Day 98: The Day I Lost My Butt

This is a true story.

My husband took this photo and the other. He is gifted that way.

I was with a crowd of people the day I lost my butt. I searched everywhere for my butt. In desperate need of a butt, I clasped my two hands over a stranger’s butt, imitated pulling off her butt, and then I tried to fit her butt onto my butt. But her butt wouldn’t stay on me. When the stranger asked, “How does my butt fit?” I responded, “Too small.” And with a frown, I sighed, shrugged my shoulders, hung my head low, and gave her back her butt.

As I walked in embarrassment without at butt, I covered the place my butt had been with my hands. Sometimes I slid across the floor to hide my missing butt or I squatted down and walked low to the ground. When I sat, I placed my hands beneath me on the chair to protect the skin where my butt had been. Other times I sat on my knees.

Off and on for an hour, I searched for my butt. One time I asked the crowd, “Have you seen my butt?”

I looked under my chair for my butt. I looked in corners and underneath people’s legs for my butt. Later, in desperation, I found a microphone, and again asked, “Has anyone seen my butt?”

No one had seen my butt.

After we left the crowd, and returned home, for weeks my three sons, and sometimes my husband, would peer from around the corner, at random intervals, and ask, “Where’s your butt?”  One day my family gathered together on the couch to view the recording of the day I lost my butt.

It didn’t matter where I went in our home. I could be sitting on the toilet, climbing the stairs, or cooking dinner, and someone in our house would ask, “Where’s your butt?”

I will always remember the day I lost my butt.

My butt is back now. My butt actually never disappeared. I only thought my butt had vanished. In reality I’d been hypnotized on stage to believe my butt was stolen.

I believe at times we all think we’ve lost our butts, or at least we believe we’ve lost a portion of ourselves. Many of us think an essential part of us is missing or lacking. We believe we aren’t worthy, aren’t enough, aren’t special, and aren’t lovable; when in actuality we came into the world fully equipped with everything we need. Our butts are firmly attached.

Nothing is missing and nothing has been taken away. We are worthy, we are enough, we are special, we are lovable, but we forget. When we think we are lacking that is like our mind tricking us into think we have no butt. When we think we are lacking, we walk the world like our butts are missing. We hang our heads low, we hide, we search, we ask, we fear and worry.

We trick ourselves. We hypnotize ourselves into thinking we are lacking when everything is right there where it is supposed to be. All we have to do is to reach down and grab our gifts. They are right there waiting.

So the next time you find yourself lacking, remember the story of the lady who lost her butt. Think of her standing on stage, speaking into a microphone and asking, “Has anyone seen my butt?” That is exactly what you are doing when you are searching for your worthiness.

Don’t ever think you’ve lost your butt.

Your worthiness is firmly attached to you.

Now get out there and shake your booty!


The answer for yesterday’s post was number 9. Number 9 was the fiction.

Number 9 was a little bit true. The object was a tampon that flew across the cafeteria and hit someone in the head, but I ducked, covered, and ran before anyone knew I was the culprit. No one picked it up and handed it to me.

Don’t feel bad, my husband guessed the wrong one.

For those that guessed number  7, you were close. I could have worded that fact more clearly. I did review 100 men, but I reviewed the recordings they left, then I called a couple dozen back. So, if you guessed that number, you get a free pass.

Everything else was true. Including Patty Hearst and the swimsuit model. Thanks for participating. I had a great time reading your lists.

20 Things Not to Say to a Person on the Autism Spectrum

Image found at takealeftatthemoon.blogspot.com

 

This is tailored to adults who were diagnosed with Aspergers, but the list can apply to many ages and many conditions other than Aspergers Syndrome.

