Month: April 2012

Day 78: I Sail On

| Aspergers Girls

I awoke with an awful anxiety. This I recognize as a pressure that cries to be released. Though there remains this fine line in what I truly want to pour out on these pages and what society expects, accepts, and wants.

In some ways I’ve turned this blog into another player in my game. This game I’ve played since I was old enough to know that if I was nice enough, funny enough, and interesting enough, people would pay attention to me. And in turn, if I exhibited too much honesty, was too revealing, or too straightforward, people would reject me, or worse, simply disappear.

A woman with Aspergers remains a constant actress. There is no escaping this. And to me this is the thorn of having Aspergers. I continually scope and evaluate. I look at others’ actions and responses, more so than many can phantom. Some of the observations breed questions, a continual whirlwind in my mind. I wonder the simplest of thoughts, such as what was the motivation behind that person’s comment to more complex thoughts of what is the motivation behind my writing.

My mind forms a tumble weed of sorts, spinning and rounding the field, pushing up dust and debris. The child in me watches in fascination, the driver, the one avoiding the tumbling of thoughts, tries best to steer away. Still in the distant, regardless of my view, the tumbleweed remains spinning.

Some might think: Write what you want. Who cares what people think.

If only I were so simple. If my mind worked in the aforementioned fashion, this blog wouldn’t be a blog about a woman with Aspergers. I guarantee that.

With Aspergers one of the biggest burdens is: Thinking about what you are thinking about me. It’s not narcissistic or selfish. It stems from wanting to be seen, be valued, be loved, and be recognized for who I am. It stems from not wanting to be misjudged, misinterpreted, misunderstood, ostracized, dejected, alienated, stabbed in the back and persecuted. It stems from a lifetime of recognizing I don’t quite fit in with the mainstream, and if I don’t learn the norms, the unspoken rules, and then pretend to a degree and assimilate, I never will fit in.

It comes down to the options of fake a little or break a little. And I’ve been broken. The little bit of faking leads to a little bit of guilt, and continued self-analysis and reasoning of how to be a better person.

In a lot of ways I am in a perpetual state of figuring out how to be a better person. I recognize I’m good enough. I recognize I’m beneficial. I love me. Those aren’t the issues. The issue at hand is trying to be seen by you in the same way I see myself. This barrier remains, this veil that divides us all, and how I long to merge with others and be entirely one.

http://news.bbc

At times, having Aspergers is a feeling liken to being an ugly duckling that transforms into the beauty of swan, only swan is wondering why ugly duckling was not good enough for the world. Why ugly duckling has to be swan to be loved.

I extrapolate there is much shame inside of me. This shame is a part of me. I don’t see shame as wrong or needing fixing. I don’t’ see any part of my life as wrong, wasted, or unnecessary, and certainly not bad.

The shame stems from wanting to be as authentic and real as humanly possible. Only in being human, I have a mind that wants to protect me.

I want to be a ship in the night that sails with all the other ships in a forging fleet across the ocean waters; I don’t want to be a lone ship. But if I am myself in total, I will likely be cast out to the rough waters, banished from the refuge of loving souls.

http://intheboatshed.net/

The fear arising today is a fear based on the future—a fear of not knowing which route to take, how to steer, where to go. I recognize this fear. I wave to it. I speak to it. And in so doing, I lessen fear. But the specks that remain speak volumes and still haunt me.

I have this spirit inside of me that both longs to share her soul and light but that also longs to retreat into a hovel where no one can penetrate my skin.

This fear rises in thought of where my writings are traveling. Who reads these words. And what is to become of these words.

My dream is to publish, whether through self-publishing or a literary agent. But this, I am certain is many writers’ dreams. I feel guilt in dreaming. A concept I don’t quite grasp.

Still I dream.

And in my dreaming I do find hope. In another reading these words, I find hope. And so I sail on; whether lone ship or in the company of masses, I sail on.

