523: Aspergers and the MTHFR Gene

It’s been over a year since my five ER visits and week-stay at the hospital. I am ready to be proactive again in regards to my health, even as I have lingering post-traumatic stress from the care I received while in hospital, e.g., not believing I was sick, accusing me of creating my symptoms, referring me to psychiatric care, insisting it was Fibromyalgia, refusing to do tests, refusing to keep my hospitalized for care, etc.

Turns out, after a two-hour tilt-table test at the University of Washington Hospital and conclusive evidence read by a specialist that indeed I do have a ‘real’ condition. A condition closely related to POTS Syndrome. The key for me is to keep up my potassium and sodium levels, stay hydrated, and not over-do it. I drink lots of coconut water and take pink Himalayan salt and a variety of supplements. I was also diagnosed with joint hyper-mobility syndrome (possibly EDS) which is a probable cause of my POTS-like Syndrome.

My symptoms prior to going to the ER last year were weight loss, hair loss, loss of appetite, neuropathy of all limbs, autonomic dysfunction (including digestive pain, not being able to sleep or sit up, heart rate of 160 standing/120 sitting), chest pain, mid-back pain, all over fatigue, weakness, shaking, and generalized pain. I’d spent a good month in bed before the symptoms worsened. Also, I had signs of dehydration—white tongue, etc.

It still amazes me the doctors thought I could control my heart rate, and literally make it go from 90 resting to 160 standing and back down to 90 resting. They must have thought I had super powers. Or they just didn’t want to face facts that I might have a RARE condition!

Anyhow, because of the stress of being in and out of hospitals and seeing multiple specialists, I never wanted to see a doctor again in my life. I have since, but not because I wanted to go.

However I am ready now to get some blood work done, after briefly reading about the MTHFR Gene. (Thanks to a reader for telling me about it.) I have been trying remedies for years to rid myself of depression, fatigue, pain, and the like, particularly related to PMDD. This gene could be another piece of the puzzle. And if so, folate treatment could be the answer. I have listed a few links, the first ones that I found that helped me to understand the gene’s role in our bodies.

PMDD, POTS, and EDS (Ehlers Danlos Syndrome) are common with people on the spectrum. I thought this gene was worth mentioning, as well.

I started going back into my far infrared sauna today, too.

Another reader said MTHFR looks like MOTHER F***ER… which made me giggle.

Okay, here are the links. Step-by-step we are finding answers.

If direct links aren’t working, copy and paste.

http://mthfr.net/mthfr-resources/

http://www.nwimed.com/mthfr/

http://www.doctorbecky.net/mthfr.shtml

Much Love,

Sam

424: To the Girl in the Altered State

To the girl in the altered state

Every once in a while, about six to ten times a month, I enter an altered state in which I cannot recognize or reason with myself. Mostly this happens during the week before my menstrual cycle, but also occurs sporadically throughout the span of a moon-cycle. I am not separate or without consciousness of experience during this altered time, but I am definitely separated from a healthy self-image and from a sense of hope. Partially, this state of being can be explained through the symptoms of PMDD and/or severe PMS. Partially, this altered mood state can be explained through environmental influences, such as exposure to people, foods, weather fluctuations, and events. Causes of the root of these states can also be found through the intake of others’ words, actions, body language, moods and emotions. These altered states are intensified, if not jump-started, by the complexities of my thoughts, including my innate ability to scaffold one thought upon the other, and then root my ideas through advance complexities of processing equivalent in design to a skyscraper building upward and outward with exploding and expanding firework-like threads.

Inside my mind is a jumble of ideas edging their way through to exactness and refinement, entering a filter of dissection and biopsy, spit out into a conveyer belt which feeds each piece with microscopic filaments of possibility. As my mind functions much like a separate entity of its own, I get carried away in the potential outcomes, swept into immensely thick images and awakening, I can both feel, create, and to some degree control.

Here is the only place I find a semblance of control, and because I can find this peace, this place of no unexpected upset, but instead a returning again and again to the matter at hand–this machine of causation digesting and reproducing with each throb of my heart—I can remain here unaware of the happenings around me, the things occurring outside of my own thinking.

