Day 54: I Have Loved You For A Thousand Years!

To My Dear Son,

I have been selfish and blinded. I have hurt the most precious being on this earth, my very flesh and blood, my baby, my angel, my bear.

I am so very sorry. And you have every right to be mad at Mommy. You have a right to have emotions, to feel emotions, to have pain, to express the pain, to experience that pain, and to above all share that pain with whomever you choose to share that pain with. I love you so much that I am crying with joy. I am washing the tears from my cheek.  And I am crying big tears of “I am sorry.”

This is the most important letter I have ever written. The most important words I have ever written. And Mommy has written thousands of pages of words. You are that important.

When I was little, I promised myself every night and every day, in the morning light and in the dark, how I would love my child with all my heart. How I would never cause him or her pain. How I would be there. How I would carry the pain.

I would die for you. Right now. I would die for you. I love you that much.

I am sorry I haven’t shown you lately how much I love you. I am sorry I have ignored you. I am sorry I haven’t been present. It is my fault. And I am heart-broken because of the choices I made. You are not to blame, one bit. You did nothing wrong. You are perfect.

If you could see me now, crying louder than our doggy howls, crying so hard, because I never want you to feel alone or unloved, unnoticed or forgotten, you would understand how much you mean to me.

You would know that you are not Forgotten. That you are loved beyond measure.

You are my beautiful, divine, and loving son. I am the luckiest mom on earth! You make me smile with delight. You tickle me inside with your jokes and puns. You are amazing. You are brilliant. You are the joy that fills my day and the reason I fall asleep proud. You are a bright star that brings the family an element of surprise, adventure, truth, and great passion.

Our family is complete because of YOU!

Your passion is so huge that it fills the whole of our house. Your creations, inventions, and experiments—as they explode in our bathrooms, across our kitchen, on the balcony, and all around the house—they announce to the world: I am brilliant! I am creative! I am GREAT!

Our family is whole because of you. Because of your brilliance and charm. Your directness. Your ability to see and feel at a deep, deep level. Your gift of knowing things beyond this world. Your gift of bringing a smile to our face, over and over. Your memory is fascinating. Your strong will and determination is amazing.

You will go far in life. You have so very much to offer the world.

And I am so very sorry that I have not been there for you. I am ashamed. I am saddened. I was wrong.

I’ve been lost in my own world and pain. I’ve been hiding from events in my life. I’ve been afraid. I haven’t been brave like you. I haven’t been courageous like you.

But you know what?

You have made me braver with your words today.

Know why?

Because I love you so much, that your very words pulled me out from where I was hiding, and motivated me to stop being selfish, and to see the beautiful gifts in my life. Gifts like you, and your smile, and your loving eyes—and your huge, huge heart!

I am so blessed!

Look at you. Look what God has giving Mommy! A beautiful, intelligent, healthy, loving, charming, courageous boy. Who could ask for more? Why have I been so blinded in my own worries and fears?

You are glorious beyond words.

So this is both my sorry letter to you, my loving son, and my thank you letter to God.

Thank you God for my boy. Thank you for his angel heart, for his angel hugs, and for his patience with his mom. I know how blessed I am. Please forgive me for not appreciating this marvel you have placed before me, for this gift you have trusted in my care, for this wise being at my side.

“Thank you!” I shout from the highest mountain. “Thank you for this greatest gift in the whole of the world. Thank you for my glorious boy. For my super, fabulous kid who makes my world marvelous.”

Today, my son, I honor your words and concerns.  I honor you. I honor all of you. All parts of you. Everything about you is absolutely perfect. There is nothing I would change, nothing I would alter.

I can’t wait until you get home; I’m counting the minutes. I will get on my knees and say: “I’m sorry.”

Then I will wrap my arms around you, and say: “I  love you farther than all the universes can reach. I have loved you for a thousand years. Darling, don’t be afraid. I will love you for a thousand more! I will love you forever and ever! I am here.”