Day 77: Holding On

| Aspergers Girls
http://www.etsy.com/

If I was to turn back the pages of my life, to the first calm months at my stepfather’s house, my days would appear wonderfully simple and sweet, and in truth they were.  It was a time when a gentle thread of calm and security weaved through my days.  A brief moment I fondly remember and continually reflect back upon, perhaps in an attempt to regain some semblance of normalcy or to remind myself there was some good.

There weren’t any worries about money.  My stepfather Drake was an attorney and helped the city officials acquire land for approved projects, which sometimes meant property owners had to give up their homes.  It was rumored much later, when I was an adult, that Drake’s firm was actually responsible for my great-grandmother having to abandon her house in Monterey, California for demolition, to make way for a multi-level parking garage for tourists…

The rest of this story is in the book Everyday Aspergers

 

Day 76: The Blind Woman

| Aspergers Girls

I returned to the lab this morning to get my blood work done. Yesterday, I was turned away, because I’d not realized I needed to fast. Yesterday the lab’s waiting room had been crowded.

Today when I entered the room, there was no person in the waiting area but me.

Shortly after I sat down, a young lady escorted an elderly Chinese woman inside. I immediately noticed the elderly woman’s eyes. They were shut closed. The young woman led the blind woman to a chair, before she quickly exited to park the car.

For the time, it was only me and the blind woman. The woman was seated across from me about six-feet away. As I smiled out at her, I realized she did not know I was in the room.

I hesitated to speak. But I was compelled to make my presence known. Leaning forward in my chair, I offered the woman a gentle good morning. Then I wondered what had caused her blindness. Wondered why she had to have blood work done. And wondered, too, why her lids were so tightly sealed together.

There was only seconds between the time I said good morning and the time the woman took to respond. Upon hearing my words, she searched for me, her head slightly turning my direction. Again, I wondered.

“Good morning,” the old woman answered, with an inflection and spirit liken to a young person. And then, without pause, she continued. “I so, so, scared,” she said in broken English. “I so, so, scared,” she said again.

She placed her aged hand over her chest and flapped her hand repeatedly. “I no like when they put the point in me,” she confessed. She attempted a smile. Without the use of her eyes for expression, the rest of her—arms, mouth, head, wrinkles, shoulders—they all played their part.

She curled into herself and then used her hand to demonstrate a beating heart again. “I been here many times. No make difference. I still get so scared. I can’t help. I don’t like be here. So, so scared.”

I tried my best to offer her some comfort through my words. I don’t think she understood anything I said. But she smiled just the same. To be heard—she only needed to be heard.

Soon the young escort returned, and I was called in for my blood draw.

This blind woman was a wonderful gift.

In the few moments this woman had shared her truth, I had stood beside her in spirit. And as I stood by, I had recognized my own self in her. With my recognition, my own fears were temporarily lessened. In viewing our likeness, my own misgivings were decreased.

In being there, hearing her voice, and  recognizing our shared humanity, I understood this:

In an often obscured world we are each, in our own way, waiting for our voice to be heard.

Day 75: A Good Day in My Book

| Aspergers Girls
Image found at CHAAR - Click for link

Alternate Title: What Accounts for a Good Day in my Book…assuming I had a book, which I don’t. That’s why I blog.

I seem to be big into the alternate titles. It would be fun to make a list of alternative titles for people, places, and things. I bet you can think of a few alternative titles you’d like to call some people! Of course, I mean this in friendly, Buddhist-minded terms—like the enlightened one and the gentle being.

Okay, so I’m a goof. This I know. Nothing wrong with goof, except that goof is closely related to the spelling of goon and goob. Coincidence? I think not.

Backspace, Samantha.