This serves me well, my thinking-machine, in times of deadlines, needed production, problem solving and sorting. I have the capacity to debate both sides of an argument with ease, essentially seeing with expansive foresight the end-trail of either avenue taken. Whether I be supporting myself or another’s endeavors, I am more likely than not to typically find beneficial solutions and make beneficial progress with any given task. I am able to mass-produce with focused concentration and powerful self-drive. Nothing is forced, induced or made to happen; the output of self happens instinctually and naturally, the process akin to the effortlessness in which a flower unfolds. I am neither under pressure or in a state of panic. More so I find myself in a blissful alleyway of escape with my troubles blocked out on one side and my worries blocked out on the other. I have managed, through simply being, to slip past both the mundaneness and challenges of life, and bask in an inner-state of creation. Here, in this creation state I am blissfully working. Pouring out information in graphic and written form, both in hardcopy and in my mind. What I see is transmitted and then drafted. Draft upon draft is reassembled and reconstructed, both internally and externally. I am me, yet I am not, producing with an extremeness I am familiar with, a rush of production that seems to resemble an urgency and need, though, to the creator resembles a necessity of action—something one was born to do and must do to survive.

Given a subject, I can learn mass amounts of information in a short amount of time, not because I am told to or want to, but because I am internally driven to completely fill the vacant spaces in my mind with input. I am taking in what I crave, as if the newness was the exact food I needed. I have nothing to prove to anyone. And thoughts of improvement of self spurs feelings of the potentiality for pride. This pride feels like poison to me, indigestible and damaging to the whole of self. I create with passion and fever, but not for the reasons others might suspect. And the suspicion, the judgment, the expectations of onlookers, is the first part that disturbs what I take in. The latter part which causes disruption being the layers of guilt I wade through for being what I am in the way I delve into the alley of reprieve. Together, the meanderings of thoughts, including the knowingness of what I am and who I am (in the way I deviate from the world-proclaimed norm), the indigestible thoughts of feasibly self-filling through prideful ways, the known ways in which I appear to others through my behavior, and the guilt which soaks through, leaves me in a split state—one in which I am in the alley of reprieve but pushing back a self-punishing voice that regurgitates what I have been shown and told through experience and exposure of normalcy.

It is the processing and creation that occurs within me that both feeds me and causes the worst agony. Yet I can discard of the self-defeating thoughts most of the time, except the handful of times in which I am in an altered state and feeling low self-worth, as previously mentioned above.

During these moments, which I have called altered states, when I am emotionally at my end, sad and what could be labeled ‘depressed,’ I am tested by my own thoughts and circumstances, inventing ways to end my agony, and undoubtedly coming up empty with possible recourse and explanation. My mind takes off again, as if bound to creation with engines revved. Only this time I am digesting bits and pieces that don’t make sense and leave me suffering. I am stuck on the loop, a conveyor belt that keeps recirculating with the same information over and over. I keep misfiring inside, keep trying to solve the unsolvable, and inevitably end up disappointed and forlorn.

I can step back while in this state and feel myself adrift, unable to help or pull myself outside of a surrounding feeling of doom. Not one to dismiss possibilities or explanation, not setting aside feasible reasons, I keep forming hypothesis and testing theories through personal trial and error, digging myself deeper into confusion and darkness. The only way out is to sleep, to process verbally with another, to create through writing or art, or to cry. When I am on overload, having reinvented the same scenes again and again, dizzy and upset by my own making, I might have a panic attack.

During these times of reconstructing the same thoughts over and over, I cling to my greatest fear of the moment. For me this is usually attached to abandonment, sickness and death. I see these fears in full picture, too. And having died a thousand ways through various ailments or found myself worthless in forever isolation by all I love, I become exhausted. In theory, I suppose, I climb into a storybook of sorts, living out alternate lives again and again, wherein I am not the heroine but the doomed sufferer. If not a storybook than a vivid horror film in which the characters all dissolve and I am left alone in a sucking suffocating darkness that breathes me into a state of hopelessness. Because my mind is the way it is, for whatever cause or reason, the very tool that creates masterpieces is the same tool that creates my demise. In this way, the same control I lack in being swept into the alley of reprieve is the same tool I lack that keeps me from being sucked into crushing isolation.

