communication

321: Don’t make me look at you!

| Aspergers Girls

Don’t make me look at you

I am often depleted energetically in new environments with unfamiliar people. Part of the reason is because I am empathic and can innately pick up on others’ emotions and state of being. The other part of the reason I am energetically depleted seems to be entirely biological, at least in the way my brain senses the stimuli around me and in the way I process the input I am receiving as a result of the stimuli.

Sometimes, quite frankly and honestly, I would be a better listener and friend, if I didn’t have to look at you.

Because I am extremely analytical, acutely self-aware, and live in a heightened state of sensory awareness, I often forget that the majority of mainstream society does not process their environment the same as me.

I forget that the majority of people are not responding to me in the same way as I am inexplicably responding to them.

The first part of my energetic depletion is spawned from the belief system that I am being sliced and diced and dissected visually by another, only because when I spot another, I generally have to take each piece of person apart and put the features back together to make sense of what I am seeing. As a result, distinct markers of a face and body are found, categorized and reorganized.

I try to take apart another perosn and piece him or her back together without being judgmental. In other words, if a “big” nose is the first thing I see, I remind myself that “big” is a judgment and based on my limited perception and biased collective experiences, while understanding that societal norms determine the essence of beauty for most folks, norms which are indoctrinated onto a sub-culture by profiteering establishments.

Thusly, as I’m beholding another’s appearance, and trying to make sense of what I am seeing, in regards to features and taking in the whole picture, I am also simultaneous reminding myself that the individual’s features are not right or wrong, good or bad, or striking or dull, they just are.

And beneath this linear thinking of releasing judgment based on the indoctrination of societal norms, in the same juxtaposition, of me being with me, I am trying to remind myself, that according to many spiritual belief systems, that self and this other person in my line of vision do not even exist.

All of these thoughts pass through me, just as I am stepping into the line of vision of another: the release of judgment, the reminder of the limitless of the illusion of universe, and the fact that I am entirely analytical when it comes to viewing another.

And the added fact that I know way too much for my own good (and would apparently make a good sitcom character).

With all of my thought-processing, I become distracted and don’t realize that the other person I am analyzing is most likely not viewing me in the same manner as I am viewing him or her.

While my mind is shooting a million miles per second, the other person’s mind has probably just thought: nice red sweater or there’s a brunette middle-age woman; or, if it’s my husband: There’s my hot wife.

But I forget this.

Somewhere between wondering if my fly is open, my teeth are flossed, my nose is big, my hair is brushed, and if I matched the right color socks, and wondering what the other person is dissecting about me, and what this makes that person think, and how he or she has categorized and judged me and has fit me into his or her comfort-level of classification, I turn into a tailspin of panic, fearing that the other person is not only doing to me what I am doing to him or her, through dissection and examination of part, but also reaching conclusions based on the data received.

Ultimately, when all is said and done, in the midst of my boggling analysis of said other person, I am fearing the conclusion the other person has reached about me, whether it be red sweater or big-breasted tart; I am wanting to huddle into a corner and make myself entirely invisible and inaccessible to onlookers.

Wherein if I lived in a world where I was masked and cloaked, and perhaps entirely invisible, I think my anxiety, and resulting depletion of energy, would be drastically reduced.

But since I live in a world where I am seen, I am also faced with the fact that I am judged and categorized based on my appearance.(It’s no wonder my son with ASD refuses to wear anything other than plain clothes—no designs, no images, no nothing.)

And in so being keenly aware that I am looked upon with deciphering eyes, whether fleeting the observer’s glance be or not, I want to then explain to the observer as much about my true self as possible, fearing that the person has reached conclusions about me that are entirely false and inaccurate, because the gathered data is based solely on my exterior.

In the meanwhile, I am having a miniature debate in my mind about how the release of fear and the release of worrying about whatever people think of me is optimal for my state of well-being and reciting the random quote that says: what people think of me is none of my business, while holding back an entire dam of dialogue longing to be thrust upon the person returning my glance, so that I might attempt to accurately describes my spirit behind this cloak of humanness.

When all is said and done, all of these processed thoughts, (including the deductions of reasonings circling around the non-beneficial and detrimental effects a fear-based outlook to the collective of spirit, mind and body), have left me wiped out, and wondering how it is that up until this point in my life I have not become dependent on the port wine I savor some evenings, or at least a stiff shot of cough syrup.

For my brain is such a grand uniform of thought that even a sergeant general, marked with the stoic stars and stripes, could not maneuver his troops inside me to find the potential threat of enemy.

And then, with the coming of more and more rushing thoughts, I begin to laugh inside, realizing again that more than likely the stranger is not analyzing my distinct features; and then the sadness settles in, or at least what seems like sadness, but of late seems more akin to the knowing I am different and likely a different species of human all together.