Speaking of the name Samantha, I’ve been using the name Sam so much to answer readers’ comments that I’ve started answering some of my personal emails with the name Sam, instead of my given legal name. I find this quite funny. I imagine getting an email back from a close friend I have known for twenty years, and her signing her name “Rhonda” instead of “Lisa,” and that just cracks me up. I’d be thinking: This chick has surely flipped. Then I’d be thinking what does “flipped out” mean, and what is the origin of this saying. I digress.

If you ever read a post of mine and I come across as level-headed, straight to the point, dry and organized, please assume I have been taking over by a life-sucking pod like in the classic horror flick The Body Snatchers. I am not going to wake up one day, in this same human form anyhow, and be able to stick to one agenda or one point, unless I’m making a list. And even then, the list will likely meander or be super long. I don’t get how someone can just list a few facts and be done. If I tried to do that I would have so much stuff leftover in my brain, I’d need three more blogs to write the rest of the list.

Hmmmm? Have you ever noticed how some bloggers have more than one blog? Maybe it’s so they can appear sane. But I bet if you put a person’s multiple blogs’ blogging-words (posts) together, the combined words would create and entirely different profile. Something to think about if you work for the secret-service, FBI, or stalk people.

Invasion of the Body Snatchers
Found at All Movies; click for link

Don’t worry. I’m sticking to one blog with posts that could easily over spill into three more days of posts.

Backspace, Samantha.

I want to talk about how people used to say: The field of battle, and how they now say battlefield, and how the field of battle sounds so much cooler. I can picture a bunch of goobs upping their sophistication level ten marks, while munching open-mouthed on chips and dip, by saying, the field of football. But I’m not here to talk about that. But what other ways could we feasibly employ this sentence structure…Beatles song: “Fields of Strawberries forever.”

I wonder why I couldn’t focus in school? I still don’t agree with the one comment on my fifth grade report card: Has trouble occupying self when finishes work early. I’m certain I was occupying myself fully. I just happened to appear comatose and staring off in space. No doubt. Unless I was body-snatched since then.

Do you see how I did a full circle back to the previous prose in the last sentence? That is the sign of a gifted writer—or a rambling circular-state, similar to when a dog chases its tail. Dogs are cute. I’m okay with that. No butt sniffing though. Or licking, or poop eating, or garbage hounding…crap, for being so cute, dogs do a lot of gross-me-out stuff.

Image found at Spiritually Directed

Backspace, Samantha.

I better stop myself. How do I do that? First scroll up to remember what the heck the original title of this post was. Now focus.

Good day? Well so far today sucks rotten eggs. It’s only ten in the morning and I am yawning constantly, dealing with a leg cramp, messed up the time of my massage appointment (= no massage), waited in the waiting room for blood tests, until I found out I was supposed to fast (= no blood test), opened an envelope with unexpected and unwanted bill, and opened a new loaf of bread to discover clouds of green mold.

Here’s what a Good day looks like in my book:

A Good Day in My Book

  1. The internet works efficiently and I can log on and obsess about my social network group page and my blog stats.
  2. When I slept the whole night through without being disturbed by a dog’s bark, my husband’s restless leg, or nightmares where I find myself back at college, only I’ve forgotten how to find the classroom and I’m late to class.
  3. When there is some form of chocolate in the house that I can reach and open with little effort.
  4. When no one rants, raves, whines, or screams at me.
  5. When I can stay in my pajamas all day, not brush my hair, have no appointments, feel no attachment to doing chores, and my husband cleans the dishes and brings home takeout.
  6. When Netflix adds new television series to the menu. Especially intense documentaries, genius comics, and the show Weeds.
  7. When someone calls and says something nice, like I love you, Let’s get together soon, or Can I please, please, come and clean your house and watch your kids? It would mean a lot to me.
  8. When my dog doesn’t eat my underwear.
  9. When I can think of something to write without having to watch two hours of Internet videos first for inspiration and without having to delete the three page post I wrote while tipsy.
  10. When a reader truly gets me and I find a way to make her or him smile.
  11. When I reread Tony Attwood’s (Aspegers guru, author, speaker) email complimenting my blog and specifically the list of female traits for females with Aspergers.