Having tried various measures to offset these altered-states, I have found that some things can make a difference. But usually these measures are unexpected, unpredictable, and cannot be created through planning or intervention. The only thing that stops my altered-states is the unexpected. A few ways I am pulled out might include circumstances such as a joyful surprise, a state of urgency in which I need to help another or solve a pending challenge or expected occurrences such as a good friend visiting from out of town or a celebrated accomplishment.

Time and time again I have wished I had a letter to read to myself during this altered state. Ideally, I would benefit from videotaping myself reminding myself I will be okay because during the dark hours it seems nothing will ever stop the physical, emotional, and spiritual pain.

Dear Girl in the Altered-State,

You are here again, and you knew you would be; even though you think this is a new thing, it’s not! I know this time you think this is it, the end, the worst, the real test you will fail, the trial that will end you. Again, it’s not. You are fine. You are momentarily lost in a loop like a time traveler who has lost her way. The key word to remember is ‘momentarily.’

‘This too will pass. This too will pass.’ You aren’t going anywhere. You aren’t checking out. You aren’t crazy, and you are certainly not dying. No more than anyone else on earth, anyhow. You are a mortal and a human being and you are affected by so much in this world. You take in mass amounts of information, much of what you can’t even recognize until it is spewed out the other side through you, like some salmon flying upstream and landing on shore.

You are enough. I know you think you are not. But you are. You are pretty and smart and lovely. You are sweet and kind and caring. I know you think you aren’t good enough, no matter how hard you try and that you aren’t worthy. But you are.

In a few days you will be smiling again and loving life. Here are some important things to remember. The rest let go. All of it. I mean it. Let go of the worry, fret, regret, upset, and all that makes you mourn. Cry if you need to but don’t hold it in, and follow this list like a trail of breadcrumbs that will bring you home.

I love you. I love you so very much. You are brave and my princess, and you are never alone. You will lose your faith during this time, but the angels are still here. You will lose yourself, but you are still here. You will question everything and everyone, and not believe a positive word out of anyone’s mouth, including mine, but that is okay.

Still with all of this said, you will think this is it, the very last straw, the end of it all and the beginning of everlasting suffering. That’s bull. It really is. It’s a dark voice invented in some alley way in your mind. We don’t know why it happens, but it does. Probably a side effect of all your processing, like the sludge overspill form a well-greased engine. That’s all this is: an end result of your mind at work.

Don’t trust the negative messages and don’t make any decisions. And believe in us, in you, and finding your way back. You don’t have to do anything. You don’t have to fix yourself. You are perfect. And you don’t have to search for a way out. It will just come. The custodian is in there right now cleaning up the gunk with a mop. Just wait. That’s all. It’s okay if you are impatient and you don’t believe me. All is okay. I know that anything on this list will take all of your energy, but doing just one will help you. Remember I am here waiting, and you will come out of this altered state soon. For now pamper yourself and know you are loved.

1. Shower or take a salt bath. You will instantly feel better
2. Walk and if you can’t walk then dance to music. Move. Just move.
3. Accomplish one small task, like emptying the dishwasher, one little thing will show you that you are okay and capable of productive activity.
4. Create through your sorrow: dance, paint, draw, write, or do something that spills the emotions out of you into reality.
5. Process aloud with loved ones how you feel.
6. Treat yourself to food, you will be starved during this time, and that is okay. In a few days, once rebalanced, your healthy eating habits return.
7. Avoid the mirror and taking photos of yourself. How you view you is not reality. You are creating flaws and negative messages when you see yourself.
8. Go outdoors. Even if for a moment. Let your feet touch the earth.
9. Get in contact with nature, feed the wild crow or pet your crow, stare at the water, breathe in the air, soak in the green of your surroundings. Don’t hide out in your house, you will suffocate.
10. Allow yourself times of no production. Just be. And don’t analyze. If you need to listen to the same song over and over do it. If you need to watch a movie over and over, do it. Don’t judge yourself, your actions, or what you are doing. You are enough, and it is okay to rejuvenate.
11. Avoid triggers that increase anxiety including gluten products, coffee, and exposing yourself to people that drain your energy.
12. It’s okay to say no.
13. It’s okay to let go of your responsibilities, slow down, and take care of yourself.
14. It’s okay to cry and to be afraid.
15. Don’t try to solve, fix, or understand what is happening. It is out of your control and that is okay.