20 Things Not to Say to a Person on the Autism Spectrum

1. Everyone feels like that sometimes.

2. Everything happens for a reason.

3. You’re fine. They have too many labels nowadays.

4. That reminds me of me. I wonder if I have that too.

5. Things could always be worse.

6. At least you don’t have autism.

7. Don’t worry. Be happy. Think Positive.

8. That’s no big deal.

9. You’re too serious. Get out of your head and help others.

10. Everyone has problems. Stop analyzing yours.

11. I never would have guessed. You seem so normal.

12. Are you sure? Maybe you need a second opinion.

13. Why do you think that?

14. That’s weird. Good luck.

15.  Aren’t you glad you found out?

16. That’s so trendy. Everyone thinks they have that.

17. Did you get an “official” diagnosis?

18. I’m uncomfortable with people classifying themselves by a diagnosis.

19. My cousin’s neighbor has Aspergers.

20. Well, now that you know, stop focusing on it, and get on with your life.

 

 

 

15 Beneficial Approaches 

1. Offer a warm smile and nod. Listen and comprehend.

2. I’m on your side. I’m here for you. You are not alone. I am here to stay.

3. Where can I find more information?

4. You are a strong person. I love you for being you.

5. Make a friendly call or send a friendly text or email.

6. What can I do? Tell me specifically. I want to help anyway I can.

7. Ask the person on a long walk, a picnic, or other excursion.

8. Hold a space for processing what that means to the person.

9. Do you need my support? How can I support you specifically?

10. Go to a matinee or rent a movie about autism or Aspergers.

11. Sincerely compliment the person.

12. Validate. This is a big deal!

13. Read personal accounts about living on the autism spectrum.

14. Thank you for confiding in me and trusting me. I am honored to know you.

15. If you are comfortable, can you tell me more about your experience?

© Everyday Aspergers, 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. https://aspergersgirls.wordpress.com Original title was 20 Things Not To Say to A Person with Aspergers.

Sam’s new book can be found at myspectrumsuite.com and on Amazon internationally.

Search for Everyday Aspergers.

 

 

Day 55: Ghosts and Crumbs

“The Journey. The Journey is what brings us happiness. Not the destination.” ~ Peaceful Warrior

Kahlil Gibran

When I hurt, I try to understand others’ pains and struggles.

I use my pain for humility.

I use the pain to knock me off my pedestal and out of the driver’s seat.

I use the pain for clearer vision and rebalancing—to question my bearings, my ego, my strength and determination.

I am so blessed, as hard as the journey is, to be able to empathize with a variant of types and degrees of pain.

To learn from pain.

To make pain my teacher.

To connect with other people through pain.

I know this. I understand this.

I accept more pain will come.

Pain is not my enemy.

No one and nothing is my enemy.

Every person has good inside of them, even if the good is masked or painted over in the cloakings of black.

I bring Pain into the light.

When Pain is no longer hidden in shame, buried, or ignored, Pain stands equal with Joy.

Prophet by Kahlil Gibran: On Joy and Sorrow

 

On Joy and Sorrow Kahlil Gibran

Your joy is your sorrow unmasked.

And the selfsame well from which your laughter rises was oftentimes filled with your tears.

And how else can it be?

The deeper that sorrow carves into your being, the more joy you can contain.

Is not the cup that holds your wine the very cup that was burned in the potter’s oven?

And is not the lute that soothes your spirit, the very wood that was hollowed with knives?

When you are joyous, look deep into your heart and you shall find it is only that which has given you sorrow that is giving you joy.

When you are sorrowful look again in your heart, and you shall see that in truth you are weeping for that which has been your delight.

Some of you say, “Joy is greater thar sorrow,” and others say, “Nay, sorrow is the greater.”

But I say unto you, they are inseparable.

Together they come, and when one sits, alone with you at your board, remember that the other is asleep upon your bed.

Verily you are suspended like scales between your sorrow and your joy.

Only when you are empty are you at standstill and balanced.

When the treasure-keeper lifts you to weigh his gold and his silver, needs must your joy or your sorrow rise or fall.

In my years of living, I have seen the most pain and the most strength in the rooms of support groups.

This piece is dedicated to anyone who has ever frequented the basements and halls of recreation rooms and churches, in search of companionship, understanding, and support.

I have found that the most accepting, loving, and open-minded people understand pain.

This is a true and fictional story. The essence is truth, but the facts and details are not. Because of anonymity and out of respect to others, I would not attempt to write a prose of someone’s actual experience, except mine. The feelings are true. The pain is true.

Some people claim recovery is like an onion; in the way you peel one layer of experience and emotion away to find another.  To me, recovery was more liken to being trapped inside the core of the onion itself and trying to forge my way through so I could breathe.


The Goodbye Girl

Laura Marling: Night After Night

You Light Up My Life

Below is a gift I received through the action of two kind souls.   