In the meanwhile, with all of these aforementioned thoughts, my mind is continually involved in a game of connect–the-dots, bringing all the facial features together to make a collective whole.

And quite frankly sometimes I don’t like what I see. And then there is always the lingering notion, that this is all much-to-do about nothing, because if I was ever to see this person again, I wouldn’t recognize him anyways, because I cannot retain visual images of faces in my memory banks.

By this time, when my thoughts have run full course into a state of exhaustion, the person I was looking at has either moved on and out of my view or he or she has moved on in conversation. And where the person is left waiting for me to respond to something said, that she assumed I heard, just as she assumed I was ready to listen, I am still wondering, if in fact, if I look older or younger than this person, because I have wrinkles under my right eyes in the same way, and likely the same depth; and this person is still so pretty even with the marks of age; and I wonder if the wrinkles are appearing more engraved because of the lighting and what the person would look like in an alternative setting, with say a red scarf instead of green; and if her hair is naturally blonde, or now with her aging, recently dyed; and when I should stop dying my hair; and if I remembered to mark my hair appointment on the calendar, and why at times I seem so forgetful.

Through all the analysis piled upon rhetoric and philosophical jargon, added to the process of scaffolding current information with past information and connecting other to self, and the tangent of strings my mind travels to, I am left literally spent, my pockets of reserve penniless, and my wallet flung open for the taking.

And so it is I wonder, when the others, perhaps less aware of this process, say: “Look at me, while I’m talking to you.”

I wonder if a person realizes what one glance, what one look, what one simple demand, demands of me.