All in all, yesterday was a good day in my book. Everything on the list happened, except no one volunteered to come over to the house and my dog ate my underwear, again. She only eats my underwear. Makes me wonder. But that will have to wait for another post.

Here Comes The Sun. Oh, and here comes Spastic Colon, my dog, with my underwear!

Day 74: Fitting In

| Aspergers Girls
No makeup. Hair needs to be brushed. Oh, crap, I haven't even brushed my teeth yet. This is like camping all over again! Thank you Grandma for my clear skin. Thank you Dad for my Italian nose. Thank you hands for pulling back all my wrinkles!
If you click on this photo, you will see a messy study. A sign of genius. I can't even stop rambling about a photo. May the Gods help me! Everyday Aspergers -- Samantha

“Life is a pair of skinny jeans and you are a big fat ass. That’s it. It’s uncomfortable being a human being.” ~ Tom Papa (comedian)

I wanted the title to be: Fitting In. You are Weird and a Big Fat Ass, but I thought people might take it the wrong way.

The more I’m sharing about myself, my quirks, my outlooks, my geek posse, my fears, my memories, my embarrassing moments, even my empathic experiences, I’m realizing I am not an alien after all! In fact, I’m thinking some of you might be aliens.

A dimmer switch for Sir Brain would be nice. Sometimes herbs and exhaustion help to dim the thoughts. Wine helps, and the ingredients in certain brownies that I will never try again. One word: Paranoia. I actually visited all the layers of hell—anyone smiling knows what I mean. I could digress on this subject and make you laugh hysterically. Major chocolate craving coming on…

Anyhows…(I meant to put an S there for effect. But now that I’ve explained this the effect is gone. But I didn’t want anyone to think I couldn’t spell anyhow and pass judgment. Because I live in constant fear of people finding flaws and errors in my ways and passing judgment.)

Anyhow…It’s sure nice to know I’m not alone. Sure nice to know everyone is messed up (I mean that in a good way). Nice to know, too, that most of you have all the same thoughts and weirdness I do, but you have the ability to keep most clammed up and shut away inside. Which, I guess, has its drawbacks, too. At least I’ll never explode because I held too much back. I’m not a slow ticking time bomb (despite what my mother-in-law once wrote about me).

I am like a garden hose set on slow drip—the perfect companion to a thirsty dog or playful child in the heat of the summer days.

Writing this off the top of my head. Let’s see what comes out. Drip, drip, drip…

We are All Weird

We are all weird

We are all trying to fit in

We aren’t happy all the time

We’ll never be happy all the time

That’s an illusion

We worry

We fear

We dream, sometimes big

We wish and wish and wish

We copy and imitate in hopes of being accepted

We try to figure others out

Try even harder to figure our own self out

We cry at sad movies

We laugh at dumb jokes

We light up a room

And can bring about feelings of gloom

We are powerful, magical, mysterious

And filled with a gentle charm

Our esteem is worthy

Even though we may not know

Our life has purpose

Even as we search

We are so remarkably fantastically beautiful

A reflection of beauty

One to the other

I’m so happy to know you

Each and everyone

So happy to stand in your light

Breathe in your energy

Breathe out your kindness

There is no better blessing

Than knowing you are not alone

That there is always a hand, a smile, a knowing wink

I giggle at our quirks

I celebrate our uniqueness

But I dwell and live fullest in our connection

The connection we share in seeing one in the other

Okay. This is a little beyond PG-rated, but as you’re my friend, and all, I just have to say, if you search online videos for “fitting in” there seems to be a lot of bike fitting, horse saddle fitting, golf club fitting, clothing fitting, fake male “private parts” fitting. Oops. I hope I didn’t just steer someone in the wrong direction! Don’t want you to obsess about the fit of your saddle.

Serious and Uplifting. He makes a lot of good videos.

Funny!