I love you, my precious one.
You are enough.

420: 10 Things Not to Say or Do When I am Sad

tree light

10 Things Not to Say or Do When I am Sad

1. Don’t ask me to explain or reason my way out. When I am sad I have already evaluated everything ‘to death.’ I have looked at the pros and cons of my own life and my own suffering. I am no dummy. In fact, part of the problem I am so sad, is because I am so dang smart. I am my worst criticizer and have evaluated all the benefits of not being sad verses being happy a thousand times, and the worst part is that I cannot reason myself out of the sadness and feel happy.

2. Don’t tell me I need a pharmaceutical drug. Chances are, I’ve done my research or tried the drug before. My body is so very sensitive that any chemicals I put into my body cause adverse reactions. I get the so called ‘side effects.’ I am that less than 1%. I am the canary in the coalmine. I am the one you read about that gets the suicidal thoughts from anti-depressants and the one that has bizarre things happening to her body when I ingest foreign substances. I am already affected by the environmental pollutants, the toxins in our water and food, the hormones injected into products, and the chemicals that seep out of most homes. Truth is, I likely would be far happier if I lived in a world that didn’t reek of destruction.

3. Don’t tell me you know the reason for my sadness. More than likely, if it’s not my PMS or PMDD, or the result of an auto-immune disorder, or a variant enzyme, an allergic reaction, a virus or illness, or something or another that is deficient or out of whack, perhaps in my intestines or stomach, then it is situational. And not just the typical situations, like a bad day at work or a letdown. I have learned not to let ‘bad’ days affect me. I have ‘bad’ moments, each and every hour, I have ‘bad’ moments, and I choose to spend my day grasping onto the light and the goodness of the day. Only sometimes, I get tired of reaching and trying. My life is a struggle to fit in, to appear ‘normal,’ to follow the ‘rules,’ to even understand the ‘rules.’ I am exhausted. I am a warrior who wakes up every day with the past day erased, all the previous trials conquered gone, all the accomplishes vanished, and I have to start from square one to try to make sense of a world in which I do not feel I belong.

4. Don’t give me advice. You have no advice I have not heard, read, seen, felt, or experienced. One way or another I have studied what you will say. I have studied emotions and reactions in films, in music, in literature, even in nonsensical jokes and in animal behavior. I understand emotions and I understand my sadness. I read to understand myself and I even study you to understand myself. I know more than you think. I may not know the root cause, but I know that there isn’t an answer you have that I don’t have within myself. Your suggestions of correct verbiage, positive thoughts, rest, fresh air, exercise, meditation, visualization, diet, supplements, and the lot, do nothing more than boggle my brain and make me think you care more about your role as a want-to-be helper than you do about my pain. I can’t be the object of your fixing. I don’t want to be and refuse to take on that role. I am not less than you in my sadness and you do not have the secret key I need. I did not express I was sad because I look to you for answers. I told you of my sorrow because I just long to feel less alone.

5. Don’t tell me what I have to be grateful for. Don’t suggest I make a list. That is crap. To me I am grateful for the tiniest of thoughts, gifts, and actions that most people take advantage of. The near site of the dew of the grass, the soft smell of the fire-painted lily, the brilliance of a child’s laugh, the comfort of my favorite blanket, or favorite song..all these lift me. So much of the world lifts me. Many moments I travel in a world so extraordinary and filled with magic that I thank life for just my essence, to just to be in the midst of such glory. My list of gratefulness is not divided by good things or bad things. I stopped judging the right from wrong, and the just from the unjust, a long time ago. I live in the space in between the extremes of yes and no, and laugh at the ones who think their view is the only view. I can’t see making a list of all that is good without classifying at the same time in invisible ink what is bad, or worse, what others are lacking. I am no less and no more grateful than the homeless man on the street. If he is happy, I am happy. If he is sad, I am sad. To even make a list seems to me pompous and unjust, to single out how lucky I am in such a world of misfortune makes no sense, unless I hold greed as a virtue. Unless I see myself as dutifully worthy based on my profiting and others’ lacking. Unless I single out what is entirely missing from another to satisfy my own growing need for satisfaction. And anything of material I would attempt to scribe as benefit, I would rather break apart into a thousand pieces and feed the world. I don’t believe I can classify what happens in my life as good, bad, tragic, ugly, or beautiful. I only know it happens, and is happening. And for what reason is still to be seen. I know to let go and let my higher source lead. But when I am very, very sad, sometimes I forget how to release; I forget how to let go of the clinging of suffering. I forget I am not alone onto myself.