I love you my dear wonderful boy,

Your Mommy

Day 53: “Un-Friended”: A Female with Aspergers Experience with Friends

You are either going to love this post or say to yourself (or perhaps your neighbor): Look how long this fricken post is! 

Here’s some easy listening music to get you through the first 5 pages.

No. I’m not kidding.

It’s a soundtrack song from one of my favorite shows of all time. If you haven’t seen the movie, you haven’t lived!

Love Actually: Christmas is All Around song, by Billy Mack

This is NOT connected to the story in anyway. But this post is so fricken long that I don’t have time to look for other images that aren’t copyrighted.

I did what would be the equivalent to my very first “unfriending” of an individual yesterday.

I pressed the button on the  social network site and PRESTO-MAGICO (said in a French accent), they are gone from my life.

Through this unfriending process, I realized that I have NEVER once un-friended a person!

I mean real, walking, living breathing life—friends I hang out with, who I touch regularly…okay, that just didn’t sound right.

Today I reached the massive conclusion that I did not come equipped with an un-friend button.  Whomever or whatever force created me, forgot to install the un-friend button. (And I don’t mean my mom and dad.)

I’m also missing the whole and complete manual that explains the workings of friendships.

Luckily, through sweat and tears (literally lots of tears), I’ve managed to recreate my own friendship manual that looks fairly equivalent to other people’s  manuals. Of course, MY manual is written in some obscure language only Crazy Frog can read.

I’ve lost a number of friends due to my quirkiness and lack of friendship manual. Not so much now, but a fair number in my early years, and a recent loss in my late thirties.

There are two that stand out.

One loss happened with a friend I was close with for a good four to five years. And then one day, she just stopped returning my emails, stopped returning my calls, and un-friended me on Facebook. And her brother in England, he un-friended me, too! No explanation. No closure. No reason. Just erased me from her life.  And at the time, she only lived a block away from me.

This is what I imagine she would say, if she were asked to explain why she dumped me. Remember I had no idea I had Aspergers at the time, and neither did she.

She freaked out a lot over things.

She was needy.

She obsessed about her health and writing.

She worried a lot.

She was very intense, too intense.

She talked too much about her church.

Oh, and she insulted my husband one too many times, like when she said, in front of his whole poker gang:

“I bought you these specific low-salt chips because your wife told me your blood pressure was high.”

And another time at a party when she said, “I told you that you should have gotten that mole on your forehead checked out a long time ago!”

The other friend, was the only friend I made the first four years of college. This college friend simply disappeared. She stopped returning my calls. And when I phoned for the tenth time, her father informed me that his daughter was too upset to talk to me and no longer wanted to be friends. I’m still clueless on this one. But I imagine this person would have said something to this tune:

She talks about spirits and ghosts all the time.

She talks about precognitive dreams.

She dates men out-of-town she hardly knows.

She obsesses about men she just met.

She talks nonstop.

She’s odd. I mean who has never once bought themselves a soda?

And how could she not know I was dressed as Mrs. Bundy on Halloween? Doesn’t she watch Married with Children?

Interestingly enough, these two friends both have the same name. I’m not super fond of that name anymore.

 

I try to keep my blog PG-Rated, but these stories are probably PG-13, some strong language.

Vignette: The Bleeding Napkins

The thing I remember most about Renny, besides her over-sized nostrils and cooked-spaghetti-like hair, was the bleeding napkins.

“We show them at the county fairs and other places,” Renny said, one afternoon in her dingy kitchen.  Squeezing my face together, I covered my mouth and nose with my hand and stared out at the pile of gray and blue cat carriers stacked high in the corner.

“You’ll get used to the smell in a few minutes,” Renny apologized.

I smiled.  “I like your orange wallpaper,” I offered.

Renny pulled down an enormous bag from the pantry shelf and proceeded to fill up five bowls with cat food.  Nine cats and three kittens came running.  “Mother and I show them at the cat shows,” she announced, and pointed to a shelf laden with dusty ribbons, plaques and miniature, gold trophies shaped into cat faces.

“Do you get money?” I asked from behind my hand.