Continue reading

Thirty-Seven: 10 Myths About Females With Asperger’s Syndrome

I invite you to take a look inside of my book Everyday Aspergers.

Take a look here.

(I just deleted an entire paragraph explaining why I am uncomfortable with self-promotion. I’ll spare you the details!)

My publisher, Your Stories Matter, took great care to provide this ‘book-to-look’ version of the second edition of Everyday Aspergers.

(I’ve truly failed at promoting my own book. I usually promote Steve Silberman’s book in my travels and teachings. Typical me!)

Over a year ago, I decided to move my memoir from one agency to another. I made this decision to ensure the paperback was available outside of the USA. Here are ten facts you might not know about E.A.

The second edition of Everyday Aspergers : A Journey on the Autism Spectrum can be purchased on Amazon in several countries. It makes a great gift!

The new book cover is by a talented autistic author and writer. The pages, of the new edition, have photos and images from my childhood. I added a new end chapter. The layout, pages, and style are different. It’s the same story in an enhanced casing.

https://www.book2look.com/book/KRksrIxTxr

10 Myths About Females With Aspergers

1. Aspergers is Easy to Spot

Females with Aspergers are often superb actresses. They’ve either trained themselves how to behave in hopes of fitting in with others and/or they avoid social situations. Many grown women with Aspergers are able to blend into a group without notice.

2. Professionals Understand Aspergers

No two people are alike. Professionals have limited experience, if any experience, with females with Aspergers. Professionals have limited resources, limited prior instruction and education, and little support regarding the subject of Aspergers. Comorbid conditions with Aspergers are complex. Females seeking professional help are often overlooked, and sometimes belittled or misdiagnosed.

3. An Effective Diagnosis Tool Exists for Females with Aspergers

There is no blood or DNA test for Aspergers. No one knows what causes Aspergers or if Aspergers is actually a condition, and not just a way of looking at the world differently. The diagnostic tools, such as surveys, are based on male-dominant Aspergers’ traits that do not take into account how the female’s brain and the female’s role in society differs from the male experience. Diagnosis is largely based on relatives’ observations and individual case history, and is determined by professionals who often do not understand the female traits of the syndrome.

4. People with Aspergers Lack Empathy

Females with Aspergers usually have a great deal of empathy for animals, nature, and people.  A female’s (with Aspergers) specific facial features, body language, tone of voice, laughter, and word choice might result in an observer misjudging a female’s (with Aspergers) thoughts, feelings, and intentions. Women and girls with Aspergers are often deep philosophical thinkers, poets, and writers—all traits that require a sense of empathy. Females with Aspergers usually try very hard to relate another’s experience to their own experience, in hopes of gaining understanding.

5. People with Aspergers are Like a Television Character

Many individuals have learned not to compare an ethnic minority group to a character on television, because such comparison is a form of stereotyping and racism. However, people are comparing male fictional characters on television to females with Aspergers. This happens usually without intention to harm, but out of a desire to understand. People with Aspergers aren’t living in a sitcom. There is a need for a greater degree of understanding beyond observing an entertainer.

6. Aspergers is No Big Deal

People with Aspergers often face daily challenges. There is no magic pill to make an Aspergers brain think differently. People with Aspergers see the world in another way than the majority. Females with Aspergers are not different in a way that needs to be improved. They are different in a way that requires support, empathy, and understanding from the mainstream. Aspergers is a big deal. The diagnosis can bring varying degrees of grief, acceptance, depression, confusion, closure, and epiphany. Here are just a few of the conditions a female with Aspergers might experience: sensory difficulties, OCD, phobias, anxiety, fixations, intense fear, rapid-thinking, isolation, depression, low self-esteem, self-doubt, chronic fatigue, IBS, shame, confusion, trauma, abuse, bullying, and/or loss of relationships.

7. Aspergers Doesn’t Exist

Aspergers does exist. There is a subgroup of females all exhibiting and experiencing almost the exact same traits. If there is no Aspergers then something dynamic is happening to hundreds upon hundreds of women; this something, whatever one chooses to label the collection of traits, requires immediate evaluation, understanding, support, educational resources, and coping mechanisms.