Pass me the port, please.
~~~~~~~~~~

(dang if I ain’t one prolific goofball and a half)

312: Aspergers: I Do Not Lack Any Type of Empathy

| Aspergers Girls

Recently there has been talk of people on the autistic spectrum lacking a form of empathy: Cognitive Empathy. Before that there was talk of people with Autism or Aspergers lacking empathy in general.

Lacking in cognitive empathy implies a person cannot read between the lines of communication. While this might be a true experience with some people on the spectrum, and this theory might help some in their journey to self-discovery and understanding, and even in connecting to others, I do not believe I lack any type of empathy of any sort.

I am not lacking. I am not lacking in anything. In my world the word lacking does not exist. In my world lack is a manifestation of judgment, for I cannot lack without being compared to a norm or a standard. I cannot lack anything without being diminished in my worth and character.

I adamantly claim I do not lack anything, and neither do you.

This world longs to classify and compartmentalize. Yet, I know I am mystery beyond classification. In this knowing I have seen what divides us, the one from the other.

At the base of all division is fear.

I recognize that in claiming my true self and having no secrets that my own actions diminish fear.

It is not as if I have a choice whether or not to be me or not to be me. Because I do not understand how to be anyone other than my whole self. I do not understand how to hide.

As hard as I try to play games, I cannot. I do not judge others for the games they play, but they judge me for not understanding their games.

Perhaps if I am lacking it is in the ability to partake in imaginary games based and founded on fear.

I want to be. I want to just be. But there is something about most of the world that always fears I am hiding something and speaking something that is not real.

They mistake me for a pawn in their own game, while at the same time claiming I know not how to play. I am both singled out and blamed without even stepping foot inside this imaginary arena.

I am simply an observer. I observe the rules and social customs of this world, most, if not all, seemingly built to hide a part of self. I observe the whispers that speak: If you are you in completion then you shall be hurt.

I am an observer that knows the risks. And despite the claims of experts, I have learned to read between the lines. I have learned to read between the lines of pretending and falsehoods and lies and manipulations. I have learned that one word is replaced for another based on fear of judgment or fear of hurting or fear of exposing. I have learned that we are sometimes so afraid of being hurt or hurting another that human communication circulates around the core of fear.

It is not that I cannot read between the lines, it is the fact that the lines are so complex and endless and twisted in a way that makes no feasible sense. It is that I get lost in the invisible lines drawn for invisible reasons.

For I speak truth. Or at least I try my best to speak from my place of truth. And if I do not, I examine in detail why I have not. There is some part of me that seems the opposite of many, wherein where others are trying desperately to hide, I am trying desperately to be seen.

For there is a falseness to this world, wherein we are taught that to show all of our cards is to be exposed and made vulnerable to the vultures. And, yes, to a degree this is true, if one believes the vultures exist. But I, as one who has stood in front of thousands naked, know that beyond the vultures circling, are the masses of bright lights that recognize their own self in truth; and that when the vultures come, even as they pluck and pierce and tear apart, they are only my own fears manifesting, teaching, and then vanishing.

With these vultures I am taught self-refinement and further returned to wholeness. With these vultures I am giving opportunity to be more of whom I was born to be.

But if one does not stand in wholeness and in truth, the vultures will not come, at least not as frequently. And if the vultures do not come then how is one refined? And if one’s soul purpose is not for that of refinement, then why are they here? These are the thoughts that circle about me.

Not that I judge the others’ way of being, only that I am filled with wonderment and awe of how one lives without striving for betterment.

I have discovered that the only way to conquer the fear inside of me is to face the fear inside of me.

As an observer, I have found many a contradiction in the ways of communication.

I have found that the more I am myself that the more I am attacked for being so. Yet it is society itself that teaches me to embrace myself. Only there exists this underlying message: Be yourself, so to speak, but don’t make me uncomfortable in your being. Be yourself, but make yourself squeeze into my guidelines.

These are the readings I find in between the lines: Be, but not in totality.

It is not that I cannot read between the lines, it is that I do not understand these lines that have been drawn, and why they have been drawn. I do not understand why there are so many rules. I do not understand why others do not speak from their deepest self, but instead choose to remain hidden and only share with a select chosen few. I do not understand what everyone is hiding from?

As observer I see that many try to cover up intention, but it is always there. And I see that many try to garb things in half-truths. They cover up their own self in false disguise. But I see truth, for I am an observer of truth.

I see through the masks and self-imposed walls. I see straight through.

Perhaps in my lacking, or inability, to partake in games, I have gained the perspective of seeing behind the illusions. Perhaps because I see beyond the illusion, I cannot partake in a game of nonexistence. Perhaps the very lines others claim to exist, the very lines they claim I cannot see, are not really there at all. Perhaps others are lacking the ability to see the illusion.

I do not understand whom or what so many are seeking protection from, other than self.

The masses make the standards for this world, proclaim the norm, and proclaim what is right. The masses proclaim I am wrong, or at minimum somehow not entirely right.

But I proclaim I am the light and the truth. I am myself in completeness.

And still this fear of my raw nakedness.

I am honest.
I carry no manipulation.
I have no want to take.
I have no intention to harm.
I continually release anger and judgment.
I mean no ill-will.
I have no need to prove my worth.
I have no need to be right.
I recognize my humanness.
I recognize my frailties.
I denounce weakness in spirit.
I pray for humility.
I pray to recognize self in others.
I state my own need for love and connection.
I forgive.
And I forgive again.
I cry on the outside.