6. Don’t tell me how wonderful I am. I know who I am. I know through and through. I know I am kind, gentle, sweet, generous, forgiving, genuine, giving, smart, keen, and many other positive attributes. I am not sad because I have lost sight of why I am enough. I know I am enough. I am sad because the world has lost sight of me. Because I long to reach out and connect but when I do, I often feel nothing reaching back. To touch another fully, is all I want. To touch in full extreme, without pretention, want, need, expectation, goal, or outcome. To just touch. I, as I wait in my own self-created exile, as I wait without the sense of feeling another, grow in sadness.

7. Don’t tell me ‘this too shall pass.’ I know the sayings and tons of other random words collected to form reprieve. I am an avid reader and collector of quotes. I am a philosopher, an artist, a creator. I have the heart of a lover, the mind of a composer, and the spirit of a warrior. I am brilliant in my creation, and I understand the ebbs and flows of life. I move like the sea with the moon. I move like the willow with the wind. I am affected by the give and take of the world, by nature, by weather, by other people, events, and tragedy. I dream things. I see things. I experience emotions in extremes, and sometimes cannot tell if I am carrying my own pain or the pain of another. People find me. I don’t know how, but they do. And I am a vessel of sorts, harboring the lonely through the storm. They crawl in with their tears and woes, and their aches leak through me, crushing me to the core. I know everything will pass. And I know still that life is a cycle, and like the seasons, my sorrow will come again. Do not attempt to help me to look forward to the end of my pain, help me to go through my pain.

8. Don’t criticize or mock me. I cannot help how I am. Do not call me ‘overboard,’ ‘too much,’ ‘too intense,’ or the like. I cannot help that I am the way I am. I can often control my behaviors and be the best person I can be, and I do this daily. But my emotions sometimes take over. I don’t know how or why, beyond conjecture, but they do. And the more I fight the wave of pain, the more the pain comes. Sometimes I need to submit. To be in the turmoil, so that the tunnel evaporates and the light comes again. I fret over the tiniest of perceived imperfections in the way I treat others. I judge myself for not being caring enough, attentive enough, or loving enough. I cannot lie without deep remorse. I cannot have enemies. I cannot even hate. I know not this emotion hate beyond the emotion of anger turned deep sadness. All is huge to me. There isn’t a small suffering. I hurt for the tiny spider as much as the buffalo. I long for the rescue of the persecuted innocent as much as the child without parent. I feel and take in such extreme happenings, and know not where to lay my burden down. Just as I spend all day, moment to moment, contemplating how to maneuver in a world that remains unfamiliar, I spend my inches of time trying to figure out how to again release my burden, where this time to bury my woe. Shall it be in words, in rhythm, in rhyme, in the deep wilderness real or the serenity of my imaginations? Will I get lost again in my escaping? Where shall I take this misery and when will I have my fill? Do not criticize me and do not tease me. Do not laugh or giggle your way into a stream of mockery aimed at me. I do not do what I do for attention or purpose. I do not do what I do because I want to. I do not do what I do because I am confused or made wrong. I am perfect in my being. I am just sad. I am sad. I am sad.