“No,” Renny frowned. “We only get the prizes.”  She pushed aside some dirty dishes in the sink and filled up a large water bowl.  Then she wet a stack of napkins.

“Oh,” I said, sinking my hands deep into my jean pockets.  I breathed in.  Renny was right, the smell was fading.

“I used to have thirteen cats when I was little,” I said.  “But only for a couple weeks.  We had three cats and two got pregnant, and soon there were thirteen.  But I like the number thirteen.  It’s my favorite.  So that was pretty cool.”  I was rambling.  I rambled when I was nervous.  “But then one day I came home and there was only one cat left, Ben’s cat.  That’s all.  And I asked Mom what happened and Mom said that she found them all good homes.  But I knew she hadn’t really, because it was only one day.  And no one can find twelve cats homes in one day.  So I knew they were dead.”  I peered out at Renny who didn’t seem to be listening.  “Did I tell you ten of them were kittens?”

Renny glanced up and smiled.  “Come in here.  I have something I have to do,” she said.  The water dripped off the napkins, making a trail from the kitchen into the living room.  Renny kicked an empty soda bottle out of her way and tossed a clump of her sister’s clothes onto a chair.  “It’s a good thing we don’t have carpet, my mom says.  But they still find their way to the couch, mostly this couch. That chair over there isn’t so bad. You can sit there if you want.

“I’m fine,” I answered.  I picked at the green alligator appliqué I’d sewn by hand on to my old shirt, an alligator I’d plucked off of a ten-cent, stained polo shirt purchased from the local thrift store.

Renny stopped moving, and asked, “I do this everyday—well most days.  Do you want to try?”

“No, thanks,” I said with shifty eyes.

Renny set the pile of wet napkins on the arm of the couch and began separating them from each other.  One at a time she spread white all across the seat of the couch, until there appeared to be a long line of paper ghosts.

Like magic, the napkins began turning red, bleeding out from the center to the edges.   I twisted my face in disgust.  “What’s that?” I asked.

“Flea poop,” Renny said quickly.  “It’s one of the downfalls of having cats.  But it’s worth it.  You saw all those ribbons.”

My eyes widened.  I gulped.  “I guess.  Do you think I can use your bathroom?”

Five minutes later, after I’d rinsed my hands under the water several times and stuck my head out the open bathroom window, I found Renny atop her waterbed.  There were no blankets.  Well there were, but the covers were all piled in a corner of her closet.  But there was one big orange sheet.

“My mother’s old boyfriend Ben used to have a waterbed,” I said.

“You’re pretty safe up here from the fleas.  Here.”  She tossed a training bra at my head.

“Yuck.  What’d you do that for?”

Renny flashed an unfettered smile.  “My sisters have them.  I thought it was about time I got one.  Plus when a guy goes to feel me up, if I’m not wearing a bra, what’s he going to think?”

I touched my sunken chest and frowned.  “Who’s going to feel you up?”  I looked up.  “Do you think I need a bra?”

Renny jumped down from the bed.  I flicked a flea off of my arm and examined the floating green cluster of goop in the water under Renny’s waterbed liner.  “Yuck,” I said.  “You need water conditioner or to drain it.”

Snatching the bra from my hand, Renny held it up against her shirt and galloped about the house neighing like a horse.  I followed, prancing about with a pair of Renny’s floral underwear on my head.  We were both out of breath when we heard the sounds of barking laughter.

We peered out the living room window.  At the end of the driveway, Renny’s sisters flashed their black bras at two shaggy-haired boys.  Renny’s mouth was agape, her pointy ears turning red.  I pulled my eyes away and focused on the flea on my sock, catching the parasite with the first try and popping it in between my thumbnail and finger.  A drop of blood squirted out.

Renny stepped away from the window, taking the string of the blinds with her. The blinds clanked and scraped against the mildewing glass causing a miniature dust storm.  Coughing, I ran to Renny’s bedroom and sought retreat from the fleas under the orange sheet.

Minutes later, Renny lifted the lid of a red and white cigar box, and pulled out a small bud of marijuana.  “It’s the expensive stuff,” she said and bit down with a sour face.