And I love unconditionally.

In this way there is nothing I have to hide.

So I question when one is hiding. I question what is it he or she is afraid I might see?

Perhaps it is the very essence of me being real that spurs fear in another and makes him scream lacking.

For what am I lacking beyond my incapacity to be none other than self?

What if words were lost? What if we only heard thoughts? What then would we hide? Perhaps some of us are the link from here to there, from a place of hidden fear to place of unspoken truth.

Perhaps we lack nothing at all but instead carry an unyielding desire to connect. Perhaps, we, the observers of the game, are the ones sent to stop the game.

What if my way is the way of not lacking?

What if others are lacking to see me?

Perhaps I am lacking the coat of visibility, because I stand so real. Perhaps I am lacking in form and shape, because I appear so unknown.

Perhaps in accepting me in completion, others can accept a part of self. Perhaps some of us are merely mirrors to the awakening soul, sent here with our message of pureness. Sent here to remind others that in truth there exists no lacking and exists no fear.

308: Weakness

| Aspergers Girls

Weakness

A leader who feeds off his own authority
A learner who believes his words are the right words
A man who takes his own life
A widow who gives up hope on living
A child who runs from the bullies
A dancer who cries at audition
A doctor who lies to a patient
A rapper who slanders his father
A joker who criticizes himself
A wife who stays with the abuser
A person who claims life is too hard
A candidate who cheats to win
A scientist who presents false data
A listener who thinks she knows better
A friend who gossips
A gambler who has a system of winning
A mother who leaves her children
A daughter who banishes her father
A prisoner who escapes
A judge who accepts a bribe
An athlete who gives up on the race
A sister who weeps openly in public
A brother who drinks to feel numb
A street walker who gives of her body
A cop who deals drugs
A classmate who hides in the corner
A neighbor who cheats on her spouse
A grocery clerk who steals from the bin
A principal who harbors resentment
A test-taker who pays for the answers
A waiter who keeps more than his share in tips
A gymnast who takes steroids
A jailer who bludgeons the captive
Of which of these would you call weak?
Of which of these would you judge?
And still more, of which of these would you fear?
Are they not each a part of you?
Are they each not a collection of your perception?
Of what you have been taught is right and wrong?
And what of the murderer, the destroyer, the dictator, the martyr, the insane?
Which of these is wrong? Which of these is evil? Which of these is not enough?
The one you find the least in favor, is this the one you hold inside of you most?
Do you fear the rapist, the reaper, or the tramp?
The gambler, the preacher, or the false-prophet?
Which one shall be punished? If not all?
Who are you to say? What is it that gives you the right to declare the weakest? The worst? The one deserving punishment?
Is it the child molester then? Who shall it be?
Which one pulls on you to no end and makes you squirm?
Who is it that you cannot and will not love?
Is it the one who reminds you of fear or of self?
The one you cannot understand or will not understand?
The one that caused so much suffering to the innocent?
How do you know who has caused the most suffering?
How do you recognize this evil?
Have you not looked into your own soul?
Have you not dived within to see your own incompletion,
though you be whole?
Where inside of you does this judge live?
And how much suffering does this judge give?
Are you not the one who bleeds suffering?
Are you not the one who is the sufferer?
When you have removed the judgment, when you have stopped to see another as someone to be categorized, fitted, and placed into one of your boxes, then you shall see.
That all of us our God’s children. None of us more or less worthy.
You will see you were never meant to be the judge.
You were never made to be the evaluator.
You were built to love and love alone.
When you see the angry dog, vicious with his teeth out, do you judge the dog?
Do you think that is a wrong dog, a bad dog, a demon dog?
When you see a storm coming, do you judge the storm?
Do you think that storm was raised the wrong way, a storm that should know better, a false storm?
When you see a tree that falls down and crashes a home, do you judge the tree?
Do you think that is a vicious tree, an unjust tree, a tree that needs to be taught a lesson?
When you see the sea do you curse the waves?
When you see the sun do you curse the rays?
When you see the rain clouds do you curse the coming water?
What is it that you see?
What is it that you need?
Do you think because human has a mind that he is above nature?
Do you think that because he is above nature he should be judged?
Do you think that nature is not bestowed with the same giving spirit as you?
Do you not see the nature is as worthy as you?
And if both are of equal worth, than how can one be given different standards?
How can you not respond to man like nature: With your heart, with open eyes, with bewilderment and awe, with amazing grace.
This man before you is no less or no more than the sunrise each dawn, no more or less than the space that holds your spinning world, and yet you think you are more or less than him.
This makes no logical sense, as you are him.
You are each of the same seed.
Each birthed in beauty and magnificence.
Look upon each other as children of the universe, not as enemies of this land.
Join and you will no longer suffer in your separation.
Bleed out your truth, this truth though weak it seems, is the cornerstone of your foundation.
Your greatest weakness is your disbelief in self,
In your disbelief in your grand magnificence.
There is no weakness beyond this false belief.
And even that is not a weakness but opportunity.
For I have given you nothing but opportunity, for opportunity is the fabric of my love, ever-reaching, ever-growing, ever-nurtured.
There is none loved above you and none below.
So go out now and look at the sunset before you.
The one that God blows to your doorstep.
Breath him in. Bring in his wisdom.
For whatever touches you is a gift from beyond.
A gift for you to open: a gift to judge not with thine eyes, but with the heart of God.

~ Samantha Craft, January 2013

Lori Sealy is a woman whose voice, spirit, and message truly touch me. She is on the spectrum (ASD). I find her music healing.

This is Christian based.

https://soundcloud.com/#lori-sealy/song-of-the-afflicted-mix1

To find out more about this artist, go here:
On iTunes at:

And on Google Play at:
https://play.google.com/store/music/album/Lori_Sealy_Begone_Unbelief?id=Bbz3o5yjbzz6v2d5grbmtdaogva&feature=nav_top_albums#?t=W251bGwsMSwxLDUsImFsYnVtLUJiejNvNXlqYnp6NnYyZDVncmJtdGRhb2d2YSJd

http://www.cdbaby.com/cd/lorisealy