9. Don’t abandon me. Do not leave my side, if I need you there. Do not hang up the phone, if I am crying. Do not say you will return, and then not call. Don’t say something, and not mean it. Don’t lie to try to make me feel better. Tell me straight what you think. You covering up only makes things worse. The world is already unsafe with its lies and trickery. I need you to be safe. I need your word to be strong. I need your integrity, your honesty, your truth. I need you to be that light that I am, to prove to me again you are here and I am not alone. If you do this, if you are loyal and true, when my sadness goes, when it is lifted, I shall be at your side with the beauty I am, pleasing you in your times of suffering, and holding your hand in your deepest need.

10. Don’t perceive me as something I am not. Try not to label me. To find the answer that brings you closure. It is not my job in life to fit neatly in a box for your comfort. My moods are my moods, my pain, my pain. My emotion is not a reflection of you, nor a product of you, any more than my happiness. I don’t expect anything of you in your pain and sorrow, so please don’t expect anything of me. Don’t make me your martyr, your angel, or your giving-spirit. Don’t make me the melancholic one or the hopeless creature. I am what I am, and what you create of me is neither here nor there, no less truth than what I create. I need you to try to not see me through the eyes of fear, but through the eyes of love. To bathe me in acceptance and forgiveness. To love me enough in my completion that you in turn love yourself in completion. If you can do that, if you can look past my ‘flaws,’ past the definition and existence of ‘flaws,’ and see into my suffering the very spirit reborn into darkness, soon to be sprung into light, then I shall have hope. If I can see me as hope, I will be hope. If you can hold me as hope, I shall be the very essence that you perceive in your grasp. And we can meet there, in that space between the suffering and hope, and merge, per chance, in that shimmer of a second, as one.

352: Here Comes the Mud

Last night I dreamt two boys, my son and a friend’s son, had painted my stairs with clay-colored shit. On close examination, it wasn’t shit at all, but mud they’d dug out of the water-creek area centered at the heart of our house, the outside elements inside, below the stairs. There were shovels there; they’d been digging for water in fun, until they were scolded by my friend, the one boy’s mother, for spreading shit inside the house. She had climbed down and brought up a clump in her hand, smelled it and insisted it was crap. I, then, knowing this to be false, proceeded to the site of the wet muddy bank and scooped up my own lump. I held it to my face, with only a touch of doubt, and inhaled deeply. It was dirt. I was certain. Wet dirt. “It’s not shit,” I insisted, a bit irritated, but thankful feces were not smeared across my carpeted steps; but my friend, the son’s mother, she insisted it was shit. And that was that. The last words spoken: Shit.

I think my angels are telling me something. It’s actually quite clear. Where I am at right now, currently, feels like shit, looks like shit, and even, quite frankly, when I first wake up, tastes like shit; but a part of me, the analytical and hope-filled part, she knows it is just all mud, and like all mud, this too will be swept up in the rain, cleansed and removed.

This is all coming about, this feeling of “shit” because of my hormones and that “time of the month,” aka
“Hell.”

I have gained weight. The weight gain could be the result of the reduction of thyroid pill, or my binge eating from PMS, or reduced walking…… or just the cold winter season. Regardless, bodily changes freak me out. Really do, to the point I don’t want to wear nice clothes and I don’t want to leave the house.

Unless of course I deem the changes positive.

And it makes no difference how often someone reassures me I am still pretty or enough, or beautiful on the inside. It just doesn’t. I get comfortable when I weigh less. Not super skinny, just enough skinny so the fat doesn’t disgust me.

Now, other people, like my friends, if they gain a little weight, I don’t care! It’s so unfair. I really don’t care if they are ten pounds heavier or one hundred, as long as they are healthy and happy. They are lovely no matter what. (sidebar: In all honesty, I have to say with boyfriends in the past and in considering my husband’s weight gain or weight loss, I can be bothered, because I see that person daily and….clearing throat….naked.) And I mean that. Some people even look better with a little more weight. Especially as the female face ages and grows more gaunt. But for me I have a double-standard. I must be a certain weight or I am deemed “not enough.”

Truth be told, last I prayed, I wished to go head-to-head with my bodily issues and with my hang ups on appearance. To face the demons. So here it is! The shit, at least appearance of shit, being dug up and hitting not only the fan, but the stairs leading to advancement and a higher place…hmmmmmm Tricky angels I have.