8. There are More Males than Females with Aspergers

In regards to comparing females and males with Aspergers, just like our history textbooks, more males are in the spotlight than females. Males are typically the doctors, professionals, and researches of Aspergers—males that do not have Aspergers and who obviously aren’t females. Thousands of females with Aspergers remain undiagnosed. Hundreds of women are searching social networks and the Internet daily for answers, connection, and understanding about themselves and/or their daughters.

9. Females with Aspergers Don’t Make Good Friends

Females with Aspergers are all different. Just like everyone else, they have their quirks and idiosyncrasies.  Many females with Aspergers are known for their loyalty, honesty, hard work ethics, compassion, kindness, intelligence, empathy, creativity, and varied interests and knowledge base. Females with Aspergers, like anyone, have the capacity to make fantastic friends, coworkers, and spouses, if, and when, they are treated with respect, love, understanding, and compassion.

10. Aspergers isn’t Something that Affects My Life

More and more children are being diagnosed with Aspergers. Adult males and females are realizing they have the traits of Aspergers Syndrome. The rise in Aspergers is a financial strain on the educational system and medical system. There isn’t adequate information, support, and resources available to assist people with Aspergers and their families. There is probably someone in your local community who has Aspergers Syndrome. You can make a difference. Just share your knowledge and understanding. Pass on this list of myths or other resources.

Ten Traits of Females with Aspergers link

 

Taken by Sam Craft

			

Twenty-Eight: Giving a Child with Aspergers a Break

 

Giving a Child with Aspergers a Break

Be. Let the words pour out of the child. Let the busy thoughts escape the mind. Let him speak as long as he wants about whatever he wants. Set no time limits. Welcome the rambling, digressions, repetitions, and dissertations. Be present, without interjection or correction. Allow time periods with no communication rules, lessons, examples, rights, or wrongs. Let the child release the pressure in his mind. Take long walks and car rides together, and just listen. Let him be himself.

Retreat. Grant her a day of rejuvenation, a full day with no visitors, appointments, outings, sports, or any mandatory doings. Keep the day free of all restrictions, chores, and obligations. Stay in pajamas. Allow escape, isolation, and repetitive activities. Give her the chance to rebuild her stamina. Provide solitude and comfort. Stay home from school one day. Peel away the rules and regiment. Let her retreat.

Environment. Ask about sensory concerns in the environment. What causes you discomfort in this space? How are the lights? The chair? The sounds? The smells? The flooring? The pictures? How do your clothes feel? Your hair? Your skin? Where is there discomfort? How can I help? What does it feel like? Describe it. How is the shower? The bath? Do you hurt? Where do you feel the safest sitting? What is hard to tolerate? Do you need sunglasses? A pillow? Earplugs? Let him create a more comfortable environment for himself.

Active Interest. Show interest in her special interest. Don’t call it an obsession or fixation. Call it an interest or passion. Participate. Explore and collect. Be together. Establish a schedule. Make the special interest a priority. Place the passion in a spotlight of acceptance. Establish a blog, newspaper, journal, comic, drawing, song, rhyme, act, or other creative outlet to express the interest. Let the creativity blossom. Welcome the opportunity for connection. Let go of the need to control, fix, alter, or end the special interest. Replace objection with acceptance. Replace disinterest with interest. Celebrate new discoveries. Use the interest as a therapeutic tool. Allow him the freedom to escape from the challenges of his world.

aKnowledge. Acknowledge characteristics, talents, skills, and intelligence. List positive attributes. Don’t pretend anything is easy. Be a warrior and teach how to be a warrior. Don’t try to change the child. Imagine how scary his world is. Tell him he is very brave. Tell him he is not alone in the world. Share others’ stories. Find an adult with similar challenges who is an effective role model. Watch movies about Aspergers. Know the child wants nothing more than to be good, to do good, and to feel good. Explain that he is never a failure and always a success. Tell him you hope he tries his best, but on the days he doesn’t feel like he can try, that’s okay. Tell him he has a right to hurt and be scared. Tell him he is a gift and that there is nothing he can do to make you stop loving him. Tell him he is perfect. Tell him even though you aren’t him, you can imagine how hard life must be for him. Ask how he is feeling. Never minimize or discount. Never say it’s not that bad or things could be worse. Say you are getting stronger and wiser every day. Believe in him.


© Everyday Aspergers, 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. https://aspergersgirls.wordpress.com.  spectrumgirls@gmail.com
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