~~~~~~~~~~~~~~~~~~~~~~

This woman is my spirit-given sister; here is a post that I found helped me very much.

“Uncluttered…What are you doing here?”

300: Aspergers: The Stuff That Ain’t Working

| Aspergers Girls

1. Exposure Therapy:

For years and years I thought if I just socialized more, if I just connected more, and tried harder to be like everyone else, my endurance level for social gatherings would improve and my anxiety levels would decrease. I believed that through repeated exposure that things would get better. That hasn’t happened.

I don’t have a fear and/or phobia to any one thing or event; therefore there is nothing I can focus on overcoming or having less fear about. My anxiety isn’t caused by anything I can pinpoint. My anxiety is caused by the way I process the stimuli in my environment and the way I respond to my surroundings. I am hyper-aware and my senses are turned up to the highest degree. I am also, despite self-training and studies, unsure of how to act in a social gathering, (e.g, how much to share, when to share, when to stop, when to respond, how to stand, how to look, when to be less honest, etc.); and as a result of my uncertainty, I have a constant inner voice reminding me of how to be. A voice that also self-corrects continually.

I need and long for structure and routine. My fear can be reduced if the same events happen in a similar way. However, inevitably changes occur. To say I will get better with practice or exposure is not an accurate statement. First of all, I am not wrong or in need of improvement. I am uniquely wired. One would not tell a person with a visual impairment that if she kept staring at a picture on the wall the image would become clearer, and one would not tell a person with a hearing impairment to repeatedly listen to a song on high-volume to improve his or her hearing. In the same line of thinking, one cannot tell me to continue going outside of my comfort-zone, to eventually gain a sense of security. I do not have the physical capacity. This is not biologically possible for me.

2. Positive Self-Talk/Cognitive Therapy:

While Aspergers can, and often does, have the comorbid conditions of generalized anxiety disorder, OCD, and depression, Aspergers is not the sum of its parts. A person cannot be treated for the comorbid conditions and then grow out of Aspergers. If anyone says they outgrew Aspergers or cured themselves, I don’t believe they had ASD to begin with. Unless they’ve feasibly learned how to reprogram their brain.

I do not think there is a way to change my brain. And as hard as my life can be at times, I don’t like the idea of my brain changing. Aspergers is not a mental illness. The “disorder” of Aspergers is believed to occur in the frontal lobe of the brain. Why and how the condition develops is still largely unknown. Though there seems to be a large genetic factor.

While positive self-talk has many benefits and can decrease episodes of anxiety and depression, and perhaps even diminish some OCD tendencies, it does little to help with the condition of Aspergers itself. No matter how much self-talk I give myself, I still respond in a fight or flight response pattern, when I am in a public place or at a public gathering. I do not want to feel this way, and do not choose to feel this way, but this is the way I feel.

Self-talk and cognitive behavior techniques can sometimes do me more harm than good. When I am panicking, no matter how many times I incorporate positive self-talk or implement cognitive behavioral techniques, (e.g., replace negative belief that is a falsehood with a true reality-based belief), my body continues to respond as if I am in danger. When I do in fact implement the self-talk, in an attempt to do the “right” thing or to “fix” myself, I then feel guilty when the technique does not work. I then question why I was not capable of applying such a simple concept to my own way of thinking.

No amount of practice, hard work, or scouring through books has increased the effectiveness of cognitive-based therapy techniques for me. And the more I use them, and fail, the more I feel as if I am wired in a way that is wrong.

What does help me is letting go and realizing that the panic is something I have to go through, and realizing that when I am on the other side I will be okay. And that there is nothing wrong with what I am doing or going through. It is just the way I am. So in a way I am using positive talk, but not in the traditional sense. I am not finding a false statement or belief that needs change and fixing it. Instead I am self-soothing and reminding myself I will be okay regardless of how I feel at the moment.

I use my thoughts as more of a security blanket. The best thing for me to do in times of anxiety is not to retrain my brain to talk better to me, but to retrain me to treat my brain better. The key being letting go and acceptance.

3. Thinking if I am more self-aware I will be able to control my thoughts and/or anxiety:

I can’t control myself sometimes. I thought if I read enough and studied enough that I could reprogram who I am at a core level. To a degree, spiritually and perhaps energetically, and maybe even genetically, I might be able to alter myself, depending on what doctrine I deem to hold some semblance of truth, but overall I cannot change this elemental core of Aspergers; and if I feasibly can, the answer repeatedly stealthily eludes me.

I have tried every way imaginable to knock some sense into me when I go into a mode of shutdown, and there is nothing I can do, beyond pushing through the uncomfortable emotions.

When my anxiety is high, I become immobile. I cannot do simple tasks. I become extremely fatigued and unable to think in a linear fashion. I become trapped in a cycle or loop of thought. I can step back and see myself doing this. And the odd part is, I know what tools to implement that should supposedly pull myself out, but I also know they won’t work on me. I have tried. Nothing works to stop the anxiety when it is in full swing. It is like I have to go through the tunnel of darkness to come out cleansed and regenerated at the other end.

Days filled with too much sensory overload lead to days of shutdown. During this time life seems bleak and not worth living; however, it does not feel hopeless. I feel fed up more than anything, and exhausted by thought and life. My good hours are usually from when I wake up until mid-day. By mid-afternoon, I often become overwhelmed. This is when I can do little more than sit on the couch. I cannot listen to someone talk for long. It is like I am a computer and all my memory has been filled up. There is no more room left for input.