I must be careful what I pray for. I must. I must!.

When I gain weight, I wig. I spazzzzz. I obsess. My “fatness” becomes my fixation.

For me, it feels like my weight is one of the few things in this world I can find familiarity in; something that doesn’t shift and vary with each ticking second.

I hate being me right now.. I would pay someone to take me ahead five years, preferably un-aged, to menopause. Don’t age my children though; I don’t want to miss out. I just can’t stand these spikes in emotions.

I blame some of this on the changes of hormones since I stopped the natural pig hormone for thyroid issues. The pig hormone, I concluded after much research, was causing peaks of progesterone and then rapid drops which lead to the muscles in my tongue responding while I slept, which led to waking up with sore throats, which led to a head cold every month for two days before my period. And cystic acne (which I never had before) caused by the imbalance of other hormones.

Even though I quoted 50 other people whom had cited cystic acne after starting thyroid meds, my natural path didn’t believe me; however, my gynecologist did. And I have been doing this ping-pong battle of rights and wrongs in my head for seven weeks. “Stop the thyroid pill for six months, and then get retested” ……words served by gynecologist. “Cut the pill in half”… words served by natural path doctor.
I stopped. All symptoms seized. Weight came on quicker.

Well I have grown not to trust my natural path doctor. Even though I adore her and have trusted her for the last two years.

She had me at thyroid levels well enough left alone and then upped the dose in August to decrease my levels more. And as a result I was in a state of hyper-thyroid behavior for months, e.g., hair falling out, heart beating fast, rapid thoughts, increased OCD and need to process, and not gaining weight, no matter what I ate.

Now, my body is confused, as I’ve stopped, or not so much confused, but readjusting, and the equilibrium they are finding is not to my liking. I hate feeling tightness around my waist. And I hate disliking my image, an image I already was uncomfortable with, but slowly getting used to before I began to change…again.

I do not like the uncertainty of the world. I can’t deal with it at times. I can’t deal with anything right now: no noise, no decisions, no nothing; and this is likely why I have been housebound for three days, entirely on the couch or at my dining room table, fixated on organizing my blog and talking to others, fixating on escaping who I am.

I don’t get it, and I don’t get me; and I don’t like how hormones happenings can change ME. I dislike health issues; they are my major tipping point, my trigger, a fear-based swampland. I don’t do well with anything related to sickness. But even in the fowl, muddy-mood I am in, I do recognize my fear of health issues has in the last two months decreased ten-fold…a miracle in itself.

Which leads me to my angels. I can feel them still, sitting back and watching me go through this mucky mud. I know they are there. I know this is necessary for whatever reason. But it doesn’t stop me from wanting to turn them into visible, little fairies that I can stomp on for pleasure.

They get that. They do. And I think I can hear them laughing at the joke, and even giggling in relief they don’t have to be human. But I do. And it sucks. It stinks like shit even though I know it “ain’t.” And that’s the hell of it: Knowing it’s passing mud, but feeling and believing it’s shit that sticks.

I don’t know what to do except to write it out, to pound it out, and hope that someone out there is touched and healed, or at least relieved in some way. Perhaps in the knowing that as hard as I try, as much as I do, as strong as my faith is, that sometimes through it all, all I see is shit.

350: Crap! I have this. That’s all she wrote.

Crap! I have this (too). That’s all she wrote.

PMDD

http://en.wikipedia.org/wiki/Premenstrual_dysphoric_disorder

http://www.mayoclinic.com/health/pmdd/AN01372

Here is a fellow blogger with Aspergers who writes about PMDD. http://worldwecreate.blogspot.ca/2013/03/how-to-deal-with-pmdd-part-2.html

And after lots of processing…she wrote a bit more!
Okay…. are studies being done about this COMT enzyme??? It affects emotions and executive functioning?? AND is thought to be possible cause of PMDD!!!

http://en.wikipedia.org/wiki/Catechol-O-methyl_transferase

Could not feasibly the symptoms of PMDD be used as an additional indicator of Aspergers in Women, since there is the strong connection with the variant enzyme of COMT in people with autism? Yes, indeed, I believe so. I love my brain.