I wasn’t too impressed, but smiled anyhow. “I’ve tasted the seeds before,” I offered.

Renny chuckled, set the box down, and pushed an orange tabby cat away. “Mom keeps the dope hidden in her closet but my sisters are always stealing.”  She pulled off cat hair from her sock and scanned her slovenly room, the whites of her eyes turning pink.  “Sometimes,” she whispered, “I wish I lived with my father.”

I pang hit me hard in the stomach then.

Day 50: The Illusion of Normal

The idea of this concept called Normal is one of the grandest illusions of our time.

There is no normal.

Normal doesn’t exist.

All definitions of normal are debatable—as are the definitions of typical, average, and ordinary.

And what’s wrong with atypical, above average, and extraordinary, anyhow?

Normal, apparently, means behaving like most behave. But who are these most? And how do they behave? Show me the model. And PLEASE don’t point to a television program.

The definition of normal is particularly alarming, and highly debatable, when considering the Diagnostic and Statistical Manual of Mental Disorders (DSM), a guidebook for mental-health professionals. (Often referred to the mental-health clinician’s Bible.)

All mental-health practitioners in America categorize and diagnose millions of people by referring to the Bible of Abnormal—my word for the DSM.

No surprise that the definitions of normal changes with each publication of the DSM.

The new 5th edition of the DSM comes out in 2013, with newly proposed disorders and changes made to other disorders. It has been rumored that children tantrums will be a new disorder.

What about adult tantrums? Because I feel one coming on!

I’d like to see a Bible of Normal. I mean, if a whole thick book can list non-normalcies than shouldn’t the opposite book be available? Of course there is probably no profit to be made in a book on normal behavior, especially if the book were based on fantasy and trickery and not attached to a drug to cure normalcy.

No big surprise considering the times we live in to discover the DSM is driven by the machinations of the pharmaceutical business.

In fact, more than half of the experts who compile the DSM have ties to the pharmaceutical industry. (Published in the journal of Psychotherapy and Psychosomatics.) And other experts have other financial ties, such as research monies.

Thusly, the current idea of normalcy is a spawn of the introduction of psychoactive drugs in the 1950’s.  Hmmmm? I’m thinking I don’t particularly agree with how this normal came about. How about you?

There is a direct relationship: Psychoactive drugs were introduced to treat the DSM definitions of Mental Disorders and Illness.

A mental illness can be defined as: A psychological pattern reflected in behavior that disrupts a person’s thinking, feeling, mood, ability to relate to others and daily functioning. The illness cannot be overcome by willpower, and is not related to a person’s character or intelligence. In the majority of cases, mental illness usually strikes people in the prime of their life.

Rather ambiguous.

The pharmaceutical companies would like everyone to believe that many people have a mental illness, but that FORTUNATELY the illness is a highly treatable condition; by (buy) their drugs, of course.

Too bad the direct relationship isn’t: The Food Pyramid, Employment Opportunities, Community Support Systems, Herbal Remedies, Acupuncture, Massage, and other healthy alternatives were introduced to treat the DSM definitions of Mental Disorders and Illness.

http://www.wellsphere.com/wellpage/semi-vegetarian-food-pyramid
Image found at above web page.

You do know the powers that be in America do hope we get sick and fat so we will buy more drugs?

Beyond the tantrum I just had over the injustice of the world, I am also a wee-bit confused about the DSM’s definition of Asperger’s Syndrome. The limiting definition is based on only male subjects. I’m a girl last time I checked. The definition is not based on a great degree of research. Yet, these DSM collaborators (insert any word here you want) feel confident and comfortable enough classifying Aspergers.


In considering the definition of Aspergers Syndrome:

People are born with Aspergers.

It doesn’t just appear in the prime of one’s life.

People with Aspergers do have high intelligence.

I’m confused about this reclassification of Aspergers coming out in the new (and improved) DSM-V.  Asperger’s might be classified as a social disorder. Please!??