I have thought to scribe a list to remind myself during the high-anxiety, shut down times of what I need to do to feel better. However, when I am in shutdown, I know that no list of any sort will help. It doesn’t matter that I know why I am overwhelmed and exhausted. My brain is in lockdown. I am protecting myself from short circuiting. The last thing I need is logic or steps to follow. This cognitive reasoning only leads me into further shutdown and retreat, further bombarded by the outside. The only method that works for me is releasing control and letting myself go through the emotional process. If I do not let myself retreat, I will likely have a meltdown, in where I shout and cry. I need time to decompress and be alone. Time to process and discard of my abundance of emotions and thoughts.

4. Thinking that by knowing I have Aspergers I will be more likely able to change myself.:

With self-recognition of Aspergers my behaviors have shifted, but I haven’t changed. Before I didn’t understand my emotions. Before a major event, like a party at our house, when I didn’t know I had Aspergers, I would get extremely controlling and high-strung. I would order my husband around and start arguments. I would create chaos so I could release the tremendous fear building up inside of me. I didn’t know the fear was from thoughts of the upcoming events. My husband would often ask me why I was so angry and touchy before a party. I didn’t know. I thought I was a controlling person and needed everything to go my way to be happy. The problem was I knew innately I didn’t want to be a controlling person and I was never happy, regardless.

It wasn’t until I realized I had Aspergers that my behavior changed. Now, before an event, I no longer subconsciously create drama so I can release emotion. I didn’t consciously decide to change this; the change happened naturally with the discovery of my Aspergers. Now, I am hyper-aware of why I am upset. I recognize my emotions in detail and the triggers that set me into a state of anxiety. It might seem that knowing myself more would make the anxiety level decrease, but actually the anxiety is more intensified, because I am no longer subconsciously utilizing displacement. I am not displacing my own dread about an event into another event. I am not using or finding a scapegoat. I am not creating drama in order to diffuse my own tension. Instead tension keeps building and I have no way to release it.

Now that I am more aware of my own behavior and emotions, and the triggers, I do much more stimming, e.g., I flick my nails, flap my hands, clear my throat, click my teeth, and so forth. I also have anxiety dreams related to a planned event. And the day of the event, I have extreme fluctuations of emotions, and sometimes physical symptoms such as hives and/or stomach aches. I am now taking in the full of the experience and my body is responding. I don’t know if this is better or worse than the displacement. What is also happening is instead of “freaking out” before an event, I am often “freaking out” after the event. I feel very much like a child who holds herself together for the better part of the day, only to go home and have a meltdown.

I have found, to date, the best way to handle my anxiety is to not turn it into the enemy, or something to be eradicated and ejected, but something to be accepted. The more I fight the anxiety, the worse I feel, for there isn’t any avenue that saves me or leads to rescue. I have to go through the discomfort in order to feel relief. The process is similar to a minor panic attack or adrenaline rush, but it passes, and the more accepting I am of the process the quicker it passes. I’ve noticed the same with my dog’s epileptic seizures. They used to last up to twenty-minutes; now when they begin I hold her and release my own fear. I accept she will go through the seizure and be okay. I send this feeling of acceptance to her, and do not fight her seizures. I then let her go, or hold her less closely, and ignore her in a compassionate way, as if telling her: This is not a big deal. Don’t give it power, and it will pass. Since incorporating this method, my dog’s seizures have decreased drastically in length, generally only five minutes, and sometimes less than a minute. My own anxiety is like a my dog’s seizure; if I just let go and trust it will be okay, it passes much quicker.

5. Believing that by making plans I will feel more structured and therefore I will experience less anxiety:

Sometimes lists help me; especially if there are no deadlines on the list. I like to make lists of chores or errands, and to cross out items as they are accomplished. I also like to rewrite new lists and to see how much the to-do items have diminished. Lists are my friends. Appointments on the calendar are not my friends.

I remember my father would always tell me a similar thing. I would ask him if we could get together on such-and-such day, and he would typically respond that he couldn’t tell me yet, and that deciding at that moment didn’t feel comfortable to him. He did better with last-minute plans. I didn’t understand at the time why my father acted this way. I felt cheated out of his life and not important enough to plan for. But today I understand my father more. He didn’t want to make plans because he didn’t want the stress of worrying about an upcoming event. I am the same way. I have been my whole life.

To me, the best days are days nothing is on the calendar. Even one appointment or obligation can make me anxious for hours beforehand, sometimes even days beforehand. The thought of having to pick up my son up from school each afternoon causes me stress. I leave at a set time daily, and the trip is short, easy, and non-eventful, but the stress does not dissipate.

