouchable in order to walk freely? Why must I stay hidden in order to be accepted? As many times as I’ve been crushed and hurt, debased and stabbed in the back for sharing myself, I cannot learn another way to walk in this world. It as if the legs that carry me can walk no other way than the way in which my spirit intends. I am made to be silent or to remain in constant affliction. I am imprisoned by my own desire to be.

This is such a lonely and unspeakable place of pain and shame. And all about me professionals with man-invented degrees are claiming their “truths” of what I am, when they do not even know how to even see who I am. They are aliens dissecting me with their eyes, though they wear spectacles with blackened and tarnished glass. They can see nothing but their own imaginings and what has been told to them by others; others whom had things told to them; whom in turn had things told to them by others, with the origin residing in some theorist, who himself was likely twisted in his views and perception by his need to conform.

In my view, I am an elephant. Being an elephant, I know myself as an elephant. I know how an elephant eats, sleeps, dreams, and walks. And I know other elephants who walk in the same way. Who think in the same way. Yet, I have hyenas all about me telling me what an elephant is like. How an elephant should look and be. Who listens to a hyena to know what the elephant is, when an elephant is standing right beside?

Something must change. That is why I shout, “I am Elephant!”

Twenty-Nine: Blue By You

I’ve been thinking a lot about my childhood and how my actions reflected those of a child with Aspergers. I keep getting pulled back into a time period when I was about ten years of age. I was still rescuing animals then. Not that there was much I could do to help, but to love them.

One day the animal was a bird, near death, whose eyes were cold by morning. Another day a snail that had lost its shell. The one I remember the most is the butterfly. She was a monarch. I found her in the gutter on a rainy-walk home from school. Her wings were tattered, and she was nearly drown. I carried her home, cupped in the safety of my hands. I named her Jolie—for her beauty.

I placed her in a cleaned-out pickle jar and watched her in awe, as she stuck out her black tongue and lapped the sugar-water from a small lid. Her little wings were cast in masking tape. I watched her through the night; ever so often turning on the light and checking on her. I loved her. She survived a full day in the warmth of my affection. When she  passed, I buried her in the backyard under a fig tree and gave her a short sermon. This is the little girl I was, so remarkably sweet and hopeful. I wish to go back to her, to her room, to kneel down at her side, and say:

“I love you. I love you so very much. You are so beautiful. So kind. So thoughtful. And I am sorry that you carry such a burden. I know how painful it is to love with all of your heart. I know how painful it is to want to help and to not know how. But you are helping. You are helping more than you  know, my precious one. Look at me. Do you see what you have become. You are going to be a mommy someday, with your own family, and you are going to have what you need to take care of them. But precious child your journey into adulthood will be very hard. There will be times you want to give up. So many times. And you will take many years to find your way. But you will. You will. I promise you that. And when you do, so much will make sense. And you will cry, cry so very hard, like you are now with losing your beloved butterfly. But I will be waiting. I will be knowing that you will survive. That you will be strong. That you will love with all of your heart and get that love back ten-fold. You of all people, shall be loved. I will be here waiting on the other side of time, with my arms wide open. And when we meet again, in dream and in prose, I will embrace you, like no other. Thank you. Thank you for being you and going onward. Thank you for being so brave and so very strong. You are my living angel. And I breathe for you.”

 

 

Twenty-Eight: Giving a Child with Aspergers a Break

 

Giving a Child with Aspergers a Break

Be. Let the words pour out of the child. Let the busy thoughts escape the mind. Let him speak as long as he wants about whatever he wants. Set no time limits. Welcome the rambling, digressions, repetitions, and dissertations. Be present, without interjection or correction. Allow time periods with no communication rules, lessons, examples, rights, or wrongs. Let the child release the pressure in his mind. Take long walks and car rides together, and just listen. Let him be himself.

Retreat. Grant her a day of rejuvenation, a full day with no visitors, appointments, outings, sports, or any mandatory doings. Keep the day free of all restrictions, chores, and obligations. Stay in pajamas. Allow escape, isolation, and repetitive activities. Give her the chance to rebuild her stamina. Provide solitude and comfort. Stay home from school one day. Peel away the rules and regiment. Let her retreat.

Environment. Ask about sensory concerns in the environment. What causes you discomfort in this space? How are the lights? The chair? The sounds? The smells? The flooring? The pictures? How do your clothes feel? Your hair? Your skin? Where is there discomfort? How can I help? What does it feel like? Describe it. How is the shower? The bath? Do you hurt? Where do you feel the safest sitting? What is hard to tolerate? Do you need sunglasses? A pillow? Earplugs? Let him create a more comfortable environment for himself.

Active Interest. Show interest in her special interest. Don’t call it an obsession or fixation. Call it an interest or passion. Participate. Explore and collect. Be together. Establish a schedule. Make the special interest a priority. Place the passion in a spotlight of acceptance. Establish a blog, newspaper, journal, comic, drawing, song, rhyme, act, or other creative outlet to express the interest. Let the creativity blossom. Welcome the opportunity for connection. Let go of the need to control, fix, alter, or end the special interest. Replace objection with acceptance. Replace disinterest with interest. Celebrate new discoveries. Use the interest as a therapeutic tool. Allow him the freedom to escape from the challenges of his world.

aKnowledge. Acknowledge characteristics, talents, skills, and intelligence. List positive attributes. Don’t pretend anything is easy. Be a warrior and teach how to be a warrior. Don’t try to change the child. Imagine how scary his world is. Tell him he is very brave. Tell him he is not alone in the world. Share others’ stories. Find an adult with similar challenges who is an effective role model. Watch movies about Aspergers. Know the child wants nothing more than to be good, to do good, and to feel good. Explain that he is never a failure and always a success. Tell him you hope he tries his best, but on the days he doesn’t feel like he can try, that’s okay. Tell him he has a right to hurt and be scared. Tell him he is a gift and that there is nothing he can do to make you stop loving him. Tell him he is perfect. Tell him even though you aren’t him, you can imagine how hard life must be for him. Ask how he is feeling. Never minimize or discount. Never say it’s not that bad or things could be worse. Say you are getting stronger and wiser every day. Believe in him.


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