So the people who act like everyone else are the ones without a disorder, the so-called normal ones?

People who don’t express strong convictions are normal?

People who suppress their quirks?

People who are social conformists?

People who blindly follow the plutocracy? (government lead by the wealthy)

People who blindly follow the presumed authority figures?

If the definition of normal means to function in most areas of life successfully, what are these so-called areas? What is most? What does function mean?

Do I function, if I come across as the norm? Feel like the norm? Believe in the norm?

And please, please tell me what is success.

If we could gather  Gandhi, Mother Teresa, Martin Luther King Jr., Jesus, and other wise people, and ask them to explain their definition of success, I bet their success wouldn’t resemble most of what is portrayed in America’s normal media, advertisements, and entertainment.

I’m done following the DSM’s and pharmaceutical companies’ yellow brick road of normalcy. It leads to the man behind the current stuffing his sacs with money.

I’m happy with my own path. The path that leads to extraordinary!


Armless Piano Player YouTube

The Artist with No Eyes. Esref Armagan


 

Articles Related to The Illusion of Normal Below

Illusions of Psychiatry

What is Normal

A Comparison of DSM-IV and DSM-5 Panel Members’ Financial Associations with Industry: A Pernicious Problem Persists

Undue Pharmaceutical Influence on Psychiatric Practice: Steps That Can Reduce the Ethical Risk

Day 48: Death by Saliva

I awoke in the early hours of the morn hacking like a hairball-ridden feline with my throat aflame. I’d apparently choked on my own saliva and was still mostly asleep, pacing the bedroom floor while gasping for air. My throat was parched from what had to have been an up chuck of bile.

Out of breath and slit-eyed, I made my way upstairs, and sat in the cold living room under the light of a singular lamp, contemplating my death. LV (see my lingo button) was wide awake, panting and pacing in a pure state of panic, entirely convinced that at any moment the co-conspirators of spit and throat would rebel and squeeze the last breath from me.  Sir Brain refused to ever sleep again. Crazy Frog started counting on his webbed digits all the ways a human could feasible expire. Elephant headed out to the forest. Phantom was weeping in the dark. And OCFlea was in his element, strumming on his ukulele and serenading Death.

Little Me, I passed out on the couch while bargaining with the gods.

Saliva Choking Info. Found Online: “I would be interested to know if you are Overweight. The symptoms that you are describing sound very much like obstructive sleep apnea, which is more common in people who are overweight. In this increasingly common disorder, the soft tissue in the back of your throat relaxes while you sleep, and then it falls into the airway.”   

Oh! JOY! Time to find me a muzzle. 

This morning, I looked in the bathroom mirror, and I swear my chin is gone. Vanished. Took off with the night. And I have a taste in my mouth like some Keebler elves were up late lacquering my teeth with pond slime. My chest hurts from choking, and still from that nut that caught in my throat from that frozen-cheesecake incident a couple of weeks back. My legs, and basically every part of my body, ache from starting back up with my evil (Eeee-V-aalll) exercise regime. Oh, yes, and my headache came back like black magic, right when the Dean of Education called me last night.

The Dean is heading to China. She gave me a quick ring-a-ding before she left her office for the week. I will get reimbursed thousands of dollars, it seems. Her advice, to set the final part of the plan in motion, was to write a very short, ambiguous email explaining to the VP of the university that I had to withdraw from the college because of my disability. (For university auditing purposes)

Oh boy, did Elephant barge out from nowhere. All of the sudden anger, which I can only assume had been held hostage in the dark of the haunted woods with Phantom, came barging out full-force, trumpets and all.

Elephant had a thing or two to say to the dean. And Elephant actually sounded quite intelligent during the process.  First off Elephant reminded the dean, who I have to say was kind in her manner, that I would not lie, that I was not leaving the university because I had Aspergers! In truth I was leaving because of the way the professors treated me. And that in my last Master’s Program, I had had no trouble whatsoever with the professors, and was in fact supported! (What a concept.)

After Elephant’s romp, the dean was rather quiet. When she spoke again, she still said the same thing: A brief email would be best.