Usually two hours before a scheduled event, I start to become very preoccupied with the time and the steps I will have to take to leave the house. Simple tasks, like showering or getting dressed, feel overwhelming. I can spend several minutes, processing and reprocessing the pros and cons of showering. I can create in my mind a half-dozen scenarios of what sequence I should follow in preparation for my departure. Even before I’ve started the process of getting ready, I am often mentally exhausted.

When I see an event on the calendar, I have a small panicky feeling inside, as I realize that soon in preparation for an event, I will experience something similar to post-traumatic-stress-syndrome.

This seems contradictory in nature to me: the fact that I do well knowing what to expect and with routine but at the same time I dread plans on the calendar. I look forward to well-structured days indoors at home. However, the repeated isolation and lack of adult company can lead to depression and feelings of isolation, loneliness, and inadequacy.

There is a continual pendulum of want inside of me. On one side there is the longing for company and stimulation outside the home, on the other side there is the longing to hibernate and not have to experience the anxiety involved in going out. This pendulum moves back and forth. If I am not careful, I can self-punish myself by wishing I was different and more normal. I am in a constant state of fluctuation, never centered, and always wanting.

6. Believing if I can just let go of Aspergers and get on with my life, I’ll be fine.

I joke with myself sometimes. I think if I write enough and share enough, I will process the Aspergers right out of me. Some silly part of me believes I’ll wake up and be cured of Aspergers, and if not cured, so much better able to function. The truth is I don’t need to be cured. I am not sick, or ill, or broken. I have been born with a brain that is different from the general population. If society was different, I would be responding differently. But society isn’t different.

I have tried over and over to change myself, to try to fit in, and to try to function, but the more I try, the more I find myself battling the same resistance. What I have found that works is contact with other people who understand me. I feel safe with most people with Aspergers, and to a degree safe with people who would classify themselves as a bit “quirky” or “shy.” I fit nicely with the odd balls and misfits.

I don’t need to let go of Aspergers, I need to let go of isolation and thinking there is something wrong with me to begin with. The more lovely souls I meet with brains wired like mine, the more I learn to appreciate my uniqueness and beauty, and the more I recognize the depth of my own intelligence and empathy.

I was created differently, but different is not wrong, and need not be terrible. With the right balance of release and acceptance, and with the right connection with like-souls, I am learning to navigate myself in this world. Where I used to believe I was dropped down on the wrong planet, I now believe that I am right where I am supposed to be.

296: The Star of My Post

| Aspergers Girls

I panicked this morning. I pulled my husband out of the bathroom. He was stripped down to his boxers. And I was mean.

I don’t like to be mean. I hate it, in fact. At the core of me, I am nice. But this mean, panicky part of me surfaces at times.

She especially appears when I am feeling bombarded with change and sensory overload. When my normal routine is drastically altered I get a bit crazed and then my scale of unpredictable outcries is undeniably both potent and dramatic.

This morning, the birthday sleepover for my youngest boy was almost over. There had been much noise and upheaval as the boys celebrated together and tore the daylight basement apart with their slathering of snacks and soda. I’d not fallen asleep until nearly two am, and I’d cleaned and organized and shopped and prepared the entire day before.

My husband had been a great support, as much as any human could be who didn’t possess super powers, but by morning, he, like me, was exhausted. And unlike me, he was ready to get out of the house and start a course of errands. He headed downstairs to shower, as I was wrapping the party up, and awaiting the arrival of the two last guardians to pick up the children.

After twenty-minutes of feeling a kneading, unidentifiable discomfort inside, suddenly a shock of revelation hit me. Two strangers were about to appear at my door. As I thought about this fact, I was bombarded with what ifs, and what to say, and how to stand, and how to smile, and how to be, and how to stop my own very self-consuming fear of being seen by another being.

As I processed, and my anxiety grew, I realized I wanted to duck under a blankie, to escape, and to not face anyone.

Suddenly, and without warning, an all-encompassing fear bit at me like a disobedient hound leaping to snatch food from an innocent bystander.

I logically processed. I figured this biting and uncontrollable fear was part of my Aspergers, part of how my brain worked, part of who I was and had always been. The feelings weren’t unfamiliar, not even more intense; but I was more aware.

Still, even with the understanding, I could do little or nothing to calm myself down. At any moment the door would knock and a stranger would appear.

I talked to myself in silence. I reasoned. I tried to logically stop the worries and concern. I knew there was nothing to fear, but yet I feared. I knew there was no threat, but I felt threatened. I wanted to run.

The doorbell rang. It was the first stranger. She was kind and courteous, and we didn’t have opportunity for small talk, as her nephew gathered his things and left quickly enough.

I shut the door, wishing them well, and sighed in relief. I felt half of the anxiety leave. Only one to go. Only one to go, I told myself. I attempted to self-soothe, to talk myself into the fact that I was safe. But I couldn’t. Though half the anxiety had left, the remaining panic was newly fresh and alarming, clawing at me from the inside out. I just couldn’t do it. Not alone. Not by myself. Not with all the uncertainties.

I rushed then. I darted down the stairs in a state of meltdown. I was imploding and exploding all at the same time. The outside me, the observer that sometimes watches, and takes note of my behavior, and who is often able to laugh or offer sound advice, she’d been swallowed up in the confusion of my emotions.

I had to find my husband, make sure he was dressed, and get him upstairs, right away. There was no time to wait. My soul was on fire!

I found my husband in his boxers, doing something in front of the mirror. I don’t remember what. Everything was a jolted blur of rush and chaos. “Please hurry, he will be here any moment, and you know how I am,” I whined.

I looked my husband over and realized he hadn’t showered yet. It had been twenty minutes, and he still hadn’t showered!

“What have you been doing?” I queried rudely. “This whole time you could have showered, and you didn’t. Why didn’t you? Why did you leave me up there alone? Why? You don’t get me. You don’t know me. What do you not understand about Aspergers? What do I fear the most? What do I fear the most!”

My husband stammered with his eyes and braced himself against the bathroom door. I could see he was processing my emotional state. I could sense the familiarity of his experience: how he knew I was on the verge of freaking out and that his next move would either create a domino effect of me collapsing into hysteria or serve to bring me out somewhat from my spinning panic.

He stepped closer, and waited for me to finish my thoughts, waited in a way and with a skill I have not yet learned, and fathom I shall never learn. I felt a reckoning of sadness, a knowing I was different, odd, and displaced on a planet where my skillset had never been completed, where my tool box of communication skills was vastly depleted.

I wept inside, until the fear rose. I went on fast then, and with an unrelenting urgency. I knew what I was doing and what I was feeling, and it all felt so ridiculous and unnecessary and unfounded and just plain stupid, but I couldn’t help myself. I was trapped in a prison of jumbled thought and worry.

I said more, my words not chosen carefully, my panic taking the wheel. “You abandoned me. You abandoned me. You say to me ‘You take it from here; I’m going to shower,’ and you leave me to face the strangers. You know how I am? How could you do this?” My eyes were welling with a mixture of tears and rage.

I was on the verge of flipping my husband off. About to mount the stairs, and with a quick turn of my back, turn and give him the finger. I was so confused. My emotions all jumbled and twisted into a crisis.

I stood my ground, even as I saw another path of what I might have done, how I might have taken off as I told him off. I stared past him, fighting back the urge to yell, “I hate you!”

He didn’t move or even flinch, but looked at me with such profound and unattainable patience. I knew I was being childish. I knew at that moment he was the only adult in the house.

“Your worst fears are talking to strangers, especially at the door, and to men,” he replied. He then said, with a sigh, “I’ll wait to shower. I’m coming upstairs. Be right there.”

Within two minutes, I was back on the couch, hiding behind my laptop and my husband was in the leather chair twiddling his fingers and playing with his cellular phone.

I said, “Stop picking at your lip. That bugs me.”

I said, “I don’t understand. Don’t you care? Why did you do this to me?”

He looked at me blankly, and replied. “I didn’t shower. I came up here for you because I love you.”

I waited for him to be triggered or upset or to show emotion. I needed him to be emotional. I needed him to take me out of my emotional state, by means of his emotional state. For me to be able to focus on his wavering feelings, and to blame him, so I could escape self-blame. I punched at him with my words.

He didn’t care. He didn’t. He didn’t know how to show me love, is all I could think.

“Our problem is the Language of Love. You show love in service and duty; I show love through emotion and affection. I really need a hug right now and compassion.”

He got off of the couch and came to my side and held me. But I didn’t feel release. I’d wanted to blame him and make him act a certain way, thinking his behavior would relieve me. But it didn’t.

He stayed at my side and looked over at me as I maneuvered through the stream of my Facebook wall. He was watching the posts, watching me, and in my space. I looked at him and said, “Thanks for the hug. Can you go away now? I don’t want you near me. Please leave.”

I recognized the cruelness and impatience in my voice. I sensed my selfishness and sporadic ways. But I couldn’t help myself. I was in the middle of a breakdown, and nothing my husband did or said or offered could help me.

My husband rolled his eyes and shook his head. And I offered some half-apology for my behavior, knowing I’d been terrible. I tried to make him laugh. “Well at least you might be the star of my post,” I offered.

I don’t think he smiled.