Within a few more minutes, Elephant got to the bottom of the situation. (Now I’m picturing butts. Sorry. Can’t help myself. But I’m stopping Crazy Frog from posting cute butt photos.)

Elephant discovered that the dean had no qualms about anything that Elephant had said. In fact she agreed. With some careful questioning, Elephant came to realize the dean wanted me to write a brief email to assure I’d receive my tuition back. The brevity would avoid the potential of my tuition reimbursement request going into the long, drawn out appeal process. The dean also concurred, quite nicely, that after I had the money in hand, I might consider sending a letter to the VP explaining the truth of the events.

Bravo! One step closer to putting this university behind me! (Butt images again…)

Crazy Frog is ever so thankful to have his precious i-Mac computer back today. Seems he’s become quite the computer snob.

My post was super short yesterday, by my standards. Wouldn’t you know, it turns out that people who read blogs like short posts! Now I have to go back to review my Blog 101 Rules again, and develop a working list of the unspoken norms and etiquette of blogging. It appears, through the act of blogging, I have stumbled upon a cyber society with its own set of virtual rules and expectations.

I’ll be hosting a sit down with the Geek Posse at high noon, to acknowledge our quirky-cute, uniqueness and our right to be however we wish to be in any society, cybernetic or not. Though, I predict the whole meeting will turn into a Matrix  (virtual reality) debate, where Crazy Frog searches out the boundaries of his existence, and theorizes he is existing in some simulated world anyhow. Regarding their existence, I imagine I’ll have to console LV and Sir Brain with dark organic truffle chocolate, yet again.

And then by sundown, I’ll inevitably find myself gasping in the night with no chin. Such is the story of my life.

The Muppet Matrix. For all my fellow Geek Posse Folks

http://www.youtube.com/watch?v=XQrotZDDsTE


Happy St. Patrick’s Day

Day 47: Ode to the Amazing Asperger’s Brain!

Fun Brain Musical Video  (Fun for All Ages!)

At the age of two and a half, from the backseat of the car, Joseph asked: “Who birthed God?” and “How do you know?”

Many People with Aspergers Have  a Strong Ability to:

Reason

Identify patterns

Think abstractly

Find creative solutions

Talk through problems

Adapt

 Look at old problems differently

Speak their mind irrespective of social norms and standards

Uphold an adherence to personal beliefs

Think of new ideas

Have a high focus level

Experience intrinsic reward through thought processing

 

Here’s a look inside the amazing brain of a child with Aspergers. Below are approximately 5% of the questions my thirteen-year-old son, Joseph, who has Aspergers, asked me during a week’s time. Joseph asks questions at random, seemingly from out of the blue.

This morning on a four-minute drive to school:

What if the earth was square. How would that affect gravity? Did people understand the world wasn’t flat after or before they discovered gravity? I wonder what the world would be like if we never discovered the earth was round. I probably wouldn’t even be here.

Yesterday morning, while sipping his green tea:

 I wonder how the world would have changed if we had inventions earlier? Like navigational devices for the Titanic. You never know. But then again, then Hitler would have had access to such inventions.

 Questions all in a row:

How come people are bald on their head and not on their arms? Why don’t they improve things? Like the Titanic. How come the Titanic Crashed? Why wasn’t it steal plated? Didn’t they have radar back then? What a minute. How can we be a trillion dollars in deficit? Whose job is it to make zippers? I just realized something: we need dumb people to do simple jobs. Not that all people who do simple jobs are dumb. But we need them.

A few days ago, in the car:

 If everything is digital now, are we living more in a fake reality or real reality? When you think about it we are accidentally unknowingly transferring things to different dimensions. I mean where does electricity all go? Is it in the clouds?

Fantastic Video on Genius of Autism

Quantum Physics Musical Video

Crazy Frog side note: My dog licks dishes from the dishwasher. Apparently other people’s dogs lick dishes out of dishwashers, too. Good to know!

30 Second video of dog licking dishes…Don’t ask!